Response to a treatment summary and care plan among adult survivors of pediatric and young adult cancer

Journal of Oncology Practice

Volumn 8, Issue 3, 2012, Pages 196-202

  Spain, Peter D ^a   Oeffinger, Kevin C ^a   Candela, Joanne ^a   McCabe, Mary ^a   Ma, Xiaomei ^a   Tonorezos, Emily S ^a  

^a YALE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ALEMTUZUMAB; ALKYLATING AGENT; ANTHRACYCLINE DERIVATIVE; ANTINEOPLASTIC AGENT; ASPARAGINASE; CYCLOPHOSPHAMIDE; CYCLOSPORIN; CYTARABINE; DAUNORUBICIN; ETOPOSIDE; FLUDARABINE; GEMTUZUMAB; IDARUBICIN; METHOTREXATE; MITOXANTRONE; PREDNISONE; RITUXIMAB;

ACUTE GRANULOCYTIC LEUKEMIA; ADOLESCENT; ADULT; ARTICLE; BONE MARROW TRANSPLANTATION; BONE TUMOR; BRAIN RADIATION; CANCER CHEMOTHERAPY; CANCER IMMUNOTHERAPY; CANCER RADIOTHERAPY; CANCER SURVIVOR; CENTRAL NERVOUS SYSTEM TUMOR; CHILD; CHILDHOOD CANCER; CHRONIC GRAFT VERSUS HOST DISEASE; CROSS-SECTIONAL STUDY; FEMALE; FOLLOW UP; HEALTH CARE PLANNING; HEALTH SURVEY; HUMAN; LEUKEMIA; LONG TERM CARE; LYMPHOMA; MAJOR CLINICAL STUDY; MALE; NEPHROBLASTOMA; NEUROBLASTOMA; PATIENT CARE; SOFT TISSUE SARCOMA; STEM CELL TRANSPLANTATION; TELEPHONE; TREATMENT RESPONSE; WHOLE BODY RADIATION;

EID: 84867906742     PISSN: 15547477     EISSN: 1935469X     Source Type: Journal    
DOI: 10.1200/JOP.2011.000345     Document Type: Article

References (35)

1. National Cancer Institute: SEER Cancer Statistics Review, 1975-2003. 2006, http://seer.cancer.gov/csr/1975-2003/
2. Oeffinger KC, Mertens AC, Sklar CA, et al: Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 355:1572-1582, 2006 (Pubitemid 44547808)
3. Geenen MM, Cardous-Ubbink MC, Kremer LC, et al: Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA 297:2705-2715, 2007 (Pubitemid 47001096)
4. Yeh JM, Nekhlyudov L, Goldie SJ, et al: A model-based estimate of cumulative excess mortality in survivors of childhood cancer. Ann Intern Med 152:409-417, W131-W138, 2010
5. Armstrong GT, Liu Q, Yasui Y, et al: Late mortality among 5-year survivors of childhood cancer: A summary from the Childhood Cancer Survivor Study. J Clin Oncol 27:2328-2338, 2009
6. Reulen RC, Winter DL, Frobisher C, et al: Long-term cause-specific mortality among survivors of childhood cancer. JAMA 304:172-179, 2010
7. Skinner R, Wallace WH, Levitt GA: Long-term follow-up of people who have survived cancer during childhood. Lancet Oncol 7:489-498, 2006 (Pubitemid 44207842)
8. Nathan PC, Ford JS, Henderson TO, et al: Health behaviors, medical care, and interventions to promote healthy living in the Childhood Cancer Survivor Study cohort. J Clin Oncol 27:2363-2373, 2009
9. Hewitt M, Weiner SL, Simone JV (eds): Childhood Cancer Survivorship: Improving Care and Quality of Life. Washington, DC, National Academies Press, 2003
10. Landier W, Bhatia S, Eshelman DA, et al: Development of risk-based guidelines for pediatric cancer survivors: The Children's Oncology Group long-term follow-up guidelines from the Children's Oncology Group Late Effects Committee and Nursing Discipline. J Clin Oncol 22:4979-4990, 2004 (Pubitemid 46638624)
11. Oeffinger KC, McCabe MS: Models for delivering survivorship care. J Clin Oncol 24:5117-5124, 2006 (Pubitemid 46623197)
12. Jacobs LA, Palmer SC, Schwartz LA, et al: Adult cancer survivorship: Evolution, research, and planning care. CA Cancer J Clin 59:391-410, 2009
13. Stevens MM: "Shuttle sheet": A patient-held medical record for pediatric oncology families. Med Pediatr Oncol 20:330-335, 1992
14. Scottish Intercollegiate Guidelines Network: Long-Term Follow-Up of Survivors of Childhood Cancer: A National Clinical Guideline. http://www.sign.ac.uk/pdf/sign76.pdf
15. Hewitt M, Greenfield S, Stovall E (eds): From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC, National Academies Press, 2006
16. American Society of Clinical Oncology: ASCO Cancer Treatment Summaries. http://www.cancer.net/patient/Survivorship/ASCO+Cancer+Treatment+Summaries
17. Kremer L, Jaspers M, van Leeuwen F, et al: Landelijke richtlijnen voor follow-up van overlevenden van kinderkanker. Tijdschrift voor Kindergeneeskund 74:247-250, 2006
18. Children's Oncology Group: Long-Term Follow-Up Guidelines for Survivors of Childhood,Adolescent,andYoungAdultCancers.http://www.survivorshipguidelines. org
19. Hill-Kayser CE, Vachani C, Hampshire MK, et al: An internet tool for creation of cancer survivorship care plans for survivors and health care providers: Design, implementation, use and user satisfaction. J Med Internet Res 11:e39, 2009
20. Hewitt ME, Bamundo A, Day R, et al: Perspectives on post-treatment cancer care: Qualitative research with survivors, nurses, and physicians. J Clin Oncol 25:2270-2273, 2007 (Pubitemid 46954654)
21. Cancer NCCf: Guidance on Cancer Services: Improving Outcomes in Children and Young People With Cancer. London, England, National Institute for Health and Clinical Excellence, 2005
22. Blaauwbroek R, Tuinier W, Meyboom-de Jong B, et al: Shared care by paediatric oncologists and family doctors for long-term follow-up of adult childhood cancer survivors: A pilot study. Lancet Oncol 9:232-238, 2008
23. Blaauwbroek R, Zwart N, Bouma M, et al: The willingness of general practitioners to be involved in the follow-up of adult survivors of childhood cancer. J Cancer Surviv 1:292-297, 2007
24. Oeffinger KC, Hudson MM, Mertens AC, et al: Increasing rates of breast cancer and cardiac surveillance among high-risk survivors of childhood Hodgkin lymphoma following a mailed, one-page survivorship care plan. Pediatr Blood Cancer 56:818-824, 2011
25. Hobbie WL, Stuber M, Meeske K, et al: Symptoms of posttraumatic stress in young adult survivors of childhood cancer. J Clin Oncol 18:4060-4066, 2000 (Pubitemid 32038398)
26. Odo R, Potter C: Understanding the needs of young adult cancer survivors: A clinical perspective. Oncology (Williston Park) 23:7-33, 2009 (suppl 11)
27. Finnegan L, Campbell RT, Ferrans CE, et al: Symptom cluster experience profiles in adult survivors of childhood cancers. J Pain Symptom Manage 38:258-269, 2009
28. Portenoy RK, Thaler HT, Kornblith AB, et al: The Memorial Symptom Assessment Scale: An instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer 30A:1326-1336, 1994 (Pubitemid 24322071)
29. Jacobs LA, Palmer SC, Schwartz LA, et al: Adult cancer survivorship: Evolution, research, and planning care. CA Cancer J Clin 59:391-410, 2009
30. Hill-Kayser CE, Vachani C, Hampshire MK, et al: An internet tool for creation of cancer survivorship care plans for survivors and health care providers: Design, implementation, use and user satisfaction. J Med Internet Res 11:e39, 2009
31. Hewitt ME, Bamundo A, Day R, et al: Perspectives on post-treatment cancer care: Qualitative research with survivors, nurses, and physicians. J Clin Oncol 25:2270-2273, 2007 (Pubitemid 46954654)
32. Burg MA, Lopez EDS, Dailey A, et al: The potential of survivorship care plans in primary care follow-up of minority breast cancer patients. J Gen Int Med 24:S467-S471, 2009 (suppl 2)
33. Brennan ME, Butow P, Marven M, et al: Survivorship care after breast cancer treatment - Experiences and preferences of Australian women. Breast [epub ahead of print, January 11, 2011]
34. Pitkethly M, Macgillivray S, Ryan R: Recordings or summaries of consultations for people with cancer. Cochrane Database Syst Rev 3:CD001539, 2008
35. Edwards D: Head and neck cancer services: Views of patients, their families and professionals. Br J Oral Maxillofac Surg 36:99-102, 1998