메뉴 건너뛰기




Volumn 40, Issue 4, 2012, Pages 318-327

The views of people who care for adults with Down's syndrome and dementia: A service evaluation

Author keywords

Carers; Dementia; Down's syndrome; Family; Staff

Indexed keywords


EID: 84869174323     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2011.00714.x     Document Type: Article
Times cited : (23)

References (34)
  • 1
    • 0034296406 scopus 로고    scopus 로고
    • Narratives of family caregiving: four story types
    • Ayres L. (2000) Narratives of family caregiving: four story types. Res Nurs Health, 23: 359-71.
    • (2000) Res Nurs Health , vol.23 , pp. 359-371
    • Ayres, L.1
  • 2
    • 0346646738 scopus 로고    scopus 로고
    • When parents relinquish care: informal support networks of older people with intellectual disabilities
    • Bigby C. (1997) When parents relinquish care: informal support networks of older people with intellectual disabilities. J Appl Res Intellect Disabil, 10: 333-44.
    • (1997) J Appl Res Intellect Disabil , vol.10 , pp. 333-344
    • Bigby, C.1
  • 3
    • 12144286106 scopus 로고    scopus 로고
    • Risk factors for dementia in people with Down syndrome: Issues in assessment and diagnosis
    • Bush A. & Beail N. (2004) Risk factors for dementia in people with Down syndrome: Issues in assessment and diagnosis. Am J Ment Retard, 109: 83-97.
    • (2004) Am J Ment Retard , vol.109 , pp. 83-97
    • Bush, A.1    Beail, N.2
  • 4
    • 0002941725 scopus 로고
    • Assessment of cognitive function in persons with Down's syndrome who develop Alzheimer's disease
    • Berg J.M., Karlinsky H., Holland A.J., editors. Oxford, Oxford University Press:
    • Crayton L. & Oliver C. (1993) Assessment of cognitive function in persons with Down's syndrome who develop Alzheimer's disease. In: Berg J.M., Karlinsky H., Holland A.J., editors. Alzheimer's disease, Down's syndrome and their relationship. Oxford, Oxford University Press: 135-53.
    • (1993) Alzheimer's disease, Down's syndrome and their relationship , pp. 135-153
    • Crayton, L.1    Oliver, C.2
  • 6
    • 84869188537 scopus 로고    scopus 로고
    • Psychological and other non-pharmacological interventions in services for people with learning disabilities and dementia
    • Dodd K. (2010) Psychological and other non-pharmacological interventions in services for people with learning disabilities and dementia. Adv Ment Health Learn Disabil, 4: 28-36.
    • (2010) Adv Ment Health Learn Disabil , vol.4 , pp. 28-36
    • Dodd, K.1
  • 9
    • 33947675903 scopus 로고    scopus 로고
    • Evidence-based psychological treatments for distress in family carers of older adults
    • Gallagher-Thompson D. & Coon D.W. (2007) Evidence-based psychological treatments for distress in family carers of older adults. Psychol Ageing, 22: 36-51.
    • (2007) Psychol Ageing , vol.22 , pp. 36-51
    • Gallagher-Thompson, D.1    Coon, D.W.2
  • 10
    • 34548350095 scopus 로고    scopus 로고
    • Partnerships with families over the life course
    • Nolan M., Lundh U., Grant G., Keady J., editors. Maidenhead, Open University Press:
    • Grant G. & Whittell B. (2003) Partnerships with families over the life course. In: Nolan M., Lundh U., Grant G., Keady J., editors. Partnerships in family care: understanding the caregiving career. Maidenhead, Open University Press: 90-107.
    • (2003) Partnerships in family care: understanding the caregiving career , pp. 90-107
    • Grant, G.1    Whittell, B.2
  • 11
    • 84993699128 scopus 로고    scopus 로고
    • Planning ahead: meeting the needs of older people with intellectual disability in the UK
    • Hatzidimitriadou E. & Milne A. (2005) Planning ahead: meeting the needs of older people with intellectual disability in the UK. Dementia, 4: 341-59.
    • (2005) Dementia , vol.4 , pp. 341-359
    • Hatzidimitriadou, E.1    Milne, A.2
  • 12
    • 0025918759 scopus 로고
    • The prevalence of dementia in Europe: a collaborative study of an 1890-1990 findings
    • Hoffman A., Rocca W.A. & Brayne C. (1991) The prevalence of dementia in Europe: a collaborative study of an 1890-1990 findings. Int J Epidemiol, 20: 736-43.
    • (1991) Int J Epidemiol , vol.20 , pp. 736-743
    • Hoffman, A.1    Rocca, W.A.2    Brayne, C.3
  • 13
    • 0034125007 scopus 로고    scopus 로고
    • Incidence and course of dementia in people with Down's syndrome: findings from a population-based study
    • Holland A.J., Hon J., Huppert F. & Stevens F. (2000) Incidence and course of dementia in people with Down's syndrome: findings from a population-based study. J Intellect Disabil Res, 44: 138-46.
    • (2000) J Intellect Disabil Res , vol.44 , pp. 138-146
    • Holland, A.J.1    Hon, J.2    Huppert, F.3    Stevens, F.4
  • 14
    • 34547910451 scopus 로고    scopus 로고
    • A comparison of challenging behaviour in an adult group with Down's syndrome and dementia compared with an adult Down's syndrome group without dementia
    • Huxley A., Van-Schaik P. & Witts P. (2005) A comparison of challenging behaviour in an adult group with Down's syndrome and dementia compared with an adult Down's syndrome group without dementia. Br J Learn Disabil, 33: 188-93.
    • (2005) Br J Learn Disabil , vol.33 , pp. 188-193
    • Huxley, A.1    Van-Schaik, P.2    Witts, P.3
  • 15
    • 0039884002 scopus 로고    scopus 로고
    • Supporting people with dementia in community settings
    • Janicki M.P., Ansello A.F., editors. Baltimore, Paul H. Brookes Publishing
    • Janicki M.P., McCallion P. & Dalton A.J. (2000) Supporting people with dementia in community settings. In: Janicki M.P., Ansello A.F., editors. Community supports for ageing adults with lifelong disabilities. Baltimore, Paul H. Brookes Publishing: 387-413.
    • (2000) Community supports for ageing adults with lifelong disabilities , pp. 387-413
    • Janicki, M.P.1    McCallion, P.2    Dalton, A.J.3
  • 16
    • 4344710306 scopus 로고    scopus 로고
    • Family care decision-making in later life: the future in now
    • Nolan M., Lundh U., Grant G., Keady J., editors. Maidenhead, Open University Press:
    • Llewellyn G. (2003) Family care decision-making in later life: the future in now. In: Nolan M., Lundh U., Grant G., Keady J., editors. Partnerships in family care: understanding the caregiving career. Maidenhead, Open University Press: 145-66.
    • (2003) Partnerships in family care: understanding the caregiving career , pp. 145-166
    • Llewellyn, G.1
  • 17
    • 84993087688 scopus 로고    scopus 로고
    • Screening adults with Down's syndrome for early signs of Alzheimer's disease
    • McBrien J., Whitman S., Olverman K. & Masters S. (2005) Screening adults with Down's syndrome for early signs of Alzheimer's disease. Learn Disabil Rev, 10: 23-32.
    • (2005) Learn Disabil Rev , vol.10 , pp. 23-32
    • McBrien, J.1    Whitman, S.2    Olverman, K.3    Masters, S.4
  • 18
    • 0036741059 scopus 로고    scopus 로고
    • Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia
    • McCarron M., Gill M., Lawlor B. & Begley C. (2002) Time spent caregiving for persons with the dual disability of Down's syndrome and Alzheimer's dementia. J Learn Disabil, 6: 263-79.
    • (2002) J Learn Disabil , vol.6 , pp. 263-279
    • McCarron, M.1    Gill, M.2    Lawlor, B.3    Begley, C.4
  • 19
    • 77953215137 scopus 로고    scopus 로고
    • National Institute for Health and Clinical Excellence and Social Care Institute for Excellence. London, National Institute for Health and Clinical Excellence.
    • National Institute for Health and Clinical Excellence and Social Care Institute for Excellence. (2006) Dementia: supporting people with dementia and their carers. London, National Institute for Health and Clinical Excellence.
    • (2006) Dementia: supporting people with dementia and their carers
  • 20
    • 0031796972 scopus 로고    scopus 로고
    • A four year prospective study of age-related cognitive change in adults with Down's syndrome
    • Oliver C., Crayton L., Holland A., Hall S. & Bradbury J. (1998) A four year prospective study of age-related cognitive change in adults with Down's syndrome. Psychol Med, 28: 1365-77.
    • (1998) Psychol Med , vol.28 , pp. 1365-1377
    • Oliver, C.1    Crayton, L.2    Holland, A.3    Hall, S.4    Bradbury, J.5
  • 21
    • 0034373178 scopus 로고    scopus 로고
    • Characteristics of staffed community housing services for people with learning disabilities: a stratified random sample of statutory, voluntary and private agency provision
    • Perry J., Lowe K., Felce D. & Jones S. (2000) Characteristics of staffed community housing services for people with learning disabilities: a stratified random sample of statutory, voluntary and private agency provision. Health Soc Care Commun, 8: 307-15.
    • (2000) Health Soc Care Commun , vol.8 , pp. 307-315
    • Perry, J.1    Lowe, K.2    Felce, D.3    Jones, S.4
  • 22
    • 0028838157 scopus 로고
    • Age-specific prevalence, thyroid dysfunction and depressive symptoms in adults with Down syndrome and dementia
    • Prasher V.P. (1995) Age-specific prevalence, thyroid dysfunction and depressive symptoms in adults with Down syndrome and dementia. Int J Geriatr Psychiatry, 10: 25-31.
    • (1995) Int J Geriatr Psychiatry , vol.10 , pp. 25-31
    • Prasher, V.P.1
  • 23
    • 0002546859 scopus 로고
    • A comprehensive analysis of anticipatory grief: perspectives, processes, promises and problems
    • Rando T.A., editor. Lexington, Lexington Books:
    • Rando T.A. (1986) A comprehensive analysis of anticipatory grief: perspectives, processes, promises and problems. In: Rando T.A., editor. Loss and anticipatory grief. Lexington, Lexington Books: 3-38.
    • (1986) Loss and anticipatory grief , pp. 3-38
    • Rando, T.A.1
  • 24
    • 0024942547 scopus 로고
    • Down syndrome, terminal illness and risk for dementia of the Alzheimer type
    • Schupf N., Silverman W.P., Sterling R.C. & Zigman W.M. (1989) Down syndrome, terminal illness and risk for dementia of the Alzheimer type. Brain Dysfunction, 2: 181-8.
    • (1989) Brain Dysfunction , vol.2 , pp. 181-188
    • Schupf, N.1    Silverman, W.P.2    Sterling, R.C.3    Zigman, W.M.4
  • 25
    • 84869188536 scopus 로고
    • Hampshire Social Services. () Hampshire Assessment for Living with Others (HALO) Short Form. Unpublished.
    • Shackleton Bailey M., Pidock B. & Hampshire Social Services. (1987) Hampshire Assessment for Living with Others (HALO) Short Form. Unpublished.
    • (1987)
    • Shackleton Bailey, M.1    Pidock, B.2
  • 26
    • 0002155947 scopus 로고
    • Semi-structured interviewing and qualitative analysis
    • Smith J.A., Harre R., Van Langenhove L., editors. London, Sage Publications:
    • Smith J.A. (1995) Semi-structured interviewing and qualitative analysis. In: Smith J.A., Harre R., Van Langenhove L., editors. Rethinking methods in psychology. London, Sage Publications: 9-26.
    • (1995) Rethinking methods in psychology , pp. 9-26
    • Smith, J.A.1
  • 28
    • 84869165213 scopus 로고    scopus 로고
    • Dementia in Older Adults with intellectual disabilities. A report on the State of science on dementia in older adults with Intellectual disabilities by the IASSID Special Interest Research Group on Ageing and Intellectual Disabilities..(accessed 2 June 2009).
    • Strydom A., Lee L., Jokinen N., Shooshtari S., Raybar V. et al. (2009) Dementia in Older Adults with intellectual disabilities. A report on the State of science on dementia in older adults with Intellectual disabilities by the IASSID Special Interest Research Group on Ageing and Intellectual Disabilities. http://www.iassid.org/pdf/State%20of%20Science%20on%20Dementia.pdf (accessed 2 June 2009).
    • (2009)
    • Strydom, A.1    Lee, L.2    Jokinen, N.3    Shooshtari, S.4    Raybar, V.5
  • 29
    • 0036099994 scopus 로고    scopus 로고
    • Growing older with learning disabilities
    • Thompson D. (2002) Growing older with learning disabilities. J Learn Disabil, 6: 115-22.
    • (2002) J Learn Disabil , vol.6 , pp. 115-122
    • Thompson, D.1
  • 30
    • 0002345660 scopus 로고    scopus 로고
    • Standards for research projects and theses involving qualitative methods: suggested guidelines for trainees and courses
    • Turpin G., Barley V., Beail N., Scaife J., Slade P. et al. (1998) Standards for research projects and theses involving qualitative methods: suggested guidelines for trainees and courses. Clin Psychol Forum, 108: 3-7.
    • (1998) Clin Psychol Forum , vol.108 , pp. 3-7
    • Turpin, G.1    Barley, V.2    Beail, N.3    Scaife, J.4    Slade, P.5
  • 32
    • 25844519064 scopus 로고    scopus 로고
    • The Carers' Needs Assessment for Dementia (CNA-D): development, validity and reliability
    • Wancata J., Krautgartner M., Berner J., Alexandrowicz R., Unger A. et al. (2005) The Carers' Needs Assessment for Dementia (CNA-D): development, validity and reliability. Int Psychogeriatr, 17: 393-406.
    • (2005) Int Psychogeriatr , vol.17 , pp. 393-406
    • Wancata, J.1    Krautgartner, M.2    Berner, J.3    Alexandrowicz, R.4    Unger, A.5
  • 33
    • 33644919368 scopus 로고    scopus 로고
    • Critical issues for service planners and providers of care for people with Down's syndrome and dementia
    • Watchman K. (2003) Critical issues for service planners and providers of care for people with Down's syndrome and dementia. Br J Learn Disabil, 31: 81-4.
    • (2003) Br J Learn Disabil , vol.31 , pp. 81-84
    • Watchman, K.1
  • 34
    • 84993781879 scopus 로고    scopus 로고
    • Equipping staff to support people with an intellectual disability and dementia in care home settings
    • Wilkinson H., Kerr D. & Cunningham C. (2005) Equipping staff to support people with an intellectual disability and dementia in care home settings. Dementia, 4: 387-400.
    • (2005) Dementia , vol.4 , pp. 387-400
    • Wilkinson, H.1    Kerr, D.2    Cunningham, C.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.