-
1
-
-
44649113000
-
Huntington's di-sease. Part 3: Family aspects of HD
-
Aubeeluck A, Moslcowitz CB. Huntington's di-sease. Part 3: family aspects of HD. Br J Nurs 2008; 17: 328-331.
-
(2008)
Br J Nurs
, vol.17
, pp. 328-331
-
-
Aubeeluck, A.1
Moslcowitz, C.B.2
-
2
-
-
84946044084
-
-
HDSA (Huntington's disease Society of Ame-rica), [consul-tado 10-06-2011] Disponible en
-
HDSA (Huntington's disease Society of Ame-rica). Huntington's Disease, 2008. [consul-tado 10-06-2011] Disponible en http://www.hdsa.org/
-
(2008)
Huntington's Disease
-
-
-
4
-
-
77957294881
-
Movement disorders
-
En: Bradley WG, Daroff RB, Fenichel GM, Jankovic J, eds, 5th ed. Philadelphia: Butterworth-Heine-mann (Elsevier)
-
Jankovic J, Shannon KM. Movement disorders. En: Bradley WG, Daroff RB, Fenichel GM, Jankovic J, eds. Neurology in Clinical Practi-ce. 5th ed. Philadelphia: Butterworth-Heine-mann (Elsevier) 2008; cap. 75: 2081-2122.
-
(2008)
Neurology In Clinical Practi-ce
, vol.75
, pp. 2081-2122
-
-
Jankovic, J.1
Shannon, K.M.2
-
6
-
-
0034741573
-
Tras-tornos cognitivos en pacientes con enfer-medad de Huntington
-
Barquero-Jiménez MS, Gómez-Tortosa E. Tras-tornos cognitivos en pacientes con enfer-medad de Huntington. Rev Neurol 2001; 32: 1067-1071.
-
(2001)
Rev Neurol
, vol.32
, pp. 1067-1071
-
-
Barquero-Jiménez, M.S.1
Gómez-Tortosa, E.2
-
7
-
-
33646252482
-
Parameter-based assessment of spa-tial and non-spatial attentional deficits in Huntington's disease
-
Finke IC, Bublak P, Dose M, Müller HJ, Schneider WX. Parameter-based assessment of spa-tial and non-spatial attentional deficits in Huntington's disease. Brain 2006; 129: 1137-1151.
-
(2006)
Brain
, vol.129
, pp. 1137-1151
-
-
Finke, I.C.1
Bublak, P.2
Dose, M.3
Müller, H.J.4
Schneider, W.X.5
-
8
-
-
0036965778
-
Síndromes depresivos asociados a deterioro cognitivo
-
Martínez-Larrea, JA. Síndromes depresivos asociados a deterioro cognitivo. An Sist Sa-nit Navar 2002; 25 (Supl. 3):105-115.
-
(2002)
An Sist Sa-nit Navar
, vol.25
, Issue.Supl. 3
, pp. 105-115
-
-
Martínez-Larrea, J.A.1
-
9
-
-
34250327141
-
Psychiatric and cognitive difficulties as indicators of juveni-le Huntington disease onset in 29 patients
-
Ribaï P, Nguyen K, Hahn-Barma V, Gourfinkel-An I, Vidailhet M, Legout A et al. Psychiatric and cognitive difficulties as indicators of juveni-le Huntington disease onset in 29 patients. Arch Neurol 2007; 64: 813-819.
-
(2007)
Arch Neurol
, vol.64
, pp. 813-819
-
-
Ribaï, P.1
Nguyen, K.2
Hahn-Barma, V.3
Gourfinkel-An, I.4
Vidailhet, M.5
Legout, A.6
-
10
-
-
33846077931
-
Specific psychiatric ma-nifestations among preclinical Huntington disease mutation carriers
-
Marshall J, White K, Weaver M, Wetherill LF, Hui S, Stout JC et al. Specific psychiatric ma-nifestations among preclinical Huntington disease mutation carriers. Arch Neurol 2007; 64: 116-121.
-
(2007)
Arch Neurol
, vol.64
, pp. 116-121
-
-
Marshall, J.1
White, K.2
Weaver, M.3
Wetherill, L.F.4
Hui, S.5
Stout, J.C.6
-
11
-
-
84893882361
-
Psychosocial impact of Huntington's disease on families and spou-ses from the perspective of the family sys-tems theory
-
Smolina E. Psychosocial impact of Huntington's disease on families and spou-ses from the perspective of the family sys-tems theory. Studies by Undergraduate Re-searchers at Guelph 2007; 1: 51-62.
-
(2007)
Studies by Undergraduate Re-searchers at Guelph
, vol.1
, pp. 51-62
-
-
Smolina, E.1
-
12
-
-
34250709543
-
The roles of family members, health care workers and others in decision-making pro-cesses about genetic testing among indivi-duals at risk for Huntington disease
-
Klitzman R, Thorne D, Williamson, J, Marder K. The roles of family members, health care workers and others in decision-making pro-cesses about genetic testing among indivi-duals at risk for Huntington disease. Genet Med 2007; 9: 358-371.
-
(2007)
Genet Med
, vol.9
, pp. 358-371
-
-
Klitzman, R.1
Thorne, D.2
Williamson, J.3
Marder, K.4
-
14
-
-
0033803705
-
Inappropriate genetic testing of chil-dren
-
Fryer A. Inappropriate genetic testing of chil-dren. Arch Dis Child 2000; 83: 283-285.
-
(2000)
Arch Dis Child
, vol.83
, pp. 283-285
-
-
Fryer, A.1
-
15
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
Sobel SK, Cowan DB. Impact of genetic testing for Huntington disease on the family system. Am J Med Genet 2000; 90: 49-59.
-
(2000)
Am J Med Genet
, vol.90
, pp. 49-59
-
-
Sobel, S.K.1
Cowan, D.B.2
-
16
-
-
0033923041
-
The Process of Family Reconstruction after DNA Testing for Hunt-ington Disease
-
Sobel SK, Cowan DB. The Process of Family Reconstruction after DNA Testing for Hunt-ington Disease. J Genet Couns 2000; 9: 237-251.
-
(2000)
J Genet Couns
, vol.9
, pp. 237-251
-
-
Sobel, S.K.1
Cowan, D.B.2
-
17
-
-
0036828657
-
Living with Huntington's disease: Illness perceptions, co-ping mechanisms, and patients' well-being
-
Helder DA, Kaptein AA, Van Kempen GMJ, Wein-Man J, Van Houwelingen HC, Roos RA. Living with Huntington's disease: Illness perceptions, co-ping mechanisms, and patients' well-being. Br J Health Psychol 2002; 7: 449-462.
-
(2002)
Br J Health Psychol
, vol.7
, pp. 449-462
-
-
Helder, D.A.1
Kaptein, A.A.2
van Kempen, G.M.J.3
Wein-Man, J.4
van Houwelingen, H.C.5
Roos, R.A.6
-
18
-
-
34247503294
-
Quality of life in couples living with Huntington's disease: The role of patients' and partners' illness percep-tions
-
Kaptein AA, Scharloo M, Helder DI, Snoei L, Van Kempen GMJ, Weinman J et al. Quality of life in couples living with Huntington's disease: the role of patients' and partners' illness percep-tions. Qual Life Res 2007; 16: 793-801.
-
(2007)
Qual Life Res
, vol.16
, pp. 793-801
-
-
Kaptein, A.A.1
Scharloo, M.2
Helder, D.I.3
Snoei, L.4
van Kempen, G.M.J.5
Weinman, J.6
-
20
-
-
44949131027
-
Exploring supportive care for individuals affected by Huntington disease and their family care-givers in a community setting
-
Soltysiak B, Gardiner P, Skirton H. Exploring supportive care for individuals affected by Huntington disease and their family care-givers in a community setting. J Clin Nurs 2008; 17: 226-234.
-
(2008)
J Clin Nurs
, vol.17
, pp. 226-234
-
-
Soltysiak, B.1
Gardiner, P.2
Skirton, H.3
-
21
-
-
0035666019
-
Psychological studies in Huntington's disease: Making up the balan-ce
-
Duisterhof M, Trijsburg RW, Niermeijer MF, Roos R, Tibben A. Psychological studies in Huntington's disease: Making up the balan-ce. J Med Genet 2001; 38: 852-861.
-
(2001)
J Med Genet
, vol.38
, pp. 852-861
-
-
Duisterhof, M.1
Trijsburg, R.W.2
Niermeijer, M.F.3
Roos, R.4
Tibben, A.5
-
22
-
-
33846672993
-
Young people's ex-periences of growing up in a family affected by Huntington's disease
-
Forrest Keenan K, Miedzybroadzka Z, Van Teijlin-Gen E, Mckee L, Simpson SA. Young people's ex-periences of growing up in a family affected by Huntington's disease. Clin Genet 2007; 71: 120-129.
-
(2007)
Clin Genet
, vol.71
, pp. 120-129
-
-
Forrest Keenan, K.1
Miedzybroadzka, Z.2
Van Teijlin-Gen, E.3
McKee, L.4
Simpson, S.A.5
-
23
-
-
0037983218
-
A hereditary di-sorder in the family and the life cycle: Hun-tington disease as a paradigm
-
Brouwer-Dudokdewick AC, Savenije A, Zoeteweij MW, Maat-Kievit A, Tibben A. A hereditary di-sorder in the family and the life cycle: Hun-tington disease as a paradigm. Fam Process 2002; 41: 677-692.
-
(2002)
Fam Process
, vol.41
, pp. 677-692
-
-
Brouwer-Dudokdewick, A.C.1
Savenije, A.2
Zoeteweij, M.W.3
Maat-Kievit, A.4
Tibben, A.5
-
24
-
-
67650569496
-
Well-being of family caregi-vers of persons with late-stage Huntintong's disease: Lessons in stress and coping
-
Roscoe LA, Corsentino E, Waatkins S, Mccall M, Sánchez-Ramos J. Well-being of family caregi-vers of persons with late-stage Huntintong's disease: lessons in stress and coping. Health Commun 2009; 24: 239-248
-
(2009)
Health Commun
, vol.24
, pp. 239-248
-
-
Roscoe, L.A.1
Corsentino, E.2
Waatkins, S.3
McCall, M.4
Sánchez-Ramos, J.5
-
26
-
-
33748314733
-
Attachment in families with Huntington's disease. A para-digm in clinical genetic
-
Van Der Meer L, Timman R, Trijsburg, Duisterhof M, Erdman R, Van Elderen T et al. Attachment in families with Huntington's disease. A para-digm in clinical genetic. Patient Educ Couns 2006; 63: 246-254.
-
(2006)
Patient Educ Couns
, vol.63
, pp. 246-254
-
-
Van der Meer, L.1
Timman, R.2
Trijsburg3
Duisterhof, M.4
Erdman, R.5
van Elderen, T.6
-
27
-
-
33747390872
-
What do tell the children? Contrasting the disclosure choices of two HD families re-garding risk status and predictive genetic tes-ting
-
Holt K. What do tell the children? Contrasting the disclosure choices of two HD families re-garding risk status and predictive genetic tes-ting. J Genet Couns 2006; 15: 253-265.
-
(2006)
J Genet Couns
, vol.15
, pp. 253-265
-
-
Holt, K.1
-
28
-
-
0023685024
-
Invited essay on the psychological aspects of genetic counseling. Preselection: A family coping strategy in Huntington disea-se
-
Kessler S. Invited essay on the psychological aspects of genetic counseling. Preselection: a family coping strategy in Huntington disea-se. Am J Med Genet 1988; 31: 617-621.
-
(1988)
Am J Med Genet
, vol.31
, pp. 617-621
-
-
Kessler, S.1
-
29
-
-
0024635424
-
Social system responses to Huntington disease
-
Kessler S, Bloch M. Social system responses to Huntington disease. Fam Process 1989; 28:59-68.
-
(1989)
Fam Process
, vol.28
, pp. 59-68
-
-
Kessler, S.1
Bloch, M.2
-
30
-
-
0029049260
-
Genetic testing of children
-
Fryer A. Genetic testing of children. Arch Dis Child 1995; 73: 97-99.
-
(1995)
Arch Dis Child
, vol.73
, pp. 97-99
-
-
Fryer, A.1
-
31
-
-
38549136585
-
The impact of neurological illness on marital relations-hips
-
O'connor EJ, Mccabe MP, Firth L. The impact of neurological illness on marital relations-hips. J Sex Marital Ther 2008; 34: 115-132.
-
(2008)
J Sex Marital Ther
, vol.34
, pp. 115-132
-
-
O'Connor, E.J.1
McCabe, M.P.2
Firth, L.3
-
32
-
-
1842429080
-
Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: A qualitative study
-
Richards F. Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: a qualitative study. Am J Med Genet 2004; 126A: 170-182.
-
(2004)
Am J Med Genet
, vol.126 A
, pp. 170-182
-
-
Richards, F.1
-
33
-
-
84872210957
-
-
EHDN (European Huntington's disease Net-work), [consultado 20-05-2011] Disponible en
-
EHDN (European Huntington's disease Net-work). Enfermedad de Huntington, 2010. [consultado 20-05-2011] Disponible en https://www.euro-hd.net/html/disease
-
(2010)
Enfermedad De Huntington
-
-
-
34
-
-
84872214411
-
-
NINDS (National Institute of Neurological Di-sorders and Stoke), [consultado 20-05-2011] Disponible en
-
NINDS (National Institute of Neurological Di-sorders and Stoke). Enfermedad de Hunting-ton: esperanza a través de la investigación, 2009. [consultado 20-05-2011] Disponible en http://espanol.ninds.nih.gov/trastornos/En-fermedad_de_Huntington.htm
-
(2009)
Enfermedad De Hunting-ton: Esperanza a Través De La Investigación
-
-
-
35
-
-
0013295143
-
Social work and genetic testing: Ethical issues encountered in predic-tive testing for Huntington disease
-
Richards F, Taylor S. Social work and genetic testing: ethical issues encountered in predic-tive testing for Huntington disease. Austra-lian Social Work 1997; 50: 61-67.
-
(1997)
Austra-lian Social Work
, vol.50
, pp. 61-67
-
-
Richards, F.1
Taylor, S.2
|