New insights into family functioning and quality of life after pediatric liver transplantation

Pediatric Transplantation

Volumn 16, Issue 7, 2012, Pages 711-715

  Denny, Bianca ^a   Beyerle, Kathe ^b   Kienhuis, Mandy ^a   Cora, Ancuta ^a   Gavidia Payne, Susana ^a   Hardikar, Winita ^b  

^a RMIT UNIVERSITY   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

Author keywords

family adjustments; family functioning; pediatric liver transplantation; quality of life

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD CARE; CLINICAL ARTICLE; CROSS-SECTIONAL STUDY; CUSTODY; FAMILY FUNCTIONING; FEMALE; GRAFT RECIPIENT; HUMAN; LIVER TRANSPLANTATION; MALE; PRESCHOOL CHILD; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SCHOOL CHILD;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FAMILY; HUMANS; LIVER FAILURE; LIVER TRANSPLANTATION; MODELS, STATISTICAL; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; STRESS, PSYCHOLOGICAL;

EID: 84866735051     PISSN: 13973142     EISSN: 13993046     Source Type: Journal    
DOI: 10.1111/j.1399-3046.2012.01738.x     Document Type: Article

References (19)

1. Hardikar W, Smith AL, Angus P, Gleeson A, Wilson G, Jones RM,. Paediatric liver transplantation [corrected] in Melbourne: The first 50 patients. Pediatr Surg Int 2002: 18: 354-356.
2. Heffron TG, Pillen T, Smallwood G, et al., Pediatric liver transplantation for acute liver failure at a single center: A 10-yr experience. Pediatr Transplant 2010: 14: 228-232.
3. Bucuvalas JC, Britto M, Krug S, et al., Health-related quality of life in pediatric liver transplant recipients: A single-center study. Liver Transpl 2003: 9: 62-71.
4. Asonuma K, Inomata Y, Uemoto S, et al., Growth and quality of life after living-related liver transplantation in children. Pediatr Transplant 1998: 2: 64-69.
5. Burra P, De Bona M,. Quality of life following organ transplantation. Transpl Int 2007: 20: 397-409.
6. Weisner T, Matheson C, Coote J, Bernheimer LP,. Sustainability of daily routines as a family outcome. In:, Maynard A, Martini M, eds. Learning in Cultural Context: Family, Peers and School. New York: Kluwer/Plenum, 2005: pp. 41-73.
7. Fredericks EM, Lopez MJ, Magee JC, Shieck V, Opipari-Arrigan L,. Psychological functioning, nonadherence and health outcomes after pediatric liver transplantation. Am J Transplant 2007: 7: 1974-1983.
8. Bernheimer LP, Weisner TS,. "Let me just tell you what I do all day.": The family story at the center of intervention research and practice. Infants Young Child 2007: 20: 192-201.
9. Alonso EM, Neighbors K, Barton FB, et al., Health-related quality of life and family function following pediatric liver transplantation. Liver Transpl 2008: 14: 460-468.
10. Alonso EM, Neighbors K, Mattson C, et al., Functional outcomes of pediatric liver transplantation. J Pediatr Gastroenterol Nutr 2003: 37: 155-160.
11. Zitelli BJ, Miller JW, Gartner JC Jr, et al., Changes in life-style after liver transplantation. Pediatrics 1988: 82: 173-180.
12. Rodrigue JR, Macnaughton K, Hoffmann RG Iii, et al., Transplantation in children. A longitudinal assessment of mothers' stress, coping, and perceptions of family functioning. Psychosomatics 1997: 38: 478-486.
13. Gold LM, Kirkpatrick BS, Fricker FJ, Zitelli BJ,. Psychosocial issues in pediatric organ transplantation: The parents' perspective. Pediatrics 1986: 77: 738-744.
14. Stone RD, Beasley PJ, Treacy SJ, Twente AW, Vacanti JP,. Children and families can achieve normal psychological adjustment and a good quality of life following pediatric liver transplantation: A long-term study. Transpl Proc 1997: 29: 1571-1572.
15. Tornqvist J, Van Broeck N, Finkenauer C, et al., Long-term psychosocial adjustment following pediatric liver transplantation. Pediatr Transplant 1999: 3: 115-125.
16. Gallimore R, Coots J, Weisner T, Garnier H, Guthrie D,. Family responses to children with early developmental delays. II: Accommodation intensity and activity in early and middle childhood. Am J Ment Retard 1996: 101: 215-232.
17. Weissberg-Benchell J, Zielinski TE, Rodgers S, et al., Pediatric health-related quality of life: Feasibility, reliability and validity of the PedsQL transplant module. Am J Transplant 2010: 10: 1677-1685.
18. SPSS I nc. IBM SPSS Statistics Base 18. Chicago, IL: IBM SPSS, 2010.
19. Davis K, Gavidia-Payne S,. The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. J Intellect Dev Disabil 2009: 34: 153-162.