메뉴 건너뛰기




Volumn 14, Issue 3, 2012, Pages

Mining online social network data for biomedical research: A comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatments

Author keywords

ALS; Amyotrophic lateral sclerosis; Lou Gehrig's disease; Online patient community; Online social network; Treatment efficacy; Treatment response

Indexed keywords

AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; COMPARATIVE STUDY; HEALTH PERSONNEL ATTITUDE; HUMAN; INFORMATION RETRIEVAL; MEDICAL RESEARCH; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT;

EID: 84864196749     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.2127     Document Type: Conference Paper
Times cited : (21)

References (13)
  • 1
    • 79251614394 scopus 로고    scopus 로고
    • ALSUntangled no. 8: Low dose naltrexone for ALS
    • ALSUntangled Group Jan [doi: 10.3109/17482968.2010.544386] [Medline: 21174518]
    • ALSUntangled Group. ALSUntangled No. 8: Low dose naltrexone for ALS. Amyotroph Lateral Scler 2011 Jan;12(1):76-78. [doi: 10.3109/17482968.2010. 544386] [Medline: 21174518]
    • (2011) Amyotroph Lateral Scler , vol.12 , Issue.1 , pp. 76-78
  • 2
    • 77953856664 scopus 로고    scopus 로고
    • Sharing health data for better outcomes on PatientsLikeMe
    • [FREE Full text] [doi: 10.2196/jmir.1549] [Medline: 20542858]
    • Wicks P, Massagli M, Frost J, Brownstein C, Okun S, Vaughan T, et al. Sharing health data for better outcomes on PatientsLikeMe. J Med Internet Res 2010;12(2):e19 [FREE Full text] [doi: 10.2196/jmir.1549] [Medline: 20542858]
    • (2010) J Med Internet Res , vol.12 , Issue.2
    • Wicks, P.1    Massagli, M.2    Frost, J.3    Brownstein, C.4    Okun, S.5    Vaughan, T.6
  • 3
    • 70349964351 scopus 로고    scopus 로고
    • Can web 2.0 reboot clinical trials?
    • Oct [doi: 10.1038/nbt1009-895] [Medline: 19816442]
    • Allison M. Can web 2.0 reboot clinical trials? Nat Biotechnol 2009 Oct;27(10):895-902. [doi: 10.1038/nbt1009-895] [Medline: 19816442]
    • (2009) Nat Biotechnol , vol.27 , Issue.10 , pp. 895-902
    • Allison, M.1
  • 4
    • 79953119037 scopus 로고    scopus 로고
    • Use of an online community to develop patient-reported outcome instruments: The multiple sclerosis treatment adherence questionnaire (MS-TAQ)
    • [FREE Full text] [doi: 10.2196/jmir.1687] [Medline: 21266318]
    • Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). J Med Internet Res 2011;13(1):e12 [FREE Full text] [doi: 10.2196/jmir.1687] [Medline: 21266318]
    • (2011) J Med Internet Res , vol.13 , Issue.1
    • Wicks, P.1    Massagli, M.2    Kulkarni, A.3    Dastani, H.4
  • 5
    • 60049100265 scopus 로고    scopus 로고
    • Measuring function in advanced ALS: Validation of ALSFRS-EX extension items
    • Mar [doi: 10.1111/j.1468-1331.2008.02434.x] [Medline: 19364363]
    • Wicks P, Massagli MP, Wolf C, Heywood J. Measuring function in advanced ALS: validation of ALSFRS-EX extension items. Eur J Neurol 2009 Mar;16(3):353-359. [doi: 10.1111/j.1468-1331.2008.02434.x] [Medline: 19364363]
    • (2009) Eur J Neurol , vol.16 , Issue.3 , pp. 353-359
    • Wicks, P.1    Massagli, M.P.2    Wolf, C.3    Heywood, J.4
  • 6
    • 79955778144 scopus 로고    scopus 로고
    • Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
    • May [doi: 10.1038/nbt.1837] [Medline: 21516084]
    • Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol 2011 May;29(5):411-414. [doi: 10.1038/nbt.1837] [Medline: 21516084]
    • (2011) Nat Biotechnol , vol.29 , Issue.5 , pp. 411-414
    • Wicks, P.1    Vaughan, T.E.2    Massagli, M.P.3    Heywood, J.4
  • 7
    • 79953094346 scopus 로고    scopus 로고
    • Patient-reported outcomes as a source of evidence in off-label prescribing: Analysis of data from PatientsLikeMe
    • [FREE Full text] [doi: 10.2196/jmir.1643] [Medline: 21252034]
    • Frost J, Okun S, Vaughan T, Heywood J, Wicks P. Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe. J Med Internet Res 2011;13(1):e6 [FREE Full text] [doi: 10.2196/jmir.1643] [Medline: 21252034]
    • (2011) J Med Internet Res , vol.13 , Issue.1
    • Frost, J.1    Okun, S.2    Vaughan, T.3    Heywood, J.4    Wicks, P.5
  • 8
    • 61449101642 scopus 로고    scopus 로고
    • Display of health risk behaviors on MySpace by adolescents: Prevalence and associations
    • Jan [doi: 10.1001/archpediatrics.2008.528] [Medline: 19124700]
    • Moreno MA, Parks MR, Zimmerman FJ, Brito TE, Christakis DA. Display of health risk behaviors on MySpace by adolescents: prevalence and associations. Arch Pediatr Adolesc Med 2009 Jan;163(1):27-34. [doi: 10.1001/archpediatrics. 2008.528] [Medline: 19124700]
    • (2009) Arch Pediatr Adolesc Med , vol.163 , Issue.1 , pp. 27-34
    • Moreno, M.A.1    Parks, M.R.2    Zimmerman, F.J.3    Brito, T.E.4    Christakis, D.A.5
  • 9
  • 10
    • 62749193868 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis
    • [FREE Full text] [doi: 10.1186/1750-1172-4-3] [Medline: 19192301]
    • Wijesekera LC, Leigh PN. Amyotrophic lateral sclerosis. Orphanet J Rare Dis 2009;4:3 [FREE Full text] [doi: 10.1186/1750-1172-4-3] [Medline: 19192301]
    • (2009) Orphanet J Rare Dis , vol.4 , pp. 3
    • Wijesekera, L.C.1    Leigh, P.N.2
  • 11
    • 70350138259 scopus 로고    scopus 로고
    • Quality standards subcommittee of the American academy of neurology. Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): Report of the quality standards subcommittee of the American academy of neurology
    • Oct 13 [doi: 10.1212/WNL.0b013e3181bc01a4] [Medline: 19822873]
    • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, Quality Standards Subcommittee of the American Academy of Neurology. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009 Oct 13;73(15):1227-1233. [doi: 10.1212/WNL.0b013e3181bc01a4] [Medline: 19822873]
    • (2009) Neurology , vol.73 , Issue.15 , pp. 1227-1233
    • Miller, R.G.1    Jackson, C.E.2    Kasarskis, E.J.3    England, J.D.4    Forshew, D.5    Johnston, W.6
  • 13
    • 76749143584 scopus 로고    scopus 로고
    • Assessment of self-selection bias in a pediatric unilateral hearing loss study
    • Mar [doi: 10.1016/j.otohns.2009.11.035] [Medline: 20172393]
    • Lieu JE, Dewan K. Assessment of self-selection bias in a pediatric unilateral hearing loss study. Otolaryngol Head Neck Surg 2010 Mar;142(3):427-433. [doi: 10.1016/j.otohns.2009.11.035] [Medline: 20172393]
    • (2010) Otolaryngol Head Neck Surg , vol.142 , Issue.3 , pp. 427-433
    • Lieu, J.E.1    Dewan, K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.