메뉴 건너뛰기




Volumn 18, Issue 5, 2012, Pages 722-728

Tertiary prophylaxis in adults: Is there a rationale?

Author keywords

Adult; Cost; Haemophilia; Prophylaxis

Indexed keywords

ARTHROPATHY; ARTICLE; BLEEDING; COST EFFECTIVENESS ANALYSIS; HEALTH CARE COST; HEMOPHILIA; HUMAN; MENTAL HEALTH; PATIENT AUTONOMY; PHENOTYPE; PRIORITY JOURNAL; QUALITY OF LIFE; RECURRENT DISEASE; REHABILITATION; SOCIAL INTERACTION; SOCIAL PARTICIPATION;

EID: 84865543422     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2012.02843.x     Document Type: Article
Times cited : (27)

References (44)
  • 2
    • 53249090238 scopus 로고    scopus 로고
    • Haemophilic arthropathy: the importance of the earliest haemarthroses and consequences for treatment
    • Roosendaal G, Jansen NW, Schutgens R, Lafeber FP. Haemophilic arthropathy: the importance of the earliest haemarthroses and consequences for treatment. Haemophilia 2008; 14 (Suppl. 6): 4-10.
    • (2008) Haemophilia , vol.14 , Issue.SUPPL. 6 , pp. 4-10
    • Roosendaal, G.1    Jansen, N.W.2    Schutgens, R.3    Lafeber, F.P.4
  • 3
    • 34547962876 scopus 로고    scopus 로고
    • Mortality rates, life expectancy, and causes of death in people with hemophilia A or B in the United Kingdom who were not infected with HIV
    • Darby SC, Kan SW, Spooner RJ et al. Mortality rates, life expectancy, and causes of death in people with hemophilia A or B in the United Kingdom who were not infected with HIV. Blood 2007; 110: 815-25.
    • (2007) Blood , vol.110 , pp. 815-825
    • Darby, S.C.1    Kan, S.W.2    Spooner, R.J.3
  • 4
    • 9444232777 scopus 로고    scopus 로고
    • Thirty years of hemophilia treatment in the Netherlands, 1972-2001
    • Plug I, van derBom JG, Peters M et al. Thirty years of hemophilia treatment in the Netherlands, 1972-2001. Blood 2004; 104: 3494-500.
    • (2004) Blood , vol.104 , pp. 3494-3500
    • Plug, I.1    van derBom, J.G.2    Peters, M.3
  • 6
    • 0028004222 scopus 로고
    • A longitudinal study of orthopaedic outcomes for severe factor-VIII-deficient haemophiliacs. The Orthopaedic Outcome Study Group
    • Aledort LM, Haschmeyer RH, Pettersson H. A longitudinal study of orthopaedic outcomes for severe factor-VIII-deficient haemophiliacs. The Orthopaedic Outcome Study Group. J Intern Med 1994; 236: 391-9.
    • (1994) J Intern Med , vol.236 , pp. 391-399
    • Aledort, L.M.1    Haschmeyer, R.H.2    Pettersson, H.3
  • 7
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
    • (2007) N Engl J Med , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3
  • 8
    • 0031876989 scopus 로고    scopus 로고
    • Guidelines on treatment of haemophilia in Sweden
    • Berntorp E. Guidelines on treatment of haemophilia in Sweden. Haemophilia 1998; 4: 421-30.
    • (1998) Haemophilia , vol.4 , pp. 421-430
    • Berntorp, E.1
  • 9
    • 84875055501 scopus 로고    scopus 로고
    • National Hemophilia Foundation. MASAC Recommendations concerning prophylaxis (regular administration of clotting factor concentrate to prevent bleeding). [Last accessed on 4 August 2009]. Document #179. Available at:
    • National Hemophilia Foundation. MASAC Recommendations concerning prophylaxis (regular administration of clotting factor concentrate to prevent bleeding). [Last accessed on 4 August 2009]. Document #179. Available at: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=57&contentid=1007.
  • 10
    • 0034000569 scopus 로고    scopus 로고
    • Guidelines on replacement therapy for haemophilia and inherited coagulation disorders in Italy
    • Santagostino E, Mannucci PM. Guidelines on replacement therapy for haemophilia and inherited coagulation disorders in Italy. Haemophilia 2000; 6: 1-10.
    • (2000) Haemophilia , vol.6 , pp. 1-10
    • Santagostino, E.1    Mannucci, P.M.2
  • 11
    • 0037279116 scopus 로고    scopus 로고
    • Guidelines on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders
    • United Kingdom Haemophilia Centre Doctors Organisation (UKHCDO).
    • United Kingdom Haemophilia Centre Doctors Organisation (UKHCDO). Guidelines on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders. Haemophilia 2003; 9: 1-23.
    • (2003) Haemophilia , vol.9 , pp. 1-23
  • 12
    • 84875050105 scopus 로고    scopus 로고
    • Delivery of treatment for haemophilia. Report of a Joint WHO/WFH/ISTH meeting, London 11-12 February 2002. WHO/HGN/ISTH/WG/02.6.
    • Delivery of treatment for haemophilia. Report of a Joint WHO/WFH/ISTH meeting, London 11-12 February 2002. WHO/HGN/ISTH/WG/02.6.
  • 13
    • 40349091533 scopus 로고    scopus 로고
    • European principles of haemophilia care
    • Inter Disciplinary Working Group.
    • Colvin BT, Astermark J, Fischer K et al. Inter Disciplinary Working Group. European principles of haemophilia care. Haemophilia 2008; 14: 361-74.
    • (2008) Haemophilia , vol.14 , pp. 361-374
    • Colvin, B.T.1    Astermark, J.2    Fischer, K.3
  • 14
    • 0042411064 scopus 로고    scopus 로고
    • Consensus perspectives on prophylactic therapy for haemophilia: summary statement
    • Berntorp E, Astermark J, Björkman S et al. Consensus perspectives on prophylactic therapy for haemophilia: summary statement. Haemophilia 2003; 9 (Suppl. 1): 1-4.
    • (2003) Haemophilia , vol.9 , Issue.SUPPL. 1 , pp. 1-4
    • Berntorp, E.1    Astermark, J.2    Björkman, S.3
  • 15
    • 34548301667 scopus 로고    scopus 로고
    • Should prophylaxis be used in adolescent and adult patients with severe haemophilia? A European survey of practice and outcome data
    • Richards M, Altisent C, Batorova A et al. Should prophylaxis be used in adolescent and adult patients with severe haemophilia? A European survey of practice and outcome data. Haemophilia 2007; 13: 473-9.
    • (2007) Haemophilia , vol.13 , pp. 473-479
    • Richards, M.1    Altisent, C.2    Batorova, A.3
  • 16
    • 69949085125 scopus 로고    scopus 로고
    • Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices
    • Walsh CE, Valentino LA. Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices. Haemophilia 2009; 15: 1014-21.
    • (2009) Haemophilia , vol.15 , pp. 1014-1021
    • Walsh, C.E.1    Valentino, L.A.2
  • 17
    • 51249108178 scopus 로고    scopus 로고
    • The use of prophylaxis in 2663 children and adults with haemophilia: results of the 2006 Canadian national haemophilia prophylaxis survey
    • Association of Hemophilia Clinic Directors of Canada (AHCDC); Canadian Association of Nurses in Hemophilia Care (CANHC).
    • Biss TT, Chan AK, Blanchette VS, Iwenofu LN, McLimont M, Carcao MD; Association of Hemophilia Clinic Directors of Canada (AHCDC); Canadian Association of Nurses in Hemophilia Care (CANHC). The use of prophylaxis in 2663 children and adults with haemophilia: results of the 2006 Canadian national haemophilia prophylaxis survey. Haemophilia 2008; 14: 923-30.
    • (2008) Haemophilia , vol.14 , pp. 923-930
    • Biss, T.T.1    Chan, A.K.2    Blanchette, V.S.3    Iwenofu, L.N.4    McLimont, M.5    Carcao, M.D.6
  • 18
    • 33646015676 scopus 로고    scopus 로고
    • Current co-ordinated activities of the PEDNET (European Paediatric Network for Haemophilia Management)
    • Donadel-Claeyssens on behalf of the European Network for Haemophilia Management.
    • Donadel-Claeyssens on behalf of the European Network for Haemophilia Management. Current co-ordinated activities of the PEDNET (European Paediatric Network for Haemophilia Management). Haemophilia 2006; 12: 124-7.
    • (2006) Haemophilia , vol.12 , pp. 124-127
  • 19
    • 56649088061 scopus 로고    scopus 로고
    • Secondary prophylaxis in adolescent and adult haemophiliacs
    • Tagliaferri A, Di Perna C, Rivolta GF. Secondary prophylaxis in adolescent and adult haemophiliacs. Blood Transfus 2008; 6 (Suppl. 2): s17-20.
    • (2008) Blood Transfus , vol.6 , Issue.SUPPL. 2
    • Tagliaferri, A.1    Di Perna, C.2    Rivolta, G.F.3
  • 20
    • 1542374853 scopus 로고    scopus 로고
    • Secondary prophylaxis in severe haemophilia A: results in preventing further joint damage
    • Abstract 1923A].
    • Rocino A, Salerno E, Capasso F et al. Secondary prophylaxis in severe haemophilia A: results in preventing further joint damage. Thromb Haemost 1999; 82 (Suppl.): 610 [Abstract 1923A].
    • (1999) Thromb Haemost , vol.82 , Issue.SUPPL. , pp. 610
    • Rocino, A.1    Salerno, E.2    Capasso, F.3
  • 21
    • 0031774371 scopus 로고    scopus 로고
    • Assessing the effectiveness and cost-effectiveness of prophylaxis against bleeding in patients with severe haemophilia and severe von Willebrand's disease
    • PubMed].
    • Miners AH, Sabin CA, Tolley KH, Lee CA. Assessing the effectiveness and cost-effectiveness of prophylaxis against bleeding in patients with severe haemophilia and severe von Willebrand's disease. J Intern Med 1998; 244: 515-22. [PubMed].
    • (1998) J Intern Med , vol.244 , pp. 515-522
    • Miners, A.H.1    Sabin, C.A.2    Tolley, K.H.3    Lee, C.A.4
  • 22
    • 1542315033 scopus 로고    scopus 로고
    • Limited prophylaxis in adults with severe hemophilia: a pilot study
    • abstract].
    • Loverin JA, Mensah P, Nokes TJC. Limited prophylaxis in adults with severe hemophilia: a pilot study. Haemophilia 2000; 6: 274-5. [abstract].
    • (2000) Haemophilia , vol.6 , pp. 274-275
    • Loverin, J.A.1    Mensah, P.2    Nokes, T.J.C.3
  • 23
    • 1542374851 scopus 로고    scopus 로고
    • Factor prophylaxis in the management of adult hemophiliacs
    • abstract].
    • Saba HI, Tannenbaum B, Morelli G et al. Factor prophylaxis in the management of adult hemophiliacs. Haemophilia 2000; 6: 276-7. [abstract].
    • (2000) Haemophilia , vol.6 , pp. 276-277
    • Saba, H.I.1    Tannenbaum, B.2    Morelli, G.3
  • 24
    • 0036210038 scopus 로고    scopus 로고
    • Clinical outcomes and resource utilization associated with haemophilia care in Europe
    • for the European haemophilia economic study group.
    • Schramm W, Royal S, Kroner B et al. for the European haemophilia economic study group. Clinical outcomes and resource utilization associated with haemophilia care in Europe. Haemophilia 2002; 8: 33-43.
    • (2002) Haemophilia , vol.8 , pp. 33-43
    • Schramm, W.1    Royal, S.2    Kroner, B.3
  • 25
    • 33749857632 scopus 로고    scopus 로고
    • Late prophylaxis for severe hemophilia: effects of prophylaxis started in adulthood
    • OR205 [Abstract]
    • Fischer K, Van Dijk K, Van den Berg HM. Late prophylaxis for severe hemophilia: effects of prophylaxis started in adulthood. J Thromb Haemost 2005; 3 (Suppl. 1). OR205 [Abstract].
    • (2005) J Thromb Haemost , vol.3 , Issue.SUPPL. 1
    • Fischer, K.1    Van Dijk, K.2    Van den Berg, H.M.3
  • 26
    • 33749822906 scopus 로고    scopus 로고
    • Clinical and pharmacoeconomic impact of secondary prophylaxis in young-adults with severe hemophilia A
    • Abstract].
    • Coppola A, Cimino E, Macarone Palmieri N et al. Clinical and pharmacoeconomic impact of secondary prophylaxis in young-adults with severe hemophilia A. J Thromb Haemost 2005; 3 (Suppl. 1): P1428 [Abstract].
    • (2005) J Thromb Haemost , vol.3 , Issue.SUPPL. 1
    • Coppola, A.1    Cimino, E.2    Macarone Palmieri, N.3
  • 27
    • 33749819588 scopus 로고    scopus 로고
    • Experience of secondary prophylaxis in 20 adolescent and adult Italian hemophiliacs
    • Tagliaferri A, Rivolta GF, Rossetti G et al. Experience of secondary prophylaxis in 20 adolescent and adult Italian hemophiliacs. Thromb Haemost 2006; 96: 542-3.
    • (2006) Thromb Haemost , vol.96 , pp. 542-543
    • Tagliaferri, A.1    Rivolta, G.F.2    Rossetti, G.3
  • 28
    • 51249107088 scopus 로고    scopus 로고
    • Effects of secondary prophylaxis started in adolescent and adult haemophiliacs
    • Tagliaferri A, Franchini M, Coppola A et al. Effects of secondary prophylaxis started in adolescent and adult haemophiliacs. Haemophilia 2008; 14: 945-51.
    • (2008) Haemophilia , vol.14 , pp. 945-951
    • Tagliaferri, A.1    Franchini, M.2    Coppola, A.3
  • 29
    • 73049092113 scopus 로고    scopus 로고
    • Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor VIII treatment in adults with severe hemophilia A: results from a 13-month crossover study
    • Collins P, Faradji A, Morfini M, Enriquez MM, Schwartz L. Efficacy and safety of secondary prophylactic versus on-demand sucrose-formulated recombinant factor VIII treatment in adults with severe hemophilia A: results from a 13-month crossover study. J Thromb Haemost 2010; 8: 83-9.
    • (2010) J Thromb Haemost , vol.8 , pp. 83-89
    • Collins, P.1    Faradji, A.2    Morfini, M.3    Enriquez, M.M.4    Schwartz, L.5
  • 30
    • 84857572936 scopus 로고    scopus 로고
    • A randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A management
    • for the Prophylaxis Study Group.
    • Valentino LA, Mamonov V, Hellmann A et al. for the Prophylaxis Study Group. A randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A management. J Thromb Haemost 2012; 10: 359-67.
    • (2012) J Thromb Haemost , vol.10 , pp. 359-367
    • Valentino, L.A.1    Mamonov, V.2    Hellmann, A.3
  • 31
    • 67649848136 scopus 로고    scopus 로고
    • Revisiting the cost-effectiveness of primary prophylaxis with clotting factor for the treatment of severe haemophilia A
    • Miners A. Revisiting the cost-effectiveness of primary prophylaxis with clotting factor for the treatment of severe haemophilia A. Haemophilia 2009; 15: 881-7.
    • (2009) Haemophilia , vol.15 , pp. 881-887
    • Miners, A.1
  • 32
    • 29144528724 scopus 로고    scopus 로고
    • Cost effectiveness of haemophilia treatment: a cross-national assessment
    • Lippert B, Berger K, Berntorp E et al. Cost effectiveness of haemophilia treatment: a cross-national assessment. Blood Coagul Fibrinolysis 2005; 16: 477-85.
    • (2005) Blood Coagul Fibrinolysis , vol.16 , pp. 477-485
    • Lippert, B.1    Berger, K.2    Berntorp, E.3
  • 33
    • 47649118516 scopus 로고    scopus 로고
    • Cost-utility analysis of Canadian tailored prophylaxis, primary prophylaxis and on-demand therapy in young children with severe haemophilia A
    • Risebrough N, Oh P, Blanchette V, Curtin J, Hitzler J, Feldman BM. Cost-utility analysis of Canadian tailored prophylaxis, primary prophylaxis and on-demand therapy in young children with severe haemophilia A. Haemophilia 2008; 14: 743-52.
    • (2008) Haemophilia , vol.14 , pp. 743-752
    • Risebrough, N.1    Oh, P.2    Blanchette, V.3    Curtin, J.4    Hitzler, J.5    Feldman, B.M.6
  • 34
    • 84857091749 scopus 로고    scopus 로고
    • Health technology assessment and haemophilia
    • Farrugia A, O'Mahony B, Cassar J. Health technology assessment and haemophilia. Haemophilia 2012; 18: 152-7.
    • (2012) Haemophilia , vol.18 , pp. 152-157
    • Farrugia, A.1    O'Mahony, B.2    Cassar, J.3
  • 35
    • 0037325386 scopus 로고    scopus 로고
    • Orthopedic outcome studies and cost issues
    • Aledort LM. Orthopedic outcome studies and cost issues. Semin Thromb Hemost 2003; 29: 55-60.
    • (2003) Semin Thromb Hemost , vol.29 , pp. 55-60
    • Aledort, L.M.1
  • 36
    • 0036207230 scopus 로고    scopus 로고
    • Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients
    • for the European haemophilia economics study group.
    • Royal S, Schramm W, Berntorp E et al. for the European haemophilia economics study group. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8: 44-50.
    • (2002) Haemophilia , vol.8 , pp. 44-50
    • Royal, S.1    Schramm, W.2    Berntorp, E.3
  • 37
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36) I Conceptual framework and item selection
    • Ware JJ, Sherbourne CD. The MOS 36-item short-form health survey (SF-36) I Conceptual framework and item selection. Med Care 1992; 30: 473.
    • (1992) Med Care , vol.30 , pp. 473
    • Ware, J.J.1    Sherbourne, C.D.2
  • 38
    • 84863208012 scopus 로고    scopus 로고
    • Quality of life in adult patients with haemophilia-a single centre experience from Sweden
    • Epub ahead of print]. DOI: 10.1111/j.1365-2516.2012.02765.x.
    • Lindvall K, Von Mackensen S, Berntorp E. Quality of life in adult patients with haemophilia-a single centre experience from Sweden. Haemophilia 2012 [Epub ahead of print]. DOI: 10.1111/j.1365-2516.2012.02765.x.
    • (2012) Haemophilia
    • Lindvall, K.1    Von Mackensen, S.2    Berntorp, E.3
  • 39
    • 9144271883 scopus 로고    scopus 로고
    • The incidence of factor VIII and factor IX inhibitors in the hemophilia population of the UK and their effect on subsequent mortality, 1977-99
    • UK Haemophilia Centre Doctors' Organisation.
    • Darby SC, Keeling DM, Spooner RJ et al. UK Haemophilia Centre Doctors' Organisation. The incidence of factor VIII and factor IX inhibitors in the hemophilia population of the UK and their effect on subsequent mortality, 1977-99. J Thromb Haemost 2004; 2: 1047-54.
    • (2004) J Thromb Haemost , vol.2 , pp. 1047-1054
    • Darby, S.C.1    Keeling, D.M.2    Spooner, R.J.3
  • 40
    • 59849093369 scopus 로고    scopus 로고
    • Break-through bleeding in relation to predicted factor VIII levels in patients receiving prophylactic treatment for severe hemophilia A
    • rAHF-PFM Study Group.
    • Collins PW, Blanchette VS, Fischer K et al. rAHF-PFM Study Group. Break-through bleeding in relation to predicted factor VIII levels in patients receiving prophylactic treatment for severe hemophilia A. J Thromb Haemost 2009; 7: 413-20.
    • (2009) J Thromb Haemost , vol.7 , pp. 413-420
    • Collins, P.W.1    Blanchette, V.S.2    Fischer, K.3
  • 41
    • 74749088081 scopus 로고    scopus 로고
    • Factor VIII requirement to maintain a target plasma level in the prophylactic treatment of severe haemophilia A: influences of variance in pharmacokinetics and treatment regimens
    • Collins PW, Björkman S, Fischer K et al. Factor VIII requirement to maintain a target plasma level in the prophylactic treatment of severe haemophilia A: influences of variance in pharmacokinetics and treatment regimens. J Thromb Haemost 8: 269-75.
    • J Thromb Haemost , vol.8 , pp. 269-275
    • Collins, P.W.1    Björkman, S.2    Fischer, K.3
  • 42
    • 0027214492 scopus 로고
    • Prophylaxis: musculoskeletal evaluation
    • Gilbert MS. Prophylaxis: musculoskeletal evaluation. Semin Hematol 1993; 30 (3 Suppl. 2): 3-6.
    • (1993) Semin Hematol , vol.30 , Issue.2 SUPPL. 3 , pp. 3-6
    • Gilbert, M.S.1
  • 43
    • 0027317683 scopus 로고
    • Radiographic scores and implications
    • Pettersson H. Radiographic scores and implications. Semin Hematol 1993; 30 (3 Suppl. 2): 7-9.
    • (1993) Semin Hematol , vol.30 , Issue.2 SUPPL. 3 , pp. 7-9
    • Pettersson, H.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.