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Volumn 12, Issue 10, 2012, Pages 14-16

Disclosure/Disruption: Considering Why Not to Disclose Genetic Information After Death

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ETHICS; GENETIC PREDISPOSITION; GENETIC SCREENING; GENETIC VARIABILITY; HUMAN; INTERPERSONAL COMMUNICATION; MALE; RESEARCH SUBJECT;

EID: 84866454093     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2012.699148     Document Type: Article
Times cited : (5)

References (13)
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    • Disclosure of individual genetic data to research participants: the debate reconsidered
    • Bredenoord, A. L., Kroes, H. Y., Cuppen, E., Parker, M. and van Delden, J. J. M. 2011. Disclosure of individual genetic data to research participants: the debate reconsidered. Trends in Genetics, 27(2): 4-47.
    • (2011) Trends in Genetics , vol.27 , Issue.2 , pp. 4-47
    • Bredenoord, A.L.1    Kroes, H.Y.2    Cuppen, E.3    Parker, M.4    van Delden, J.J.M.5
  • 2
    • 84866439540 scopus 로고    scopus 로고
    • Genomic inheritances: Disclosing individual research results from whole-exome sequencing to deceased participants' relatives
    • Chan, B., Facio, F. M., Eidem, H., Hull, S. C., Biesecker, L. G. and Berkman, B. E. 2012. Genomic inheritances: Disclosing individual research results from whole-exome sequencing to deceased participants' relatives. American Journal of Bioethics, 12(10): 1-8.
    • (2012) American Journal of Bioethics , vol.12 , Issue.10 , pp. 1-8
    • Chan, B.1    Facio, F.M.2    Eidem, H.3    Hull, S.C.4    Biesecker, L.G.5    Berkman, B.E.6
  • 3
    • 3142767619 scopus 로고    scopus 로고
    • Juggling roles and expectations: Dilemmas faced by women talking to relative about cancer and genetic testing
    • Foster, C., Eeles, R., Ardern-Jones, A., Moynihan, C. and Watson, M. 2004. Juggling roles and expectations: Dilemmas faced by women talking to relative about cancer and genetic testing. Psychology and Health, 19: 439-455.
    • (2004) Psychology and Health , vol.19 , pp. 439-455
    • Foster, C.1    Eeles, R.2    Ardern-Jones, A.3    Moynihan, C.4    Watson, M.5
  • 4
    • 84863619665 scopus 로고    scopus 로고
    • Facilitating family communication about genetics in practice
    • In: Gaff C. L., Bylund C. L., editors New York, NY: Oxford University Press
    • Gaff, C. L., Galvin, K. M. and Bylund, C. L. 2010. "Facilitating family communication about genetics in practice". In Family communication about genetics: Theory and practice, Edited by: Gaff, C. L. and Bylund, C. L. 243-272. New York, NY: Oxford University Press.
    • (2010) Family communication about genetics: Theory and practice , pp. 243-272
    • Gaff, C.L.1    Galvin, K.M.2    Bylund, C.L.3
  • 6
    • 78650509844 scopus 로고    scopus 로고
    • Opening up the conversation on genetics and genomics in families: The space for communication scholars
    • In: Beck C. S., editors New York, NY: Routledge
    • Galvin, K. M. and Grill, L. H. 2009. "Opening up the conversation on genetics and genomics in families: The space for communication scholars". In Communication yearbook 33, Edited by: Beck, C. S. 213-257. New York, NY: Routledge.
    • (2009) Communication yearbook 33 , pp. 213-257
    • Galvin, K.M.1    Grill, L.H.2
  • 8
    • 84866455760 scopus 로고    scopus 로고
    • Managing privacy ownership and disclosure
    • In: Gaff C. L., Bylund C. L., editors New York, NY: Oxford University Press
    • Petronio, S. and Gaff, C. L. 2010. "Managing privacy ownership and disclosure". In Family communication about genetics: Theory and practice, Edited by: Gaff, C. L. and Bylund, C. L. 120-135. New York, NY: Oxford University Press.
    • (2010) Family communication about genetics: Theory and practice , pp. 120-135
    • Petronio, S.1    Gaff, C.L.2
  • 9
    • 40049095337 scopus 로고    scopus 로고
    • A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes
    • Available at: Patient Educ Couns, Epub
    • Porteri, C. and Borry, P. 2008. A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes. Available at: http://dx.doi.org/10.1016/j.pec.2007.12.003 Patient Educ Couns, Epub.
    • (2008)
    • Porteri, C.1    Borry, P.2
  • 11
    • 84866463430 scopus 로고    scopus 로고
    • Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule
    • Rothstein, M. A. 2012. Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule. American Journal of Bioethics, 12(10): 16-17.
    • (2012) American Journal of Bioethics , vol.12 , Issue.10 , pp. 16-17
    • Rothstein, M.A.1
  • 12
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for Huntington disease on the family system
    • Sobel, S. K. and Cowan, D. B. 2000. Impact of genetic testing for Huntington disease on the family system. American Journal of Medical Genetics, 90: 49-59.
    • (2000) American Journal of Medical Genetics , vol.90 , pp. 49-59
    • Sobel, S.K.1    Cowan, D.B.2
  • 13
    • 34247135853 scopus 로고    scopus 로고
    • National population-based biobanks for genetic research
    • Swede, H., Stone, C. L. and Norwood, A. R. 2007. National population-based biobanks for genetic research. Genetics in Medicine, 9: 141-149.
    • (2007) Genetics in Medicine , vol.9 , pp. 141-149
    • Swede, H.1    Stone, C.L.2    Norwood, A.R.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.