Specialists' experiences and perspectives on the timing of referral to palliative care: A qualitative study

Journal of Palliative Medicine

Volumn 15, Issue 11, 2012, Pages 1248-1253

  Broom, Alex ^a   Kirby, Emma ^a   Good, Phillip ^b   Wootton, Julia ^b   Adams, Jon ^c  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b ST VINCENT S HOSPITAL   (Australia)

^c UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; AWARENESS; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; KNOWLEDGE; MALE; MEDICAL SPECIALIST; PAIN; PALLIATIVE THERAPY; PATIENT REFERRAL; PERCEPTION; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; THEMATIC ANALYSIS; WORK EXPERIENCE;

ATTITUDE OF HEALTH PERSONNEL; AUSTRALIA; DECISION MAKING; FEMALE; HUMANS; INTERDISCIPLINARY COMMUNICATION; INTERVIEWS AS TOPIC; MALE; PALLIATIVE CARE; PATIENT PREFERENCE; PHYSICIAN'S PRACTICE PATTERNS; QUALITATIVE RESEARCH; QUALITY OF LIFE; REFERRAL AND CONSULTATION; SPECIALIZATION; TIME FACTORS;

EID: 84868313927     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2012.0264     Document Type: Article

References (30)

1. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ: Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010;363:733-742.
2. Auret K, Bulsara C, Joske D: Australasian haematologist referral patterns to palliative care: Lack of consensus on when and why. Intern Med J 2003;33:566-571. (Pubitemid 38121801)
3. Brickner L, Scannell K, Marquet S, Ackerson L: Barriers to hospice care and referrals: Survey of physicians' knowledge, attitudes and perceptions in a health maintenance organization. J Palliat Med 2004;7:411-418. (Pubitemid 38980576)
4. Heedman PA, Starkhammar H: Patterns of referral to a palliative care unit: An indicator of different attitudes toward the dying patient? J Palliat Med 2002;5:101-106. (Pubitemid 34111581)
5. Johnson CE, Girgis A, Paul CL, Currow DC: Cancer specialist's palliative care referral practices and perceptions: Results of a national survey. Palliat Med 2008;22:51-57. (Pubitemid 351351370)
6. Miller SC, Kinzbrunner B, Pettit P, Williams JR: How does timing of hospice referral influence hospice care in the last days of life? J Am Geriatr Soc 2003;51:798-806. (Pubitemid 36693429)
7. Friedman BT, Harwood MK, Shields M: Barriers and enablers to hospice referrals: An expert overview. J Palliat Med 2002;5:73-84.
8. Johnson CB, Slaninka SC: Barriers to accessing hospice services before late terminal stage. Death Stud 1999; 23:225- 238. (Pubitemid 29165296)
9. Walshe C, Tood C, Caress AL, Chew-Graham C: Judgements about fellow professionals and the management of patients receiving palliative care in primary care: A qualitative study. Brit J Gen Pract 2008;58:264-272. (Pubitemid 351516447)
10. Weggel JM: Barriers to the physician decision to offer hospice as an option for terminal care. Wisc Med J 1999;98: 49-53. (Pubitemid 29299730)
11. Quill TE: Initiating end-of-life discussions with seriously ill patients: Addressing the ''elephant in the room.'' JAMA 2000;284:2502-2507.
12. Ahmed N, Bestall JE, Ahmedzai SH, Payne SA, Clark D, Noble B: Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med 2004;18: 525-542. (Pubitemid 39242799)
13. Bestall JC, Ahmed N, Ahmedzai SH, Payne SA, Noble B, Clark D: Access and referral to specialist palliative care: Patients' and professionals' experiences. Int J Palliat Nurs 2004;10:381-389.
14. Melvin CS, Oldham L: When to refer patients to palliative care: Triggers, traps and timely referrals. J Hosp Palliat Nurs 2009;11:291-301.
15. Zimmermann C, Riechelmann R, Krzyzanowska M, Rodin G, Tannock I: Effectiveness of specialized palliative care: A systematic review. JAMA 2008;299:1698-1709. (Pubitemid 351519867)
16. Le BH, Watt JN: Care of the dying in Australia's busiest hospital: Benefits of palliative care consultation and methods to enhance access. J Palliat Med 2010;13:855-860.
17. Higginson IJ, Finlay IG, Goodwin DM, Hood K, Edwards AG, Cook A, Douglas H, Normand CE: Is there evidence that palliative care teams alter end-of-life experiences for patients and their caregivers? J Pain Symptom Manage 2003;25:150-168. (Pubitemid 36183293)
18. Meier DE: Ten steps to growing palliative care referrals. J Palliat Med 2005;8:706-708. (Pubitemid 41266243)
19. Hanratty B, Hibbert D, Mair F, May C, Ward C, Corcoran G, Capewell S, Litva A: Doctors' understanding of palliative care. Palliat Med 2006;20:493-497.
20. Schofield P, Carey M, Love A, Nehill C, Wein S: 'Would you like to talk about your future treatment options?' Discussing the transition from curative cancer treatment to palliative care. Palliat Med 2006;20:397-406. (Pubitemid 44083371)
21. Clark D: What is qualitative research and what can it contribute to palliative care? Palliat Med 1997;11:159-166. (Pubitemid 27170622)
22. Steinhauser KE, Barroso J: Using qualitative methods to explore key questions in palliative care. J Palliat Med 2009; 12:723-730.
23. Pope C, Ziebland S, Mays N: Analysing qualitative data. In: Pope C, Mays N (eds): Qualitative Research in Health Care, 3rd ed. Oxford, UK: Blackwell Publishing, 2006, pp. 63-81.
24. Fitzpatrick R, Boulton M: Qualitative research in health care: The scope and validity of methods. J Eval Clin Pract 1996;2:123-130. (Pubitemid 126673957)
25. Cherny NI, Catane R: Attitudes of medical oncologists towards palliative care for patients with advanced incurable cancer. Cancer 2003; 98(11):2502-2510.
26. Hibbert D, Hanratty B, May C, Mair F, Litva A, Capewell S: Negotiating palliative care expertise in the medical world. Soc Sci Med 2003;57:277-288. (Pubitemid 36582670)
27. Ogle K, Mavis B, Wang T: Hospice and primary care physicians: Attitudes, knowledge, and barriers. Am J Hosp Palliat Care 2003;20:41-51. (Pubitemid 39387665)
28. Quill TE, Arnold R, Back AL: Discussing treatment preferences with patients who want ''everything.'' Ann Intern Med 2009;151:345-349.
29. Broom A, Kirby E: The end of life and the family: Hospice patients' views on dying as relational. Social Health Ill 2012 forthcoming; published online June 28, 2012; DOI: 10.111/ j.1467-9566.2012.01497
30. Abarshi E, Echteld M, Donker G, Van den Block L, Onwuteaka- Philipsen B, Deliens L: Discussing end-of-life issues in the last months of life: A nationwide study among general practitioners. J Palliat Med 2010;14:323-330.