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Volumn 51, Issue 9, 2012, Pages 879-888

Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom

Author keywords

attention deficit hyperactivity disorder; autism spectrum disorder; caregiver burden

Indexed keywords

ADOLESCENCE; ADOLESCENT; ADULT; ADULTHOOD; ANXIETY; ARTICLE; ATTENTION DEFICIT DISORDER; AUTISM; CAREGIVER BURDEN; CHILD PSYCHIATRY; CONTROLLED STUDY; DEPRESSION; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL DISEASE; OBSERVATIONAL STUDY; PRIORITY JOURNAL; SOCIAL INTERACTION; THEORETICAL MODEL; UNITED KINGDOM;

EID: 84865243075     PISSN: 08908567     EISSN: 15275418     Source Type: Journal    
DOI: 10.1016/j.jaac.2012.06.017     Document Type: Article
Times cited : (196)

References (53)
  • 1
    • 65449119595 scopus 로고    scopus 로고
    • Economic cost of autism in the UK
    • M. Knapp, R. Romeo, J. Beecham Economic cost of autism in the UK Autism 13 2009 317 336
    • (2009) Autism , vol.13 , pp. 317-336
    • Knapp, M.1    Romeo, R.2    Beecham, J.3
  • 3
    • 31144436808 scopus 로고    scopus 로고
    • The age-dependent decline of attention deficit hyperactivity disorder: A meta-analysis of follow-up studies
    • DOI 10.1017/S003329170500471X, PII S003329170500471X
    • S.V. Faraone, J. Biederman, E. Mick The age-dependent decline of attention deficit hyperactivity disorder: a meta-analysis of follow-up studies Psychol Med 36 2006 159 165 (Pubitemid 43126140)
    • (2006) Psychological Medicine , vol.36 , Issue.2 , pp. 159-165
    • Faraone, S.V.1    Biederman, J.2    Mick, E.3
  • 4
    • 79958063970 scopus 로고    scopus 로고
    • Outcomes in adolescents and adults with autism: A review of the literature
    • A. Levy, A. Perry Outcomes in adolescents and adults with autism: a review of the literature Res Autism Spect Disord 5 2011 1271 1282
    • (2011) Res Autism Spect Disord , vol.5 , pp. 1271-1282
    • Levy, A.1    Perry, A.2
  • 7
    • 0030273142 scopus 로고    scopus 로고
    • Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder
    • DOI 10.1016/S0887-8994(96)00219-6, PII S0887899496002196
    • K. Ballaban-Gil, I. Rapin, R. Tuchman, S. Shinnar Longitudinal examination of the behavioral, language, and social changes in a population of adolescents and young adults with autistic disorder Pediatr Neurol 15 1996 217 223 (Pubitemid 26367758)
    • (1996) Pediatric Neurology , vol.15 , Issue.3 , pp. 217-223
    • Ballaban-Gil, K.1    Rapin, I.2    Tuchman, R.3    Shinnar, S.4
  • 8
    • 33646812224 scopus 로고    scopus 로고
    • Functional impairments in adults with self-reports of diagnosed ADHD: A controlled study of 1001 adults in the community
    • J. Biederman, S.V. Faraone, T.J. Spencer, E. Mick, M.C. Monuteaux, M. Aleardi Functional impairments in adults with self-reports of diagnosed ADHD: a controlled study of 1001 adults in the community J Clin Psychiatry 67 2006 524 540 (Pubitemid 43764229)
    • (2006) Journal of Clinical Psychiatry , vol.67 , Issue.4 , pp. 524-540
    • Biederman, J.1    Faraone, S.V.2    Spencer, T.J.3    Mick, E.4    Monuteaux, M.C.5    Aleardi, M.6
  • 9
    • 0029800812 scopus 로고    scopus 로고
    • Attention deficit hyperactivity disorder adults: Comorbidities and adaptive impairments
    • DOI 10.1016/S0010-440X(96)90022-X
    • K. Murphy, R.A. Barkley Attention deficit hyperactivity disorder adults: comorbidities and adaptive impairments Compr Psychiatry 37 1996 393 401 (Pubitemid 26383062)
    • (1996) Comprehensive Psychiatry , vol.37 , Issue.6 , pp. 393-401
    • Murphy, K.1    Barkley, R.A.2
  • 10
    • 49649114662 scopus 로고    scopus 로고
    • Educational and occupational underattainment in adults with attention-deficit/hyperactivity disorder: A controlled study
    • J. Biederman, C.R. Petty, R. Fried Educational and occupational underattainment in adults with attention-deficit/hyperactivity disorder: a controlled study J Clin Psychiatry 69 2008 1217 1222
    • (2008) J Clin Psychiatry , vol.69 , pp. 1217-1222
    • Biederman, J.1    Petty, C.R.2    Fried, R.3
  • 14
    • 79951559906 scopus 로고    scopus 로고
    • The identification and management of ADHD offenders within the criminal justice system: A consensus statement from the UK Adult ADHD Network and criminal justice agencies
    • S.J. Young, M. Adamou, B. Bolea The identification and management of ADHD offenders within the criminal justice system: a consensus statement from the UK Adult ADHD Network and criminal justice agencies BMC Psychiatry 11 2011 32
    • (2011) BMC Psychiatry , vol.11 , pp. 32
    • Young, S.J.1    Adamou, M.2    Bolea, B.3
  • 16
    • 34547669323 scopus 로고    scopus 로고
    • Services for adults with attention-deficit hyperactivity disorder: National survey
    • DOI 10.1192/pb.bp.106.012237
    • F. Edwin, J. McDonald Services for adults with attention-deficit hyperactivity disorder: national survey Psychiatric Bulletin 31 2007 286 288 (Pubitemid 47214945)
    • (2007) Psychiatric Bulletin , vol.31 , Issue.8 , pp. 286-288
    • Edwin, F.1    McDonald, J.2
  • 17
    • 49349106628 scopus 로고    scopus 로고
    • ADHD and transition to adult servicesthe experience of community paediatricians
    • H. Marcer, F. Finlay, A. Baverstock ADHD and transition to adult servicesthe experience of community paediatricians Child Care Health Dev 34 2008 564 566
    • (2008) Child Care Health Dev , vol.34 , pp. 564-566
    • Marcer, H.1    Finlay, F.2    Baverstock, A.3
  • 18
    • 33845994757 scopus 로고    scopus 로고
    • Functional and psychosocial impairment in adults with undiagnosed ADHD
    • DOI 10.1017/S0033291706008713, PII S0033291706008713
    • S.L. Able, J.A. Johnston, L.A. Adler, R.W. Swindle Functional and psychosocial impairment in adults with undiagnosed ADHD Psychol Med 37 2007 97 107 (Pubitemid 46043846)
    • (2007) Psychological Medicine , vol.37 , Issue.1 , pp. 97-107
    • Able, S.L.1    Johnston, J.A.2    Adler, L.A.3    Swindle, R.W.4
  • 19
    • 79955616337 scopus 로고    scopus 로고
    • Epidemiology of autism spectrum disorders in adults in the community in England
    • T.S. Brugha, S. McManus, J. Bankart Epidemiology of autism spectrum disorders in adults in the community in England Arch Gen Psychiatry 68 2011 459 465
    • (2011) Arch Gen Psychiatry , vol.68 , pp. 459-465
    • Brugha, T.S.1    McManus, S.2    Bankart, J.3
  • 20
    • 11144355445 scopus 로고    scopus 로고
    • Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome
    • L. Abbeduto, M.M. Seltzer, P. Shattuck, M.W. Krauss, G. Orsmond, M.M. Murphy Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome Am J Ment Retard 109 2004 237 254
    • (2004) Am J Ment Retard , vol.109 , pp. 237-254
    • Abbeduto, L.1    Seltzer, M.M.2    Shattuck, P.3    Krauss, M.W.4    Orsmond, G.5    Murphy, M.M.6
  • 21
    • 33645944362 scopus 로고    scopus 로고
    • Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact
    • J. Blacher, L.L. McIntyre Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impact J Intellect Disabil Res 50 2006 184 198
    • (2006) J Intellect Disabil Res , vol.50 , pp. 184-198
    • Blacher, J.1    McIntyre, L.L.2
  • 22
    • 37349099742 scopus 로고    scopus 로고
    • Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being
    • DOI 10.1352/0895-8017(2007)112[401:TACIAA]2.0.CO;2
    • J. Lounds, M.M. Seltzer, J.S. Greenberg, P.T. Shattuck Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being Am J Ment Retard 112 2007 401 417 (Pubitemid 350305114)
    • (2007) American Journal on Mental Retardation , vol.112 , Issue.6 , pp. 401-417
    • Lounds, J.1    Seltzer, M.M.2    Greenberg, J.S.3    Shattuck, P.T.4
  • 23
    • 85009585755 scopus 로고    scopus 로고
    • Adolescents and adults with autism with and without co-morbid psychiatric disorders: Differences in maternal well-being
    • S.R. Kring, J.S. Greenberg, M.M. Seltzer Adolescents and adults with autism with and without co-morbid psychiatric disorders: differences in maternal well-being J Ment Health Res Intellect Disabil 1 2008 53 74
    • (2008) J Ment Health Res Intellect Disabil , vol.1 , pp. 53-74
    • Kring, S.R.1    Greenberg, J.S.2    Seltzer, M.M.3
  • 24
    • 79956233773 scopus 로고    scopus 로고
    • The impact of health problems on behavior problems in adolescents and adults with autism spectrum disorders: Implications for maternal burden
    • S.R. Kring, J.S. Greenberg, M.M. Seltzer The impact of health problems on behavior problems in adolescents and adults with autism spectrum disorders: implications for maternal burden Soc Work Ment Health 8 2010 54 71
    • (2010) Soc Work Ment Health , vol.8 , pp. 54-71
    • Kring, S.R.1    Greenberg, J.S.2    Seltzer, M.M.3
  • 25
  • 26
    • 0346942363 scopus 로고    scopus 로고
    • Parent Stress and Coping in Relation to Child ADHD Severity and Associated Child Disruptive Behavior Problems
    • C.L. Podolski, J.T. Nigg Parent stress and coping in relation to child ADHD severity and associated child disruptive behavior problems J Clin Child Psychol 30 2001 503 513 (Pubitemid 33658639)
    • (2001) Journal of Clinical Child and Adolescent Psychology , vol.30 , Issue.4 , pp. 503-513
    • Podolski, C.-L.1    Nigg, J.T.2
  • 27
    • 84873636791 scopus 로고    scopus 로고
    • Parenting stress in families of children with ADHD: A meta-analysis. [published online November 18, 2010]
    • AccessedMay2,2012
    • Theule J, Wiener J, Tannock R, Jenkins JM. Parenting stress in families of children with ADHD: a meta-analysis. [published online November 18, 2010] J Emot Behav Disord. http://dx.doi.org/10.1177/1063426610387433. Accessed May 2, 2012.
    • J Emot Behav Disord
    • Theule, J.1    Wiener, J.2    Tannock, R.3    Jenkins, J.M.4
  • 28
    • 84859806259 scopus 로고    scopus 로고
    • Correlates of caregiver burden among family caregivers of older Korean Americans
    • B. Casado, P. Sacco Correlates of caregiver burden among family caregivers of older Korean Americans J Gerontol B Psychol Sci Soc Sci 67B 2012 331 336
    • (2012) J Gerontol B Psychol Sci Soc Sci , vol.67 , pp. 331-336
    • Casado, B.1    Sacco, P.2
  • 29
    • 10944269279 scopus 로고    scopus 로고
    • Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services
    • DOI 10.1177/1362361304047224
    • J. Bromley, D.J. Hare, K. Davison, E. Emerson Mothers supporting children with autistic spectrum disorders: social support, mental health status and satisfaction with services Autism 8 2004 409 423 (Pubitemid 40012076)
    • (2004) Autism , vol.8 , Issue.4 , pp. 409-423
    • Bromley, J.1    Hare, D.J.2    Davison, K.3    Emerson, E.4
  • 30
    • 10944249734 scopus 로고    scopus 로고
    • The health and social care needs of family carers supporting adults with autistic spectrum disorders
    • DOI 10.1177/1362361304047225
    • D.J. Hare, C. Pratt, M. Burton, J. Bromley, E. Emerson The health and social care needs of family carers supporting adults with autistic spectrum disorders Autism 8 2004 425 444 (Pubitemid 40012077)
    • (2004) Autism , vol.8 , Issue.4 , pp. 425-444
    • Hare, D.J.1    Pratt, C.2    Burton, M.3    Bromley, J.4    Emerson, E.5
  • 31
    • 0027997172 scopus 로고
    • Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders
    • DOI 10.1007/BF02172145
    • C. Lord, M. Rutter, A. Le Couteur Autism Diagnostic InterviewRevised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders J Autism Dev Disord 24 1994 659 685 (Pubitemid 24309810)
    • (1994) Journal of Autism and Developmental Disorders , vol.24 , Issue.5 , pp. 659-685
    • Lord, C.1    Rutter, M.2    Couteur, A.L.3
  • 32
    • 0032932147 scopus 로고    scopus 로고
    • Contributors to and mediators of psychological well-being for informal caregivers
    • M.E. Yates, S. Tennstedt, B.H. Chang Contributors to and mediators of psychological well-being for informal caregivers J Gerontol B Psychol Sci Soc Sci 54 1999 P12 P22
    • (1999) J Gerontol B Psychol Sci Soc Sci , vol.54
    • Yates, M.E.1    Tennstedt, S.2    Chang, B.H.3
  • 34
    • 0025053956 scopus 로고
    • Caregiving and the stress process: An overview of concepts and their measures
    • L.I. Pearlin, J.T. Mullan, S.J. Semple, M.M. Skaff Caregiving and the stress processan overview of concepts and their measures Gerontologist 30 1990 583 594 (Pubitemid 20370226)
    • (1990) Gerontologist , vol.30 , Issue.5 , pp. 583-594
    • Pearlin, L.I.1    Mullan, J.T.2    Semple, S.J.3    Skaff, M.M.4
  • 35
    • 0034799055 scopus 로고    scopus 로고
    • The Zarit Burden Interview: A new short version and screening version
    • M. Bedard, D.W. Molloy, L. Squire, S. Dubois, J.A. Lever, M. O'Donnell The Zarit Burden Interview: a new short version and screening version Gerontologist 41 2001 652 657 (Pubitemid 32959731)
    • (2001) Gerontologist , vol.41 , Issue.5 , pp. 652-657
    • Bedard, M.1    Molloy, D.W.2    Squire, L.3    Dubois, S.4    Lever, J.A.5    O'Donnell, M.6
  • 36
    • 77949915191 scopus 로고    scopus 로고
    • Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions
    • I.J. Higginson, W. Gao, D. Jackson, J. Murray, R. Harding Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions J Clin Epidemiol 63 2010 535 542
    • (2010) J Clin Epidemiol , vol.63 , pp. 535-542
    • Higginson, I.J.1    Gao, W.2    Jackson, D.3    Murray, J.4    Harding, R.5
  • 37
    • 0035261154 scopus 로고    scopus 로고
    • The autism-spectrum quotient (AQ): Evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians
    • S. Baron-Cohen, S. Wheelwright, R. Skinner, J. Martin, E. Clubley The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians J Autism Dev Disord 31 2001 5 17
    • (2001) J Autism Dev Disord , vol.31 , pp. 5-17
    • Baron-Cohen, S.1    Wheelwright, S.2    Skinner, R.3    Martin, J.4    Clubley, E.5
  • 41
    • 0034536356 scopus 로고    scopus 로고
    • Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample
    • DOI 10.1192/bjp.177.6.534
    • R. Goodman, T. Ford, H. Simmons, R. Gatward, H. Meltzer Using the Strengths and Difficulties Questionnaire (SDQ) to screen for child psychiatric disorders in a community sample Br J Psychiatry 177 2000 534 539 (Pubitemid 32005485)
    • (2000) British Journal of Psychiatry , vol.177 , pp. 534-539
    • Goodman, R.1    Ford, T.2    Simmons, H.3    Gatward, R.4    Meltzer, H.5
  • 42
    • 68549126919 scopus 로고    scopus 로고
    • Strengths and difficulties questionnaire as a dimensional measure of child mental health
    • A. Goodman, R. Goodman Strengths and difficulties questionnaire as a dimensional measure of child mental health J Am Acad Child Adolesc Psychiatry 48 2009 400 403
    • (2009) J Am Acad Child Adolesc Psychiatry , vol.48 , pp. 400-403
    • Goodman, A.1    Goodman, R.2
  • 43
    • 64349115506 scopus 로고    scopus 로고
    • Construct validity of the five-factor Strengths and Difficulties Questionnaire (SDQ) in pre-, early, and late adolescence
    • B. Van Roy, M. Veenstra, J. Clench-Aas Construct validity of the five-factor Strengths and Difficulties Questionnaire (SDQ) in pre-, early, and late adolescence J Child Psychol Psychiatry 49 2008 1304 1312
    • (2008) J Child Psychol Psychiatry , vol.49 , pp. 1304-1312
    • Van Roy, B.1    Veenstra, M.2    Clench-Aas, J.3
  • 45
    • 0026718252 scopus 로고
    • Measuring psychiatric-disorder in the communitya standardized assessment for use by lay interviewers
    • G. Lewis, A.J. Pelosi, R. Araya, G. Dunn Measuring psychiatric-disorder in the communitya standardized assessment for use by lay interviewers Psychol Med 22 1992 465 486
    • (1992) Psychol Med , vol.22 , pp. 465-486
    • Lewis, G.1    Pelosi, A.J.2    Araya, R.3    Dunn, G.4
  • 46
    • 34147159435 scopus 로고    scopus 로고
    • Neuropsychiatric consequences of traumatic brain injury: A comparison between two age groups
    • DOI 10.1080/02699050701253137, PII 777042374
    • S. Deb, J. Burns Neuropsychiatric consequences of traumatic brain injury: a comparison between two age groups Brain Inj 21 2007 301 307 (Pubitemid 46567424)
    • (2007) Brain Injury , vol.21 , Issue.3 , pp. 301-307
    • Deb, S.1    Burns, J.2
  • 49
    • 0002885419 scopus 로고
    • Costing psychiatric interventions
    • G. Thornicroft, C. Brewin, J. Wing, Second ed. Gaskell, London
    • J. Beecham, M. Knapp Costing psychiatric interventions G. Thornicroft, C. Brewin, J. Wing, Measuring Mental Health Needs Second ed. 1992 Gaskell, London 179 190
    • (1992) Measuring Mental Health Needs , pp. 179-190
    • Beecham, J.1    Knapp, M.2
  • 50
    • 33745818375 scopus 로고    scopus 로고
    • Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: The Special Needs and Autism Project (SNAP)
    • DOI 10.1016/S0140-6736(06)69041-7, PII S0140673606690417
    • G. Baird, E. Simonoff, A. Pickles Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP) Lancet 368 2006 210 215 (Pubitemid 44037796)
    • (2006) Lancet , vol.368 , Issue.9531 , pp. 210-215
    • Baird, G.1    Simonoff, E.2    Pickles, A.3    Chandler, S.4    Loucas, T.5    Meldrum, D.6    Charman, T.7
  • 52
    • 57349107128 scopus 로고    scopus 로고
    • Factors contributing to stress in parents of individuals with autistic spectrum disorders
    • E. Tehee, R. Honan, D. Hevey Factors contributing to stress in parents of individuals with autistic spectrum disorders J Appl Res Intellect 22 2009 34 42
    • (2009) J Appl Res Intellect , vol.22 , pp. 34-42
    • Tehee, E.1    Honan, R.2    Hevey, D.3
  • 53
    • 0028962870 scopus 로고
    • A population-based assessment of the impact and burden of caregiving for long-term stroke survivors
    • C.S. Anderson, J. Linto, E.G. Stewart-Wynne A population-based assessment of the impact and burden of caregiving for long-term stroke survivors Stroke 26 1995 843 849
    • (1995) Stroke , vol.26 , pp. 843-849
    • Anderson, C.S.1    Linto, J.2    Stewart-Wynne, E.G.3


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