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Volumn 37, Issue 10, 2012, Pages 1116-1126

Case study: Ethical guidance for pediatric e-health research using examples from pain research with adolescents

Author keywords

e health; ethical issues; online research methods; pain; pediatric; qualitative methods; randomized controlled trial; research design and methodology

Indexed keywords

ADOLESCENT; ARTICLE; CASE REPORT; COGNITIVE THERAPY; ETHICS; HUMAN; INFORMATION PROCESSING; INTERNET; MEDICAL RESEARCH; METHODOLOGY; PAIN; PEDIATRICS; PSYCHOLOGICAL ASPECT; TELEMEDICINE; UTILIZATION REVIEW;

EID: 84868008931     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jss085     Document Type: Article
Times cited : (19)

References (32)
  • 1
    • 0022008093 scopus 로고
    • Ethical regulations and their impact on research practice
    • doi: 10.1037/0003-066x.40.1.59
    • Adair, J. G., Dushenko, T. W., & Lindsay, R. C. L. (1985). Ethical regulations and their impact on research practice. American Psychologist, 40, 59-72. doi: 10.1037/0003-066x.40.1.59
    • (1985) American Psychologist , vol.40 , pp. 59-59
    • Adair, J.G.1    Dushenko, T.W.2    Lindsay, R.C.L.3
  • 3
    • 83755175351 scopus 로고    scopus 로고
    • Telehealth: Legal basics for psychologists
    • American Psychological Association Practice Organization Summer Retrieved August 23 2010
    • American Psychological Association Practice Organization. (2010, Summer). Telehealth: Legal basics for psychologists. Good Practice. Retrieved August 23, 2010. Retrieved from: http://www .apapracticecentral.org/good-practice/secure/ telehealth.pdf
    • (2010) Good Practice
  • 4
    • 85044982574 scopus 로고    scopus 로고
    • Exploring ethical and methodological issues in internet-based research with adolescents
    • Battles, H. (2010). Exploring ethical and methodological issues in internet-based research with adolescents. International Journal of Qualitative Methods, 9, 27.
    • (2010) International Journal of Qualitative Methods , vol.9 , pp. 27
    • Battles, H.1
  • 7
    • 79951479239 scopus 로고    scopus 로고
    • Health web sites for teens
    • doi: 10.1016/ j.pedhc.2010.11.005
    • D'Auria, J. P. (2011). Health web sites for teens. Journal of Pediatric Health Care, 25, e1-e5. doi: 10.1016/ j.pedhc.2010.11.005
    • (2011) Journal of Pediatric Health Care , vol.25
    • D'Auria, J.P.1
  • 8
    • 80052544130 scopus 로고    scopus 로고
    • Where do youth learn about suicides on the Internet, and what influence does this have on suicidal ideation?
    • doi: 10.1111/j.1469-7610.2011.02416.x
    • Dunlop, S. M., More, E., & Romer, D. (2011). Where do youth learn about suicides on the Internet, and what influence does this have on suicidal ideation? Journal of Child Psychology and Psychiatry, 52, 1073-1080. doi: 10.1111/j.1469-7610.2011.02416.x
    • (2011) Journal of Child Psychology and Psychiatry , vol.52 , pp. 1073-1073
    • Dunlop, S.M.1    More, E.2    Romer, D.3
  • 10
    • 84868023710 scopus 로고    scopus 로고
    • European Trend Commission
    • European Trend Commission. (2012). New Media Trend Watch: Demographics USA. Retrieved from: http://www .newmediatrendwatch.com/markets-by-country/ 17-usa/123-demographics?showall1
    • (2012) New Media Trend Watch: Demographics USA
  • 11
    • 34147092510 scopus 로고    scopus 로고
    • Doing synchronous online focus groups with young people
    • doi: 10.1177/1049732306298754
    • Fox, F. E., Morris, M., & Rumsey, N. (2007). Doing synchronous online focus groups with young people. Qualitative Health Research, 17, 539-547. doi: 10.1177/1049732306298754
    • (2007) Qualitative Health Research , vol.17 , pp. 539-539
    • Fox, F.E.1    Morris, M.2    Rumsey, N.3
  • 12
    • 0011983506 scopus 로고    scopus 로고
    • The online health care revolution: How the web helps Americans take better care of themselves
    • Retrieved August 20 2011
    • Fox, S., Rainie, L., Horrigan, J., Lehnart, A., Spooner, T., & Burke, M. (2000). The online health care revolution: How the web helps Americans take better care of themselves. Retrieved August 20 2011. Pew Internet & American Life Project. Available at: http://www .pewinternet.org/Reports/2000/The- Online-Health- Care-Revolution.aspx
    • (2000) Pew Internet & American Life Project , vol.20
    • Fox, S.1    Rainie, L.2    Horrigan, J.3    Lehnart, A.4    Spooner, T.5    Burke, M.6
  • 13
    • 34247389385 scopus 로고    scopus 로고
    • Disability in adolescents with chronic pain: Patterns and predictors across different domains of functioning
    • doi: 10.1016/ j.pain.2006.12021
    • Gauntlett-Gilbert, J., & Eccleston, C. (2007). Disability in adolescents with chronic pain: Patterns and predictors across different domains of functioning. Pain, 131, 132-141. doi: 10.1016/ j.pain.2006.12.021
    • (2007) Pain , vol.131 , pp. 132-141
    • Gauntlett-Gilbert, J.1    Eccleston, C.2
  • 14
    • 84862397928 scopus 로고    scopus 로고
    • The impact of material incentives on response quantity, response quality, sample composition, survey outcome and cost in online access panels
    • Goritz, A. (2004). The impact of material incentives on response quantity, response quality, sample composition, survey outcome and cost in online access panels. International Journal of Market Research, 46, 327-346.
    • (2004) International Journal of Market Research , vol.46 , pp. 327-327
    • Goritz, A.1
  • 16
    • 84858431439 scopus 로고    scopus 로고
    • Internet sites offering adolescents help with headache, abdominal pain, and dysmenorrhoea: A description of content, quality, and peer interactions
    • in press) doi: 10.1093/jpepsy/jsr100
    • Henderson, E. M., Rosser, B. A., Keogh, E., & Eccleston, C. (in press). Internet sites offering adolescents help with headache, abdominal pain, and dysmenorrhoea: a description of content, quality, and peer interactions. Journal of Pediatric Psychology. doi: 10.1093/jpepsy/jsr100
    • Journal of Pediatric Psychology.
    • Henderson, E.M.1    Rosser, B.A.2    Keogh, E.3    Eccleston, C.4
  • 18
    • 1542381287 scopus 로고    scopus 로고
    • Psychological research online: Report of board of scientific affairs' advisory group on the conduct of research on the internet
    • doi: 10.1037/ 0003-066X.59.2.105
    • Kraut, R., Olson, J., Banaji, M., Bruckman, A., Cohen, J., & Couper, M. (2004). Psychological research online: Report of board of scientific affairs' advisory group on the conduct of research on the internet. American Psychologist, 59, 105-117. doi: 10.1037/ 0003-066X.59.2.105
    • (2004) American Psychologist , vol.59 , pp. 105-105
    • Kraut, R.1    Olson, J.2    Banaji, M.3    Bruckman, A.4    Cohen, J.5    Couper, M.6
  • 19
    • 84868006997 scopus 로고    scopus 로고
    • Apomediation and ancillary care: Researchers' responsibilities in health-related online communities
    • O'Connor, D. (2010). Apomediation and ancillary care: Researchers' responsibilities in health-related online communities. International Journal of Internet Research Ethics, 3, 87-103.
    • (2010) International Journal of Internet Research Ethics , vol.3 , pp. 87-87
    • O'Connor, D.1
  • 20
    • 70349776043 scopus 로고    scopus 로고
    • Randomized controlled trial of an Internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain
    • doi: 10.1016/j.pain.2009.07.034
    • Palermo, T. M., Wilson, A. C., Peters, M., Lewandowski, A., & Somhegyi, H. (2009). Randomized controlled trial of an Internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain, 146, 205-213. doi: 10.1016/j.pain.2009.07.034
    • (2009) Pain , vol.146 , pp. 205-205
    • Palermo, T.M.1    Wilson, A.C.2    Peters, M.3    Lewandowski, A.4    Somhegyi, H.5
  • 22
    • 59849096720 scopus 로고    scopus 로고
    • The ethics of using the internet to collect qualitative research data
    • doi: 10.1177/ 174701610600200303
    • Rodham, K., & Gavin, J. (2006). The ethics of using the internet to collect qualitative research data. Research Ethics Review, 2, 92-97. doi: 10.1177/ 174701610600200303
    • (2006) Research Ethics Review , vol.2 , pp. 92-97
    • Rodham, K.1    Gavin, J.2
  • 23
    • 80052183444 scopus 로고    scopus 로고
    • Smartphone applications for pain management
    • doi: 10.1258/ jtt.2011.101102
    • Rosser, B. A., & Eccleston, C. (2011). Smartphone applications for pain management. Journal of Telemedicine and Telecare, 17, 308-312. doi: 10.1258/ jtt.2011.101102
    • (2011) Journal of Telemedicine and Telecare , vol.17 , pp. 308-312
    • Rosser, B.A.1    Eccleston, C.2
  • 24
    • 81855195643 scopus 로고    scopus 로고
    • Ethical practice in internet research involving vulnerable people: Lessons from a self-harm discussion forum study (SharpTalk)
    • doi: 10.1136/medethics-2011-100080
    • Sharkey, S., Jones, R., Smithson, J., Hewis, E., Emmens, T., Ford, T., & Owens, C. (2011). Ethical practice in internet research involving vulnerable people: Lessons from a self-harm discussion forum study (SharpTalk). Journal of Medical Ethics. doi: 10.1136/medethics-2011-100080
    • (2011) Journal of Medical Ethics
    • Sharkey, S.1    Jones, R.2    Smithson, J.3    Hewis, E.4    Emmens, T.5    Ford, T.6    Owens, C.7
  • 25
    • 28644439127 scopus 로고    scopus 로고
    • The economic impact of chronic pain in adolescence: Methodological considerations and a preliminary costs-of-illness study
    • doi: 10.1016/ j.pain.2005.09028
    • Sleed, M., Eccleston, C., Beecham, J., Knapp, M., & Jordan, A. (2005). The economic impact of chronic pain in adolescence: Methodological considerations and a preliminary costs-of-illness study. Pain, 119, 183-190. doi: 10.1016/ j.pain.2005.09.028
    • (2005) Pain , vol.119 , pp. 183-190
    • Sleed, M.1    Eccleston, C.2    Beecham, J.3    Knapp, M.4    Jordan, A.5
  • 26
    • 69249232348 scopus 로고    scopus 로고
    • A systematic review of internet-based self-management interventions for youth with health conditions
    • doi: 10.1093/jpepsy/jsn115
    • Stinson, J., Wilson, R., Gill, N., Yamada, J., & Holt, J. (2009). A systematic review of internet-based self-management interventions for youth with health conditions. Journal of Pediatric Psychology, 34, 495. doi: 10.1093/jpepsy/jsn115
    • (2009) Journal of Pediatric Psychology , vol.34 , pp. 495
    • Stinson, J.1    Wilson, R.2    Gill, N.3    Yamada, J.4    Holt, J.5
  • 27
    • 0003578535 scopus 로고
    • Paris, France
    • United Nations. (1948). Universal declaration of human rights. Paris, France. Retrieved from: http://www.un. org/en/documents/udhr/index.shtml
    • (1948) Universal Declaration of Human Rights
  • 29
    • 80053526237 scopus 로고    scopus 로고
    • Ethics, law and paediatric medicine
    • doi: 10.1111/j.1440-1754.2011.02167.x
    • Waller, L. (2011). Ethics, law and paediatric medicine. Journal of Pediatrics and Child Health, 47, 620-623. doi: 10.1111/j.1440-1754.2011.02167.x
    • (2011) Journal of Pediatrics and Child Health , vol.47 , pp. 620-620
    • Waller, L.1
  • 30
    • 0003807380 scopus 로고    scopus 로고
    • World Health Organisation Geneva: World Health Organisation. Retrieved from:
    • World Health Organisation. (2000). Operational guidelines for ethics committees that review biomedical research. Geneva: World Health Organisation. Retrieved from: http://apps.who.int/tdr/publications/ training-guideline- publications/operationalguidelines- ethics-biomedical-research/pdf/ ethics.pdf
    • (2000) Operational Guidelines for Ethics Committees That Review Biomedical Research
  • 32
    • 0033908944 scopus 로고    scopus 로고
    • Using the Internet for survey research: A case study
    • doi: 10.1002/(sici)1097-4571(2000)51:1<57::aid-asi9> 3.0.co;2-w
    • Zhang, Y. (1999). Using the Internet for survey research: A case study. Journal of the American Society for Information Science, 51, 57-68. doi: 10.1002/(sici)1097-4571(2000)51:1<57::aid-asi9> 3.0.co;2-w
    • (1999) Journal of the American Society for Information Science , vol.51 , pp. 57-57
    • Zhang, Y.1


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