Nationwide survey of adolescents and young adults with end-stage kidney disease

Nephrology

Volumn 17, Issue 6, 2012, Pages 539-544

  Ritchie, Angus G ^a,b,d   Clayton, Philip A ^c,d   MacKie, Fiona E ^a,b   Kennedy, Sean E ^a,b  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b SYDNEY CHILDREN'S HOSPITAL   (Australia)

^c ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^d ROYAL ADELAIDE HOSPITAL   (Australia)

Author keywords

adolescent; demography; dialysis; transition to adult care; transplantation

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; AUSTRALIA; COHORT ANALYSIS; CONTROLLED STUDY; DISEASE ASSOCIATION; DISEASE REGISTRY; FEMALE; GLOMERULONEPHRITIS; HEALTH CARE NEED; HEALTH SURVEY; HEMODIALYSIS; HUMAN; INDIGENOUS PEOPLE; INFORMATION RETRIEVAL; KIDNEY FAILURE; KIDNEY GRAFT; MAJOR CLINICAL STUDY; MALE; NEW ZEALAND; PATIENT CARE; PATIENT TRANSPORT; PEDIATRIC WARD; PERITONEAL DIALYSIS; POPULATION RESEARCH; PREVALENCE; PRIORITY JOURNAL; RACE; RENAL REPLACEMENT THERAPY;

ADOLESCENT; ADULT; AGE DISTRIBUTION; AGE FACTORS; AUSTRALIA; CHI-SQUARE DISTRIBUTION; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SURVEYS; HUMANS; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; MALE; NEEDS ASSESSMENT; NEW ZEALAND; OCEANIC ANCESTRY GROUP; PERITONEAL DIALYSIS; PREVALENCE; PROGNOSIS; REGISTRIES; RENAL DIALYSIS; RENAL REPLACEMENT THERAPY; RESIDENCE CHARACTERISTICS; RISK ASSESSMENT; RISK FACTORS; TIME FACTORS; TRANSIENTS AND MIGRANTS; YOUNG ADULT;

EID: 84864470034     PISSN: 13205358     EISSN: 14401797     Source Type: Journal    
DOI: 10.1111/j.1440-1797.2012.01610.x     Document Type: Article

References (28)

1. Watson AR,. Non-compliance and transfer from paediatric to adult transplant unit. Pediatr. Nephrol. 2000; 14: 469-72. (Pubitemid 30319234)
2. Samuel SM, Nettel-Aguirre A, Hemmelgarn BR, et al,. Graft failure and adaptation period to adult healthcare centers in pediatric renal transplant patients. Transplantation 2011; 91: 1380-85.
3. Kennedy SE, Mackie FE, Rosenberg AR, McDonald SP,. Waiting time and outcome of kidney transplantation in adolescents. Transplantation 2006; 82: 1046-50. (Pubitemid 44632120)
4. Smith JM, Ho PL, McDonald RA,. Renal transplant outcomes in adolescents: A report of the North American Pediatric Renal Transplant Cooperative Study. Pediatr. Transplant. 2002; 6: 493-9. (Pubitemid 35470547)
5. Chaturvedi S, Jones CL, Walker RG, Sawyer SM,. The transition of kidney transplant recipients: A work in progress. Pediatr. Nephrol. 2009; 24: 1055-60.
6. Gjertson DW, Cecka JM,. Determinants of long-term survival of pediatric kidney grafts reported to the United Network for Organ Sharing kidney transplant registry. Pediatr. Transplant. 2001; 5: 5-15. (Pubitemid 32178996)
7. British Association for Pediatric Nephrology/Renal Association. Helping Adolescents and Young Adults with End Stage Renal Failure, 2009. [Cited November 2011.] Available from URL
8. Webb N, Harden P, Lewis C, et al,. Building consensus on transition of transplant patients from paediatric to adult healthcare. Arch. Dis. Child. 2010; 95: 606-11.
9. Watson AR, Hilton D, Hackett D,. Therapeutic recreation camps to provide a residential experience for young people in transition to adult renal units. Pediatr. Nephrol. 2010; 25: 787-88.
10. Watson AR, Harden P, Ferris M, Kerr PG, Mahan J, Ramzy MF,. Transition from pediatric to adult renal services: A consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr. Nephrol. 2011; 26: 1753-7.
11. Prestidge C, Romann A, Djurdjev O, Matsuda-Abedini M,. Utility and cost of a renal transplant transition clinic. Pediatr. Nephrol. 2012; 27: 295-302.
12. Harden PN, Bandler N, Bradley S, et al,. Integrated paediatric to young adult care pathway reduces kidney transplant failure. Am. J. Transplant. 2011; 11: 491-2.
13. Russ G,. Introduction. In:, McDonald S, Excell L, Livingston B, (eds). ANZDATA Registry Report 2010. Adelaide, SA: Australia and New Zealand Dialysis and Transplant Registry, 2010; vi.
14. Australian Bureau of Statistics. Australian Demographic Statistics. September 2010, Cat. No. 3101.0. Canberra: ABS, 2011.
15. Australian Bureau of Statistics. Experimental Estimates of Projections, Aboriginal and Torres Strait Islander Australians, 1991 to 2021. Cat. No. 3238.0. Canberra: ABS, 2009.
16. Australian Bureau of Statistics. 2004 Year Book Australia. Cat. No. 1301.0. Canberra: ABS, 2004.
17. Trewin D,. Information Paper: ABS Views on Remoteness. Cat. No. 1244.0. Canberra: ABS, 2001.
18. Trewin D,. Information Paper: Outcomes of ABS Views on Remoteness Consultation, Australia. Cat. No. 1244.0.00.01. Canberra: ABS, 2001.
19. Australian Bureau of Statistics. ABS Postal Area Concordances. Cat. No. 2905.0.55.001. Canberra: ABS, 2006.
20. Watson AR,. Problems and pitfalls of transition from paediatric to adult renal care. Pediatr. Nephrol. 2005; 20: 113-17. (Pubitemid 40174020)
21. White A, Wong W, Sureshkumur P, Singh G,. The burden of kidney disease in indigenous children of Australia and New Zealand, epidemiology, antecedent factors and progression to chronic kidney disease. J. Paediatr. Child Health 2010; 46: 504-9.
22. Yeates KE, Cass A, Sequist TD, et al,. Indigenous people in Australia, Canada, New Zealand and the United States are less likely to receive renal transplantation. Kidney Int. 2009; 76: 659-64.
23. McDonald S,. Indigenous transplant outcomes in Australia: What the ANZDATA Registry tells us. Nephrology (Carlton) 2004; 9 (Suppl 4): S138-43.
24. McDonald S, Excell L, Jose M,. End-stage kidney disease among Indigenous peoples of Australia and New Zealand. In:, McDonald S, Excell L, Livingston B, (eds). ANZDATA Registry Report 2010. Adelaide, SA: Australia and New Zealand Dialysis and Transplant Registry, 2010; 12-1-12-12.
25. Orr NI, McDonald SP, McTaggart S, Henning P, Craig JC,. Frequency, etiology and treatment of childhood end-stage kidney disease in Australia and New Zealand. Pediatr. Nephrol. 2009; 24: 1719-26.
26. Grace B, Excell L, McDonald S,. Stock and flow. In:, McDonald S, Excell L, Livingston B, (eds). ANZDATA Registry Report 2010. Adelaide, SA: Australia and New Zealand Dialysis and Transplant Registry, 2010; 1-1-1-8.
27. Australian Bureau of Statistics. Population by Age and Sex, Australian States and Territories. Cat. No. 3201.0. Canberra: ABS, 2010.
28. Adalat S, Bockenhauer D, Ledermann SE, Hennekam RC, Woolf AS,. Renal malformations associated with mutations of developmental genes: Messages from the clinic. Pediatr. Nephrol. 2010; 25: 2247-55.