Health-related quality of life of mothers of very low birth weight children at the age of five: Results from the newborn lung project statewide cohort study

Quality of Life Research

Volumn 21, Issue 9, 2012, Pages 1565-1576

  Witt, Whitney P ^a   Litzelman, Kristin ^a   Spear, Hilary A ^b   Wisk, Lauren E ^a   Levin, Nataliya ^a   McManus, Beth M ^c   Palta, Mari ^a  

^a UNIVERSITY OF WISCONSIN SCHOOL OF MEDICINE AND PUBLIC HEALTH   (United States)

^b UNIVERSITY OF COLORADO   (United States)

^c UNIVERSITY OF COLORADO   (United States)

Author keywords

Life course; Maternal health related quality of life; Maternal stress; Very low birth weight

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGE; APGAR SCORE; ARTICLE; COHORT ANALYSIS; FEMALE; HEALTH SURVEY; HUMAN; MALE; MATERNAL WELFARE; MENTAL STRESS; MOTHER; NEWBORN; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; REGRESSION ANALYSIS; STATISTICS; TIME; UNITED STATES; VERY LOW BIRTH WEIGHT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGE FACTORS; APGAR SCORE; CHILD, PRESCHOOL; COHORT STUDIES; FEMALE; HEALTH SURVEYS; HUMANS; INFANT, NEWBORN; INFANT, VERY LOW BIRTH WEIGHT; MALE; MATERNAL WELFARE; MOTHERS; PSYCHOMETRICS; QUALITY OF LIFE; REGRESSION ANALYSIS; STATISTICS AS TOPIC; STRESS, PSYCHOLOGICAL; TIME FACTORS; WISCONSIN;

EID: 84868001315     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-011-0069-3     Document Type: Article

References (37)

1. Singer, L. T., Fulton, S., Kirchner, H. L., Eisengart, S., Lewis, B., Short, E., et al. (2007). Parenting very low birth weight children at school age: Maternal stress and coping. Journal of Pediatrics, 151(5), 463-469.
2. Taylor, H. G., Klein, N., Minich, N. M., & Hack, M. (2001). Long-term family outcomes for children with very low birth weights. Archives of Pediatrics and Adolescent Medicine, 155(2), 155-161. (Pubitemid 32128385)
3. Dudek-Shriber, L. (2004). Parent stress in the neonatal intensive care unit and the influence of parent and infant characteristics. The American Journal of Occupational Therapy, 58(5), 509-520. (Pubitemid 39330138)
4. Singer, L. T., Salvator, A., Guo, S., Collin, M., Lilien, L., & Baley, J. (1999). Maternal psychological distress and parenting stress after the birth of a very low-birth-weight infant. Journal of the American Medical Association, 281(9), 799-805. (Pubitemid 29113739)
5. Cronin, C. M., Shapiro, C. R., Casiro, O. G., & Cheang, M. S. (1995). The impact of very low-birth-weight infants on the family is long lasting. A matched control study. Archives of Pediatrics and Adolescent Medicine, 149(2), 151-158.
6. Eiser, C., Eiser, J. R., Mayhew, A. G., & Gibson, A. T. (2005). Parenting the premature infant: Balancing vulnerability and quality of life. Journal of Child Psychology and Psychiatry, 46(11), 1169-1177. (Pubitemid 44202675)
7. Donohue, P. K., Maurin, E., Kimzey, L., Allen, M. C., & Strobino, D. (2008). Quality of life of caregivers of very low-birth weight infants. Birth, 35(3), 212-219.
8. Halfon, N., & Hochstein, M. (2002). Life course health development: An integrated framework for developing health, policy, and research. The Milbank Quarterly, 80(3), 433-479. (iii).
9. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
10. Sameroff, A. (1975). Transactional models in early social relations. Human Development, 18(1-2), 65-79.
11. Biddle, B. (1979). Role theory: Expectations, identities and behaviours. New York: Academic Press.
12. House, J. S. (1974). Occupational stress and coronary heart disease: A review and theoretical integration. Journal of Health and Social Behavior, 15(1), 12-27.
13. Engel, G. L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196(4286), 129-136. (Pubitemid 8067676)
14. Palta, M., & Sadek-Badawi, M. (2008). PedsQL relates to function and behavior in very low and normal birth weight 2- and 3-year-olds from a regional cohort. Quality of Life Research, 17(5), 691-700.
15. Ware, J., Jr., Kosinski, M., & Keller, S. D. (1996). A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34(3), 220-233. (Pubitemid 126433231)
16. Haley, S. M. (1992). Pediatric evaluation of disability inventory (PEDI): Development, standardization and administration manual. New England Medical Center Hospital, Dept. of Rehabilitation Medicine, PEDI Research Group.
17. Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL (TM) 4.0: Reliability and validity of the A longer stay in the NICU was associated wi (TM) version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800.
18. Achenbach, T. M., & Rescorla, L. A. (2000). Manual for the Achenbach system empirically based assessment (ASEBA), preschool forms and profiles. Burlington, VT: University of Vermont, Department of Psychiatry.
19. Carlson, L. E., & Thomas, B. C. (2007). Development of the Calgary Symptoms of Stress Inventory (c-sosi). International Journal of Behavioral Medicine, 14(4), 249-256. (Pubitemid 350250398)
20. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). London: Lawrence Erlbaum.
21. Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173-1182.
22. Klassen, A. F., Lee, S. K., Raina, P., & Lisonkova, S. (2004). Psychological health of family caregivers of children admitted at birth to a NICU and healthy children: A population-based crosssectional survey. BMC Pediatrics, 4(1), 24.
23. Tommiska, V., Ostberg, M., & Fellman, V. (2002). Parental stress in families of 2 year old extremely low birthweight infants. Archives of Disease in Childhood. Fetal and Neonatal Edition, 86(3), F161-F164. (Pubitemid 34478245)
24. Lee, C. F., Hwang, F. M., Chen, C. J., & Chien, L. Y. (2009). The interrelationships among parenting stress and quality of life of the caregiver and preschool child with very low birth weight. Family and Community Health, 32(3), 228-237.
25. Olshtain-Mann, O., & Auslander, G. K. (2008). Parents of preterm infants two months after discharge from the hospital: Are they still at (parental) risk? Health and Social Work, 33(4), 299-308.
26. Witt, W. P., Litzelman, K., Wisk, L. E., Spear, H. A., Catrine, K., Levin, N., et al. (2010). Stress-mediated quality of life outcomes in parents of childhood cancer and brain tumor survivors: A casecontrol study. Quality of Life Research, 19(7), 995-1005.
27. Schothorst, P. F., & van Engeland, H. (1996). Long-term behavioral sequelae of prematurity. Journal of the American Academy of Child and Adolescent Psychiatry, 35(2), 175-183. (Pubitemid 26039697)
28. Astbury, J., Orgill, A., & Bajuk, B. (1987). Relationship between two-year behaviour and neurodevelopmental outcome at five years of very low-birthweight survivors. Developmental Medicine and Child Neurology, 29(3), 370-379. (Pubitemid 17084338)
29. Williams, D. (2003). Pregnancy: A stress test for life. Current Opinion in Obstetrics and Gynecology, 15(6), 465-471. (Pubitemid 38333555)
30. Lykke, J. A., Langhoff-Roos, J., Sibai, B. M., Funai, E. F., Triche, E. W., & Paidas, M. J. (2009). Hypertensive pregnancy disorders and subsequent cardiovascular morbidity and type 2 diabetes mellitus in the mother. Hypertension, 53(6), 944-951.
31. Trombini, E., Surcinelli, P., Piccioni, A., Alessandroni, R., & Faldella, G. (2008). Environmental factors associated with stress in mothers of preterm newborns. Acta Paediatric, 97(7), 894-898. (Pubitemid 351792830)
32. Obeidat, H. M., Bond, E. A., & Callister, L. C. (2009). The parental experience of having an infant in the newborn intensive care unit. The Journal of Perinatal Education, 18(3), 23-29.
33. Ye, G., Jiang, Z., Lu, S., & Le, Y. (2011). Premature infants born after preterm premature rupture of membranes with 24-34 weeks of gestation: A study of factors influencing length of neonatal intensive care unit stay. The Journal of Maternal-Fetal Medicine, 24(7), 960-965.
34. Aagaard, H., & Hall, E. O. (2008). Mothers' experiences of having a preterm infant in the neonatal care unit: A meta-synthesis. Journal of Pediatric Nursing, 23(3), e26-e36.
35. Lindberg, B., & Ohrling, K. (2008). Experiences of having a prematurely born infant from the perspective of mothers in northern Sweden. International Journal of Circumpolar Health, 67(5), 461-471.
36. Wigert, H., Johansson, R., Berg, M., & Hellstrom, A. L. (2006). Mothers' experiences of having their newborn child in a neonatal intensive care unit. Scandinavian Journal of Caring Sciences, 20(1), 35-41.
37. Esterling, B. A., Kiecolt-Glaser, J. K., & Glaser, R. (1996). Psychosocial modulation of cytokine-induced natural killer cell activity in older adults. The Psychosomatic Medicine, 58(3), 264-272. (Pubitemid 26181495)