Improving care and wellness in bipolar disorder: Origins, evolution and future directions of a collaborative knowledge exchange network

International Journal of Mental Health Systems

Volumn 6, Issue , 2012, Pages

  Michalak, Erin E ^a   Hole, Rachelle ^b   Livingston, James D ^c   Murray, Greg ^d   Parikh, Sagar V ^e   Lapsley, Sara ^a   McBride, Sally ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^c BC Mental Health & Addiction Services   (Canada)

^d SWINBURNE UNIVERSITY OF TECHNOLOGY   (Australia)

^e UNIVERSITY OF TORONTO   (Canada)

Author keywords

Bipolar disorder; Community based participatory research; Interdisciplinary; Knowledge translation

Indexed keywords

ARTICLE; BIPOLAR DISORDER; HEALTH CARE UTILIZATION; HEALTH PROMOTION; HUMAN; IDENTITY; INTERPERSONAL COMMUNICATION; MEDICAL RESEARCH; PARTICIPATORY RESEARCH; PATIENT CARE; PRIORITY JOURNAL; QUALITY OF LIFE; RELIGION; SELF CARE; SOCIAL SUPPORT; STIGMA; WELLBEING;

EID: 84865835259     PISSN: None     EISSN: 17524458     Source Type: Journal    
DOI: 10.1186/1752-4458-6-16     Document Type: Article

References (62)

1. Goodwin F, Jamison K. Manic-depressive Illness 1990, NY: Oxford University Press.
2. Judd LL, Akiskal HS. The prevalence and disability of bipolar spectrum disorders in the US population: re-analysis of the ECA database taking into account subthreshold cases. J Affect Disord 2003, 73:123-131. 10.1016/S0165-0327(02)00332-4, 12507745.
3. Galvez JF, Thommi S, Ghaemi SN. Positive aspects of mental illness: a review in bipolar disorder. J Affect Disord 2011, 128:185-190. 10.1016/j.jad.2010.03.017, 20471692.
4. Murray CJL, Lopez AD. The Global Burden of Disease: A Comprehensive Assessment of Mortality and Disability from Diseases, Injuries, and Risk Factors in 1990 and Projected to 2001 1996, Cambridge, MA: Harvard University Press.
5. Public Health Agency of Canada A report on mental illnesses in Canada 2002, Ottawa: Book A report on mental illnesses in Canada, Public Health Agency of Canada.
6. Johnson SL, Brickman AL. Diagnostic inconsistency: a marker of service utilization in bipolar disorder. Manag Care Interface 2006, 19:41-45.
7. Simon GE, Unutzer J. Health care utilization and costs among patients treated for bipolar disorder in an insured population. Psychiatr Serv 1999, 50:1303-1308.
8. Michalak EE, Livingston JD, Hole R, Suto M, Hale S, Haddock C. 'It's something that I manage but it is not who I am': reflections on internalized stigma in individuals with bipolar disorder. Chronic Illn 2011, 1-16.
9. Yatham LN, Kennedy SH, O'Donovan C, Parikh S, MacQueen G, McIntyre R, Sharma V, Silverstone P, Alda M, Baruch P, et al. Canadian Network for Mood and Anxiety Treatments (CANMAT) guidelines for the management of patients with bipolar disorder: consensus and controversies. Bipolar Disord 2005, 7(Suppl 3):5-69.
10. Gitlin MJ, Swendsen J, Heller TL, Hammen C. Relapse and impairment in bipolar disorder. Am J Psychiatry 1995, 152:1635-1640.
11. Chengappa KN, Hennen J, Baldessarini RJ, Kupfer DJ, Yatham LN, Gershon S, Baker RW, Tohen M. Recovery and functional outcomes following olanzapine treatment for bipolar I mania. Bipolar Disord 2005, 7:68-76. 10.1111/j.1399-5618.2004.00171.x, 15654934.
12. Ozer S, Ulusahin A, Batur S, Kabakci E, Saka MC. Outcome measures of interepisode bipolar patients in a Turkish sample. Soc Psychiatry Psychiatr Epidemiol 2002, 37:31-37. 10.1007/s127-002-8211-z, 11924747.
13. Robb JC, Cooke RG, Devins GM, Young LT, Joffe RT. Quality of life and lifestyle disruption in euthymic bipolar disorder. J Psychiatr Res 1997, 31:509-517. 10.1016/S0022-3956(97)00030-7, 9368193.
14. Murray G, Johnson SL. The clinical significance of creativity in bipolar disorder. Clin Psychol Rev 2010, 30:721-732. 10.1016/j.cpr.2010.05.006, 3409641, 20579791.
15. Suto M, Murray G, Hale S, Amari E, Michalak EE. What Works for People with Bipolar Disorder? Tips from the Experts. J Affect Disord 2010, 124:76-84. 10.1016/j.jad.2009.11.004, 19969370.
16. Murray G, Michalak EE. The quality of life construct in bipolar disorder research and practice: past, present, and possible futures. Bipolar Disord In press..
17. Michalak EE, Murray G, Young A, Lam RW. Quality of life impairment in bipolar disorder. Quality of Life Impairment in Schizophrenia, Mood and Anxiety Disorders. New Perspectives on Research and Treatment 2007, 253-274. Dordrechht, The Netherlands: Springer, Ritsner M, Award AG.
18. Frank E, Swartz HA, Kupfer DJ. Interpersonal and social rhythm therapy: managing the chaos of bipolar disorder. Biol Psychiatry 2000, 48:593-604. 10.1016/S0006-3223(00)00969-0, 11018230.
19. Johnson SL, Meyer B, Winett C, Small J. Social support and self-esteem predict changes in bipolar depression but not mania. J Affect Disord 2000, 58:79-86. 10.1016/S0165-0327(99)00133-0, 10760562.
20. Jones SH. Circadian rhythms, multilevel models of emotion and bipolar disorder-an initial step towards integration?. Clin Psychol Rev 2001, 21:1193-1209. 10.1016/S0272-7358(01)00111-8, 11702512.
21. Miklowitz DJ. Adjunctive psychotherapy for bipolar disorder: state of the evidence. Am J Psychiatry 2008, 165:1408-1419. 10.1176/appi.ajp.2008.08040488, 2613162, 18794208.
22. Mansell W, Powell S, Pedley R, Thomas N, Jones SA. The process of recovery from bipolar I disorder: a qualitative analysis of personal accounts in relation to an integrative cognitive model. Br J Clin Psychol 2010, 49:193-215. 10.1348/014466509X451447, 19523280.
23. Michalak E, Maxwell V. Experiences and understandings of diagnosis: lived-experience perspectives. Thinking Critically About DSM 2012, New York: Nova Science, Murray G, in press..
24. Murray G, Suto M, Hole R, Hale S, Amari E, Michalak EE. Self-management strategies used by 'high functioning' individuals with bipolar disorder: from research to clinical practice. Clin Psychol Psychother 2011, 18:95-109. 10.1002/cpp.710, 20572206.
25. Wood AM, Terrier N. Positive Clinical Psychology: a new vision and strategy for integrated research and practice. Clin Psychol Rev 2010, 30(7):819-829. 10.1016/j.cpr.2010.06.003, 20655136.
26. Michalak EE, Yatham N, Kolesar S, Lam RW. Bipolar disorder and quality of life: A patient-centered perspective. Qual Life Res 2006, 15:25-37. 10.1007/s11136-005-0376-7, 16411028.
27. Coen SE, Bottorff JL, Johnson JL, Ratner PA. A relational conceptual framework for multidisciplinary health research centre infrastructure. Health Res Policy Syst 2010, 8:29. 10.1186/1478-4505-8-29, 2958927, 20925953.
28. Masuda JR, Creighton G, Nixon S, Frankish J. Building capacity for community-based participatory research for health disparities in Canada: the case of "Partnerships in Community Health Research". Health Promot Pract 2011, 12:280-292. 10.1177/1524839909355520, 21057046.
29. Michalak EE, Yatham LN, Lam RW. Quality of life in bipolar disorder: a review of the literature. Health Qual Life Outcomes 2005, 3:72. 10.1186/1477-7525-3-72, 1325049, 16288650.
30. Tyler C, Valek L, Rowland R. Graphic Facilitation and Large-scale Interventions: Supporting Dialogue between Cultures at a Global, Multicultural, and Interfaith Event. J Appl Behav Sci 2005, 41:139-152.
31. Post RM, Nolen WA, Kupka RW, Denicoff KD, Leverich GS, Keck PE, McElroy SL, Rush AJ, Suppes T, Altshuler LL, et al. The Stanley Foundation Bipolar Network. I. Rationale and methods. Br J Psychiatry 2001, 41(Suppl 1):169-176.
32. Holman H, Lorig K. Patient self-management: a key to effectiveness and efficiency in care of chronic disease. Public Health Rep 2004, 119:239-243. 10.1016/j.phr.2004.04.002, 1497631, 15158102.
33. Accreditation Canada Mental health populations. http://www.accreditation.ca/accreditation-programs/qmentum/standards/mental-health-populations/., Accreditation Canada.
34. Newman CF, Leahy RL, Beck AT, et al. Bipolar Disorder: A cognitive therapy approach 2002, London: American Psychological Association.
35. Chen PG, Diaz N, Lucas G, Rosenthal MS. Dissemination of results in community-based participatory research. Am J Prev Med 2010, 39:372-378. 10.1016/j.amepre.2010.05.021, 20837290.
36. D'Alonzo KT. Getting started in CBPR: lessons in building community partnerships for new researchers. Nurs Inq 2010, 17:282-288. 10.1111/j.1440-1800.2010.00510.x, 3203531, 21059145.
37. Hollander JB. Keeping control: the paradox of scholarly community-based research in community development. Community Development Journal 2011, 46:265-272.
38. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Public Health 1998, 19:173-202. 10.1146/annurev.publhealth.19.1.173, 9611617.
39. National Institute of Environmental Health Sciences Environmental Justice & Community-Based Participatory Research. http://www.niehs.nih.gov/research/supported/programs/justice/., National Institute of Environmental Health Sciences.
40. Gaventa J. The powerful, the powerless and the experts: Knowledge struggles in an information age. Voices of change: Participatory research in the United States and Canada 1993, 21-40. Westport: Bergin & Garvey, Park P.
41. Schneider B. Participatory Action Research, Mental Health Service User Research, and the Hearing (our) Voices Projects. International Journal of Qualitative Methods 2012, 11:2.
42. Minkler M. Community-based research partnerships: challenges and opportunities. J Urban Health 2005, 82(Suppl 2):ii3-12. 3456439, 15888635.
43. Rusch N, Angermeyer MC, Corrigan PW. Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. Eur Psychiatry 2005, 20:529-539. 10.1016/j.eurpsy.2005.04.004, 16171984.
44. Sajatovic M, Jenkins JH, Safavi R, et al. Personal and societal construction of illness among individuals with rapid-cycling bipolar disorder: a life-trajectory perspective. Am J Geriatr Psychiatry 2008, 16:718-726. 10.1097/JGP.0b013e3180488346, 3148582, 18070834.
45. Sirey JA, Bruce ML, Alexopoulos GS, Perlick DA, Friedman SJ, Meyers BS. Stigma as a barrier to recovery: Perceived stigma and patient-rated severity of illness as predictors of antidepressant drug adherence. Psychiatr Serv 2001, 52:1615-1620. 10.1176/appi.ps.52.12.1615, 11726752.
46. Suto M, Livingston JD, Hole R, Lapsley S, Hale S, Michalak EE. Stigma shrinks my bubble': A community-based research study with people who live with bipolar disorder. Stigma Research and Action 2012, 2(2):85-92.
47. Fink P, Tasman A. Overcoming Stigma: The Mad Hatters. Stigma and Mental Illness 1992, Washington: American Psychiatric Press, Fink PJ, Tasman A.
48. Johnston K. Performing Depression: The Workman Theatre Project and the Making of Joy. A Musical. About Depression. Text and Performance Quarterly 2008, 28:206-224.
49. Coen S. More than a Mandate: KE is MO for CREST.BD 2009, 3. Nexus Portal.
50. Canadian Institutes of Health Research Knowledge Translation at CIHR. http://www.cihr-irsc.gc.ca/e/39033.html., Canadian Institutes of Health Research.
51. Fredland NM. Nurturing Healthy Relationships Through a Community-Based Interactive Theater Program. J Commun Health Nurs 2010, 27:107-118.
52. Conger J. The art of empowering others. Acad Manag Exec 1989, 3:17-24.
53. Kanter Moss R. Power, Leadership, and Participatory Management. Theory into Practice 1981, 20:219-224.
54. Meade CD, Menard JM, Luque JS, Martinez-Tyson D, Gwede CK. Creating community-academic partnerships for cancer disparities research and health promotion. Health Promot Pract 2011, 12:456-462. 10.1177/1524839909341035, 19822724.
55. Canadian Institutes of Health Research Glossary of Funding Related Terms. http://cihr-irsc.gc.ca/e/34190.html#k4., Canadian Institutes of Health Research.
56. Revicki DA, Matza LS, Flood E, Lloyd A. Bipolar disorder and health-related quality of life: review of burden of disease and clinical trials. PharmacoEconomics 2005, 23:583-594. 10.2165/00019053-200523060-00005, 15960554.
57. Bluthenthal RN, Jones L, Fackler-Lowrie N, Ellison M, Booker T, Jones F, McDaniel S, Moini M, Williams KR, Klap R, et al. Witness for wellness: Preliminary findings from a community-academic participatory research mental health initiative. Ethnic Dis 2006, 16:18-34.
58. Stacciarini JM. A review of community-based participatory research: a promising approach to address depression among Latinos?. Issues Ment Health Nurs 2009, 30:751-757. 10.3109/01612840903177456, 19916809.
59. Bennett CF. Analyzing Impacts of Extension Programs 1979, Washington, DC: US Department of Agriculture.
60. Montague S. Practical (Progress) Measurement and (Impact) Evaluation for Initiatives in Complex Environments 2011, Vancouve: Canadian Evaluation Society, BC and Yukon Chapter..
61. Wang G, Tse S, Michalak EE. Self-management techniques for bipolar disorder in a sample of New Zealand Chinese. Int J Therapy Rehab 2009, 16:602-608.
62. Creech H, Ramji A. Knowledge Networks: Guidelines for Assessment. Working Paper 2004, International Institute for Sustainable Development.