메뉴 건너뛰기




Volumn 18, Issue 4, 2012, Pages 491-516

Relational Experiences of Family Caregivers Providing Home-Based End-of-Life Care

Author keywords

cancer; end of life care; families experiencing life shortening illness; family caregiving; home; palliative

Indexed keywords

AGED; ARTICLE; CAREGIVER; CULTURAL ANTHROPOLOGY; FAMILY NURSING; FEMALE; HUMAN; HUMAN RELATION; MALE; MIDDLE AGED; NEOPLASM; TERMINAL CARE;

EID: 84868029489     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840712462134     Document Type: Article
Times cited : (31)

References (59)
  • 1
    • 33747047226 scopus 로고    scopus 로고
    • Relatives in end-of-life care-part 1: A systematic review of the literature the five last years, January 1999-February 2004
    • Andershed B.Relatives in end-of-life care-part 1: A systematic review of the literature the five last years, January 1999-February 2004.Journal of Clinical Nursing. 2006;15:1158-1169.
    • (2006) Journal of Clinical Nursing , vol.15 , pp. 1158-1169
    • Andershed, B.1
  • 2
    • 0034078773 scopus 로고    scopus 로고
    • Being a close relative of a dying person. Development of the concepts: Involvement in the light and in the dark
    • Andershed B.,Ternestedt B. B.Being a close relative of a dying person. Development of the concepts: Involvement in the light and in the dark.Cancer Nursing. 2000;23:151-159.
    • (2000) Cancer Nursing , vol.23 , pp. 151-159
    • Andershed, B.1    Ternestedt, B.B.2
  • 7
    • 0037080137 scopus 로고    scopus 로고
    • Lifestyle interference and emotional distress in family caregivers of advanced cancer patients
    • Cameron J. I.,Franche R. L.,Cheung A. M.,Stewart D. E.Lifestyle interference and emotional distress in family caregivers of advanced cancer patients.American Cancer Society. 2002;94:521-527.
    • (2002) American Cancer Society , vol.94 , pp. 521-527
    • Cameron, J.I.1    Franche, R.L.2    Cheung, A.M.3    Stewart, D.E.4
  • 8
    • 60749101004 scopus 로고    scopus 로고
    • Family members providing home-based palliative care to older adults: The enactment of multiple roles
    • Clemmer S.,Ward-Griffin C.,Forbes D.Family members providing home-based palliative care to older adults: The enactment of multiple roles.Canadian Journal on Aging. 2008;27:267-283.
    • (2008) Canadian Journal on Aging , vol.27 , pp. 267-283
    • Clemmer, S.1    Ward-Griffin, C.2    Forbes, D.3
  • 12
    • 34147214784 scopus 로고    scopus 로고
    • Evaluation of palliative care at home: The families' perspectives
    • Dumitrescu L.,Heuvel W.Evaluation of palliative care at home: The families' perspectives.Journal of Palliative Care. 2007;23 (1): 54-60.
    • (2007) Journal of Palliative Care , vol.23 , Issue.1 , pp. 54-60
    • Dumitrescu, L.1    Heuvel, W.2
  • 13
    • 48049119655 scopus 로고    scopus 로고
    • End-of-life care and the grieving process: Family caregivers who have experienced the loss of a terminal-phase cancer patient
    • Dumont I.,Dumont S.,Mongeau S.End-of-life care and the grieving process: Family caregivers who have experienced the loss of a terminal-phase cancer patient.Qualitative Health Research. 2008;18:1049-1061.
    • (2008) Qualitative Health Research , vol.18 , pp. 1049-1061
    • Dumont, I.1    Dumont, S.2    Mongeau, S.3
  • 14
    • 33847786913 scopus 로고    scopus 로고
    • Family caregiving in the last years of life: Positive experience in the midst of suffering
    • Egan K. A.,Horvath G. L.Family caregiving in the last years of life: Positive experience in the midst of suffering.Home Health Nurse. 2006;24:554-558.
    • (2006) Home Health Nurse , vol.24 , pp. 554-558
    • Egan, K.A.1    Horvath, G.L.2
  • 15
    • 0034696509 scopus 로고    scopus 로고
    • Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
    • Emanuel E. J.,Fairclough D. L.,Slutsman J.,Emanuel L. L.Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers.Annals of Internal Medicine. 2000;132:451-459.
    • (2000) Annals of Internal Medicine , vol.132 , pp. 451-459
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3    Emanuel, L.L.4
  • 17
    • 77956818754 scopus 로고    scopus 로고
    • Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008)
    • Funk L.,Stajduhar L.,Toye C.,Grande G.,Todd C.Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008).Palliative Medicine. 2010;24:594-607.
    • (2010) Palliative Medicine , vol.24 , pp. 594-607
    • Funk, L.1    Stajduhar, L.2    Toye, C.3    Grande, G.4    Todd, C.5
  • 18
    • 0034166845 scopus 로고    scopus 로고
    • Mother, daughter, patient, nurse: Women's emotion work in aged care
    • Gattuso S.,Bevan C.Mother, daughter, patient, nurse: Women's emotion work in aged care.Journal of Advanced Nursing. 2000;31:892-899.
    • (2000) Journal of Advanced Nursing , vol.31 , pp. 892-899
    • Gattuso, S.1    Bevan, C.2
  • 19
    • 84973746113 scopus 로고
    • The home as workshop: Women as amateur nurses and medical care providers
    • Glazer N.The home as workshop: Women as amateur nurses and medical care providers. Gender & Society; 1990; 1990. 479.
    • (1990) Gender & Society , pp. 479
    • Glazer, N.1
  • 21
    • 0035287096 scopus 로고    scopus 로고
    • The emotions and coping strategies of caregivers of family members with a terminal cancer
    • Grbich C.,Parker D.,Maddocks I.The emotions and coping strategies of caregivers of family members with a terminal cancer.Journal of Palliative Care. 2001;17:30-36.
    • (2001) Journal of Palliative Care , vol.17 , pp. 30-36
    • Grbich, C.1    Parker, D.2    Maddocks, I.3
  • 22
    • 0036310444 scopus 로고    scopus 로고
    • Conceptions of family caregivers: Implications for professional practice
    • Guberman N.,Maheu P.Conceptions of family caregivers: Implications for professional practice.Canadian Journal of Aging. 2002;21 (1): 25-35.
    • (2002) Canadian Journal of Aging , vol.21 , Issue.1 , pp. 25-35
    • Guberman, N.1    Maheu, P.2
  • 23
    • 0035160052 scopus 로고    scopus 로고
    • Working with ambivalence: Informal caregivers of patients at the end of life
    • Harding R.,Higginson I.Working with ambivalence: Informal caregivers of patients at the end of life.Support Care Cancer. 2001;9:642-645.
    • (2001) Support Care Cancer , vol.9 , pp. 642-645
    • Harding, R.1    Higginson, I.2
  • 24
    • 0141954202 scopus 로고    scopus 로고
    • The relationship between patient characteristics and carer psychological status in home palliative cancer care
    • Harding R.,Higginson I. J.,Donaldson N.The relationship between patient characteristics and carer psychological status in home palliative cancer care.Supportive Care in Cancer. 2003;11:638-643.
    • (2003) Supportive Care in Cancer , vol.11 , pp. 638-643
    • Harding, R.1    Higginson, I.J.2    Donaldson, N.3
  • 25
    • 14844348778 scopus 로고    scopus 로고
    • Toward compassionate action: Pragmatism and the inseparability of theory/practice
    • Hartrick G.,Varcoe C.Toward compassionate action: Pragmatism and the inseparability of theory/practice.Advances in Nursing Science. 2005;28 (1): 81-90.
    • (2005) Advances in Nursing Science , vol.28 , Issue.1 , pp. 81-90
    • Hartrick, G.1    Varcoe, C.2
  • 27
    • 1242319538 scopus 로고    scopus 로고
    • Meeting the supportive needs of family caregivers in palliative care: Challenges for health professionals
    • Hudson P.,Aranda S.,Kristjanson L.Meeting the supportive needs of family caregivers in palliative care: Challenges for health professionals.Journal of Palliative Medicine. 2004;7 (1): 19-25.
    • (2004) Journal of Palliative Medicine , vol.7 , Issue.1 , pp. 19-25
    • Hudson, P.1    Aranda, S.2    Kristjanson, L.3
  • 28
    • 79959749511 scopus 로고    scopus 로고
    • Family caregivers and palliative care: Current status and agenda for the future
    • Hudson P.,Payne S.Family caregivers and palliative care: Current status and agenda for the future.Journal of Palliative Medicine. 2011;14:864-869.
    • (2011) Journal of Palliative Medicine , vol.14 , pp. 864-869
    • Hudson, P.1    Payne, S.2
  • 29
    • 84995084414 scopus 로고
    • Care organization physical labour and emotional labour
    • James N.Care organization physical labour and emotional labour.Sociology of Health & Illness. 1992;14:488-509.
    • (1992) Sociology of Health & Illness , vol.14 , pp. 488-509
    • James, N.1
  • 31
    • 2142652263 scopus 로고    scopus 로고
    • Family carers' experience of out-of-hours community palliative care: A qualitative study
    • King N.,Bell D.,Thomas K.Family carers' experience of out-of-hours community palliative care: A qualitative study.International Journal of Palliative Nursing. 2004;10 (2): 76-83.
    • (2004) International Journal of Palliative Nursing , vol.10 , Issue.2 , pp. 76-83
    • King, N.1    Bell, D.2    Thomas, K.3
  • 32
    • 0038655523 scopus 로고    scopus 로고
    • The bereavement experience following home-based family caregiving for persons with advanced cancer
    • Koop P.,Strang V.The bereavement experience following home-based family caregiving for persons with advanced cancer.Clinical Nursing Research. 2003;12 (2): 127-144.
    • (2003) Clinical Nursing Research , vol.12 , Issue.2 , pp. 127-144
    • Koop, P.1    Strang, V.2
  • 34
    • 33845734090 scopus 로고    scopus 로고
    • Assessing palliative care needs: Views of patients, informal carers and healthcare professionals
    • McIlfatrick S.Assessing palliative care needs: Views of patients, informal carers and healthcare professionals.Journal of Advanced Nursing. 2007;57 (1): 77-86.
    • (2007) Journal of Advanced Nursing , vol.57 , Issue.1 , pp. 77-86
    • McIlfatrick, S.1
  • 37
    • 1242269329 scopus 로고    scopus 로고
    • Next of kin's experience of powerlessness and helplessness in palliative home care
    • Milberg A.,Strang P.,Jakobsson M.Next of kin's experience of powerlessness and helplessness in palliative home care.Support Care Cancer. 2004;12:120-128.
    • (2004) Support Care Cancer , vol.12 , pp. 120-128
    • Milberg, A.1    Strang, P.2    Jakobsson, M.3
  • 39
    • 34547436865 scopus 로고    scopus 로고
    • Client-nurse relationships in home- based palliative care: A critical analysis of power relations
    • Oudshoorn A.,Ward-Griffin C.,McWilliam C.Client-nurse relationships in home- based palliative care: A critical analysis of power relations.Journal of Clinical Nursing. 2007;16:1435-1443.
    • (2007) Journal of Clinical Nursing , vol.16 , pp. 1435-1443
    • Oudshoorn, A.1    Ward-Griffin, C.2    McWilliam, C.3
  • 40
    • 0035469031 scopus 로고    scopus 로고
    • Managing home nursing care: Visibility, accountability and exclusion
    • Purkis M. E.Managing home nursing care: Visibility, accountability and exclusion.Nursing Inquiry. 2001;8 (3): 141-150.
    • (2001) Nursing Inquiry , vol.8 , Issue.3 , pp. 141-150
    • Purkis, M.E.1
  • 41
    • 1642458586 scopus 로고    scopus 로고
    • Supporting family caregivers at the end of life: They don't know what they don't know
    • Rabow M. W.,Hauser J. M.,Adams J.Supporting family caregivers at the end of life: They don't know what they don't know.Journal of the American Medical Association. 2004;291:483-491.
    • (2004) Journal of the American Medical Association , vol.291 , pp. 483-491
    • Rabow, M.W.1    Hauser, J.M.2    Adams, J.3
  • 43
    • 0035998774 scopus 로고    scopus 로고
    • End-of-life care for seniors: Public and professional awareness
    • Ross M.,MacLean M.,Fisher R.End-of-life care for seniors: Public and professional awareness.Educational Gerontology. 2002;28:353-366.
    • (2002) Educational Gerontology , vol.28 , pp. 353-366
    • Ross, M.1    MacLean, M.2    Fisher, R.3
  • 45
    • 0038545189 scopus 로고    scopus 로고
    • Examining the perspective of family members involved in the delivery of palliative care at home
    • Stajduhar K.Examining the perspective of family members involved in the delivery of palliative care at home.Journal of Palliative Care. 2003;19 (1): 27-29.
    • (2003) Journal of Palliative Care , vol.19 , Issue.1 , pp. 27-29
    • Stajduhar, K.1
  • 46
    • 13444291685 scopus 로고    scopus 로고
    • Variations in and factors influencing family members' decisions for palliative home care
    • Stajduhar K. I.,Davies B.Variations in and factors influencing family members' decisions for palliative home care.Palliative Medicine. 2005;19:21-32.
    • (2005) Palliative Medicine , vol.19 , pp. 21-32
    • Stajduhar, K.I.1    Davies, B.2
  • 48
    • 77956851861 scopus 로고    scopus 로고
    • Part 1: Home- based family caregiving at the end of life: A comprehensive review of published quantitative research (1998-2008)
    • Stajduhar K.,Funk L.,Toye C.,Grande G. E.,Aoun S.,Todd C. J.Part 1: Home- based family caregiving at the end of life: A comprehensive review of published quantitative research (1998-2008).Palliative Medicine. 2010;24:573-593.
    • (2010) Palliative Medicine , vol.24 , pp. 573-593
    • Stajduhar, K.1    Funk, L.2    Toye, C.3    Grande, G.E.4    Aoun, S.5    Todd, C.J.6
  • 49
    • 0036593520 scopus 로고    scopus 로고
    • The experience of respite during home-based family caregiving for persons with advanced cancer
    • Strang V.,Koop P. M.,Peden J.The experience of respite during home-based family caregiving for persons with advanced cancer.Journal of Palliative Care. 2002;18 (2): 97-104.
    • (2002) Journal of Palliative Care , vol.18 , Issue.2 , pp. 97-104
    • Strang, V.1    Koop, P.M.2    Peden, J.3
  • 50
    • 0036172636 scopus 로고    scopus 로고
    • Companions through cancer: The care given by informal carers in cancer contexts
    • Thomas C.,Morris S. M.,Harman J. C.Companions through cancer: The care given by informal carers in cancer contexts.Social Science & Medicine. 2002;54:529-544.
    • (2002) Social Science & Medicine , vol.54 , pp. 529-544
    • Thomas, C.1    Morris, S.M.2    Harman, J.C.3
  • 53
    • 0035469245 scopus 로고    scopus 로고
    • Negotiating care of frail elders: Relationships between community nurses and family caregivers
    • Ward-Griffin C.Negotiating care of frail elders: Relationships between community nurses and family caregivers.Canadian Journal of Nursing Research. 2001;33 (2): 63-82.
    • (2001) Canadian Journal of Nursing Research , vol.33 , Issue.2 , pp. 63-82
    • Ward-Griffin, C.1
  • 54
    • 0037402712 scopus 로고    scopus 로고
    • Reconceptualizing the relationship between public and private eldercare
    • Ward-Griffin C.,Marshall V. W.Reconceptualizing the relationship between public and private eldercare.Journal of Aging Studies. 2003;17:189-208.
    • (2003) Journal of Aging Studies , vol.17 , pp. 189-208
    • Ward-Griffin, C.1    Marshall, V.W.2
  • 55
    • 0034145153 scopus 로고    scopus 로고
    • Relationships between nurses and family caregivers: Partners in care?
    • Ward-Griffin C.,McKeever P.Relationships between nurses and family caregivers: Partners in care?.Advances in Nursing Science. 2000;22 (3): 89-103.
    • (2000) Advances in Nursing Science , vol.22 , Issue.3 , pp. 89-103
    • Ward-Griffin, C.1    McKeever, P.2
  • 57
    • 0031085510 scopus 로고    scopus 로고
    • The theory of human caring: Retrospective and prospective
    • Watson J.The theory of human caring: Retrospective and prospective.Nursing Science Quarterly. 1997;10:49-52.
    • (1997) Nursing Science Quarterly , vol.10 , pp. 49-52
    • Watson, J.1
  • 58
    • 0036041619 scopus 로고    scopus 로고
    • Advanced home care for cancer patients at the end of life: A qualitative study of hopes and expectations of family caregivers
    • Wennman-Larsen A.,Tishelman C.Advanced home care for cancer patients at the end of life: A qualitative study of hopes and expectations of family caregivers.Scandinavian Journal of Caring Sciences. 2002;16:240-247.
    • (2002) Scandinavian Journal of Caring Sciences , vol.16 , pp. 240-247
    • Wennman-Larsen, A.1    Tishelman, C.2
  • 59
    • 22244458157 scopus 로고    scopus 로고
    • World Health Organization, Retrieved from
    • World Health Organization (2003). WHO definition of palliative care. Retrieved from http://www.who.int/cancer/palliative/definition/en/.
    • (2003) WHO definition of palliative care


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.