Barriers and facilitators to the receipt of palliative care for people with dementia: The views of medical and nursing staff

Palliative Medicine

Volumn 26, Issue 7, 2012, Pages 879-886

  Ryan, Tony ^a   Gardiner, Clare ^a   Bellamy, Gary ^a   Gott, Merryn ^a   Ingleton, Christine ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Alzheimer's disease; dementia; health care team; mental competency; palliative care; qualitative research

Indexed keywords

ARTICLE; CLINICAL PRACTICE; COMPETENCE; DEMENTIA; FAMILY; GENERAL PRACTICE; HEALTH CARE PERSONNEL; HOSPICE CARE; HUMAN; INTERVIEW; MEDICAL SPECIALIST; MEDICAL STAFF; NURSING STAFF; PALLIATIVE THERAPY; PERSONAL EXPERIENCE; PROFESSIONAL COMPETENCE; QUALITATIVE RESEARCH; UNITED KINGDOM;

AGED; ATTITUDE OF HEALTH PERSONNEL; CLINICAL COMPETENCE; CONTINUITY OF PATIENT CARE; COOPERATIVE BEHAVIOR; DEMENTIA; FOCUS GROUPS; GREAT BRITAIN; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERDISCIPLINARY COMMUNICATION; MEDICAL STAFF; NURSING STAFF; PALLIATIVE CARE; QUALITATIVE RESEARCH; QUESTIONNAIRES;

EID: 84866681525     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216311423443     Document Type: Article

References (40)

1. World Alzheimer's report. London: Alzheimer's Disease International ; 2009:
2. Ferri C, Brayne C, Brodaty H, Fratiglioni L, Ganuli M, Hall K, et al. Global Prevalence of Dementia: a Delphi consensus study. Lancet. 2005 ; 366: 2112-2117
3. Living well with dementia: a national dementia strategy. London: The Stationery Office ; 2009:
4. National dementia strategy 2010-2015. Wellington: Alzheimer's New Zealand ; 2010:
5. National framework for action on dementia. Sydney: New South Wales Department of Health ; 2006:
6. Dutch dementia care plan. The Hague: Ministry of Health Welfare & Sports ; 2008:
7. Houttekier M, Cohen J, Bilsen J, Addington-Hall J, Onwuteaka-Philipsen B, Deliens L. Place of death of older persons with dementia. A study in five European countries. J Am Geriatr Soc. 2010 ; 58: 751-756
8. Gove D, Sparr S, Dos Santos Bernardo A, Cosgrave M, Jansen S, Martensson B, et al. Recommendations on end of life care for people with dementia. J Nutr Health Aging. 2010 ; 14: 136-139
9. Sampson E, Ritchie C, Lai R, Raven P, Blanchard M. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr. 2005 ; 17: 31-40
10. Ingleton C, Seymour J Palliative care nursing: principles and evidence for practice. Payne S Seymour J Ingleton C, ed. Buckingham: Open University Press ; 2008:
11. Murray S, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. Br Med J. 2005 ; 330: 1007-1011
12. Coventry P, Grande G, Richards D, Todd C. Prediction of appropriate timing of palliative care for older adults with non-malignant life threatening disease: a systematic review. Age Ageing. 2005 ; 34: 218-227
13. Schäufele M, Bickel H, Weyerer S. Predictors of mortality among demented elderly in primary care. Int J Geriatr Psychiatr. 1999 ; 14: 946-956
14. Carlson M, Brandt J, Steele C, Baker A, Stern Y, Lyketsos C. Predictor index of mortality in dementia patients upon entry into long-term care. J Gerontol A Biol Sci Med Sci. 2001 ; 56: M567 - M570
15. Small N, Frogatt K, Downs M Living and dying with dementia: dialogues about palliative care. Oxford: Oxford University Press ; 2007:
16. Monteleoni C, Clark E. Using rapid-cycle quality improvement methodology to reduce feeding tubes in patients with advanced dementia: before and after study. Br Med J. 2004 ; 329: 491-494
17. Finucane T, Christmas C, Travis K. Tube feeding in patients with advanced dementia: a review of the evidence. J Am Med Assoc. 1999 ; 282: 1365-1370
18. Evers M, Purohit D, Perl D, Khan K, Marin D. Palliative and aggressive end-of life care for patients with dementia. Psychiatr Serv. 2002 ; 53: 609-613
19. Watson R, Green S. Feeding and dementia: a systematic literature review. J Adv Nurs. 2006 ; 54: 86-93
20. Hughes J, Jolley D, Jordan A, Sampson E. Palliative care in dementia: issues and evidence. Adv Psychiatr Treat. 2007 ; 13: 251-260
21. Robinson L, Hughes J, Daley S, Keady J, Ballard C, Volicer L. End-of-life care and dementia. Rev Clin Gerontol. 2006 ; 15: 135-148
22. Birch D, Draper J. A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia. J Clin Nurs. 2008 ; 17: 1144-1163
23. Gardiner C, Ingleton C, Gott M, Ryan T. Exploring the transition from curative care to palliative care: a systematic review of the literature. BMJ Support Palliat Care. 2011 ; 1: 56-63
24. Forbes S, Bern-Klug M, Gessert C. End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh. 2000 ; 32: 251-258
25. Coetzee R, Leask S, Jones R. The attitudes of carers and old age psychiatrists towards the treatment of potentially fatal events in end-stage dementia. Int J Geriatr Psych. 2003 ; 18: 169-173
26. Aminoff BZ. Overprotection phenomenon with dying dementia patients. Am J Hosp Palliat Care. 2005 ; 22: 247-248
27. Gardiner C, Cobb M, Gott M, Ingleton C. Barriers to providing palliative care for older people in acute hospitals. Age Ageing. 2011 ; 40: 233-238
28. London: The Stationery Office ; 2005:
29. Addington-Hall J Palliative care nursing: principles and evidence for practice. Payne S Seymour J Ingleton C, ed. Maidenhead: McGraw Hill ; 2008:
30. End of life care strategy - promoting high quality care for all adults at the end of life. London: The Stationery Office ; 2008:
31. The New Zealand palliative care strategy. Wellington: Ministry of Health ; 2001:
32. Mitchell SL, Keily DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med. 2004 ; 164: 321-328
33. Murtagh FEM, Preson M, Higginson I. Patterns of dying: palliative care for non-malignant disease. Clin Med. 2004 ; 4: 39-44
34. Sachs GA, Shega JW, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med. 2004 ; 19: 1057-1063
35. Ryan T, Nolan M, Ingleton C, Gott M, Gardiner C. Supporting older people with dementia to die with dignity. Nurs Older People. 2009 ; 21: 18-23
36. Frampton M. Experience assessment and management of pain in people with dementia. Age Ageing. 2003 ; 32: 248-251
37. Sourial R, McCusker J, Cole M, Abrahamowicz M. Agitation in demented patients in an acute care hospital: prevalence, disruptiveness, and staff burden. Intern Psychogeriatr. 2001 ; 13: 183-197
38. Ryan T. End-of-life care for people with dementia: a thematic review of familial involvement, practices and beliefs. Int J Disabil Hum Dev. 2009 ; 8: 15-20
39. Torke A, Holtz L, Hui S, Castelluccio P, Connor S, Eaton M, et al. Palliative care for people with dementia: a national survey. J Am Geriatr Soc. 2010 ; 58: 2114-2121
40. Teno J, Grunier A, Scwartz Z, Nanda A, Wetle T. Association between advance directives and quality of end-of-life care: a national study. J Am Geriatr Soc. 2007 ; 55: 189-194