Newborn screening programmes in Europe; arguments and efforts regarding harmonization. Part 2 - From screening laboratory results to treatment, follow-up and quality assurance

Journal of Inherited Metabolic Disease

Volumn 35, Issue 4, 2012, Pages 613-625

  Burgard, Peter ^a   Rupp, Kathrin ^a   Lindner, Martin ^a   Haege, Gisela ^a   Rigter, Tessel ^b   Weinreich, Stephanie S ^b   Loeber, J Gerard ^c   Taruscio, Domenica ^d   Vittozzi, Luciano ^d   Cornel, Martina C ^b   Hoffmann, Georg F ^a  

^a UNIVERSITY HOSPITAL HEIDELBERG   (Germany)

^b VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^c NATIONAL INSTITUTE FOR PUBLIC HEALTH AND THE ENVIRONMENT   (Netherlands)

^d ISTITUTO SUPERIORE DI SANITÀ   (Italy)

Author keywords

[No Author keywords available]

Indexed keywords

CONFERENCE PAPER; EMPOWERMENT; EUROPE; FOLLOW UP; HEALTH CARE MANAGEMENT; HEALTH ECONOMICS; HEALTH PROGRAM; HUMAN; INFORMED CONSENT; LABORATORY TEST; MEDICAL EDUCATION; METABOLIC DISORDER; NEWBORN SCREENING; OUTCOME ASSESSMENT; POLITICS; PRACTICE GUIDELINE; PREVALENCE; QUALITY CONTROL;

COMMUNICATION; DATA COLLECTION; EUROPE; EUROPEAN UNION; FOLLOW-UP STUDIES; HUMANS; INFANT, NEWBORN; INFANT, NEWBORN, DISEASES; NEONATAL SCREENING; PARENTS; PROSPECTIVE STUDIES; PUBLIC HEALTH; QUALITY CONTROL; QUESTIONNAIRES; THERAPEUTICS; TIME;

EID: 84863865258     PISSN: 01418955     EISSN: 15732665     Source Type: Journal    
DOI: 10.1007/s10545-012-9484-z     Document Type: Conference Paper

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