메뉴 건너뛰기




Volumn 31, Issue 10, 2012, Pages 1102-1108

Symptom burden, quality of life, and attitudes toward palliative care in patients with pulmonary arterial hypertension: Results from a cross-sectional patient survey

Author keywords

palliative care; pulmonary arterial hypertension; quality of life; symptom control

Indexed keywords

ADOLESCENT; ADULT; AGED; ANALGESIA; ARTICLE; CHILD; CROSS-SECTIONAL STUDY; DISEASE COURSE; E-MAIL; EARLY INTERVENTION; FATIGUE; FEMALE; HEALTH BELIEF; HEALTH SURVEY; HUMAN; INTERNET; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PAIN; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT CARE PLANNING; PATIENT SATISFACTION; PHYSICIAN; PRESCHOOL CHILD; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; PULMONARY HYPERTENSION; QUALITY OF LIFE; RACE; SCHOOL CHILD; SELF EVALUATION; SEX RATIO; SOCIAL BEHAVIOR; WELLBEING;

EID: 84866133495     PISSN: 10532498     EISSN: 15573117     Source Type: Journal    
DOI: 10.1016/j.healun.2012.08.010     Document Type: Article
Times cited : (63)

References (35)
  • 1
    • 33645827323 scopus 로고    scopus 로고
    • The Seattle Heart Failure Model: Prediction of survival in heart failure
    • W.C. Levy, D. Mozaffarian, D.T. Linker The Seattle Heart Failure Model: prediction of survival in heart failure Circulation 113 2006 1424 1433
    • (2006) Circulation , vol.113 , pp. 1424-1433
    • Levy, W.C.1    Mozaffarian, D.2    Linker, D.T.3
  • 2
    • 0038824201 scopus 로고    scopus 로고
    • Estimating prognosis in heart failure: Time for a better approach
    • M.R. Cowie Estimating prognosis in heart failure: time for a better approach Heart 89 2003 587 588
    • (2003) Heart , vol.89 , pp. 587-588
    • Cowie, M.R.1
  • 3
    • 44649091301 scopus 로고    scopus 로고
    • Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure
    • L.A. Allen, J.E. Yager, M.J. Funk Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure JAMA 299 2008 2533 2542
    • (2008) JAMA , vol.299 , pp. 2533-2542
    • Allen, L.A.1    Yager, J.E.2    Funk, M.J.3
  • 4
    • 3042706745 scopus 로고    scopus 로고
    • Consensus statement: Palliative and supportive care in advanced heart failure
    • S.J. Goodlin, P.J. Hauptman, R. Arnold Consensus statement: Palliative and supportive care in advanced heart failure J Card Fail 10 2004 200 209
    • (2004) J Card Fail , vol.10 , pp. 200-209
    • Goodlin, S.J.1    Hauptman, P.J.2    Arnold, R.3
  • 5
    • 66249108231 scopus 로고    scopus 로고
    • Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology
    • T. Jaarsma, J.M. Beattie, M. Ryder Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology Eur J Heart Fail 11 2009 433 443
    • (2009) Eur J Heart Fail , vol.11 , pp. 433-443
    • Jaarsma, T.1    Beattie, J.M.2    Ryder, M.3
  • 6
    • 2442666756 scopus 로고    scopus 로고
    • Palliative care for patients with heart failure
    • S.Z. Pantilat, A.E. Steimle Palliative care for patients with heart failure JAMA 291 2004 2476 2482
    • (2004) JAMA , vol.291 , pp. 2476-2482
    • Pantilat, S.Z.1    Steimle, A.E.2
  • 7
    • 51449120039 scopus 로고    scopus 로고
    • Medicare and Medicaid Programs: Hospice Conditions of Participation, Final Rule
    • Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services
    • Centers for Medicare & Medicaid Services (CMS), Department of Health and Human Services Medicare and Medicaid Programs: Hospice Conditions of Participation, Final Rule Federal Register 73 109 5 June 2008 32204
    • (2008) Federal Register , vol.73 , Issue.109 , pp. 32204
  • 8
    • 0025837793 scopus 로고
    • Survival in patients with primary pulmonary hypertension Results from a national prospective registry
    • G.E. D'Alonzo, R.J. Barst, S.M. Ayres Survival in patients with primary pulmonary hypertension Results from a national prospective registry Ann Intern Med 115 1991 343 349
    • (1991) Ann Intern Med , vol.115 , pp. 343-349
    • D'Alonzo, G.E.1    Barst, R.J.2    Ayres, S.M.3
  • 9
    • 0030031888 scopus 로고    scopus 로고
    • A comparison of continuous intravenous epoprostenol (prostacyclin) with conventional therapy for primary pulmonary hypertension
    • The Primary Pulmonary Hypertension Study Group
    • R.J. Barst, L.J. Rubin, W.A. Long The Primary Pulmonary Hypertension Study Group A comparison of continuous intravenous epoprostenol (prostacyclin) with conventional therapy for primary pulmonary hypertension N Engl J Med 334 1996 296 302
    • (1996) N Engl J Med , vol.334 , pp. 296-302
    • Barst, R.J.1    Rubin, L.J.2    Long, W.A.3
  • 10
    • 61449123995 scopus 로고    scopus 로고
    • Pulmonary hypertension: Diagnosis and management
    • M.D. McGoon, G.C. Kane Pulmonary hypertension: diagnosis and management Mayo Clin Proc 84 2009 191 207
    • (2009) Mayo Clin Proc , vol.84 , pp. 191-207
    • McGoon, M.D.1    Kane, G.C.2
  • 11
    • 54549089029 scopus 로고    scopus 로고
    • Therapy for pulmonary arterial hypertension: The more, the merrier?
    • D.B. Taichman Therapy for pulmonary arterial hypertension: the more, the merrier? Ann Intern Med 149 2008 583 585
    • (2008) Ann Intern Med , vol.149 , pp. 583-585
    • Taichman, D.B.1
  • 12
    • 84863519076 scopus 로고    scopus 로고
    • An evaluation of long-term survival from time of diagnosis in pulmonary arterial hypertension from REVEAL
    • R.L. Benza, D.P. Miller, R.J. Barst, D.B. Badesch, A.E. Frost, M.D. McGoon An evaluation of long-term survival from time of diagnosis in pulmonary arterial hypertension from REVEAL Chest 142 2012 448 456
    • (2012) Chest , vol.142 , pp. 448-456
    • Benza, R.L.1    Miller, D.P.2    Barst, R.J.3    Badesch, D.B.4    Frost, A.E.5    McGoon, M.D.6
  • 13
    • 47749146904 scopus 로고    scopus 로고
    • Health-related quality of life and patient-reported outcomes in pulmonary arterial hypertension
    • H. Chen, D.B. Taichman, R.L. Doyle Health-related quality of life and patient-reported outcomes in pulmonary arterial hypertension Proc Am Thorac Soc 5 2008 623 630
    • (2008) Proc Am Thorac Soc , vol.5 , pp. 623-630
    • Chen, H.1    Taichman, D.B.2    Doyle, R.L.3
  • 14
    • 0032015186 scopus 로고    scopus 로고
    • Quality of life perception by women suffering from stage III or IV primary pulmonary hypertension and receiving prostacyclin treatment
    • J. Peloquin, S. Robichaud-Ekstrand, J. Pepin [Quality of life perception by women suffering from stage III or IV primary pulmonary hypertension and receiving prostacyclin treatment] Can J Nurs Res 30 1998 113 136
    • (1998) Can J Nurs Res , vol.30 , pp. 113-136
    • Peloquin, J.1    Robichaud-Ekstrand, S.2    Pepin, J.3
  • 15
    • 68849129925 scopus 로고    scopus 로고
    • Evaluating health-related quality of life, work ability, and disability in pulmonary arterial hypertension: An unmet need
    • M. Rubenfire, G. Lippo, B.D. Bodini, F. Blasi, L. Allegra, E. Bossone Evaluating health-related quality of life, work ability, and disability in pulmonary arterial hypertension: an unmet need Chest 136 2009 597 603
    • (2009) Chest , vol.136 , pp. 597-603
    • Rubenfire, M.1    Lippo, G.2    Bodini, B.D.3    Blasi, F.4    Allegra, L.5    Bossone, E.6
  • 16
    • 8744269595 scopus 로고    scopus 로고
    • Health-related quality of life in patients with pulmonary arterial hypertension
    • S. Shafazand, M.K. Goldstein, R.L. Doyle, M.A. Hlatky, M.K. Gould Health-related quality of life in patients with pulmonary arterial hypertension Chest 126 2004 1452 1459
    • (2004) Chest , vol.126 , pp. 1452-1459
    • Shafazand, S.1    Goldstein, M.K.2    Doyle, R.L.3    Hlatky, M.A.4    Gould, M.K.5
  • 17
    • 26444566861 scopus 로고    scopus 로고
    • Health-related quality of life in patients with pulmonary arterial hypertension
    • D.B. Taichman, J. Shin, L. Hud Health-related quality of life in patients with pulmonary arterial hypertension Respir Res 6 2005 92
    • (2005) Respir Res , vol.6 , pp. 92
    • Taichman, D.B.1    Shin, J.2    Hud, L.3
  • 18
    • 50549089845 scopus 로고    scopus 로고
    • Evaluation of disease-specific health-related quality of life in patients with pulmonary arterial hypertension
    • M. Zlupko, M.O. Harhay, R. Gallop Evaluation of disease-specific health-related quality of life in patients with pulmonary arterial hypertension Respir Med 102 2008 1431 1438
    • (2008) Respir Med , vol.102 , pp. 1431-1438
    • Zlupko, M.1    Harhay, M.O.2    Gallop, R.3
  • 19
    • 0032977956 scopus 로고    scopus 로고
    • Quality of life in hospice patients A pilot study
    • M. Bretscher, T. Rummans, J. Sloan Quality of life in hospice patients A pilot study Psychosomatics 40 1999 309 313
    • (1999) Psychosomatics , vol.40 , pp. 309-313
    • Bretscher, M.1    Rummans, T.2    Sloan, J.3
  • 20
    • 0030005976 scopus 로고    scopus 로고
    • Comparison of conditional quality of life terminology and visual analogue scale measurements
    • S.M. Grunberg, S. Groshen, S. Steingass, S. Zaretsky, B. Meyerowitz Comparison of conditional quality of life terminology and visual analogue scale measurements Qual Life Res 5 1996 65 72
    • (1996) Qual Life Res , vol.5 , pp. 65-72
    • Grunberg, S.M.1    Groshen, S.2    Steingass, S.3    Zaretsky, S.4    Meyerowitz, B.5
  • 21
    • 0030471353 scopus 로고    scopus 로고
    • Health state valuations from the general public using the visual analogue scale
    • C. Gudex, P. Dolan, P. Kind, A. Williams Health state valuations from the general public using the visual analogue scale Qual Life Res 5 1996 521 531
    • (1996) Qual Life Res , vol.5 , pp. 521-531
    • Gudex, C.1    Dolan, P.2    Kind, P.3    Williams, A.4
  • 23
    • 30744478224 scopus 로고    scopus 로고
    • The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): A measure of health-related quality of life and quality of life for patients with pulmonary hypertension
    • S.P. McKenna, N. Doughty, D.M. Meads, L.C. Doward, J. Pepke-Zaba The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension Qual Life Res 15 2006 103 115
    • (2006) Qual Life Res , vol.15 , pp. 103-115
    • McKenna, S.P.1    Doughty, N.2    Meads, D.M.3    Doward, L.C.4    Pepke-Zaba, J.5
  • 26
    • 53749094921 scopus 로고    scopus 로고
    • Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    • A.A. Wright, B. Zhang, A. Ray Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment JAMA 300 2008 1665 1673
    • (2008) JAMA , vol.300 , pp. 1665-1673
    • Wright, A.A.1    Zhang, B.2    Ray, A.3
  • 27
    • 70449701539 scopus 로고    scopus 로고
    • Maximal medical therapy and palliative care can work together: When are advanced care measures appropriate?
    • K.M. Swetz, L.J. Lyckholm, T.J. Smith Maximal medical therapy and palliative care can work together: when are advanced care measures appropriate? J Hosp Med 4 2009 453 456
    • (2009) J Hosp Med , vol.4 , pp. 453-456
    • Swetz, K.M.1    Lyckholm, L.J.2    Smith, T.J.3
  • 28
    • 84865835563 scopus 로고    scopus 로고
    • The Health Care Initiative for Improving End of Life in Pulmonary Hypertension (CARING)
    • D. Grinnan, J. Shipley, K. Swetz, J. Pinson, P. Fairman The Health Care Initiative For Improving End Of Life In Pulmonary Hypertension (CARING) Am J Respir Crit Care Med 181 2010 A4014
    • (2010) Am J Respir Crit Care Med , vol.181 , pp. 4014
    • Grinnan, D.1    Shipley, J.2    Swetz, K.3    Pinson, J.4    Fairman, P.5
  • 29
    • 84866123796 scopus 로고    scopus 로고
    • The end-of-life experience for a cohort of patients with pulmonary arterial hypertension
    • 10.1089/jpm.2012.0085 [E-pub ahead of print:]
    • D.C. Grinnan, K.M. Swetz, J. Pinson, P. Fairman, L.J. Lyckholm, T. Smith The end-of-life experience for a cohort of patients with pulmonary arterial hypertension J Palliat Med 2012 10.1089/jpm.2012.0085 [E-pub ahead of print:]
    • (2012) J Palliat Med
    • Grinnan, D.C.1    Swetz, K.M.2    Pinson, J.3    Fairman, P.4    Lyckholm, L.J.5    Smith, T.6
  • 30
    • 84865841156 scopus 로고    scopus 로고
    • Advanced pulmonary hypertension: Considerations for care planning at end of life
    • J. Gustin, A. Hartman, R. Johnson Advanced pulmonary hypertension: considerations for care planning at end of life J Pain Symptom Manage 43 2012 396
    • (2012) J Pain Symptom Manage , vol.43 , pp. 396
    • Gustin, J.1    Hartman, A.2    Johnson, R.3
  • 31
    • 36749027107 scopus 로고    scopus 로고
    • Patients who complete advance directives and what they prefer
    • A. Nishimura, P.S. Mueller, L.K. Evenson Patients who complete advance directives and what they prefer Mayo Clin Proc 82 2007 1480 1486
    • (2007) Mayo Clin Proc , vol.82 , pp. 1480-1486
    • Nishimura, A.1    Mueller, P.S.2    Evenson, L.K.3
  • 33
    • 33846266634 scopus 로고    scopus 로고
    • The burden of fatigue and quality of life in myeloproliferative disorders (MPDs): An international Internet-based survey of 1179 MPD patients
    • R.A. Mesa, J. Niblack, M. Wadleigh The burden of fatigue and quality of life in myeloproliferative disorders (MPDs): an international Internet-based survey of 1179 MPD patients Cancer 109 2007 68 76
    • (2007) Cancer , vol.109 , pp. 68-76
    • Mesa, R.A.1    Niblack, J.2    Wadleigh, M.3
  • 34
    • 34848896596 scopus 로고    scopus 로고
    • Quality of life in chronic lymphocytic leukemia: An international survey of 1482 patients
    • T.D. Shanafelt, D. Bowen, C. Venkat Quality of life in chronic lymphocytic leukemia: an international survey of 1482 patients Br J Haematol 139 2007 255 264
    • (2007) Br J Haematol , vol.139 , pp. 255-264
    • Shanafelt, T.D.1    Bowen, D.2    Venkat, C.3
  • 35
    • 40049097939 scopus 로고    scopus 로고
    • Common troublesome symptoms and their impact on quality of life in patients with myelodysplastic syndromes (MDS): Results of a large internet-based survey
    • D.P. Steensma, K.V. Heptinstall, V.M. Johnson Common troublesome symptoms and their impact on quality of life in patients with myelodysplastic syndromes (MDS): results of a large internet-based survey Leuk Res 32 2008 691 698
    • (2008) Leuk Res , vol.32 , pp. 691-698
    • Steensma, D.P.1    Heptinstall, K.V.2    Johnson, V.M.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.