Development of the multi-attribute Adolescent Health Utility Measure (AHUM)

Health and Quality of Life Outcomes

Volumn 10, Issue , 2012, Pages

  Beusterien, Kathleen M ^a   Yeung, Jean Ezra ^a   Pang, Francis ^b   Brazier, John ^c  

^a ICON PLC   (United Kingdom)

^b Shire AG (Shire)   (Switzerland)

^c UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

IDURONATE 2 SULFATASE;

ADOLESCENT; ADOLESCENT HEALTH UTILITY MEASURE; ADULT; ARTICLE; CAREGIVER; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DISEASE SEVERITY; FEMALE; HEALTH ASSESSMENT QUESTIONNAIRE; HEALTH STATUS; HUMAN; HUNTER SYNDROME; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PAIN; PAIN ASSESSMENT; PHYSICAL MOBILITY; SELF CARE;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADOLESCENT MEDICINE; ADULT; CHRONIC DISEASE; COMORBIDITY; COSTS AND COST ANALYSIS; FAMILY CHARACTERISTICS; FEMALE; GREAT BRITAIN; HEALTH SERVICES RESEARCH; HEALTH STATUS INDICATORS; HUMANS; IDURONATE SULFATASE; MALE; MIDDLE AGED; MODELS, STATISTICAL; MUCOPOLYSACCHARIDOSIS II; PREGNANCY; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUALITY-ADJUSTED LIFE YEARS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SELF-ASSESSMENT; SOCIAL CLASS; TIME FACTORS; VALUE OF LIFE;

EID: 84865341282     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/1477-7525-10-102     Document Type: Article

References (25)

1. Brazier JE, Ratcliffe J, Tsuchiya A, Solomon J. Measuring and valuing health for economic evaluation 2007, Oxford University Press, Oxford.
2. Griebsch I, Coast J, Brown J. Quality-Adjusted Life-Years Lack Quality in Pediatric Care: A Critical Review of Published Cost-Utility Studies in Child Health. Pediatrics 2005, 115(5):600-614.
3. Drummond MF, Iglesias CP, Cooper NJ. Systematic reviews and economic evaluations conducted for the National Institute for Health and Clinical Excellence in the United Kingdom: a game of two halves?. Int J Technol Assess Health Care. 2008, 24(2):146-50.
4. Gold MR, Siegal JE, Russell LB, Weinstein MC. Cost-effectiveness in Health and Medicine 1996, Oxford University Press, New York.
5. NICE National Institute for Clinical Excellence Guide to Methods of Technology Appraisal 2004, National Institute for Clinical Excellence, London, England, NICE.
6. Brazier J, Roberts J, Deverill M. The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics 2002, 21(2):271-292. 10.1016/S0167-6296(01)00130-8, 11939242.
7. Dolan P. Modelling valuations for EuroQol health states. Medical Care 1997, 35(11):1095-1108. 10.1097/00005650-199711000-00002, 9366889.
8. Norrby U, Nordholm L, Andersson-Gare BA, Fasth A. Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis, or short stature. Acta Paediatrica 2006, 95:450-56. 10.1080/08035250500437499, 16720493.
9. Visser-van Balen H, Geenen R, Moerbeek M, et al. Psychosocial functioning of adolescents with idiopathic short stature or persistent short stature born small for gestational age during three years of combined growth hormone and gonadotropin-releasing hormone agonist treatment. Horm Res 2005, 64:77-87. 10.1159/000087700, 16113582.
10. Gutierrez-Solana LG. Clinical study of enzyme replacement therapy with dursulfase. Rev Neurol 2007, 44(1):S7-S11.
11. Landgraf JM, Maunsell E, Speechley KN, Bullinger M, Campbell S, Abetz L, Ware JE. Canadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results. Qual Life Res 1998, 7(5):433-45.
12. Rosenberg M. Society and the Adolescent Self-Image 1989, Wesleyan University Press, Middletown, CT, Revised.
13. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): Conceptual framework and item selection. Med Care 1992, 30(6):473-83. 10.1097/00005650-199206000-00002, 1593914.
14. RAND Health 20-item Short Form Survey from the RAND Medical Outcomes Study, 2011, http://www.rand.org/health/surveys_tools/mos/mos_core_20item.html. Visited May 17, 2011, RAND Health.
15. Torrance GW. Measurement of health state utilities for economic appraisal. Journal Health Economics 1986, 5:1-30.
16. Rowen D, Brazier J, Young T, Gaugris S, Craig BM, King MT, Velikova G. Deriving a preference-based measure for cancer using the EORTC QLQ-C30. Value in Health 2011, 14(5):721-731. 10.1016/j.jval.2011.01.004, 21839411.
17. Yang Y, Brazier J, Tsuchiya A, Young T. Estimating a preference-based index for a 5-dimensional health state classification for asthma (AQL-5D) derived from the Asthma Quality of Life Questionnaire (AQLQ). Medical Decision Making 2011, 31(2):281-291. 10.1177/0272989X10379646, 20924045.
18. Muenzer J, Wraith JE, et al. A phase II/III clinical study of enzyme replacement therapy with idursulfase in mucopolysaccharidosis II (Hunter syndrome). Genet Med 2006, 8(8):465-73. 10.1097/01.gim.0000232477.37660.fb, 16912578.
19. Muenzer J, Beck M, Eng CM, Giugliani R, Harmatz P, Martin R, et al. Long-term, open-labeled extension study of idursulfase in the treatment of Hunter Syndrome. Genet Med 2011, 13(2):95-101. 10.1097/GIM.0b013e3181fea459, 21150784.
20. England and Wales Census Office of National Statistics, 2001, http://www.scrol.gov.uk/scrol/common/home.jsp. Visited May 17th, 2011, England and Wales Census.
21. Beusterien KM, Davies J, Leach M, Meiklejohn D, Grinspan J, O'Toole A, Bramham-Jones S. Population preference values for treatment outcomes in chronic lymphocytic leukaemia: a cross-sectional utility study. Health and Quality of Life Outcomes 2010, 8:50. 10.1186/1477-7525-8-50, 2890699, 20482804.
22. Beusterien KM, Szabo SM, Kotapati S, Mukherjee J, Hoos A, Hersey P, Middleton MR, Levy AR. Societal preference values for advanced melanoma health states in the United Kingdom and Australia. Br J Cancer 2009, 101(3):387-9. 10.1038/sj.bjc.6605187, 2720221, 19603025.
23. Kuratsubo I, Suzuki Y, Orii KO. Psychological status of patients with mucopolysaccharidosis type II and their parents. Pediatrics International 2009, 51:41-47. 10.1111/j.1442-200X.2008.02652.x, 19371276.
24. Patrick DL, Starks HE, Cain KC, Uhlmann RF, Pearlman RA. Measuring preferences for health states worse than death. Medical Decision Making 1994, 14:8-18.
25. Wee HL, Machin D, Loke WC, et al. Assessing Differences in Utility Scores:A Comparison of Four Widely Used Preference-Based Instruments. Value in Health 2007, 10(4):257-65.