"The Logic of Care" - Parents' perceptions of the educational process when a child is newly diagnosed with type 1 diabetes

BMC Pediatrics

Volumn 12, Issue , 2012, Pages

  Jönsson, Lisbeth ^a   Hallström, Inger ^a   Lundqvist, Anita ^a  

^a LUND UNIVERSITY   (Sweden)

Author keywords

Children; Diabetes education; Parents; Qualitative research; Type 1 diabetes

Indexed keywords

GLUCOSE;

ADULT; ARTICLE; DIETITIAN; FAMILY LIFE; FEMALE; GLUCOSE BLOOD LEVEL; HEALTH EDUCATION; HOSPITAL; HOSPITALIZATION; HUMAN; HYPERGLYCEMIA; HYPOGLYCEMIA; INDIVIDUALIZATION; INSULIN DEPENDENT DIABETES MELLITUS; MALE; MEDICAL LEAVE; PARENTAL ATTITUDE; PHYSICAL ACTIVITY; PSYCHOLOGIST; QUALITATIVE RESEARCH; SOCIAL WORKER;

ADOLESCENT; ADULT; ATTITUDE; CHILD; CHILD, PRESCHOOL; DIABETES MELLITUS, TYPE 1; FEMALE; HUMANS; MALE; MIDDLE AGED; PARENTS;

EID: 84867621765     PISSN: None     EISSN: 14712431     Source Type: Journal    
DOI: 10.1186/1471-2431-12-165     Document Type: Article

References (35)

1. The World Health Organization [WHO] (Fact sheet N°312, August 2011) http://www.who.int/mediacentre/factsheets/fs312/en/index.html., The World Health Organization [WHO] (Fact sheet N°312, August 2011).
2. Alderson P, Sutcliffe K, Curtis K. Children as partners with adults in their medical care. Arch Dis Child 2006, 91(4):300-303. 10.1136/adc.2005.079442, 2065959, 16399782.
3. Patterson CC, Dahlquist GG, Gyurus E, Green A, Soltesz G. Incidence trends for childhood type 1 diabetes in Europe during 1989-2003 and predicted new cases 2005-20: a multicentre prospective registration study. Lancet 2009, 373(9680):2027-2033. 10.1016/S0140-6736(09)60568-7, 19481249.
4. Funnell MM, Anderson R. Empowerment and self-management of diabetes. Clinical Diabetes 2004, 22(3):123-127.
5. van Dam HA, van der Horst F, van den Borne B, Ryckman R, Crebolder H. Provider-patient interaction in diabetes care: effects on patient self-care and outcomes. A systematic review. Patient Educ Couns 2003, 51(1):17-28. 10.1016/S0738-3991(02)00122-2, 12915276.
6. DCCT Research Group The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial. N Engl J Med 1993, 329(14):977-986. DCCT Research Group.
7. Northam E, Anderson P, Adler R, Werther G, Warne G. Psychosocial and family functioning in children with insulin-dependent diabetes at diagnosis and one year later. J Pediatr Psychol 1996, 21(5):699-717. 10.1093/jpepsy/21.5.699, 8936898.
8. Streisand R, Mackey ER, Elliot BM, Mednick L, Slaughter IM, Turek J, Austin A. Parental anxiety and depression associated with caring for a child newly diagnosed with type 1 diabetes: opportunities for education and counseling. Patient Educ Couns 2008, 73(2):333-338. 10.1016/j.pec.2008.06.014, 18692342.
9. Swift PG. Diabetes education in children and adolescents. Pediatr Diabetes 2009, 10(Suppl 12):51-57.
10. Sjöblad S. Pediatric and Adolescent Diabetes", A national care program by the Swedish society for diabetology and endocrinology. Barn- och ungdomsdiabetes [In Swedish], 2. [uppdaterade och utvidgade] uppl. edn 2008, Lund: Studentlitteratur.
11. Dahlqvist G. "Pediatric and Adolescent Diabetes", A national care program by the Swedish society for diabetology and endocrinology. Barn- och ungdomsdiabetes [In Swedish], 2. [uppdaterade och utvidgade] uppl. edn 2008, Lund: Studentlitteratur.
12. Jonsson L, Hallstrom I, Lundqvist A. A multi-disciplinary education process related to the discharging of children from hospital when the child has been diagnosed with type 1 diabetes-a qualitative study. BMC Pediatr 2010, 10:36. 10.1186/1471-2431-10-36, 2889941, 20507611.
13. Potter WJ, Deborah L-D. Rethinking validity and reliability in content analysis. J Appl Commun Res 1999, 27(3):258-284.
14. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004, 24(2):105-112. 10.1016/j.nedt.2003.10.001, 14769454.
15. WMA Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects http://www.wma.net/en/30publications/10policies/b3/index.html..
16. Mol A. The logic of care: health and the problem of patient choice 2008, Abingdon, Oxon: Routledge.
17. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005, 15(9):1277-1288. 10.1177/1049732305276687, 16204405.
18. Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC. Patient empowerment. Results of a randomized controlled trial. Diabetes Care 1995, 18(7):943-949. 10.2337/diacare.18.7.943, 7555554.
19. Lange K, Sassmann H, von Schutz W, Kordonouri O, Danne T. Prerequisites for age-appropriate education in type 1 diabetes: a model programme for paediatric diabetes education in Germany. Pediatr Diabetes 2007, 8(Suppl 6):63-71.
20. Winkley K, Ismail K, Landau S, Eisler I. Psychological interventions to improve glycaemic control in patients with type 1 diabetes: systematic review and meta-analysis of randomised controlled trials. BMJ 2006, 333(7558):65. 10.1136/bmj.38874.652569.55, 1489251, 16803942.
21. American Diabetes Association Implications of the diabetes control and complications trial. Diabetes Care 2003, 26(1):25-27. American Diabetes Association.
22. Lundqvist A, Nilstun T. Human dignity in paediatrics: the effects of health care. Nurs Ethics 2007, 14(2):215-228. 10.1177/0969733007073704, 17425150.
23. Wennick A, Hallstrom I. Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process. J Fam Nurs 2006, 12(4):368-389. 10.1177/1074840706296724, 17099116.
24. Challener J, Davies S. Audit of care of newly diagnosed children with diabetes mellitus in East Anglia. Diabet Med 1997, 14(9):792-797. 10.1002/(SICI)1096-9136(199709)14:9<792::AID-DIA405>3.0.CO;2-H, 9300231.
25. Landolt MA, Ribi K, Laimbacher J, Vollrath M, Gnehm HE, Sennhauser FH. Posttraumatic stress disorder in parents of children with newly diagnosed type 1 diabetes. J Pediatr Psychol 2002, 27(7):647-652. 10.1093/jpepsy/27.7.647, 12228336.
26. Lowes L, Gregory JW, Lyne P. Newly diagnosed childhood diabetes: a psychosocial transition for parents?. J Adv Nurs 2005, 50(3):253-261. 10.1111/j.1365-2648.2005.03388.x, 15811104.
27. Eiser C, Morse R. The measurement of quality of life in children: past and future perspectives. J Dev Behav Pediatr 2001, 22(4):248-256. 10.1097/00004703-200108000-00007, 11530898.
28. Lincoln Y, Guba E. Naturalistic Inquiry 1985, Beverly Hills: SAGE Publications Inc.
29. Polit DF, Beck CT. Nursing research: principles and methods 2004, Philadelphia: Lippincott Williams & Wilkins, cop, 7.
30. Kvale S, Brinkmann S. InterViews: learning the craft of qualitative research interviewing 2009, Los Angeles: Sage Publications, cop, 2.
31. Dashiff CJ. Self- and dependent-care responsibility of adolescents with. J Fam Nurs 2003, 9(2):166-183.
32. Leonard BJ, Kratz BJ, Skay CL, Rheinberger MM. Comparison of mother-father perceptions of their child's self-management of diabetes. Issues Compr Pediatr Nurs 1997, 20(2):69-87. 10.3109/01460869709026879, 9423384.
33. Hatton DL, Canam C, Thorne S, Hughes AM. Parents' perceptions of caring for an infant or toddler with diabetes. J Adv Nurs 1995, 22(3):569-577. 10.1046/j.1365-2648.1995.22030569.x, 7499626.
34. Singer B, Ryff CD. Hierarchies of life histories and associated health risks. Ann N Y Acad Sci 1999, 896:96-115. 10.1111/j.1749-6632.1999.tb08108.x, 10681891.
35. Polit D, Beck C. Essentials of nursing research: appraising evidence for nursing practice 2010, Philadelphia: Wolters Kluwer Health/Lippincott Williams & Wilkins, 7.