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Volumn 7, Issue 1, 2012, Pages

Reliability and validity of the Wolfram Unified Rating Scale (WURS)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BEHAVIOR; BODY EQUILIBRIUM; CLINICAL ARTICLE; CONCURRENT VALIDITY; CONTENT VALIDITY; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; HUMAN; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; MALE; MOOD; MOTOR ACTIVITY; NEURONAL CEROID LIPOFUSCINOSIS; PREDICTION; QUALITY OF LIFE; SCORING SYSTEM; TEST RETEST RELIABILITY; WOLFRAM SYNDROME; WOLFRAM UNIFIED RATING SCALE;

EID: 84868676056     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-7-89     Document Type: Article
Times cited : (17)

References (30)
  • 1
    • 0028808309 scopus 로고
    • Neurodegeneration and diabetes: UK nationwide study of Wolfram (DIDMOAD) syndrome
    • 10.1016/S0140-6736(95)92473-6 7490992
    • Neurodegeneration and diabetes: UK nationwide study of Wolfram (DIDMOAD) syndrome. Barrett TG, Bundey SE, Macleod AF, Lancet 1995 346 8988 1458 1463 10.1016/S0140-6736(95)92473-6 7490992
    • (1995) Lancet , vol.346 , Issue.8988 , pp. 1458-1463
    • Barrett, T.G.1    Bundey, S.E.2    MacLeod, A.F.3
  • 2
    • 61849146168 scopus 로고    scopus 로고
    • Current developments in wolfram syndrome
    • 19344068
    • Current developments in wolfram syndrome. Ganie MA, Bhat D, J Pediatr Endocrinol Metab 2009 22 1 3 10 19344068
    • (2009) J Pediatr Endocrinol Metab , vol.22 , Issue.1 , pp. 3-10
    • Ganie, M.A.1    Bhat, D.2
  • 3
    • 77954435633 scopus 로고    scopus 로고
    • Wolfram syndrome: Important implications for pediatricians and pediatric endocrinologists
    • 10.1111/j.1399-5448.2009.00518.x 20015125
    • Wolfram syndrome: important implications for pediatricians and pediatric endocrinologists. Kumar S, Pediatr Diabetes 2010 11 1 28 37 10.1111/j.1399-5448. 2009.00518.x 20015125
    • (2010) Pediatr Diabetes , vol.11 , Issue.1 , pp. 28-37
    • Kumar, S.1
  • 5
    • 85009332113 scopus 로고    scopus 로고
    • Unified Huntington's disease rating scale: Reliability and consistency
    • 8684382
    • Unified Huntington's disease rating scale: reliability and consistency. Kremer H, Mov Disord 1996 11 2 136 142 8684382
    • (1996) Mov Disord , vol.11 , Issue.2 , pp. 136-142
    • Kremer, H.1
  • 7
    • 82955175586 scopus 로고    scopus 로고
    • Quantitative telemedicine ratings in Batten disease
    • 10.1212/WNL.0b013e3182377e29
    • Quantitative telemedicine ratings in Batten disease. Cialone J, Augustine E, Newhouse N, Vierhile A, Marshall F, Mink J, Neurol 2011 77 20 1808 1811 10.1212/WNL.0b013e3182377e29
    • (2011) Neurol , vol.77 , Issue.20 , pp. 1808-1811
    • Cialone, J.1    Augustine, E.2    Newhouse, N.3    Vierhile, A.4    Marshall, F.5    Mink, J.6
  • 8
    • 77954633250 scopus 로고    scopus 로고
    • Genotype does not predict severity of behavioural phenotype in juvenile neuronal ceroid lipofuscinosis (Batten disease)
    • 10.1111/j.1469-8749.2010.03628.x 20187884
    • Genotype does not predict severity of behavioural phenotype in juvenile neuronal ceroid lipofuscinosis (Batten disease). Adams HR, Beck CA, Levy E, Jordan R, Kwon JM, Marshall FJ, et al. Dev Med Child Neurol 2010 52 7 637 643 10.1111/j.1469-8749.2010.03628.x 20187884
    • (2010) Dev Med Child Neurol , vol.52 , Issue.7 , pp. 637-643
    • Adams, H.R.1    Beck, C.A.2    Levy, E.3    Jordan, R.4    Kwon, J.M.5    Marshall, F.J.6
  • 9
    • 82955225421 scopus 로고    scopus 로고
    • Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
    • 10.1212/WNL.0b013e318237f649
    • Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease). Kwon J, Adams H, Rothberg P, Augustine E, Marshall F, Vierhile A, et al. Neurol 2011 77 20 1801 1807 10.1212/WNL.0b013e318237f649
    • (2011) Neurol , vol.77 , Issue.20 , pp. 1801-1807
    • Kwon, J.1    Adams, H.2    Rothberg, P.3    Augustine, E.4    Marshall, F.5    Vierhile, A.6
  • 10
    • 84861998875 scopus 로고    scopus 로고
    • Females experience a more severe disease course in batten disease
    • 10.1007/s10545-011-9421-6 22167274
    • Females experience a more severe disease course in batten disease. Cialone J, Adams H, Augustine EF, Marshall FJ, Kwon JM, Newhouse N, et al. J Inherit Metab Dis 2012 35 549 555 10.1007/s10545-011-9421-6 22167274
    • (2012) J Inherit Metab Dis , vol.35 , pp. 549-555
    • Cialone, J.1    Adams, H.2    Augustine, E.F.3    Marshall, F.J.4    Kwon, J.M.5    Newhouse, N.6
  • 11
    • 82955237514 scopus 로고    scopus 로고
    • Parent-reported benefits of flupirtine in juvenile neuronal ceroid lipofuscinosis (Batten disease; CLN3) are not supported by quantitative data
    • 10.1007/s10545-011-9346-0 21556831
    • Parent-reported benefits of flupirtine in juvenile neuronal ceroid lipofuscinosis (Batten disease; CLN3) are not supported by quantitative data. Cialone J, Augustine EF, Newhouse N, Adams H, Vierhile A, Marshall FJ, et al. J Inherit Metab Dis 2011 34 5 1075 1081 10.1007/s10545-011-9346-0 21556831
    • (2011) J Inherit Metab Dis , vol.34 , Issue.5 , pp. 1075-1081
    • Cialone, J.1    Augustine, E.F.2    Newhouse, N.3    Adams, H.4    Vierhile, A.5    Marshall, F.J.6
  • 13
    • 0022353093 scopus 로고
    • Revised Neurological Examination for Subtle Signs (1985)
    • 4089106
    • Revised Neurological Examination for Subtle Signs (1985). Denckla MB, Psychopharmacol Bull 1985 21 4 773 4089106
    • (1985) Psychopharmacol Bull , vol.21 , Issue.4 , pp. 773
    • Denckla, M.B.1
  • 15
    • 0034241679 scopus 로고    scopus 로고
    • The Child Behavior Checklist and related forms for assessing behavioral/emotional problems and competencies
    • 10.1542/pir.21-8-265 10922023
    • The Child Behavior Checklist and related forms for assessing behavioral/emotional problems and competencies. Achenbach TM, Ruffle TM, Pediatr Rev 2000 21 8 265 10.1542/pir.21-8-265 10922023
    • (2000) Pediatr Rev , vol.21 , Issue.8 , pp. 265
    • Achenbach, T.M.1    Ruffle, T.M.2
  • 16
    • 0032078885 scopus 로고    scopus 로고
    • A measure of anxiety symptoms among children
    • DOI 10.1016/S0005-7967(98)00034-5, PII S0005796798000345
    • A measure of anxiety symptoms among children. Spence SH, Behav Ther 1998 36 5 545 566 10.1016/S0005-7967(98)00034-5 (Pubitemid 28288652)
    • (1998) Behaviour Research and Therapy , vol.36 , Issue.5 , pp. 545-566
    • Spence, S.H.1
  • 17
    • 0242490859 scopus 로고    scopus 로고
    • Psychometric properties of the Spence Children's Anxiety Scale with young adolescents
    • DOI 10.1016/S0887-6185(02)00236-0, PII S0887618502002360
    • Psychometric properties of the Spence Children's Anxiety Scale with young adolescents. Spence SH, Barrett PM, Turner CM, J Anxiety Disord 2003 17 6 605 625 10.1016/S0887-6185(02)00236-0 14624814 (Pubitemid 37414900)
    • (2003) Journal of Anxiety Disorders , vol.17 , Issue.6 , pp. 605-625
    • Spence, S.H.1    Barrett, P.M.2    Turner, C.M.3
  • 18
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL™*4.0 as a pediatric population health measure: Feasibility, reliability, and validity
    • DOI 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2
    • The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Varni JW, Burwinkle TM, Seid M, Skarr D, Ambul Pediatr 2003 3 6 329 341 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2 14616041 (Pubitemid 37527280)
    • (2003) Ambulatory Pediatrics , vol.3 , Issue.6 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 19
    • 33750143276 scopus 로고    scopus 로고
    • The content validity index: Are you sure you know what's being reported? Critique and recommendations
    • DOI 10.1002/nur.20147
    • The content validity index: Are you sure you know what's being reported? Critique and recommendations. Polit DF, Beck CT, Res Nurs Health 2006 29 5 489 497 10.1002/nur.20147 16977646 (Pubitemid 44594836)
    • (2006) Research in Nursing and Health , vol.29 , Issue.5 , pp. 489-497
    • Polit, D.F.1    Beck, C.T.2
  • 20
    • 34548203767 scopus 로고    scopus 로고
    • Is the CVI an acceptable indicator of content validity? Appraisal and recommendations
    • 10.1002/nur.20199 17654487
    • Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Polit DF, Beck CT, Owen SV, Res Nurs Health 2007 30 4 459 467 10.1002/nur.20199 17654487
    • (2007) Res Nurs Health , vol.30 , Issue.4 , pp. 459-467
    • Polit, D.F.1    Beck, C.T.2    Owen, S.V.3
  • 21
    • 0031154925 scopus 로고    scopus 로고
    • Selection and use of content experts for instrument development
    • 10.1002/(SICI)1098-240X(199706)20:3<269: AID-NUR9>3.0.CO;2-G 9179180
    • Selection and use of content experts for instrument development. Grant JS, Davis LL, Res Nurs Health 1997 20 3 269 274 10.1002/(SICI)1098-240X(199706) 20:3<269::AID-NUR9>3.0.CO;2-G 9179180
    • (1997) Res Nurs Health , vol.20 , Issue.3 , pp. 269-274
    • Grant, J.S.1    Davis, L.L.2
  • 22
    • 27344441386 scopus 로고    scopus 로고
    • Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application
    • DOI 10.1186/1477-7525-3-34
    • Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Varni JW, Burwinkle TM, Lane MM, Health Qual Life Outcome 2005 3 34 10.1186/1477-7525-3-34 (Pubitemid 41522154)
    • (2005) Health and Quality of Life Outcomes , vol.3 , pp. 34
    • Varni, J.W.1    Burwinkle, T.M.2    Lane, M.M.3
  • 24
    • 79951942779 scopus 로고    scopus 로고
    • Neuropathy in Wolfram syndrome
    • Jan-Feb 20888932
    • Neuropathy in Wolfram syndrome. Mathis S, Maisonobe T, Neau JP, Eur J Med Genet 2010 54 1 73 75 Jan-Feb 20888932
    • (2010) Eur J Med Genet , vol.54 , Issue.1 , pp. 73-75
    • Mathis, S.1    Maisonobe, T.2    Neau, J.P.3
  • 25
    • 79953273922 scopus 로고    scopus 로고
    • Neurologic features and genotype-phenotype correlation in Wolfram syndrome
    • 10.1002/ana.22160 21446023
    • Neurologic features and genotype-phenotype correlation in Wolfram syndrome. Chaussenot A, Bannwarth S, Rouzier C, Vialettes B, Mkadem SAE, Chabrol B, et al. Ann Neurol 2011 69 3 501 508 10.1002/ana.22160 21446023
    • (2011) Ann Neurol , vol.69 , Issue.3 , pp. 501-508
    • Chaussenot, A.1    Bannwarth, S.2    Rouzier, C.3    Vialettes, B.4    Mkadem, S.A.E.5    Chabrol, B.6
  • 26
    • 0043236349 scopus 로고    scopus 로고
    • The PedsQL™ in type 1 and type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Type 1 Diabetes Module
    • DOI 10.2337/diacare.26.3.631
    • The PedsQL™ in type 1 and type 2 diabetes. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL, Diabetes Care 2003 26 3 631 637 10.2337/diacare.26.3.631 12610013 (Pubitemid 36929319)
    • (2003) Diabetes Care , vol.26 , Issue.3 , pp. 631-637
    • Varni, J.W.1    Burwinkle, T.M.2    Jacobs, J.R.3    Gottschalk, M.4    Kaufman, F.5    Jones, K.L.6
  • 27
    • 0348161127 scopus 로고    scopus 로고
    • The PedsQL™*4.0 as a pediatric population health measure: Feasibility, reliability, and validity
    • DOI 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2
    • The PedsQL™* 4.0 as a Pediatric Population Health Measure: Feasibility, Reliability, and Validity. Varni JW, Burwinkle TM, Seid M, Skarr D, Ambul Pediatr 2003 3 6 329 341 10.1367/1539-4409(2003)003<0329:TPAAPP>2. 0.CO;2 14616041 (Pubitemid 37527280)
    • (2003) Ambulatory Pediatrics , vol.3 , Issue.6 , pp. 329-341
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3    Skarr, D.4
  • 29
    • 0031133075 scopus 로고    scopus 로고
    • The development of an instrument for assessing the quality of life of people with diabetes: Diabetes-39
    • 10.1097/00005650-199705000-00003 9140334
    • The development of an instrument for assessing the quality of life of people with diabetes: Diabetes-39. Boyer JG, Earp JAL, Med Care 1997 35 5 440 10.1097/00005650-199705000-00003 9140334
    • (1997) Med Care , vol.35 , Issue.5 , pp. 440
    • Boyer, J.G.1    Earp, J.A.L.2
  • 30
    • 84863818278 scopus 로고    scopus 로고
    • Early Brain Vulnerability in Wolfram Syndrome
    • 10.1371/journal.pone.0040604 22792385
    • Early Brain Vulnerability in Wolfram Syndrome. Hershey T, Lugar HM, Shimony JS, Rutlin J, Koller JM, Perantie DC, et al. PLoS One 2012 7 7 40604 10.1371/journal.pone.0040604 22792385
    • (2012) PLoS One , vol.7 , Issue.7 , pp. 540604
    • Hershey, T.1    Lugar, H.M.2    Shimony, J.S.3    Rutlin, J.4    Koller, J.M.5    Perantie, D.C.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.