Men's use of an internet-based decision aid for prostate cancer screening

Journal of Health Communication

Volumn 17, Issue 6, 2012, Pages 677-697

  Kassan, Elisabeth C ^a   Williams, Randi M ^a   Kelly, Scott P ^a   Barry, Samantha A ^a   Penek, Sofiya ^a   Fishman, Mary B ^a   Cole, Carmella A ^a   Miller, Edward M ^b   Taylor, Kathryn L ^a  

^a GEORGETOWN UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b MedStar Physician Partners   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CLINICAL TRIAL; COMPUTER INTERFACE; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DECISION SUPPORT SYSTEM; EARLY DIAGNOSIS; FOLLOW UP; HUMAN; INTERNET; MALE; MIDDLE AGED; PROSTATE TUMOR; QUALITATIVE RESEARCH; RANDOMIZED CONTROLLED TRIAL; SOCIOECONOMICS; UTILIZATION REVIEW;

AGED; DECISION SUPPORT TECHNIQUES; EARLY DETECTION OF CANCER; FOLLOW-UP STUDIES; HUMANS; INTERNET; MALE; MIDDLE AGED; PROSTATIC NEOPLASMS; QUALITATIVE RESEARCH; SOCIOECONOMIC FACTORS; USER-COMPUTER INTERFACE;

EID: 84864060892     PISSN: 10810730     EISSN: 10870415     Source Type: Journal    
DOI: 10.1080/10810730.2011.579688     Document Type: Article

References (65)

1. Allen, J. D., Othus, M. K., Hart, A., Jr., Tom, L., Li, Y., Berry, D., et al. (2010). A randomized trial of a computer-tailored decision aid to improve prostate cancer screening decisions: Results from the take the wheel trial. Cancer Epidemiology, Biomarkers & Prevention, 19, 2172-2186.
2. American Cancer Society. (2010a). Cancer facts & figures 2010. Atlanta, GA: Author. Retrieved June 13, 2011, from http://www.cancer.org/acs/ groups/content/@nho/documents/document/acspc-024113.pdf
3. American Cancer Society. (2010b). Prostate cancer overview guide. Atlanta, GA: Author. Retrieved June 13, 2011, from http://www.cancer.org/Cancer/ ProstateCancer/ OverviewGuide/prostate-cancer-overview-diagnosed
4. American College of Physicians. (1997). Screening for prostate cancer. Annals of Internal Medicine, 126, 480-484.
5. American Medical Association. (2000). Summaries and recommendations of Council on cientific Affairs reports. Screening and early detection of prostate cancer (CSA Rep. 9, A-00). Paper presented at the 2000 Annual Meeting of the American Medical Association, Chicago, IL. Retrieved June 13, 2011, from http://www.ama-assn.org/ama1/pub/upload/mm/443/csaa-00.pdf
6. American Urological Association Education and Research. (2009). Prostate-specific antigen best practice statement: 2009 update. Retrieved June 13, 2011, from http://www.auanet.org/content/guidelines-and-quality-care/ clinical-guidelines/main-reports/psa09.pdf
7. Andriole, G. L., Crawford, E. D., Grubb, R. L., III, Buys, S. S., Chia, D., Church, T. R., et al. (2009). Mortality results from a randomized prostate-cancer screening trial. The New England Journal of Medicine, 360, 1310-1319.
8. Boberg, E. W., Gustafson, D. H., Hawkins, R. P., Chan, C. L., Bricker, E., Pingree, S., et al. (1995). Development, acceptance, and use patterns of a computer-based education and social support system for people living with AIDS=HIV infection. Computers in Human Behavior, 11, 289-311.
9. Bosworth, K., Gustafson, D. H., & Hawkins, R. P. (1994). The BARN System: Use and impact of adolescent health promotion via computer. Computers in Human Behavior, 10, 467-482. (Pubitemid 124010391)
10. Brennan, P. F. (1993). Differential use of computer network services. Proceedings of the Annual Symposium on Computer Application in Medical Care, 27-31.
11. Brennan, P. F., Moore, S. M., & Smyth, K. A. (1991). ComputerLink: Electronic support for the home caregiver. ANS: Advances in Nursing Science, 13(4), 14-27.
12. Chapman, G. B., & Sonnenberg, F. A. (2000). Introduction. In G. B. Chapman & F. A. Sonnenberg (Eds.), Decision making in health care: Theory, psychology, and applications (pp. 3-19). New York: Cambridge University Press.
13. Christensen, H., Griffiths, K. M., & Korten, A. (2002). Web-based cognitive behavior therapy: Analysis of site usage and changes in depression and anxiety scores. Journal of Medical Internet Research, 4(1), e3.
14. Clarke, G., Eubanks, D., Reid, E., Kelleher, C., O'Connor, E., DeBar, L. L., et al. (2005). Overcoming Depression on the Internet (ODIN) (2): A randomized trial of a self-help depression skills program with reminders. Journal of Medical Internet Research, 7(2), e16.
15. Cobb, N. K., Graham, A. L., Bock, B. C., Papandonatos, G., & Abrams, D. B. (2005). Initial evaluation of a real-world Internet smoking cessation system. Nicotine & Tobacco Research, 7, 207-216. (Pubitemid 40852147)
16. Danaher, B. G., Boles, S. M., Akers, L., Gordon, J. S., & Severson, H. H. (2006). Defining participant exposure measures in Web-based health behavior change programs. Journal of Medical Internet Research, 8(3), e15.
17. Danaher, B. G., & Seeley, J. R. (2009). Methodological issues in research on Web-based behavioral interventions. Annals of Behavioral Medicine, 38(1), 28-39.
18. Dorfman, C. S., Williams, R. M., Kassan, E. C., Red, S. N., Dawson, D. L., Tuong, W., et al. (2010). The development of a web- and a print-based decision aid for prostate cancer screening. BMC Medical Informatics and Decision Making, 10, 12-28.
19. Evans, R., Joseph-Williams, N., Edwards, A., Newcombe, R. G., Wright, P., Kinnersley, P., et al. (2010). Supporting informed decision making for prostate specific antigen (PSA) testing on the web: An online randomized controlled trial. Journal of Medical Internet Research, 12(3), e27.
20. Feil, E. G., Noell, J., Lichtenstein, E., Boles, S. M., & McKay, H. G. (2003). Evaluation of an Internet-based smoking cessation program: Lessons learned from a pilot study. Nicotine & Tobacco Research, 5, 189-194. (Pubitemid 36547001)
21. Flatley-Brennan, P. (1998). Computer network home care demonstration: A randomized trial in persons living with AIDS. Computers in Biology and Medicine, 28, 489-508. (Pubitemid 28539438)
22. Friedman, D. B., & Hoffman-Goetz, L. (2006). A systematic review of readability and comprehension instruments used for print and Web-based cancer information. Health Education & Behavior, 33, 352-373. (Pubitemid 43725866)
23. Frosch, D. L., Bhatnagar, V., Tally, S., Hamori, C. J., & Kaplan, R. M. (2008). Internet patient decision support: A randomized controlled trial comparing alternative approaches for men considering prostate cancer screening. Archives of Internal Medicine, 168, 363-369. (Pubitemid 351347127)
24. Frosch, D. L., Kaplan, R. M., & Felitti, V. J. (2003). A randomized controlled trial comparing internet and video to facilitate patient education for men considering the prostate specific antigen test. Journal of General Internal Medicine, 18, 781-787. (Pubitemid 37281771)
25. Gattellari, M., & Ward, J. E. (2003). Does evidence-based information about screening for prostate cancer enhance consumer decision-making? A randomised controlled trial. Journal of Medical Screening, 10(1), 27-39. (Pubitemid 36560965)
26. Gerber, B. S., Solomon, M. C., Shaffer, T. L., Quinn, M. T., & Lipton, R. B. (2007). Evaluation of an internet diabetes self-management training program for adolescents and young adults. Diabetes Technology & Therapeutics, 9(1), 60-67.
27. Glasgow, R. E., Boles, S. M., McKay, H. G., Feil, E. G., & Barrera, M., Jr. (2003). The D-Net diabetes self-management program: Long-term implementation, outcomes, and generalization results. Preventive Medicine, 36, 410-419. (Pubitemid 36315793)
28. Gustafson, D., Hawkins, R., Boberg, E. W., Bricker, E., Pingree, S., & Chan, C. L. (1994). The use and impact of a computer-based support system for people living with AIDS and HIV infection. Proceedings of the Annual Symposium on Computer Application in Medical Care, 11, 604-608.
29. Gustafson, D., Hawkins, R., Pingree, S., McTavish, F., Arora, N. K., Mendenhall, J., et al. (2001). Effect of computer support on younger women with breast cancer. Journal of General Internal Medicine, 16, 435-445. (Pubitemid 34208919)
30. Gustafson, D., Wise, M., McTavish, F., Taylor, J. E., Wolberg, W., Stewart, J., et al. (1993). Development and pilot evaluation of a computer-based support system for women with breast cancer. Journal of Psychosocial Oncology, 11(4), 69-93. (Pubitemid 24111101)
31. Ilic, D., Egberts, K., McKenzie, J. E., Risbridger, G., & Green, S. (2008). Informing men about prostate cancer screening: A randomized controlled trial of patient education materials. Journal of General Internal Medicine, 23, 466-471. (Pubitemid 351464870)
32. Joseph-Williams, N., Evans, R., Edwards, A., Newcombe, R. G., Wright, P., Grol, R., et al. (2010). Supporting informed decision making online in 20 minutes: An observational web-log study of a PSA test decision aid. Journal of Medical Internet Research, 12(2), e15.
33. Krist, A. H., Woolf, S. H., Johnson, R. E., & Kerns, J. W. (2007). Patient education on prostate cancer screening and involvement in decision making. Annals of Family Medicine, 5, 112-119. (Pubitemid 46513479)
34. Lai, T. Y., Larson, E. L., Rockoff, M. L., & Bakken, S. (2008). User acceptance of HIV TIDES-Tailored Interventions for Management of Depressive Symptoms in persons living with HIV=AIDS. Journal of the American Medical Informatics Association, 15, 217-226. (Pubitemid 351288544)
35. Lenert, L., Munoz, R. F., Stoddard, J., Delucchi, K., Bansod, A., Skoczen, S., et al. (2003). Design and pilot evaluation of an internet smoking cessation program. Journal of the American Medical Informatics Association, 10(1), 16-20. (Pubitemid 36134059)
36. Leslie, E., Marshall, A. L., Owen, N., & Bauman, A. (2005). Engagement and retention of participants in a physical activity website. Preventive Medicine, 40(1), 54-59. (Pubitemid 39458075)
37. McBride, C. M., Alford, S. H., Reid, R. J., Larson, E. B., Baxevanis, A. D., & Brody, L. C. (2009). Characteristics of users of online personalized genomic risk assessments: Implications for physician-patient interactions. Genetics in Medicine, 11, 582-587.
38. McKay, H. G., Glasgow, R. E., Feil, E. G., Boles, S. M., & Barrera, M., Jr. (2002). Internet-based diabetes self-management and support: Initial outcomes from the Diabetes Network Project. Rehabilitation Psychology, 47(1), 31-48. (Pubitemid 34132500)
39. McTavish, F. M., Gustafson, D. H., Owens, B. H., Wise, M., Taylor, J. O., Apantaku, F. M., et al (1994). CHESS: An interactive computer system for women with breast cancer piloted with an under-served population. Proceedings of the Annual Symposium on Computer Application in Medical Care, 599-603.
40. National Comprehensive Cancer Network. (2010). NCCN clinical practice guidelines in oncology. Prostate cancer-v.3.2010. Retrieved June 13, 2011, from http://www.nccn.org/professionals/physician-gls/PDF/prostate.pdf
41. National Telecommunications and Information Administration, & U.S. Department of Commerce. (2010). Digital nation. 21st century America's progress toward universal broadband Internet access. An NTIA research preview. Retrieved June 13, 2011, from http://www.ntia.doc.gov/reports/2010/NTIA-internet-use- report-Feb2010.pdf
42. O'Brien, M. A., Whelan, T. J., Villasis-Keever, M., Gafni, A., Charles, C., Roberts, R., et al. (2009). Are cancer-related decision aids effective? A systematic review and meta-analysis. Journal of Clinical Oncology, 27, 974-985.
43. O'Connor, A., Elwyn, G., Barratt, A., Barry, M., Coulter, A., Holmes-Rovner, M., et al. (2005). International Patient Decision Aid Standards (IPDAS) Collaboration 2005: Criteria for judging the quality of patient decision aids. Retrieved June 13, 2011, from http://ipdas.ohri.ca/IPDAS-checklist.pdf
44. O'Neill, S. C., White, D. B., Sanderson, S. C., Lipkus, I. M., Bepler, G., Bastian, L. A., et al. (2008). The feasibility of online genetic testing for lung cancer susceptibility: Uptake of a Web-based protocol and decision outcomes. Genetics in Medicine, 10, 121-130. (Pubitemid 351271724)
45. PEW Internet and American Life Project. (2009a). Generations online in 2009 charts. Activity pyramid: Online pursuits by generation. Retrieved June 13, 2011, from http://www.pewinternet.org/~/media//Files/Presentations/2009/ PewInternetProject-generations-2009pdf.pdf
46. PEW Internet & American Life Project. (2009b). Trend data. Online activities, total. Retrieved June 13, 2011, from http://www.pewinternet.org/ Trend-Data/Online-Activites-Total.aspx
47. PEW Internet & American Life Project. (2010a). Report: Internet, broadband, and cell phone statistics. Retrieved June 13, 2011, from http://pewinternet.org/Reports/2010/Internetbroadband- and-cell-phone- statistics.aspx
48. PEW Internet & American Life Project. (2010b). Trend data: Usage over time. Retrieved June 13, 2011, from http://www.pewinternet.org/Trend-Data/ Usage-Over-Time.aspx
49. PEW Internet & American Life Project. (2010c). Who's online-Internet demographics. Retrieved June 13, 2011, from http://www.pewinternet.org/Static- Pages/Trend-Data/Whos-Online.aspx
50. Pingree, S., Hawkins, R. P., Gustafson, D. H., Boberg, E. W., Bricker, E., Wise, M., et al. (1993). Will HIV-positive people use an interactive computer system for information and support? A study of CHESS in two communities. Proceedings of the Annual Symposium on Computer Application in Medical Care, 22-26.
51. Ross, L. E., Berkowitz, Z., & Ekwueme, D. U. (2008). Use of the prostate-specific antigen test among U.S. men: Findings from the 2005 National Health Interview Survey. Cancer Epidemiology, Biomarkers & Prevention, 17, 636-644. (Pubitemid 351469214)
52. Ruffin, M. T., Fetters, M. D., & Jimbo, M. (2007). Preference-based electronic decision aid to promote colorectal cancer screening: Results of a randomized controlled trial. Preventive Medicine, 45, 267-273. (Pubitemid 47562535)
53. Schroder, F. H., Hugosson, J., Roobol, M. J., Tammela, T. L., Ciatto, S., Nelen, V., et al. (2009). Screening and prostate-cancer mortality in a randomized European study. The New England Journal of Medicine, 360, 1320-1328.
54. Severson, H. H., Gordon, J. S., Danaher, B. G., & Akers, L. (2008). ChewFree.com: Evaluation of a Web-based cessation program for smokeless tobacco users. Nicotine & Tobacco Research, 10, 381-391. (Pubitemid 351201322)
55. Strecher, V. J., McClure, J. B., Alexander, G. L., Chakraborty, B., Nair, V. N., Konkel, J. M., et al. (2008). Web-based smoking-cessation programs: Results of a randomized trial. American Journal of Preventive Medicine, 34, 373-381. (Pubitemid 351491580)
56. Tate, D. F., Jackvony, E. H., & Wing, R. R. (2003). Effects of Internet behavioral counseling on weight loss in adults at risk for type 2 diabetes: A randomized trial. JAMA, 289, 1833-1836. (Pubitemid 37430254)
57. Tate, D. F., Wing, R. R., & Winett, R. A. (2001). Using Internet technology to deliver a behavioral weight loss program. JAMA, 285, 1172-1177. (Pubitemid 32198482)
58. Temesgen, Z., Knappe-Langworthy, J. E., St Marie, M. M., Smith, B. A., & Dierkhising, R. A. (2006). Comprehensive Health Enhancement Support System (CHESS) for people with HIV infection. AIDS and Behavior, 10(1), 35-40.
59. Thomson, M. D., & Hoffman-Goetz, L. (2007). Readability and cultural sensitivity of Web-based patient decision aids for cancer screening and treatment: A systematic review. Medical Informatics and the Internet in Medicine, 32, 263-286.
60. U.S. Preventive Services Task Force, 2008 Screening for prostate cancer: Recommendation statement. Retrieved June 13, 2011, from http://www.ahrq.gov/ clinic/uspstf08/prostate/prostaters.htm
61. Volk, R. J., Hawley, S. T., Kneuper, S., Holden, E. W., Stroud, L. A., Cooper, C. P., et al. (2007). Trials of decision aids for prostate cancer screening: A systematic review. American Journal of Preventive Medicine, 33, 428-434.
62. Volk, R. J., Jibaja-Weiss, M. L., Hawley, S. T., Kneuper, S., Spann, S. J., Miles, B. J., et al. (2008). Entertainment education for prostate cancer screening: A randomized trial among primary care patients with low health literacy. Patient Education and Counseling, 73, 482-489.
63. Wakefield, C. E., Watts, K. J., Meiser, B., Sansom-Daly, U., Barratt, A., Mann, G. J., et al. (2010). Development and pilot testing of an online screening decision aid for men with a family history of prostate cancer. Patient Education and Counseling. Advanced online publication.
64. Wang, J., & Etter, J. F. (2004). Administering an effective health intervention for smoking cessation online: The international users of Stop-Tabac. Preventive Medicine, 39, 962-968. (Pubitemid 39314465)
65. Wangberg, S. C. (2008). An Internet-based diabetes self-care intervention tailored to self-efficacy. Health Education Research, 23(1), 170-179.