How do psychosocial challenges associated with living with congenital heart disease translate into treatment interests and preferences? A qualitative approach

Psychology and Health

Volumn 27, Issue 11, 2012, Pages 1260-1270

  Pagé, M Gabrielle ^a   Kovacs, Adrienne H ^b   Irvine, Jane ^a  

^a YORK UNIVERSITY   (Canada)

^b UNIVERSITY HEALTH NETWORK   (Canada)

Author keywords

congenital heart disease; psychological intervention; qualitative; treatment interest

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CANADA; CONGENITAL HEART MALFORMATION; COUNSELING; FEMALE; HEALTH SERVICE; HUMAN; INFORMATION PROCESSING; MALE; MENTAL STRESS; MIDDLE AGED; PATIENT EDUCATION; PATIENT PREFERENCE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SELF HELP; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; COUNSELING; FEMALE; FOCUS GROUPS; HEALTH SERVICES NEEDS AND DEMAND; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; ONTARIO; PATIENT EDUCATION AS TOPIC; PATIENT PREFERENCE; QUALITATIVE RESEARCH; SELF-HELP GROUPS; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84867216030     PISSN: 08870446     EISSN: 14768321     Source Type: Journal    
DOI: 10.1080/08870446.2012.667099     Document Type: Article

References (21)

1. Birks, Y, Sloper, P, Lewin, R and Parsons, J. 2006. Exploring health-related experiences of children and young people with congenital heart disease. Health Expectations, 10: 16-29.
2. Braun, V and Clarke, V. 2006. Using thematic analysis in psychology. Qualitative Research in Psychology, 3: 77-101.
3. Bromberg, JI, Beasley, PJ, D'angelo, EJ, Landzberg, M and Demaso, DR. 2003. Depression and anxiety in adults with congenital heart disease: A pilot study. Heart & Lung, 32: 105-110.
4. Connelly, MS, Webb, GD, Somerville, J, Warnes, CA, Perloff, JK, Liberthson, RR and Mckay, R. 1996. Canadian consensus conference on adult congenital heart disease. Canadian Journal of Cardiology, 14: 395-452.
5. Deanfield, J, Thaulow, E, Warnes, CA, Webb, G, Kolbel, F, Hoffman, A and Al, E. 2003. Management of grown up congenital heart disease: The task force on the management of grown up congenital heart disease of the European Society of Cardiology. European Heart Journal, 24: 1035-1084.
6. R. Elliott, Fischer, C.T., & Rennie, D.L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215-229
7. Foster, E, Graham, TP Jr, Driscoll, DJ, Reid, GJ, Reiss, JG, Russell, IA and Webb, GD. 2001. Task force 2: Special health care needs of adults with congenital heart disease. Journal of the American College of Cardiology, 37: 1176-1183.
8. Gantt, LT. 1992. Growing up heartsick: The experiences of young women with congenital heart disease. Health Care Women International, 13: 241-248.
9. Glaser, BG. 1992. Basics of grounded theory analysis, Mill Valley, CA: Sociology Press.
10. Hoffman, JI and Kaplan, S. 2002. The incidence of congenital heart disease. Journal of the American College of Cardiology, 39: 1890-1900.
11. Horner, T, Liberthson, RR and Jellinek, MS. 2000. Psychosocial profile of adults with complex congenital heart disease. Mayo Clinic Proceedings, 75: 31-36.
12. Kantoch, MJ, Eustace, J, Collins-Nakai, RL, Taylor, DA, Bolsvert, JA and Lysak, PS. 2006. The significance of cardiac surgery scars in adult patients with congenital heart disease. Kardiologia Polska, 64: 51-56. discussion 57-58
13. Kovacs, AH, Bendell, KL, Colman, J, Harrison, JL, Oechslin, E and Silversides, C. 2009. Adults with congenital heart disease: Psychological needs and treatment preferences. Congenital Heart Disease, 4: 139-146.
14. Kovacs, AH, Saidi, AS, Kuhl, EA, Sears, SF, Silversides, C, Harrison, JL and Nolan, RP. 2009. Depression and anxiety in adult congenital heart disease: Predictors and prevalence. International Journal of Cardiology, 137: 158-164.
15. Kovacs, AH, Sears, SF and Saidi, AS. 2005. Biopsychosocial experiences of adults with congenital heart disease: Review of the literature. American Heart Journal, 150: 193-201.
16. Moons, P, De Geest, S and Budts, W. 2002. Comprehensive care for adults with congenital heart disease: Expanding roles for nurses. European Journal of Cardiovascular Nursing, 1: 23-28.
17. Moons, P, Van Deyk, K, De Bleser, L, Marquet, K, Raes, E, De Geest, S and Budts, W. 2006. Quality of life and health status in adults with congenital heart disease: A direct comparison with healthy counterparts. European Journal of Cardiovascular Prevention and Rehabilitation, 13: 407-413.
18. Smith, JA and Osborn, M. 2003. "Interpretative phenomenological analysis". In Qualitative psychology: A practical guide to methods, Edited by: Smith, JA. 53-80. London: Sage.
19. Tong, EM, Sparacino, PS, Messias, DK, Foote, D, Chesla, CA and Gilliss, CL. 1998. Growing up with congenital heart disease: The dilemmas of adolescents and young adults. Cardiology in the Young, 8: 303-309.
20. Warnes, CA. 2005. The adult with congenital heart disease: Born to be bad?. Journal of the American College of Cardiology, 46(1): 1-8.
21. Webb, G. 2005. Improving the care of Canadian adults with congenital heart disease. Canadian Journal of Cardiology, 21: 833-838.