Elders' preferences for life-prolonging treatment and their proxies' substituted judgment: Influence of the elders' current health

Journal of Aging and Health

Volumn 24, Issue 7, 2012, Pages 1157-1178

  Winter, Laraine ^a   Parks, Susan M ^a  

^a THOMAS JEFFERSON UNIVERSITY   (United States)

Author keywords

end of life; families; physical function

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; CROSS-SECTIONAL STUDY; CUSTODY; DAILY LIFE ACTIVITY; DECISION MAKING; DEMENTIA; FEMALE; HEALTH STATUS; HUMAN; INFORMATION PROCESSING; INFORMED CONSENT; LONG TERM CARE; MALE;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CROSS-SECTIONAL STUDIES; DATA COLLECTION; DECISION MAKING; DEMENTIA; FEMALE; HEALTH STATUS; HUMANS; JUDGMENT; LIFE SUPPORT CARE; MALE; PROXY; THIRD-PARTY CONSENT;

EID: 84866512283     PISSN: 08982643     EISSN: 15526887     Source Type: Journal    
DOI: 10.1177/0898264312454572     Document Type: Article

References (55)

1. Allen-Burge R., Haley W. E.. Individual differences and surrogate decision making: Differing preferences for life-sustaining treatment. Aging and Mental Health. 1997 ; 1: 121-131
2. Blackhall L. J., Frank G., Murphy S. T., Michel V., Patmer J. M., Azen S. P.. Ethnicity and attitudes towards life sustaining technology. Social Science and Medicine. 1999 ; 48: 1779-1789
3. Bookwala J., Coppola K. M., Fagerlin A., Ditto P. H., Danks J. H., Smucker W. D.. Gender differences in older adults' preferences for life-sustaining medical treatments and end-of-life values. Death Studies. 2001 ; 25: 127-149
4. Bullock K.. The influence of culture on end-of-life decision making. Journal of Social Work on End-of-Life and Palliative Care. 2011 ; 7: 83-98
5. Caralis P. V., Davis B., Wright K., Marcial E.. The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia. Journal of Clinical Ethics. 1993 ; 4: 155-165
6. Coppola K. M., Bookwala J., Ditto P. H., Lockhart L. K., Danks J. H., Smucker W. D.. Elderly adults' preferences for life-sustaining treatments: The role of impairment, prognosis, and pain. Death Studies. 1999 ; 23: 617-634
7. Diamond E. L., Jernigan J. A., Moseley R. A., Mesina V., McKeown R. A.. Decision-making ability and advance directive preferences in nursing home paients and proxies. The Gerontologist. 1989 ; 29: 622-626
8. Ditto P. H., Danks J. H., Smucker W. D., Bookwala J., Coppola K. M., Dresser R.,... Zyzanski S.. Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine. 2001 ; 161: 421-430
9. Fagerlin A., Ditto P. H., Danks J. H., Houts R. M., Smucker W. D.. Projection in surrogate decisions about life-sustaining medical treatments. Health Psychology. 2001 ; 20: 166-175
10. Field M. J., Cassel C. K. Approaching death: Improving care at the end of life. Washington, DC: National Academy of Sciences ; 1997 :
11. Fried T. R., Byers A. L., Gallo W. T., Van Ness P. H., Towle V.R., O'Leary J. R., Dubin J. A.. Prospective study of health status preferences and changes over time in older adults. Archives of Internal Medicine. 2006 ; 166: 890-895
12. Garrett J. M., Harris R. P., Norburn J. K., Patrick D. L., Danis M.. Life-sustaining treatments during terminal illness: Who wants what?. Journal of General Internal Medicine. 1993 ; 8: 361-368
13. Gerety M. B., Chiodo L. K., Kanaten D. N., Tuley M. R., Cornell J. E.. Medical treatment preferences of nursing home residents: Relationship to function and concordance with surrogate decision-makers. Journal of the American Geriatrics Society. 1993 ; 41: 953-960
14. Gessert C. E., Curry N. M., Robin A.. Ethnicity and end-of-life care: The use of feeding tubes. Ethnicity and Disease. 2001 ; 11: 97-106
15. Gitlin L. N., Burgio L. D., Mahoney D., Burns R., Zhang S., Schulz R.,... Ory M. G.. Effect of multicomponent interventions on caregiver burden and depression: The REACH multisite initiative at 6-month follow-up. Psychology and Aging. 2003 ; 18: 361-374
16. Hare J., Pratt C., Nelson C.. Agreement between patients and their self-selected surrogates on difficult medical decision. Archives of Internal Medicine. 1992 ; 152: 1049-1054
17. Hopp F. P., Duffy S. A.. Racial variations in end-of-life care. Journal of the American Geriatrics Society. 2000 ; 48: 658-663
18. Johnson K. S., Elbert-Avila K. I., Tulsky J. A.. The influence of spiritual beliefs and practices on the treatment preferences of African Americans: A review of the literature. Journal of the American Geriatrics Society. 2005 ; 53: 711-719
19. Kahneman D., Tversky A.. Prospect theory: An analysis of decision under risk. Econometrica. 1979 ; 47: 263-273
20. Kahneman D., Tversky A.. Choices, values, and frames. American Psychologist. 1984 ; 39: 341-350
21. Karel M. J., Gatz M.. Factors influencing life-sustaining treatment decisions in a community sample of families. Psychology and Aging. 1996 ; 11: 226-234
22. Katz S., Ford A. B., Moskowitz R. W., Jackson B. A., Jaffe M. W.. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. Journal of the American Medical Association. 1963 ; 5: 914-919
23. Kwak J., Haley W. E.. Current research findings on end-of-life decision making among racial or ethnically diverse groups. The Gerontologist. 2005 ; 45: 634-641
24. Lawton M. P., Brody E. M.. Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist. 1969 ; 9: 179-186
25. Lenert L. A., Treadwell J. R., Schwartz C. E.. Associations between health status and utilities implications for policy. Medical Care. 1999 ; 37: 479-489
26. Lockhart L. K., Ditto P. H., Danks J. H., Coppola K. M., Smucker W. D.. The stability of older adults' judgments of fates better and worse than death. Death Studies. 2001 ; 25: 299-317
27. Marks M. A. Z., Arkes H. R.. Patient and surrogate disagreement in end-of-life decisions: Can surrogates accurately predict patients' preferences?. Medical Decision Making. 2008 ; 28: 524-531
28. Ouslander J. G., Tymchuk A. J., Rahbar B.. Health care decisions among elderly long-term care residents and their potential proxies. Archives of Internal Medicine. 1989 ; 149: 1367-1372
29. Parks S. M., Winter L., Santana A., Parker B., Diamond J., Rose M., Myers R.. Family factors in end-of-life decision-making: Family conflict and proxy relationship. Journal of Palliative Medicine. 2011 ; 14: 179-184
30. Phipps E., True G., Harris D., Chong U., Tester W., Chavin S. I., Braitman L. E.. Approaching the end of life: Attitudes, preferences, and behaviors of African-American and White patients and their family caregivers. Journal of Clinical Oncology. 2003 ; 21: 549-554
31. Roccaforte W. H., Burke W. J., Bayer B. L., Wengel S. P.. Validation of a telephone version of the Mini-Mental State Examination. Journal of the American Geriatrics Society. 1992 ; 40: 697-702
32. Schmid B., Allen R. S., Haley P. P., DeCoster J.. Family matters: Dyadic agreement in end-of-life medical decision making. The Gerontologist. 2009 ; 50: 225-237
33. Schwartz C. E. Sprangers M. A. G., ed. Washington, DC: American Psychological Association ; 2000 :
34. Seckler A. B., Meier D. E., Mulvihil M., Paris B. E.. Substituted judgment: How accurate are proxy predictions?. Annals of Internal Medicine. 1991 ; 115: 92-98
35. Shalowitz D. I., Garrett-Mayer E., Wendler D.. The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine. 2006 ; 166: 493-497
36. Silveira M. J., Kim S. Y., Langa K. M.. Advance directives and outcomes of surrogate decision making before death. New England Journal of Medicine. 2010 ; 362: 1211-1218
37. Silveira M. J., Schneider C. E.. Common sense and compassion: Planning for the end of life. Clinics in Family Practice. 2004 ; 6: 349-369
38. Steinhauser K., Christakis N., Clipp E., McNeilly M., McIntyre L., Tulsky J.. Factors considered important at the end of life by patients, family, physicians and other care providers. Journal of the American Medical Association. 2000 ; 284: 2476-2482
39. Straton J. B., Wang N., Meoni L. A., Ford D. E., Klag M. J., Cassarett D., Gallo J. J.. Physical functioning, depression, and preferences for treatment at the end of life: The Johns Hopkins precursors study. Journal of the American Geriatrics Society. 2004 ; 52: 577-582
40. Suhl J., Simons P., Reedy T., Garrick T.. Myth of substituted judgment: Surrogate decision making regarding life support is unreliable. Archives of Internal Medicine. 1994 ; 154: 90-96
41. Sulmasy D. P., Haller K., Terry P. R.. More talk, less paper: Predicting the accuracy of substituted judgment. American Journal of Medicine. 1994 ; 96: 432-438
42. Sulmasy D. P., Terry P. R., Weisman C. S., Miller D., Stallings R. Y., Vettese M. A., Haller K. B.. The accuracy of substituted judgment in patients with terminal diagnosis. Annals of Internal Medicine. 1998 ; 128: 621-629
43. Teno J. M., Gruneir A., Schwartz Z., Nanda A., Wetle T.. Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatrics Society. 2007 ; 55: 189-194
44. Teno J. M., Stevens M., Spernak S., Lynn J.. Role of written advance directives in decision making. Journal of General Internal Medicine. 1998 ; 13: 439-446
45. Tomlinson T., Howe K., Notman M., Rossmiller D.. An empirical study of proxy consent for elderly persons. The Gerontologist. 1990 ; 30: 54-64
46. Torke A. M., Moloney R., Siegler M., Abalos A., Alexander G. C.. Physicians' views of the importance of patient preferences in surrogate decision-making. Journal of the American Geriatrics Society. 2010 ; 58: 533-538
47. Treadwell J. R., Lenert L. A.. Health values and prospect theory. Medical Decision Making. 1999 ; 19: 344-352
48. Tversky A., Kahneman D.. The framing of decisions and the psychology of choice. Science. 1981 ; 211: 453-458
49. Tversky A., Kahneman D.. Advances in prospect theory: Cumulative representation of uncertainty. Journal of Risk and Uncertainty. 1992 ; 5: 297-323
50. Uhlmann R. F., Pearlman R. A., Cain K. C.. Physicians' and spouses' predictions of elderly patients' resuscitation preferences. Journal of Gerontology: Medical Sciences. 1988 ; 43: M115 - M121
51. Winter L., Lawton M. P., Ruckdeschel K.. Preferences for prolonging life: A prospect theory approach. International Journal of Aging and Human Development. 2003 ; 56: 155-170
52. Winter L., Moss M. S., Hoffman C.. Affective forecasting and advance care planning: Anticipating quality of life in future health statuses. Journal of Health Psychology. 2009 ; 14: 447-456
53. Winter L., Parker B.. Current health and preferences for life-prolonging treatments: An application of Prospect Theory to end-of-life decision making. Social Science and Medicine. 2007 ; 65: 1695-1707
54. Zettel-Watson L., Ditto P. H., Danks J. H., Smucker W. D.. Actual and perceived gender differences in the accuracy of surrogate decisions about life-sustaining medical treatment among older spouses. Death Studies. 2008 ; 32: 273-290
55. Zweibel N. R., Cassel C. K.. Treatment choices at the end of life: A comparison of decisions of older patients and their physician-selected proxies. The Gerontologist. 1989 ; 29: 615-621