The Toronto congenital heart disease transition task force

Progress in Pediatric Cardiology

Volumn 34, Issue 1, 2012, Pages 21-26

  Kovacs, Adrienne H ^a   Cullen Dean, Geraldine ^b   Aiello, Sandra ^b   Wasyliw, Cindy ^b   Harrison, Jeanine L ^a   Li, Qunyu ^a   Oechslin, Erwin N ^a,b  

^a UNIVERSITY HEALTH NETWORK   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Adolescent; Congenital heart disease; Transfer; Transition

Indexed keywords

ARTICLE; CLASSIFICATION ALGORITHM; CLINICAL PRACTICE; CONGENITAL HEART DISEASE; COOPERATION; FACTUAL DATABASE; HEALTH PROGRAM; HEALTH SERVICE; HUMAN; MEDICAL DOCUMENTATION; PATIENT EDUCATION; PATIENT TRANSPORT; PRIORITY JOURNAL; PROGRAM DEVELOPMENT; WEB BROWSER;

EID: 84864989992     PISSN: 10589813     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ppedcard.2012.05.005     Document Type: Article

References (28)

1. Saidi A., Kovacs A.H. Developing a transition program from pediatric- to adult-focused cardiology care: practical considerations. Congenit Heart Dis 2009, 4(4):204-215.
2. Knauth A., Verstappen A., Reiss J., Webb G.D. Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiol Clin 2006, 24(4):619-629. [vi].
3. Hilderson D., Saidi A.S., Van Deyk K., et al. Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe. Pediatr Cardiol 2009, 30(6):786-793.
4. Sable C., Foster E., Uzark K., et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation 2011, 123(13):1454-1485.
5. Warnes C.A., Williams R.G., Bashore T.M., et al. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons. J Am Coll Cardiol 2008, 52(23):e1-e121.
6. Marelli A., Beauchesne L., Mital S., Therrien J., Silversides C.K. Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: introduction. Can J Cardiol 2010, 26(3):e65-e69.
7. Deanfield J., Thaulow E., Warnes C., et al. Management of grown up congenital heart disease. Eur Heart J 2003, 24(11):1035-1084.
8. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002, 110(6 Pt 2):1304-1306.
9. Steinbeck K.S., Brodie L., Towns S.J. Transition in chronic illness: who is going where?. J Paediatr Child Health 2008, 44(9):478-482.
10. Reid G.J., Irvine M.J., McCrindle B.W., et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 2004, 113(3 Pt 1):e197-e205.
11. Wacker A., Kaemmerer H., Hollweck R., et al. Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years. Am J Cardiol 2005, 95(6):776-779.
12. Beauchesne L.M., Therrien J., Alvarez N., et al. Structure and process measures of quality of care in adult congenital heart disease patients: a pan-Canadian study. Int J Cardiol 2012, 157(1):70-74.
13. Mackie A.S., Ionescu-Ittu R., Therrien J., Pilote L., Abrahamowicz M., Marelli A.J. Children and adults with congenital heart disease lost to follow-up: who and when?. Circulation 2009, 120(4):302-309.
14. Yeung E., Kay J., Roosevelt G.E., Brandon M., Yetman A.T. Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 2008, 125(1):62-65.
15. Reiss J.G., Gibson R.W., Walker L.R. Health care transition: youth, family, and provider perspectives. Pediatrics 2005, 115(1):112-120.
16. Sawyer S.M., Aroni R.A. Self-management in adolescents with chronic illness. What does it mean and how can it be achieved?. Med J Aust 2005, 183(8):405-409.
17. Hudsmith L.E., Thorne S.A. Transition of care from paediatric to adult services in cardiology. Arch Dis Child 2007, 92(10):927-930.
18. Moons P., Pinxten S., Dedroog D., et al. Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. J Adolesc Health 2009, 44(4):316-322.
19. Van Deyk K., Moons P., Gewillig M., Budts W. Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care. Nurs Clin North Am 2004, 39(4):755-768.
20. Goossens E., Stephani I., Hilderson D., et al. Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations. J Am Coll Cardiol 2011, 57(23):2368-2374.
21. Shaw K.L., Southwood T.R., McDonagh J.E. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2004, 43(6):770-778.
22. Boyle M.P., Farukhi Z., Nosky M.L. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol 2001, 32(6):428-436.
23. Amaria K., Stinson J., Cullen-Dean G., Sappleton K., Kaufman M. Tools for addressing systems issues in transition. Healthc Q 2011, 14:72-76.
24. Wolfstadt J., Kaufman A., Levitin J., Kaufman M. The use and usefulness of MyHealth Passport: an online tool for the creation of a portable health summary. Int J Child Adolesc Health 2011, 3(4):499-506.
25. Transition to adult care for youth with special health care needs. Paediatr Child Health 2007, 12(9):785-793.
26. Hutchinson J.W., Stafford E.M. Changing parental opinions about teen privacy through education. Pediatrics 2005, 116(4):966-971.
27. Suris J.C., Akre C., Rutishauser C. How adult specialists deal with the principles of a successful transition. J Adolesc Health 2009, 45(6):551-555.
28. Kennedy A., Sloman F., Douglass J.A., Sawyer S.M. Young people with chronic illness: the approach to transition. Intern Med J 2007, 37(8):555-560.