Very long pathways to diagnosis among African Americans and Hispanics with memory and behavioral problems associated with dementia

Dementia

Volumn 11, Issue 6, 2012, Pages 743-763

  Schrauf, Robert W ^a   Iris, Madelyn ^b,c  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b Leonard Schanfield Research Institute   (United States)

^c CJE SeniorLife   (United States)

Author keywords

correspondence analysis; delays to diagnosis; dementia; help seeking pathways; social course of illness

Indexed keywords

EID: 84869017614     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301211416615     Document Type: Article

References (43)

1. Belli R. F.The structure of autobiographical memory and the event history calendar: Potential improvements in the quality of retrospective surveys.Memory. 1998;6 (4): 383-406.
2. Bluck S.,Li K. Z. H.Predicting memory completeness and accuracy: Emotion and exposure in repeated autobiographical recall.Applied Cognitive Psychology. 2001;15:145-158.
3. Boise L.,Morgan D. L.,Kaye J.,Camicioli R.Delays in the diagnosis of dementia: Perspectives of family caregivers.American Journal of Alzheimer's Disease and Other Dementias. 1999;14:20-26.
4. Cameron L. D.,Leventhal E. A.,Leventhal H.Seeking medical care in response to symptoms and life stress.Psychosomatic Medicine. 1995;57:37-47.
5. Chodosh J.,Petitti D. B.,Elliott M.,Hays R. D.,Crooks V. C.,Reuben D. B., et al.Physician recognition of cognitive impairment: Evaluating the need for improvement.Journal of the American Geriatrics Society. 2004;52 (7): 1051-1059.
6. Clark C.,DeCarli C.,Mungas D.,Chui H.,Higdon R.,Nunez J., et al.Earlier onset of Alzheimer's disease symptoms in Latinos compared with Anglo individuals.Archives of Neurology. 2005a;62:774-778.
7. Clark P. C.,Kutner N. G.,Goldstein F. C.,Peterson-Hazen S.,Garner V.,Zhang R., et al.Impediments to timely diagnosis of Alzheimer's disease in African Americans.Journal of the American Geriatrics Society. 2005b;53:2012-2017.
8. Clausen S.-E.Applied correspondence analysis: An introduction. Thousand Oaks, CA: Sage Publications; 1998:.
9. Cox C.,Monk A.Strain among caregivers: Comparing the experiences of African American and Hispanic caregivers of Alzheimer's relatives.International Aging and Human Development. 1996;43:93-105.
10. Cox C. M. A.Minority caregivers of dementia victims: A comparison of Black and Hispanic families.The Journal of Applied Gerontology. 1990;9:340-354.
11. Dilworth-Anderson P.,Williams I. C.,Gibson B. F.Issues of race, ethnicity, and culture in caregiving research: A 20-year review (1980-2000).The Gerontologist. 2002;42 (2): 237-272.
12. Drebing C.,Movitz R.,Lyon P.,Harden T.,McCarty E.,Herz L.Documenting pathways to dementia care: Relative validity of questionnaire, interview, and medical record formats.American Journal of Alzheimer's Disease and Other Dementias. 2004;19 (3): 187-197.
13. Greenacre M.Correspondence analysis in medical research.Statistical Methods in Medical Research. 1992;1:97-117.
14. Greenacre M.Correspondence analysis in the social sciences. Greenacre M.Blasius J., ed. New York: Academic Press; 1994:3-22.
15. Greenberg J. R.,Monson T.,Gesino J.Development of University of Wisconsin Family Assessment Caregiver Scale (UW-FACS): A new measure to assess families caring for a frail elderly member.Journal of Gerontological Social Work. 1993;19 (3/4): 49-68.
16. Heyman J.,Fillenbaum G.,Prosnitz B.,Raiford K.,Burchett B.,Clark C.Estimated prevalence of dementia among elderly black and white community residents.Archives of Neurology. 1991;48 (6): 594-598.
17. Hicks M. H.-R.,Lam M. S.-C.Decision-making within the social course of dementia: Accounts by Chinese-American caregivers.Culture, Medicine and Psychiatry. 1999;23:415-452.
18. Hinton L.,Franz C.,Friend J.Pathways to dementia diagnosis: Evidence for cross-ethnic differences.Alzheimer Disease and Associated Disorders. 2004;18 (3): 134-144.
19. Husaini B. A.,Sherkat D. E.,Moonis M.,Levine R.,Holzer C.,Cain V. A.Racial differences in the diagnosis of dementia and in its effects on the use and costs of health care services.Psychiatric Services. 2003;54 (1): 92-96.
20. Iris M.Qualitative decision analysis: A new methodology for understanding ad diagnosis-seeking. 2007:.
21. Iris M.,Berman R. L. H.,Morhardt D.2001:.
22. Kleinman A.,Wang W. Z.,Li S. C.,Cheng X. M.,Dai X. Y.,Li K. T., et al.The social course of epilepsy: Chronic illness as social experience in interior china.Social Science and Medicine. 1995;40 (10): 1319-1330.
23. Knopman D.,Donohue J. A.,Gutterman E. M.Patterns of care in the early stages of Alzheimer's disease: Impediments to timely diagnosis.Journal of the American Geriatrics Society. 2000;48 (3): 300-304.
24. Krull A. C.First signs and normalizations: Caregiver routes to the diagnosis of Alzheimer's disease.Journal of Aging Studies. 2005;19:407-417.
25. Leventhal H.,Diefenbach M.Mental representations in health and illness. Skelton J. A.Croyle R. T., ed. New York: Springer-Verlag; 1991:247-271.
26. Mahoney D. F.,Cloutterbuck J.,Neary S.,Zhan L.African American, Chinese, and Latino family caregivers' impressions of the onset and diagnosis of dementia: Cross-cultural similarities and differences.The Gerontologist. 2005;45 (6): 783-792.
27. Ortiz M. A.,Fitten L. J.,Cummings L. J.,Hwang S.,Fonseca M.Neuropsychiatric and behavioral symptoms in a community sample of Hispanics with Alzheimer's disease.American Journal of Alzheimer's Disease and Other Dementias. 2006;21 (4): 263-273.
28. Rogler L. H.,Cortes D. E.Help-seeking pathways: A unifying concept in mental health care.The American Journal of Psychiatry. 1993;150 (4): 554-561.
29. Ross M.Relation of implicit theories to the construction of personal histories.Psychological Review. 1989;96:341-357.
30. Safer M. A.,Keuler D. J.Individual differences in misremembering pre-pscychotherapy distress: Personality and memory distortion.Emotion. 2002;2:162-178.
31. Safer M. A.,Tharps Q. J.,Jackson T. C.,Leventhal H.Determinants of three stages of delay in seeking care at a medical clinic.Medical Care. 1979;12 (1): 11-29.
32. Schrauf R. W.,Hoffman L.The effects of revisionism on remembered emotion: The valence of older, voluntary immigrants' pre-migration autobiographical memories.Applied Cognitive Psychology. 2007;21:895-913.
33. Shadlen M.-F.,Larson E. B.,Gibbbons L.,McCormick W. C.,Teri L.Alzheimer's disease symptoms in blacks and whites.Journal of the American Geriatrics Society. 1999;47 (4): 482-486.
34. Shum M. S.The role of temporal landmarks in autobiographical memory processes.Psychological Bulletin. 1998;124 (3): 423-442.
35. Sink K. M.,Covinsky K. E.,Newcomer R.,Yaffe K.Ethnic differences in the prevalence and patterns of dementia-related behaviors.Journal of the American Geriatrics Society. 2004;52:1277-1283.
36. Streams M. E.,Wackerbarth S. B.,Maxwell A.Diagnosis-seeking at subspecialty memory clinics: Trigger events.International Journal of Geriatric Psychiatry. 2003;18:915-924.
37. Valcour V. G.,Masaki K. H.,Curb J. D.The detection of dementia in the primary care setting.Archives of Internal Medicine. 2000;160:2964-2968.
38. Wackerbarth S. B.,Johnson M. M. S.The carrot and the stick: Benefits and barriers in getting a diagnosis.Alzheimer Disease and Associated Disorders. 2002;16 (4): 213-220.
39. Ware J. H.,Kleinman A.Culture and somatic experience: The social course of illness in neurasthenia and chronic fatigue syndrome.Psychosomatic Medicine. 1992;54:546-560.
40. Ware N. C.Toward a model of social course in chronic illness: The example of chronic fatigue syndrome.Culture, Medicine and Psychiatry. 1999;23:303-331.
41. Weller S.,Romney A. K.Metric scaling: Correpondence analysis. Newbury Park, CA: Sage Publications; 1999:.
42. Werner P.Knowledge about symptoms of Alzheimer's disease: Correlates and relationship to help-seeking behavior.International Journal of Geriatric Psychiatry. 2003;18:1029-1036.
43. Werner P.Beliefs about memory problems and help seeking in elderly persons.Clinical Gerontologist. 2004;27 (4): 19-30.