Disability Measurement for Lymphatic Filariasis: A Review of Generic Tools Used within Morbidity Management Programs

PLoS Neglected Tropical Diseases

Volumn 6, Issue 9, 2012, Pages

  Zeldenryk, Lynne ^a   Gordon, Susan ^a   Gray, Marion ^b   Speare, Richard ^a   Melrose, Wayne ^a  

^a JAMES COOK UNIVERSITY   (Australia)

^b UNIVERSITY OF THE SUNSHINE COAST   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL ASSESSMENT TOOL; COMMUNITY; DAILY LIFE ACTIVITY; DEPRESSION; DISABILITY; ENVIRONMENTAL FACTOR; FEAR; HUMAN; LYMPHATIC FILARIASIS; MORBIDITY; PATIENT ATTITUDE; PATIENT PARTICIPATION; REVIEW; SOCIAL ASPECT; SOCIAL STATUS; WORK;

CLINICAL MEDICINE; DISABILITY EVALUATION; ELEPHANTIASIS, FILARIAL; HUMANS; SEVERITY OF ILLNESS INDEX;

EID: 84866948162     PISSN: 19352727     EISSN: 19352735     Source Type: Journal    
DOI: 10.1371/journal.pntd.0001768     Document Type: Review

References (45)

1. Streit T, Lafontant JG, (2008) Eliminating lymphatic filariasis: a view from the field. Ann N Y Acad Sci 1136: 53-63.
2. World Health Organization (2010) WHO global programme to eliminate lymphatic filariasis progress report for 2000-2009 and strategic plan 2010-2020. Geneva: World Health Organization.
3. World Health Organization (1992) Informal consultation on evaluation of morbidity in lymphatic filariasis. Document WHO/TDR/FIL/923. Geneva: World Health Organization.
4. Melrose W, (2002) Lymphatic filariasis: new insights into an old disease. Int J Parasitol 32: 947-960.
5. Dreyer G, Addiss D, Dreyer P, Noroes J (2002) Basic lymphoedema management: treatment and prevetion of problems associated with lymphatic filariasis. HollisNH: Hollis Publishing.
6. Mont D, (2007) Measuring health and disability. Lancet 369: 1658-1663.
7. World Health Organization, World Bank (2011) World report on disability. Malta: World Health Organization.
8. World Health Organisation (2003) Global programme to eliminate lymphatic filariasis annual report on lymphatic filariasis 2003. Geneva: World Health Organization.
9. Geyer MJ, Brantus P, Macdonald J, Kelly N (2007) The working group on the integration of wound-lymphedema management accross diseases in resource poor settings: meeting report. Geneva: Handicap International.
10. Girois S, Brantus P, Mackenzie C (2007) Lymphatic filariasis disability prevention for field managers. Ghana: Noguchi Institute.
11. Kumari AK, Krishnamoorthy K, Harichandrakumar K, Das L, (2007) Health related quality of life, an appropriate indicator to assess the impact of morbidity management and disability prevention activities towards elimination of lymphatic filariasis. Filaria J 6: 8.
12. Krishna Kumari A, Krishnamoorthy K, Harichandrakumar K, Das L, (2007) Health related quality of life, and appropriate indicator to assess the impact of morbidity management and disability prevention activities towards elimination of lymphatic filariasis. Filaria J 6: 8.
13. Zeldenryk LM, Gray M, Speare R, Gordon S, Melrose W, (2011) The emerging story of disability associated with lymphatic filariasis: a critical review. PLoS Negl Trop Dis 5: e1366 doi:10.1371/journal.pntd.0001366.
14. Harichandrakumar K, Krishnamoorthy K, Kumari A, Das L, (2006) Health status of lymphatic filariasis assessed from patients using seven domains five levels (7D5L) instrument. Acta Trop 99: 137-143.
15. Krishna Kumari A, Harichandrakumar K, Das L, Krishnamoorthy K, (2005) Physical and psychosocial burden due to lymphatic filariasis as perceived by patients and medical experts. Trop Med Int Health 10: 567-573.
16. Chandrasena T, Premaratna R, Muthugala M, Pathmeswaran A, de Silva N, (2007) Modified Dermatology Life Quality Index as a measure of quality of life in patients with filarial lymphoedema. Trans Roy Soc Trop Med Hyg 101: 245-249.
17. Babu B, Nayak A, Rath K, Kerketta A, (2006) Use of the dermatology quality of life index in filarial lymphoedema patients. Trans Roy Soc Trop Med Hyg 100: 258-263.
18. McPherson T, (2003) Impact on the quality of life of lymphoedema patients following introduction of a hygiene and skin care regimen in a Guyanese community endemic for lymphatic filariasis: a preliminary clinical intervention study. Filaria J 2: 1.
19. Yahathugoda T, Wickramasinghe D, Weerasooriya M, Samarawickrama W, (2005) Lymphoedema and its management in cases of lymphatic filariasis: the current situation in three suburbs of Matara, Sri Lanka, before the introduction of a morbidity-control programme. Ann Trop Med Parasitol 99: 501-510.
20. World Health Organisation (2002) Towards a common language for functioning, disability and health: ICF international classification of functioning, disabilty and health. Geneva: World Health Organization.
21. TheWHOQOL Group (1998) The World Health Organization quality of life assessment (WHOQOL): development and general psychometric properties. Soc Sci Med 46: 1569-1585.
22. Skevington SM, Lotfy M, O'Connell KA, (2004) The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res 13: 299-310.
23. World Health Organization (2000) World Health Organization disability assessment schedule WHODAS II: phase 2 field trials health services research 36-item interviewer administered. Geneva: World Health Organization.
24. World Health Organization (2012) Lymphatic filariasis policy-global programme to eliminate lymphatic filariasis. Geneva: World Health Organization.
25. Fayers PM, Machin D (2007) Quality of life: the assessment, analysis and interpretation of patient-reported outcomes. West Sussex: John Wiley & Sons.
26. Streiner DL, Norman GR (2008) Health Measurement Scales: a practical guide to their development and use. Oxford: Oxford University Press.
27. Bradley C, Todd C, Gorton T, Symonds E, Martin A, et al. (1999) The development of an individualized questionnaire measure of percieved impact of diabetes on quality of life: the ADDQoL. Qual Life Res 8: 79-91.
28. Ahorlu C, Dunyo S, Koram K, Nkrumah F, Aagaard-Hansen J, et al. (1999) Lymphatic filariasis related perceptions and practices on the coast of Ghana: implications for prevention and control. Acta Trop 73: 251-264.
29. Ahorlu CK, Dunyo SK, Asamoah G, Simonsen PE, (2001) Consequences of hydrocele and the benefits of hydrocelectomy: a qualitative study in lymphatic filariasis endemic communities on the coast of Ghana. Acta Tropica 80: 215-221.
30. Babu BV, Mishra S, Nayak AN, (2009) Marriage, sex, and hydrocele: an ethnographic study on the effect of filarial hydrocele on conjugal life and marriageability from Orissa, India. PLoS Negl Trop Dis 3: e414 doi:10.1371/journal.pntd.0000414.
31. Bandyopadhyay L, (1996) Lymphatic filariasis and the women of India. Soc Sci Med 42: 1401-1410.
32. Coreil J, Mayard G, Louis-Charles J, Addiss D, (1998) Filarial elephantiasis among Haitian women: social context and behavioural factors in treatment. Trop Med Int Health 3: 467-473.
33. Gyapong M, Gyapong J, Weiss M, Tanner M, (2000) The burden of hydrocele on men in Northern Ghana. Acta Tropica 77: 287-294.
34. Perera M, Whitehead M, Molyneux D, Weerasooriya M, Gunatilleke G, (2007) Neglected patients with a neglected disease? a qualitative study of lymphatic filariasis. PLoS Negl Trop Dis 1: e128 doi:10.1371/journal.pntd.0000128.
35. Person B, Addiss D, Bartholomew LK, Meijer C, Pou V, et al. (2006) Health-seeking behaviors and self-care practices of Dominican women with lymphoedema of the leg: implications for lymphoedema management programs. Filaria J 5: 13.
36. Person B, Bartholomew LK, Addiss D, van den Borne B, (2007) Disrupted social connectedness among Dominican women with chronic filarial lymphedema. Patient Educ Couns 68: 279-286.
37. Person B, Addiss D, Bartholomew LK, Meijer C, Pou V, et al. (2008) Can it be that god does not remember me? A qualitative study on the psychological distress, suffering, and coping of Dominican women with chronic filarial lymphedema and elephantiasis of the leg. Health Care Women Int 29: 349-365.
38. Person B, Bartholomew LK, Gyapong M, Addiss DG, van den Borne B, (2009) Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana. Soc Sci Med 68: 30-38.
39. Suma T, Shenoy R, Kumaraswami V, (2003) A qualitative study of the perceptions, practices and socio-psychological suffering related to chronic brugian filariasis in Kerala, southern India. Ann Trop Med Parasitol 97: 839-845.
40. Harichandrakumar KT, Krishnamoorthy K, Kumari AK, Das LK, (2006) Health status of lymphatic filariasis assessed from patients using seven domains five levels (7D5L) instrument. Acta Tropica 99: 137-143.
41. Finlay A, Khan G (1992) Dermatology Life Quality Index. Cardiff University Department of Dermatology. Available: http://www.dermatology.org.uk. Accessed 27 2012.
42. World Health Organization (2010) WHODAS 2.0 36-item version, interviewer administered. Geneva: World Health Organization.
43. World Health Organization (2003) ICF checklist: version 2.1a, clinician form for international classification of functioning, disability and health. Geneva: World Health Organization.
44. World Health Organization (1998) WHOQOL user manual. Division of mental health and prevention of substance abuse. Geneva: World Health Organization.
45. World Health Organization (2003) The World Health Organization Quality of Life (WHOQOL)-BREF. Division of Mental health and Prevention of Substance Abuse. Geneva: World Health Organization.