Criteria for Centers of Reference for pediatric diabetes - a European perspective

Pediatric Diabetes

Volumn 13, Issue SUPPL. 16, 2012, Pages 62-75

  Danne, Thomas ^a   Lion, Sylvia ^b   Madaczy, Lazlo ^c   Veeze, Henk ^d   Raposo, Fillipe ^e   Rurik, Imre ^f,g   Aschemeier, Bärbel ^a   Kordonouri, Olga ^a  

^a Kinder und Jugendlkrankenhaus AUF DER BULT   (Germany)

^b Lilly Diabetes   (France)

^c SEMMELWEIS UNIVERSITY   (Hungary)

^d Stichting Diabeter   (Netherlands)

^e Clínico da APDP Associação Protectora dos Diabéticos de Portugal   (Portugal)

^f UNIVERSITY OF DEBRECEN   (Hungary)

^g Primary Care Diabetes Europe ^*  (Belgium)

Author keywords

Audit; Electronic health record; HbA1c; Quality control; Reference centers

Indexed keywords

HEMOGLOBIN A1C;

ACCREDITATION; ADULT; ARTICLE; CERTIFICATION; CHILDHOOD DISEASE; CLINICAL PRACTICE; DIABETES CONTROL; DIABETES MELLITUS; DISEASE CLASSIFICATION; DISEASE DURATION; ELECTRONIC MEDICAL RECORD; EUROPE; HEALTH CARE PERSONNEL; HUMAN; MAJOR CLINICAL STUDY; MEDICAL AUDIT; MEDICAL EDUCATION; PRIORITY JOURNAL;

ACCREDITATION; ADOLESCENT; CHILD; DATABASES, FACTUAL; DIABETES MELLITUS; EUROPE; HUMANS; MODELS, BIOLOGICAL; PATIENT CARE TEAM; PEDIATRICS; QUESTIONNAIRES; REFERENCE STANDARDS; STANDARD OF CARE; YOUNG ADULT;

EID: 84865584844     PISSN: 1399543X     EISSN: 13995448     Source Type: Journal    
DOI: 10.1111/j.1399-5448.2012.00914.x     Document Type: Article

References (15)

1. Mortensen HB, Hougaard P. Comparison of metabolic control in a cross-sectional study of 2, 873 children and adolescents with IDDM from 18 countries. The Hvidore Study Group on Childhood Diabetes. Diabetes Care 1997: 20: 714-720.
2. Danne T, Mortensen HB, Hougaard P et al. Persistent differences among centers over 3 years in glycemic control and hypoglycemia in a study of 3, 805 children and adolescents with type 1 diabetes from the Hvidore Study Group. Diabetes Care 2001: 24: 1342-1347.
3. de Beaufort CE, Swift PG, Skinner CT et al. Continuing stability of center differences in pediatric diabetes care: do advances in diabetes treatment improve outcome? The Hvidoere Study Group on Childhood Diabetes. Diabetes Care 2007: 30: 2245-2250.
4. Swift PG, Skinner TC, de Beaufort CE et al.; Hvidoere Study Group on Childhood Diabetes. Target setting in intensive insulin management is associated with metabolic control: the Hvidoere childhood diabetes study group center differences study 2005. Pediatr Diabetes 2010: 11: 271-278.
5. Cinek O, Šumník Z, de Beaufort C et al.; the SWEET working group. Heterogeneity in the systems of pediatric diabetes care across the European Union. Pediatr Diabetes 2012: 13 (Suppl. 16): 5-14.
6. Gerstl EM, Rabl W, Rosenbauer J et al. Metabolic control as reflected by HbA1c in children, adolescents and young adults with type-1 diabetes mellitus: combined longitudinal analysis including 27, 035 patients from 207 centers in Germany and Austria during the last decade. Eur J Pediatr 2008: 167: 447-453.
7. Forsander G, Pellinat M, Volk M et al.; on behalf of the SWEET group, de Beaufort C. Technical solution for data collection, data safety and data privacy legislation. Experiences from the SWEET Study. Pediatr Diabetes 2012: 13 (Suppl. 16): 39-48.
8. von Sengbusch S, Müller-Godeffroy E, Häger S, Reintjes R, Hiort O, Wagner V. Mobile diabetes education and care: intervention for children and young people with Type 1 diabetes in rural areas of northern Germany. Diabet Med 2006: 23: 122-127.
9. Summersett GM, Richards GE, Melzer SM, Sugarman JR, Kletter GB. Effectiveness of a rural pediatric diabetes management program. Pediatr Diabetes 2003: 4: 137-142.
10. Hanas R, Donaghue K, Klingensmith G, Swift PGF, eds. 2009 ISPAD Clinical Practice Consensus Guidelines. Pediatr Diabetes 2009: 10 (Suppl. 12): 1-210.
11. Patterson CC, Dahlqvist G, Gyurus E, Green A, Soltesz G. Incidence trends for childhood diabetes type 1 in Europe during 1989-2003 and predicted new cases 2005-2020: a multicenter prospective registration study. Lancet 2009: 373: 2027-2033.
12. Hanberger L, Samuelsson U, Lindblad B, Ludvigsson J. A1c in children and adolescents with diabetes in relation to certain clinical parameters - the Swedish Childhood Diabetes Registry SWEDIABKIDS. Diabetes Care 2008: 31: 927-929.
13. Diabetes Control and Complication Trial. Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin dependent diabetes mellitus: diabetes control and complication trial. J Pediatr 1994: 125: 177-188.
14. Milton B, Holland P, Whitehead M. The social and economic consequences of childhood-onset type 1 diabetes mellitus across the lifecourse: a systematic review. Diabet Med 2006: 23: 821-829.
15. Munthe C, Sandman L, Cutas D. Person centered care and shared decision making: Implications for ethics, public health and research. Health Care Anal 2011: 13: 231-249. doi:10.1007/s10728-011-0183-y.