Survey burden for family members surveyed about end-of-life care in the intensive care unit

Journal of Pain and Symptom Management

Volumn 44, Issue 5, 2012, Pages 671-680

  Kross, Erin K ^a   Nielsen, Elizabeth L ^a   Curtis, J Randall ^a   Engelberg, Ruth A ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

Author keywords

burden; end of life; family surveys; Intensive care

Indexed keywords

ADULT; AGED; CANCER PALLIATIVE THERAPY; CAREGIVER BURDEN; CAUSE OF DEATH; FAMILY; FEMALE; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; INJURY; INTENSIVE CARE UNIT; LENGTH OF STAY; MAJOR CLINICAL STUDY; MALE; NEOPLASM; PATIENT SATISFACTION; REVIEW; TERMINAL CARE;

EID: 84868566683     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2011.11.008     Document Type: Article

References (36)

1. D.C. Angus, A.E. Barnato, and W.T. Linde-Zwirble Use of intensive care at the end of life in the United States: an epidemiologic study Crit Care Med 32 2004 638 643
2. R.D. Troung, M.L. Campbell, and J.R. Curtis Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine Crit Care Med 46 2008 953 963
3. T.J. Prendergast, and J.M. Luce Increasing incidence of withholding and withdrawal of life support from the critically ill Am J Respir Crit Care Med 155 1997 15 20
4. J. Addington-Hall, and C. McPherson After-death interviews with surrogates/bereaved family members: some issues of validity J Pain Symptom Manage 22 2001 784 790
5. J.R. Curtis, and R.A. Engelberg Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit Crit Care Med 34 2006 S380 S387
6. C.R. Levy, E.W. Ely, and K. Payne Quality of dying and death in two medical ICUs: perceptions of family and clinicians Chest 127 2005 1775 1783
7. K.E. Steinhauser, E.C. Clipp, and J.A. Tulsky Evolution in measuring the quality of dying J Palliat Med 5 2002 407 414
8. J.M. Teno Measuring end-of-life care outcomes retrospectively J Palliat Med 8 2005 S42 S49
9. H. Pessin, M. Galietta, and C.J. Nelson Burden and benefit of psychosocial research at the end of life J Palliat Med 11 2008 627 632
10. D.J. Casarett, and J.H. Karlawish Are special ethical guidelines needed for palliative care research? J Pain Symptom Manage 20 2000 130 139
11. M.J. Field, and C.K. Cassel Approaching death: Improving care at the end of life 1997 National Academy Press Washington, DC
12. B.A. Koenig, A.L. Back, and L.M. Crawley Qualitative methods in end-of-life research: recommendations to enhance the protection of human subjects J Pain Symptom Manage 25 2003 S43 S52
13. E.J. Emanuel, D.L. Fairclough, P. Wolfe, and L.L. Emanuel Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful? Arch Intern Med 164 2004 1999 2004
14. D.J. Casarett, R. Crowley, and K.B. Hirschman Surveys to assess satisfaction with end-of-life care. Does timing matter? J Pain Symptom Manage 25 2003 128 132
15. J.R. Curtis, E.L. Nielsen, and P.D. Treece Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: a randomized trial Am J Respir Crit Care Med 183 2011 348 355
16. D.K. Heyland, G.M. Rocker, and P.M. Dodek Family satisfaction with care in the intensive care unit: results of a multiple center study Crit Care Med 30 2002 1413 1418
17. D.K. Heyland, G.M. Rocker, C.J. O'Callaghan, P.M. Dodek, and D.J. Cook Dying in the ICU: perspectives of family members Chest 124 2003 392 397
18. D.A. Dillman Mail and internet surveys: The tailored design method 2000 John Wiley & Sons, Inc New York
19. J.R. Curtis, P.D. Treece, and E.L. Nielsen Integrating palliative and critical care: evaluation of a quality-improvement intervention Am J Respir Crit Care Med 178 2008 269 275
20. D.L. Patrick, R.A. Engelberg, and J.R. Curtis Evaluating the quality of dying and death J Pain Symptom Manage 22 2001 717 726
21. D.K. Heyland, and J.E. Tramer Measuring family satisfaction with care in the intensive care unit: the development of a questionnaire and preliminary results J Crit Care 16 2001 142 149
22. E. Gerstel, R.A. Engleberg, T. Koepsell, and J.R. Curtis Duration of withdrawal of life support in the intensive care unit and association with family satisfaction Am J Respir Crit Care Med 178 2008 798 804
23. J.R. Curtis, D.L. Patrick, and R.A. Engelberg A measure of the quality of dying and death: initial validation using after-death interviews with family members J Pain Symptom Manage 24 2002 17 31
24. R.A. Mularski, J.R. Curtis, M.L. Osborne, R.A. Engelberg, and L. Ganzini Agreement among family members in their assessment of the quality of dying and death J Pain Symptom Manage 28 2004 306 315
25. B.J. Glavan, R.A. Engelberg, L. Downey, and J.R. Curtis Using the medical record to evaluate the quality of end-of-life care in the intensive care unit Crit Care Med 36 2008 1139 1146
26. R.J. Wall, J.R. Curtis, C.R. Cooke, and R.A. Engelberg Family satisfaction in the ICU: differences between families of survivors and nonsurvivors Chest 132 2007 1425 1433
27. R.J. Wall, R.A. Engelberg, L. Downey, D.K. Heyland, and J.R. Curtis Refinement, scoring, and validation of the Family Satisfaction in the Intensive Care Unit (FS-ICU) survey Crit Care Med 35 2007 271 279
28. H.F. Hsieh, and S.E. Shannon Three approaches to qualitative content analysis Qual Health Res 15 2005 1277 1288
29. S. Cavanagh Content analysis: concepts, methods and applications Nurse Res 4 1997 5 16
30. R.P. Weber Basic content analysis 1990 Sage Beverly Hills, CA
31. A.A. Wright, B. Zhang, and A. Ray Associations between end-of-life discussion, patient mental health, medical care near death, and caregiver bereavement adjustment JAMA 300 2008 1665 1673
32. E.K. Kross, R.A. Engelberg, and C.J. Gries ICU care associated with symptoms of depression and PTSD among family members of those who die in the ICU Chest 139 2011 795 801
33. L. Ganzini, E.R. Goy, and L.L. Miller Nurses' experiences with hospice patients who refuse food and fluids to hasten death N Engl J Med 349 2003 359 365
34. M. Miyashita, T. Morita, and K. Sato Factors contributing to evaluation of a good death from the bereaved family member's perspective Psychooncology 17 2008 612 620
35. D.K. Kiely, H. Prigerson, and S.L. Mitchell Health care proxy grief symptoms before the death of nursing home residents with advanced dementia Am J Geriatr Psychiatry 16 2008 664 673
36. E.K. Kross, R.A. Engelberg, S.E. Shannon, and J.R. Curtis Potential for response bias in family surveys about end of life care in the ICU Chest 136 2009 1496 1502