-
1
-
-
0003867020
-
-
Cambridge, MA: Belknap Press of Harvard University Press
-
Scanlon TM. What we owe to each other. Cambridge, MA: Belknap Press of Harvard University Press, 1999.
-
(1999)
What we owe to each other
-
-
Scanlon, T.M.1
-
2
-
-
44949089705
-
Incidental findings in human subjects research: what do investigators owe research participants?
-
211
-
Miller FG, Mello MM, Joffe S. Incidental findings in human subjects research: what do investigators owe research participants? J Law Med Ethics 2008; 36: 271-9, 211.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 271-279
-
-
Miller, F.G.1
Mello, M.M.2
Joffe, S.3
-
3
-
-
84859577332
-
Exploring concordance and discordance for return of incidental findings from clinical sequencing
-
Green RC, Berg JS, Berry GT et al. Exploring concordance and discordance for return of incidental findings from clinical sequencing. Genet Med 2012; 14: 405-10.
-
(2012)
Genet Med
, vol.14
, pp. 405-410
-
-
Green, R.C.1
Berg, J.S.2
Berry, G.T.3
-
4
-
-
81955167410
-
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research
-
Tabor HK, Berkman BE, Hull SC et al. Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research. Am J Med Genet A 2011; 155A: 2916-24.
-
(2011)
Am J Med Genet A
, vol.155 A
, pp. 2916-2924
-
-
Tabor, H.K.1
Berkman, B.E.2
Hull, S.C.3
-
5
-
-
84859566974
-
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
-
Wolf SM, Crock BN, Ness BV et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med 2012; 14: 361-84.
-
(2012)
Genet Med
, vol.14
, pp. 361-384
-
-
Wolf, S.M.1
Crock, B.N.2
Ness, B.V.3
-
6
-
-
74049131900
-
Genetic risk information for common diseases may indeed be already useful for prevention and early detection
-
Gulcher J, Stefansson K. Genetic risk information for common diseases may indeed be already useful for prevention and early detection. Eur J Clin Invest 2010; 40: 56-63.
-
(2010)
Eur J Clin Invest
, vol.40
, pp. 56-63
-
-
Gulcher, J.1
Stefansson, K.2
-
7
-
-
23344451021
-
Disclosing individual results of clinical research: implications of respect for participants
-
Shalowitz DI, Miller FG. Disclosing individual results of clinical research: implications of respect for participants. JAMA 2005; 294: 737-40.
-
(2005)
JAMA
, vol.294
, pp. 737-740
-
-
Shalowitz, D.I.1
Miller, F.G.2
-
8
-
-
84867698809
-
A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research
-
Budin-Ljøsne I. A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research. Research Ethics 2012; 8: 25-42.
-
(2012)
Research Ethics
, vol.8
, pp. 25-42
-
-
Budin-Ljøsne, I.1
-
9
-
-
80755125656
-
You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative
-
Angrist M. You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative. Per Med 2011; 8: 651-7.
-
(2011)
Per Med
, vol.8
, pp. 651-657
-
-
Angrist, M.1
-
10
-
-
77951914791
-
Personal genome research: what should the participant be told?
-
McGuire AL, Lupski JR. Personal genome research: what should the participant be told? Trends Genet 2010; 26: 199-201.
-
(2010)
Trends Genet
, vol.26
, pp. 199-201
-
-
McGuire, A.L.1
Lupski, J.R.2
-
11
-
-
57349105254
-
Public expectations for return of results-time to stop being paternalistic?
-
Fernandez C. Public expectations for return of results-time to stop being paternalistic? Am J Bioeth 2008; 8: 46-8.
-
(2008)
Am J Bioeth
, vol.8
, pp. 46-48
-
-
Fernandez, C.1
-
12
-
-
77956415308
-
To the barricades!
-
Greely HT. To the barricades! Am J Bioeth 2010; 10: 1-2.
-
(2010)
Am J Bioeth
, vol.10
, pp. 1-2
-
-
Greely, H.T.1
-
13
-
-
70249088738
-
Biobank research: reporting results to individual participants
-
Bovenberg J, Meulenkamp T, Smets E et al. Biobank research: reporting results to individual participants. Eur J Health Law 2009; 16: 229-47.
-
(2009)
Eur J Health Law
, vol.16
, pp. 229-247
-
-
Bovenberg, J.1
Meulenkamp, T.2
Smets, E.3
-
14
-
-
57349167685
-
Public expectations for return of results from large-cohort genetic research
-
Murphy J, Scott J, Kaufman D et al. Public expectations for return of results from large-cohort genetic research. Am J Bioeth 2008; 8: 36-43.
-
(2008)
Am J Bioeth
, vol.8
, pp. 36-43
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
-
15
-
-
33847347280
-
The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer
-
Fernandez CV, Santor D, Weijer C et al. The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer. Pediatr Blood Cancer 2007; 48: 441-6.
-
(2007)
Pediatr Blood Cancer
, vol.48
, pp. 441-446
-
-
Fernandez, C.V.1
Santor, D.2
Weijer, C.3
-
16
-
-
33750631748
-
Disclosing individual genetic results to research participants
-
Ravitsky V, Wilfond BS. Disclosing individual genetic results to research participants. Am J Bioeth 2006; 6: 8-17.
-
(2006)
Am J Bioeth
, vol.6
, pp. 8-17
-
-
Ravitsky, V.1
Wilfond, B.S.2
-
17
-
-
57449115536
-
Subjects matter: a survey of public opinions about a large genetic cohort study
-
Kaufman D, Murphy J, Scott J et al. Subjects matter: a survey of public opinions about a large genetic cohort study. Genet Med 2008; 10: 831-9.
-
(2008)
Genet Med
, vol.10
, pp. 831-839
-
-
Kaufman, D.1
Murphy, J.2
Scott, J.3
-
18
-
-
33750610480
-
Considering the nature of individual research results
-
author reply W10-2
-
Beskow LM. Considering the nature of individual research results. Am J Bioeth 2006; 6: 38-40, author reply W10-2.
-
(2006)
Am J Bioeth
, vol.6
, pp. 38-40
-
-
Beskow, L.M.1
-
19
-
-
33750624177
-
Undesirable implications of disclosing individual genetic results to research participants
-
author reply W10-2
-
Meltzer LA. Undesirable implications of disclosing individual genetic results to research participants. Am J Bioeth 2006; 6: 28-30, author reply W10-2.
-
(2006)
Am J Bioeth
, vol.6
, pp. 28-30
-
-
Meltzer, L.A.1
-
20
-
-
29944440965
-
Implications of disclosing individual results of clinical research
-
author reply 37-8
-
Clayton EW, Ross LF. Implications of disclosing individual results of clinical research. JAMA 2006; 295: 37, author reply 37-8.
-
(2006)
JAMA
, vol.295
, pp. 37
-
-
Clayton, E.W.1
Ross, L.F.2
-
21
-
-
44949095629
-
Understanding incidental findings in the context of genetics and genomics
-
212
-
Cho MK. Understanding incidental findings in the context of genetics and genomics. J Law Med Ethics 2008; 36: 280-5, 212.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 280-285
-
-
Cho, M.K.1
-
22
-
-
12844261878
-
The therapeutic misconception: problems and solutions
-
Lidz CW, Appelbaum PS. The therapeutic misconception: problems and solutions. Med Care 2002; 40 (suppl): V55-63.
-
(2002)
Med Care
, vol.40
, Issue.SUPPL.
-
-
Lidz, C.W.1
Appelbaum, P.S.2
-
23
-
-
70450235358
-
Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results
-
Forsberg JS, Hansson MG, Eriksson S. Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results. Eur J Hum Genet 2009; 17: 1544-9.
-
(2009)
Eur J Hum Genet
, vol.17
, pp. 1544-1549
-
-
Forsberg, J.S.1
Hansson, M.G.2
Eriksson, S.3
-
24
-
-
80053294772
-
Population biobanks and returning individual research results: mission impossible or new directions?
-
Wallace SE, Kent A. Population biobanks and returning individual research results: mission impossible or new directions? Hum Genet 2011; 130: 393-401.
-
(2011)
Hum Genet
, vol.130
, pp. 393-401
-
-
Wallace, S.E.1
Kent, A.2
-
25
-
-
58149242554
-
Ethics and biobanks
-
Hansson MG. Ethics and biobanks. Br J Cancer 2009; 100: 8-12.
-
(2009)
Br J Cancer
, vol.100
, pp. 8-12
-
-
Hansson, M.G.1
-
26
-
-
69749091289
-
Is it ethical to deny genetic research participants individualised results?
-
Affleck P. Is it ethical to deny genetic research participants individualised results? J Med Ethics 2009; 35: 209-13.
-
(2009)
J Med Ethics
, vol.35
, pp. 209-213
-
-
Affleck, P.1
-
27
-
-
33750628750
-
Letting the gene out of the bottle: a comment on returning individual research results to participants
-
author reply W10-2
-
Ossorio PN. Letting the gene out of the bottle: a comment on returning individual research results to participants. Am J Bioeth 2006; 6: 24-5, author reply W10-2.
-
(2006)
Am J Bioeth
, vol.6
, pp. 24-25
-
-
Ossorio, P.N.1
-
28
-
-
33750613783
-
Questions, complexities, and limitations in disclosing individual genetic results
-
author reply W10-2
-
Klitzman R. Questions, complexities, and limitations in disclosing individual genetic results. Am J Bioeth 2006; 6: 34-6, author reply W10-2.
-
(2006)
Am J Bioeth
, vol.6
, pp. 34-36
-
-
Klitzman, R.1
-
29
-
-
84863003423
-
Managing incidental findings in population based biobank research
-
Solberg B, Steinsbekk KS. Managing incidental findings in population based biobank research. Nor J Epidemiol 2012; 21: 195-202.
-
(2012)
Nor J Epidemiol
, vol.21
, pp. 195-202
-
-
Solberg, B.1
Steinsbekk, K.S.2
-
30
-
-
79151476271
-
Disclosure of individual genetic data to research participants: the debate reconsidered
-
Bredenoord AL, Kroes HY, Cuppen E et al. Disclosure of individual genetic data to research participants: the debate reconsidered. Trends Genet 2011; 27: 41-7.
-
(2011)
Trends Genet
, vol.27
, pp. 41-47
-
-
Bredenoord, A.L.1
Kroes, H.Y.2
Cuppen, E.3
-
31
-
-
74049101159
-
Personal genomics: information can be harmful
-
Ransohoff DF, Khoury MJ. Personal genomics: information can be harmful. Eur J Clin Invest 2010; 40: 64-8.
-
(2010)
Eur J Clin Invest
, vol.40
, pp. 64-68
-
-
Ransohoff, D.F.1
Khoury, M.J.2
-
32
-
-
57449092873
-
An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons
-
McGuire AL, Burke W. An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons. JAMA 2008; 300: 2669-71.
-
(2008)
JAMA
, vol.300
, pp. 2669-2671
-
-
McGuire, A.L.1
Burke, W.2
-
33
-
-
40649092107
-
Duty to disclose what? Querying the putative obligation to return research results to participants
-
Miller FA, Christensen R, Giacomini M et al. Duty to disclose what? Querying the putative obligation to return research results to participants. J Med Ethics 2008; 34: 210-3.
-
(2008)
J Med Ethics
, vol.34
, pp. 210-213
-
-
Miller, F.A.1
Christensen, R.2
Giacomini, M.3
-
34
-
-
44949084673
-
The future of incidental findings: should they be viewed as benefits?
-
213
-
Parker LS. The future of incidental findings: should they be viewed as benefits? J Law Med Ethics 2008; 36: 341-51, 213.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 341-351
-
-
Parker, L.S.1
-
35
-
-
84975742565
-
A map of human genome variation from population-scale sequencing
-
1000 Genomes Project Consortium
-
1000 Genomes Project Consortium. A map of human genome variation from population-scale sequencing. Nature 2010; 467: 1061-73.
-
(2010)
Nature
, vol.467
, pp. 1061-1073
-
-
-
36
-
-
31644440090
-
Returning genetic research results to individuals: points-to-consider
-
Renegar G, Webster CJ, Stuerzebecher S et al. Returning genetic research results to individuals: points-to-consider. Bioethics 2006; 20: 24-36.
-
(2006)
Bioethics
, vol.20
, pp. 24-36
-
-
Renegar, G.1
Webster, C.J.2
Stuerzebecher, S.3
-
37
-
-
77952101271
-
Challenges in the clinical application of whole-genome sequencing
-
Ormond KE, Wheeler MT, Hudgins L et al. Challenges in the clinical application of whole-genome sequencing. Lancet 2010; 375: 1749-51.
-
(2010)
Lancet
, vol.375
, pp. 1749-1751
-
-
Ormond, K.E.1
Wheeler, M.T.2
Hudgins, L.3
-
38
-
-
44949211505
-
Managing incidental findings in human subjects research: analysis and recommendations
-
211
-
Wolf SM, Lawrenz FP, Nelson CA et al. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics 2008; 36: 219-48, 211.
-
(2008)
J Law Med Ethics
, vol.36
, pp. 219-248
-
-
Wolf, S.M.1
Lawrenz, F.P.2
Nelson, C.A.3
-
39
-
-
84867739029
-
-
Perduco. Bioteknologiloven. (18.6.2012)
-
Perduco. Bioteknologiloven. Undersøkelse om holdninger til etiske problemstillinger, 2010. http://helsedirektoratet.no/kvalitet-planlegging/bio-genteknologi/Documents/bioteknologietikk. pdf (18.6.2012).
-
(2010)
Undersøkelse om holdninger til etiske problemstillinger
-
-
-
40
-
-
84867706529
-
Forskning til hvilken pris? Hvor stor skade kan vi tåle hvis forventet resultat er veldig viktig?
-
Fydenberg K. Forskning til hvilken pris? Hvor stor skade kan vi tåle hvis forventet resultat er veldig viktig? Utposten 2007; 3: 6-9.
-
(2007)
Utposten
, vol.3
, pp. 6-9
-
-
Fydenberg, K.1
|