Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding

Amyotrophic Lateral Sclerosis

Volumn 13, Issue 6, 2012, Pages 555-559

  Johnson, Julia ^a   Leigh, P Nigel ^b   Shaw, Christopher E ^c   Ellis, Cathy ^a   Burman, Rachel ^a   Al Chalabi, Ammar ^c  

^a KING S COLLEGE HOSPITAL   (United Kingdom)

^b UNIVERSITY OF SUSSEX   (United Kingdom)

^c KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Amyotrophic lateral sclerosis; Dysphagia; Gastrostomy; Motor neuron disease; Visual analogue scale

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CLINICAL ARTICLE; DISEASE SEVERITY; EATING; ENTERIC FEEDING; FEMALE; GASTROSTOMY; HUMAN; MALE; PLEASURE; PREDICTOR VARIABLE; PRIORITY JOURNAL; VISUAL ANALOG SCALE;

ADULT; AGED; AGED, 80 AND OVER; AMYOTROPHIC LATERAL SCLEROSIS; EATING; ENTERAL NUTRITION; FEMALE; GASTROSTOMY; HUMANS; LOGISTIC MODELS; MALE; MIDDLE AGED; PLEASURE; PREDICTIVE VALUE OF TESTS; PSYCHOLOGICAL TESTS; TREATMENT OUTCOME;

EID: 84866119695     PISSN: 17482968     EISSN: 1471180X     Source Type: Journal    
DOI: 10.3109/17482968.2012.704925     Document Type: Article

References (19)

1. Chio A, L ogroscino G, H ardiman O, S wingler R, Mitchell D, Beghi E, et al . Prognostic factors in ALS: A critical review . Amyotroph Lateral Scler. 2009; 10 : 310-23 . PMID: 19922118.
2. Ekberg O, H amdy S, W oisard V, W uttge-Hannig A, O rtega P . Social and psychological burden of dysphagia: Its impact on diagnosis and treatment . Dysphagia. 2002; 17 : 139-46 . PMID: 11956839.
3. Brotherton A, A bbott J, A ggett P. T he impact of percutaneous endoscopic gastrostomy feeding upon daily life in adults . J Hum Nutr Diet. 2006; 19 : 355-67 . PMID: 16961682.
4. Hillel A D, M iller RM, Y orkston K, M cDonald E, N orris FH, Konikow N . Amyotrophic lateral sclerosis severity scale . Neuroepidemiology. 1989; 8 : 142-50 . PMID: 2725806.
5. Kidney D, A lexander M, C orr B, O 'Toole O, H ardiman O . Oropharyngeal dysphagia in amyotrophic lateral sclerosis: Neurological and dysphagia specifi c rating scales . Amyotroph Lateral Scler Other Motor Neuron Disord. 2004; 5 : 150-3 . PMID: 15512903.
6. Yorkston K M, M iller R M, S trand E A . M anagement of Speech and Swallowing in Degenerative Diseases . Austin, Texas. PRO-ED. 1995 : 56-72 .
7. Pelletier C A. C hemosenses, aging, and oropharyngeal dysphagia: A review . Topics in Geriatric Rehabilitation. 2007; 23 : 249 - 68 .
8. Miller R, J ackson C, K asarskis E, E ngland JD, F orshew D, Johnston W, et al . Practice parameter update. The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioural impairment (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology . Neurology . 2009; 73 : 1227-33 . PMID: 19822873.
9. Andersen 9. PM, B orasio GD, D engler R, H ardiman O, Kollewe K, Leigh PN, et al . EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives . Eur J Neurol. 2005 ; 12 : 921-38 . PMID: 16324086.
10. Vesey S, L eslie P, E xley C. A pilot study exploring the factors that infl uence the decision to have PEG feeding in patients with progressive conditions . Dysphagia. 2008; 23 : 310-6 . PMID: 18437463.
11. Rio A, E llis C, S haw C, W illey E, A mpong MA, Wijesekera L, et al . Nutritional factors associated with survival following enteral tube feeding in patients with motor neuron disease . J Hum Nutr Diet. 2010; 23 : 408-15 . PMID: 20487174.
12. Rio A, A mpong M, J ohnson J, W illey E, L eigh PN. N utritional Care of Patients with Amyotrophic Lateral Sclerosis . British Journal of Neuroscience Nursing. 2005; 1 : 38-43 .
13. Leigh PN, A brahams S, A l-Chalabi A, A mpong MA, Goldstein LH, Johnson J, et al . The management of amyotrophic lateral sclerosis . J Neurol Neurosurg Psychiatry. 2003; 74 (Suppl 4) : 32-47 . PMID: 14645465.
14. Shaw AS, A mpong MA, R io A, M cClure J, L eigh PN, Sidhu PS . Entristar skin-level gastrostomy tube: Primary placement with radiologic guidance in patients with amyotrophic lateral sclerosis . Radiology. 2004; 233 : 392-9 . PMID: 15459322.
15. Heffernan C, J enkinson C, H olmes T, F eder G, K upfer R, Leigh PN, et al . Nutritional management in MND/ALS patients: An evidence-based review . Amyotroph Lateral Scler Other Motor Neuron Disord. 2004; 5 : 72-83 . PMID: 15204009.
16. Forbes RB, C olville S, S wingler RJ. F requency, timing and outcome of gastrostomy tubes for amyotrophic lateral sclerosis/motor neuron disease: A record linkage study from the Scottish Motor Neurone Disease Register . J Neurol. 2004; 251 : 813-7 . PMID: 15258782.
17. Strand EA, M iller RM, Y orkston KM, H illel AD . Management of oral-pharyngeal dysphagia symptoms in amyotrophic lateral sclerosis . Dysphagia. 1996; 11 : 129-39 . PMID: 8721072.
18. Wewers ME, L owe NK. A critical review of visual analogue scales in the measurement of clinical phenomena . Res Nurs Health. 1990; 13 : 227-36 . PMID: 2197679.
19. Price D D, M cGrath P A, R afi i A, B uckingham B. T he validation of visual analogue scales as ratio scale measures for chronic and experimental pain . Pain. 1983; 17 : 45-56 . PMID: 6226917.