Communicating with clinicians: The experiences of surrogate decision-makers for hospitalized older adults

Journal of the American Geriatrics Society

Volumn 60, Issue 8, 2012, Pages 1401-1407

  Torke, Alexia M ^a,b   Petronio, Sandra ^a,b   Purnell, Christianna E ^a   Sachs, Greg A ^a   Helft, Paul R ^b,c   Callahan, Christopher M ^a  

^a INDIANA UNIVERSITY   (United States)

^b Charles Warren Fairbanks Center for Medical Ethics   (United States)

^c INDIANA UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

communication; physician patient relations; proxy

Indexed keywords

AGED; AUDIO RECORDING; FEMALE; HOSPITALIZATION; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MEDICAL DECISION MAKING; PUBLIC HOSPITAL; REVIEW; SEMI STRUCTURED INTERVIEW; TERTIARY HEALTH CARE; TRUST;

AGED; COMMUNICATION; DECISION MAKING; FEMALE; HOSPITALIZATION; HUMANS; MALE; PHYSICIAN-PATIENT RELATIONS; THIRD-PARTY CONSENT;

EID: 84865127478     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/j.1532-5415.2012.04086.x     Document Type: Review

References (36)

1. Raymont V, Bingley W, Buchanan A, et al. Prevalence of mental incapacity in medical inpatients and associated risk factors: Cross-sectional study. Lancet 2004; 364: 1421-1427. (Pubitemid 39370717)
2. Dubler NN,. The doctor-proxy relationship: The neglected connection. Kennedy Inst Ethics J 1995; 5: 289-306.
3. Torke AM, Alexander GC, Lantos J, et al. The physician-surrogate relationship. Arch Intern Med 2007; 167: 1117-1121. (Pubitemid 46919813)
4. Torke AM, Petronio S, Sachs GA, et al. A conceptional model of the role of communication in surrogate decision making for hospitalized adults. Patient Educ Couns 2012; 87: 54-61.
5. Torke AM, Sachs GA, Helft PR, et al. Timing of do-not-resuscitate orders for hospitalized older adults who require a surrogate decision-maker. J Am Geriatr Soc 2011; 59: 1326-1331.
6. Baker R, Wu AW, Teno JM, et al. Family satisfaction with end-of-life care in seriously ill hospitalized adults. J Am Geriatr Soc 2000; 48: S61-S69. (Pubitemid 30265997)
7. McDonagh JR, Elliott TB, Engelberg RA, et al. Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction. Critical Care Med 2004; 32: 1484-1488. (Pubitemid 38925176)
8. Selph RB, Shiang J, Engelberg R, et al. Empathy and life support decisions in intensive care units. J Gen Intern Med 2008; 23: 1311-1317.
9. Pochard F, Azoulay E, Chevret S, et al. Symptoms of anxiety and depression in family members of intensive care unit patients: Ethical hypothesis regarding decision-making capacity. Critical Care Med 2001; 29: 1893-1897. (Pubitemid 32980397)
10. Lautrette A, Darmon M, Megarbane B, et al. A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 2007; 356: 469-478. (Pubitemid 46193074)
11. Butcher HK, Holkup PA, Park M, et al. Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit. Res Nurs Health 2001; 24: 470-480. (Pubitemid 33604357)
12. Park M, Butcher HK, Maas ML,. A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long-term care facility. Res Nurs Health 2004; 27: 345-356. (Pubitemid 39434263)
13. Jacob DA,. Family members' experiences with decision making for incompetent patients in the ICU: A qualitative study. Am J Crit Care 1998; 7: 30-36. (Pubitemid 128456908)
14. Chambers-Evans J, Carnevale FA,. Dawning of awareness: The experience of surrogate decision making at the end of life. J Clin Ethics 2005; 16: 28-45. (Pubitemid 40770044)
15. Vig EK, Taylor JS, Starks H, et al. Beyond substituted judgment: How surrogates navigate end-of-life decision-making. J Am Geriatr Soc 2006; 54: 1688-1693. (Pubitemid 44665207)
16. Vig EK, Starks H, Taylor JS, et al. Surviving surrogate decision-making: What helps and hampers the experience of making medical decisions for others. J Gen Intern Med 2007; 22: 1274-1279. (Pubitemid 47247295)
17. Braun UK, Beyth RJ, Ford ME, et al. Voices of African American, Caucasian, and Hispanic surrogates on the burdens of end-of-life decision making. J Gen Intern Med 2008; 23: 267-274.
18. Tilden VP, Tolle SW, Garland MJ, et al. Decisions about life-sustaining treatment. Impact of physicians' behaviors on the family. Arch Intern Med 1995; 155: 633-638.
19. Swigart V, Lidz C, Butterworth V, et al. Letting go: Family willingness to forgo life support. Heart Lung 1996; 25: 483-494. (Pubitemid 26403701)
20. Tilden VP, Tolle SW, Nelson CA, et al. Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nurs Res 2001; 50: 105-115. (Pubitemid 33603797)
21. Abbott KH, Sago JG, Breen CM, et al. Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med 2001; 29: 197-201. (Pubitemid 32125798)
22. Callahan CM, Haag KM, Buchanan NN, et al. Decision-making for percutaneous endoscopic gastrostomy among older adults in a community setting. J Am Geriatr Soc 1999; 47: 1105-1109. (Pubitemid 29420618)
23. Lewis CL, Hanson LC, Golin C, et al. Surrogates' perceptions about feeding tube placement decisions. Patient Educ Couns 2006; 61: 246-252.
24. Lindlof TR, Taylor BC,. Qualitative Communication Research Methods. Thousand Oaks, CA: Sage, 2002.
25. Mitchell SL, Kiely DK, Jones RN, et al. Advanced dementia research in the nursing home: The CASCADE study. Alzheimer Dis Assoc Disord 2006; 20: 166-175. (Pubitemid 44259791)
26. Strauss A, Corbin J,. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory, 2nd Ed. Thousand Oaks, CA: Sage, 1998.
27. Morse JM, Field PA,. Qualitative Research Methods for Health Professionals, 2nd Ed. Thousand Oaks, CA: Sage, 1995
28. Giacomini MK, Cook DJ,. Users' guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? Evidence-Based Medicine Working Group. JAMA 2000; 284: 357-362. (Pubitemid 30469863)
29. Veatch RM,. Models for ethical medicine in a revolutionary age. What physician-patient roles foster the most ethical realtionship?. Hastings Cent Rep 1972; 2: 5-7.
30. Childress JF, Siegler M,. Metaphors and models of doctor-patient relationships: Their implications for autonomy. Theor Med 1984; 5: 17-30.
31. Wachter RM, Pantilat SZ,. The "continuity visit" and the hospitalist model of care. Dis Mon 2002; 48: 267-272.
32. Arora V, Gangireddy S, Mehrotra A, et al. Ability of hospitalized patients to identify their in-hospital physicians. Arch Intern Med 2009; 169: 199-201.
33. Torke AM, Siegler M, Abalos A, et al. Physicians' experiences with surrogate decision making for hospitalized adults. J Gen Intern Med 2009; 24: 1023-1028.
34. Manson NC,. Why do patients want information if not to take part in decision making? J Med Ethics 2010; 36: 834-837.
35. Wendler D, Rid A,. Systematic review: The effects on surrogates of making treatment decisions for others. Ann Intern Med 2011; 154: 336-346.
36. Azoulay E, Pochard F, Kentish-Barnes N, et al. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005; 171: 987-994. (Pubitemid 40616947)