Impact of patient suffering on caregiver well-being: The case of amyotrophic lateral sclerosis patients and their caregivers

Psychology, Health and Medicine

Volumn 17, Issue 4, 2012, Pages 457-466

  Boerner, Kathrin ^a   Mock, Steven E ^b  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF WATERLOO   (Canada)

Author keywords

amyotrophic lateral sclerosis; caregiving; suffering; support

Indexed keywords

ADAPTIVE BEHAVIOR; AFFECT; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CANADA; CAREGIVER; CROSS-SECTIONAL STUDY; FEMALE; HEALTH SURVEY; HOSPITALIZATION; HUMAN; HUMAN RELATION; MALE; MENTAL STRESS; MIDDLE AGED; NURSING; PAIN; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; REGRESSION ANALYSIS;

ADAPTATION, PSYCHOLOGICAL; AFFECT; AMYOTROPHIC LATERAL SCLEROSIS; CANADA; CAREGIVERS; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SURVEYS; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; PAIN; REGRESSION ANALYSIS; SEVERITY OF ILLNESS INDEX; STRESS, PSYCHOLOGICAL;

EID: 84863953049     PISSN: 13548506     EISSN: None     Source Type: Journal    
DOI: 10.1080/13548506.2011.613942     Document Type: Article

References (22)

1. Chiò, A., Vignola, A., Mastro, E., Giudici, A. D., Iazzolino, B., Calvo, A., and, Montuschi, A. 2010. Neurobehavioral symptoms in ALS are negatively related to caregivers burden and quality of life. European Journal of Neurology, 17: 1298-1303.
2. Davis, C. G., Nolen-Hoeksema, S., and, Larson, J. 1998. Making sense of loss and benefiting from the experience: Two construals of meaning. Journal of Personality and Social Psychology, 75: 561-574.
3. Folkman, S., and, Moskowitz, J. T. 2000. Positive affect and the other side of coping. American Psychologist, 55: 647-654.
4. Ganzini, L., Johnston, W. S., and, Hoffman, W. F. 1999. Correlates of suffering in amyotrophic lateral sclerosis. Neurology, 52: 1434-1440.
5. Gauthier, A., Vignola, A., Calvo, A., Cavallo, E., Moglia, C., Sellitti, L., and, Chio, A. 2007. A longitudinal study on quality of life and depression in ALS patient-caregiver couples. Neurology, 68: 923-926.
6. Jaccard, J. 2001. Interaction effects in logistic regression, Thousand Oaks, CA: Sage.
7. Krivickas, L. S., Shockley, L., and, Mitsumoto, H. 1997. Home care of patients with amyotrophic lateral sclerosis (ALS). Journal of the Neurological Science, 152 (Suppl. 1): S82-S89.
8. Kurtz, M. E., Kurtz, J. C., Given, C. W., and, Given, B. 1995. Relationship of caregiver reactions and depression to cancer patients symptoms, functional states and depression: A longitudinal view. Social Science and Medicine, 40: 837-846.
9. Mock, S. E., and, Boerner, K. 2010. Sense making and benefit finding among patients with amyotrophic lateral sclerosis and their primary caregivers. Journal of Health Psychology, 15 (1): 115-121.
10. Olsson, A. G., Markhede, I., Strang, S., and, Persson, L. I. 2010. Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time. Acta Neurologica Scandinavia, 121: 244-250.
11. Pagnini, F., Rossi, G., Lunetta, C., Banfi, P., Castelnuovo, G., Corbo, M., and, Molinari, E. 2010. Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis. Psychology, Health, & Medicine, 15: 685-693.
12. Pagnini, F., Lunetta, C., Rossi, G., Banfi, P., Gorni, K., Cellotto, N., and, Corbo, M. 2011. Existential well-being and spirituality of individuals with amyotrophic lateral sclerosis is related to psychological well-being of their caregivers. Amyotrophic Lateral Sclerosis, 12: 105-108.
13. Pakenham, K. I. 2007. The nature of benefit finding in multiple sclerosis (MS). Psychology, Health, and Medicine, 12: 190-196.
14. Pierce, G. R., Sarason, I. G., and, Sarason, B. R. 1991. General and relationship-based perceptions of social support: Are two constructs better than one?. Journal of Personality and Social Psychology, 61: 1028-1039.
15. Rabkin, J. G., Wagner, G. J., and, Del Bene, M. 2000. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosomatic Medicine, 62: 271-279.
16. Rabkin, J. G., Albert, S. M., Rowland, L. P., and, Hiroshi, M. 2009. How common is depression among ALS caregivers? A longitudinal study. Amyotrophic Lateral Sclerosis, 10: 448-455.
17. Radloff, L. S. 1977. The CES-D: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1: 385-401.
18. Rowland, L. P., and, Schneider, N. A. 2001. Amyotrophic lateral sclerosis. New England Journal of Medicine, 344: 1688-1700.
19. Schulz, R., Hebert, R. S., Dew, M. A., Brown, S. L., Scheier, M. F., Beach, S. R., and, Nichols, L. 2007. Patient suffering and caregiver compassion: New opportunities for research, practice, and policy. Gerontologist, 47 (1): 4-13.
20. The ALS CNTF Treatment Study (ACTS) Phase I-II Study Group. 1996. The amyotrophic lateral sclerosis functional rating scale. Assessment of activities of daily living in patients with amyotrophic lateral sclerosis. Archives of Neurology, 53: 141-147.
21. Watson, D., Clark, L. A., and, Tellegen, A. 1988. Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54: 1063-1070.
22. Young, J. M., and, McNicoll, P. 1998. Against all odds: Positive life experiences of people with advanced amyotrophic lateral sclerosis. Health and Social Work, 23: 35-43.