Predicting the effects of cerebral palsy severity on self-care, mobility, and social function

American Journal of Occupational Therapy

Volumn 66, Issue 4, 2012, Pages 422-429

  Phipps, Shawn ^a   Roberts, Pamela ^b  

^a RANCHO LOS AMIGOS NATIONAL REHABILITATION CENTER   (United States)

^b CEDARS SINAI MEDICAL CENTER   (United States)

Author keywords

Activities of daily living; Cerebral palsy; Mobility limitation; Social participation

Indexed keywords

ADOLESCENT; ARTICLE; CEREBRAL PALSY; CHILD; COHORT ANALYSIS; DAILY LIFE ACTIVITY; DISABILITY; FEMALE; HUMAN; MALE; MOTOR PERFORMANCE; RETROSPECTIVE STUDY; SELF CARE; SOCIAL PARTICIPATION; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CEREBRAL PALSY; CHILD; COHORT STUDIES; DISABILITY EVALUATION; FEMALE; HUMANS; MALE; MOTOR SKILLS; RETROSPECTIVE STUDIES; SELF CARE; SOCIAL PARTICIPATION; YOUNG ADULT;

EID: 84863915206     PISSN: 02729490     EISSN: None     Source Type: Journal    
DOI: 10.5014/ajot.2012.003921     Document Type: Article

References (32)

1. Ahl, L. E., Johansson, E., Granat, T., & Carlberg, E. B. (2005). Functional therapy for children with cerebral palsy: An ecological approach. Developmental Medicine and Child Neurology, 47, 613-619. http://dx.doi.org/10. 1111/j.1469-8749.2005.tb01213.x
2. Ashwal, S., Russman, B. S., Blasco, P. A., Miller, G., Sandler, A., Shevell, M., et al; Quality Standards Subcommittee of the American Academy of Neurology; Practice Committee of the Child Neurology Society. (2004). Practice parameter: Diagnostic assessment of the child with cerebral palsy: Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology, 62, 851-863. http://dx.doi.org/10.1212/01.WNL.0000117981. 35364.1B
3. Bodkin, A. W., Robinson, C., & Perales, F. P. (2003). Reliability and validity of the Gross Motor Function Classification System for cerebral palsy. Pediatric Physical Therapy, 15, 247-252. http://dx.doi.org/10.1097/01.PEP. 0000096384.19136.02
4. Dumas, H. M., Haley, S. M., & Ludlow, L. H. (2008). Achieving a minimally important difference in physical function during pediatric inpatient rehabilitation. International Journal of Rehabilitation Research, 31, 257-260. http://dx.doi.org/10.1097/MRR.0b013e3282fb7d03
5. Eliasson, A. C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Ohrvall, A. M., et al. (2006). The Manual Ability Classification System (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine and Child Neurology, 48, 549-554. http://dx.doi.org/10.1017/ S0012162206001162
6. Feldman, A. B., Haley, S. M., & Coryell, J. (1990). Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Physical Therapy, 70, 602-610.
7. Haley, S. M., Coster, W. J., & Faas, R. M. (1991). A content validity study of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy, 3, 177-178.
8. Haley, S. M., Coster, W. J., Ludlow, L. H., Haltiwanger, J. T., & Andrellos, P. J. (1992). Pediatric Evaluation of Disability Inventory (PEDI): Development, standardization, and administration manual. Boston: Boston University.
9. Harvey, A., Robin, J., Morris, M. E., Graham, H. K., & Baker, R. (2008). A systematic review of measures of activity limitation for children with cerebral palsy. Developmental Medicine and Child Neurology, 50, 190-198. http://dx.doi. org/10.1111/j.1469-8749.2008.02027
10. Health Insurance Portability and Accountability Act of 1996, Pub. L. 104-191, 101 Stat. 1936.
11. Hirtz, D., Thurman, D. J., Gwinn-Hardy, K., Mohamed, M., Chaudhuri, A. R., & Zalutsky, R. (2007). How common are the "common" neurologic disorders? Neurology, 68, 326-337. http://dx.doi.org/10.1212/01.wnl.0000252807. 38124.a3
12. Iyer, L. V., Haley, S. M., Watkins, M. P., & Dumas, H. M. (2003). Establishing minimal clinically important differences for scores on the Pediatric Evaluation of Disability Inventory for inpatient rehabilitation. Physical Therapy, 83, 888-898.
13. Johnson, A. (2002). Prevalence and characteristics of children with cerebral palsy in Europe. Developmental Medicine and Child Neurology, 4, 633-640.
14. Ketelaar, M., Vermeer, A., Hart, H., van Petegem-van Beek, E., & Helders, P. J. M. (2001). Effects of a functional therapy program on motor abilities of children with cerebral palsy. Physical Therapy, 81, 1534-1545.
15. Kirby, R. S., Wingate, M. S., Van Naarden Braun, K., Doernberg, N. S., Arneson, C. L., Benedict, R. E., et al. (2011). Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: A report from the Autism and Developmental Disabilities Monitoring Network. Research in Developmental Disabilities, 32, 462-469. http://dx.doi.org/10.1016/ j.ridd.2010.12.042
16. Morris, C., Kurinczuk, J. J., Fitzpatrick, R., & Rosenbaum, P. L. (2006). Do the abilities of children with cerebral palsy explain their activities and participation? Developmental Medicine and Child Neurology, 48, 954-961. http://dx.doi. org/10.1111/j.1469-8749.2006.tb01265.x
17. Nichols, D. S., & Case-Smith, J. (1996). Reliability and validity of the Pediatric Evaluation of Disability Inventory. Pediatric Physical Therapy, 8, 15-24. http://dx.doi. org/10.1097/00001577-199600810-00004
18. Novak, I., Cusick, A., & Lowe, K. (2007). A pilot study on the impact of occupational therapy home programming for young children with cerebral palsy. American Journal of Occupational Therapy, 61, 463-468. http://dx.doi.org/ 10.5014/ajot.61.4.463
19. Oeffinger, D., Gorton, G., Bagley, A., Nicholson, D., Barnes, D., Calmes, J., et al. (2007). Outcome assessments in children with cerebral palsy: Part I. Descriptive characteristics of GMFCS Levels I to III. Developmental Medicine and Child Neurology, 49, 172-180. http://dx.doi.org/ 10.1111/j.1469-8749.2007. 00172.x
20. Orlin, M. N., Palisano, R. J., Chiarello, L. A., Kang, L. J., Polansky, M., Almasri, N., et al. (2010). Participation in home, extracurricular, and community activities among children and young people with cerebral palsy. Developmental Medicine and Child Neurology, 52, 160-166. http:// dx.doi.org/10.1111/j.1469-8749.2009.03363.x
21. Ostensjø, S., Carlberg, E. B., & Vøllestad, N. K. (2003). Everyday functioning in young children with cerebral palsy: Functional skills, caregiver assistance, and modifications of the environment. Developmental Medicine and Child Neurology, 45, 603-612. http://dx.doi.org/10. 1111/j.1469- 8749.2003.tb00964.x
22. Palisano, R. J., Hanna, S. E., Rosenbaum, P. L., Russell, D. J., Walter, S. D., Wood, E. P., et al. (2000). Validation of a model of gross motor function for children with cerebral palsy. Physical Therapy, 80, 974-985.
23. Palisano, R., Rosenbaum, P., Bartlett, D., & Livingston, M. (2007). Gross Motor Function Classification System- Expanded and revised. Hamilton, Ontario: CanChild Centre for Childhood Disability Research, McMaster University.
24. Pharoah, P. O. (2007). Prevalence and pathogenesis of congenital anomalies in cerebral palsy. Archives of Disease in Childhood, 92, F489-F493.
25. Pirila, S., van der Meere, J., Seppanen, R.-L., Korpela, R., & Nieminen, P. (2006). A pilot study on children with limitations in self-care, mobility, and social functions: Effects on family strengths. Families in Society, 87, 269-277.
26. Schoenmakers,M., Gulmans, V., Gooskens, R., & Helders, P. J. (2004). Spina bifida at the sacral level: More than minor gait disturbances. Clinical Rehabilitation, 18, 178-185. http://dx.doi.org/10.1191/0269215504cr718oa
27. Strauss, D., Brooks, J., Rosenbloom, L., & Shavelle, R. (2008). Life expectancy in cerebral palsy: An update. Developmental Medicine and Child Neurology, 50, 487-493. http://dx. doi.org/10.1111/j.1469-8749.2008.03000.x
28. Thorngren-Jerneck, K., & Herbst, A. (2006). Perinatal factors associated with cerebral palsy in children born in Sweden. Obstetrics and Gynecology, 108, 1499-1505. http://dx.doi. org/10.1097/01.AOG.0000247174.27979. 6b
29. Voorman, J. M., Dallmeijer, A. J., Schuengel, C., Knol, D. L., Lankhorst, G. J., & Becher, J. G. (2006). Activities and participation of 9- to 13-year-old children with cerebral palsy. Clinical Rehabilitation, 20, 937-948. http://dx.doi. org/10.1177/0269215506069673
30. Wood, E., & Rosenbaum, P. (2000). The Gross Motor Function Classification System for cerebral palsy: A study of reliability and stability over time. Developmental Medicine and Child Neurology, 42, 292-296. http://dx.doi.org/10. 1017/S0012162200000529
31. Wright, F. V., Rosenbaum, P. L., Goldsmith, C. H., Law, M., & Fehlings, D. L. (2008). How do changes in body functions and structures, activity, and participation relate in children with cerebral palsy? Developmental Medicine and Child Neurology, 50, 283-289. http://dx.doi.org/10. 1111/j.1469-8749.2008.02037.x
32. Yabunaka, Y., Kondo, I., Sonoda, S., Saitoh, E., Tsuruta, Y., Konaka, M., et al. (2011). Evaluating the effect of intensive intervention in children with cerebral palsy using a hypothetical matched control group: A preliminary study. American Journal of Physical Medicine and Rehabilitation, 90, 128-136. http://dx.doi.org/10.1097/PHM. 0b013e3181fc7ddf