메뉴 건너뛰기




Volumn 35, Issue 4, 2012, Pages 328-339

Parental caregiving of children prior to hematopoietic stem cell transplant

(33)  Rodday, Angie Mae a,b   Pedowitz, Elizabeth J a,c   Mayer, Deborah K d   Ratichek, Sara J a   Given, Charles W e   Parsons, Susan K a,f   Weidner, Ruth Ann a   Bernstein, Tanya a   Hernandez, Doris a   Pennarola, Brian W a   Gustafson, David H g   McTavish, Fiona g   Stewart, Susan h   Guinan, Eva i   Domaney, Nicholas i   Russell, Janice D i   Brennan, Lisa i   Kupst, Mary Jo j   Bingen, Kristin j   Lucey, Rose j   more..


Author keywords

Caregiver burden; Caregiver esteem; Hematopoietic stem cell transplant (HSCT); Pediatric transplant

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CHILD; CHILD PARENT RELATION; COST OF ILLNESS; ECONOMICS; FEMALE; FINANCIAL MANAGEMENT; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; MALE; PARENT; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; SATISFACTION; SELF CONCEPT;

EID: 84863841717     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.21485     Document Type: Article
Times cited : (5)

References (36)
  • 1
    • 34547652451 scopus 로고    scopus 로고
    • Brief report: Psychosocial functioning of fathers as primary caregivers of pediatric oncology patients
    • DOI: 10.1093/jpepsy/jsm011
    • Bonner, M. J., Hardy, K. K., Willard, V. W., & Hutchinson, K. C. (2007). Brief report: Psychosocial functioning of fathers as primary caregivers of pediatric oncology patients. Journal of Pediatric Psychology, 32, 851-856. DOI: 10.1093/jpepsy/jsm011.
    • (2007) Journal of Pediatric Psychology , vol.32 , pp. 851-856
    • Bonner, M.J.1    Hardy, K.K.2    Willard, V.W.3    Hutchinson, K.C.4
  • 2
    • 4043166946 scopus 로고    scopus 로고
    • Burden of caregiving: Evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis
    • DOI: 10.1002/art.20528
    • Brouwer, W. B., van Exel, N. J., van de Berg, B., Dinant, H. J., Koopmanschap, M. A., & van den Bos, G. A. (2004). Burden of caregiving: Evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. Arthritis and Rheumatism, 51, 570-577. DOI: 10.1002/art.20528.
    • (2004) Arthritis and Rheumatism , vol.51 , pp. 570-577
    • Brouwer, W.B.1    van Exel, N.J.2    van de Berg, B.3    Dinant, H.J.4    Koopmanschap, M.A.5    van den Bos, G.A.6
  • 3
    • 1642443138 scopus 로고    scopus 로고
    • Development and validation of the Self-Esteem and Relationship (SEAR) questionnaire in erectile dysfunction
    • DOI: 10.1038/sj.ijir.3901095
    • Cappelleri, J. C., Althof, S. E., Siegel, R. L., Shpilsky, A., Bell, S. S., & Duttagupta, S. (2004). Development and validation of the Self-Esteem and Relationship (SEAR) questionnaire in erectile dysfunction. International Journal of Impotence Research, 16, 30-38. DOI: 10.1038/sj.ijir.3901095.
    • (2004) International Journal of Impotence Research , vol.16 , pp. 30-38
    • Cappelleri, J.C.1    Althof, S.E.2    Siegel, R.L.3    Shpilsky, A.4    Bell, S.S.5    Duttagupta, S.6
  • 5
    • 33845945922 scopus 로고
    • Coefficient alpha and the internal structure of test
    • DOI: 10.1007/BF02310555
    • Cronbach, L. (1951). Coefficient alpha and the internal structure of test. Psychometrika, 16, 297-334. DOI: 10.1007/BF02310555.
    • (1951) Psychometrika , vol.16 , pp. 297-334
    • Cronbach, L.1
  • 6
    • 72049106937 scopus 로고    scopus 로고
    • Needs of older caregivers of patients with advanced cancer
    • DOI: 10.1111/j.1532-5415.2009.02516.x
    • Daly, B. J., Douglas, S., Lipson, A., & Foley, H. (2009). Needs of older caregivers of patients with advanced cancer. Journal of the American Geriatrics Society, 57(SUPPL. 2), S293-S295. DOI: 10.1111/j.1532-5415.2009.02516.x.
    • (2009) Journal of the American Geriatrics Society , vol.57 , Issue.SUPPL. 2
    • Daly, B.J.1    Douglas, S.2    Lipson, A.3    Foley, H.4
  • 7
    • 1442324358 scopus 로고    scopus 로고
    • Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators
    • DOI: 10.1016/j.amjcard.2003.11.022
    • DeMaso, D. R., Lauretti, A., Spieth, L., van der Feen, J. R., Jay, K. S., Gauvreau, K., Berul, C. I. (2004). Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. American Journal of Cardiology, 93, 582-587. DOI: 10.1016/j.amjcard.2003.11.022.
    • (2004) American Journal of Cardiology , vol.93 , pp. 582-587
    • DeMaso, D.R.1    Lauretti, A.2    Spieth, L.3    van der Feen, J.R.4    Jay, K.S.5    Gauvreau, K.6    Berul, C.I.7
  • 8
    • 33846920407 scopus 로고    scopus 로고
    • The linear medical model of disability: Mothers of disabled babies resist with counter-narratives
    • DOI: 10.1111/j.1467-9566.2007.00518.x
    • Fisher, P., & Goodley, D. (2007). The linear medical model of disability: Mothers of disabled babies resist with counter-narratives. Sociology of Health and Illness, 29, 66-81. DOI: 10.1111/j.1467-9566.2007.00518.x.
    • (2007) Sociology of Health and Illness , vol.29 , pp. 66-81
    • Fisher, P.1    Goodley, D.2
  • 9
    • 69249221462 scopus 로고    scopus 로고
    • Measuring self-management of patients' and employees' health: Further validation of the Patient Activation Measure (PAM) based on its relation to employee characteristics
    • DOI: 10.1016/j.pec.2009.02.018
    • Fowles, J. B., Terry, P., Xi, M., Hibbard, J., Bloom, C. T., & Harvey, L. (2009). Measuring self-management of patients' and employees' health: Further validation of the Patient Activation Measure (PAM) based on its relation to employee characteristics. Patient Education and Counseling, 77, 116-122. DOI: 10.1016/j.pec.2009.02.018.
    • (2009) Patient Education and Counseling , vol.77 , pp. 116-122
    • Fowles, J.B.1    Terry, P.2    Xi, M.3    Hibbard, J.4    Bloom, C.T.5    Harvey, L.6
  • 11
    • 0034927615 scopus 로고    scopus 로고
    • Family support in advanced cancer
    • DOI: 10.3322/canjclin.51.4.213
    • Given, B. A., Given, C. W., & Kozachik, S. (2001). Family support in advanced cancer. CA Cancer Journal for Clinicians, 51, 213-231. DOI: 10.3322/canjclin.51.4.213.
    • (2001) CA Cancer Journal for Clinicians , vol.51 , pp. 213-231
    • Given, B.A.1    Given, C.W.2    Kozachik, S.3
  • 12
    • 0026902898 scopus 로고
    • The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments
    • DOI: 10.1002/nur.4770150406
    • Given, C. W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15, 271-283. DOI: 10.1002/nur.4770150406.
    • (1992) Research in Nursing & Health , vol.15 , pp. 271-283
    • Given, C.W.1    Given, B.2    Stommel, M.3    Collins, C.4    King, S.5    Franklin, S.6
  • 13
    • 0027209592 scopus 로고
    • Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving
    • DOI: 10.1093/geront/33.4.542
    • Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. Gerontologist, 33, 542-550. DOI: 10.1093/geront/33.4.542.
    • (1993) Gerontologist , vol.33 , pp. 542-550
    • Greenberg, J.S.1    Seltzer, M.M.2    Greenley, J.R.3
  • 14
    • 33745793222 scopus 로고    scopus 로고
    • The caregiver reaction assessment: Psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phase
    • DOI: 10.1002/pon.987
    • Grov, E. K., Fossa, S. D., Tonnessen, A., & Dahl, A. A. (2006). The caregiver reaction assessment: Psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phase. Psycho-Oncology, 15, 517-527. DOI: 10.1002/pon.987.
    • (2006) Psycho-Oncology , vol.15 , pp. 517-527
    • Grov, E.K.1    Fossa, S.D.2    Tonnessen, A.3    Dahl, A.A.4
  • 15
    • 29144521827 scopus 로고    scopus 로고
    • Development and testing of a short form of the Patient Activation Measure
    • DOI: 10.1111/j.1475-6773.2005.00438.x
    • Hibbard, J. H., Mahoney, E. R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the Patient Activation Measure. Health Services Research, 40, 1918-1930. DOI: 10.1111/j.1475-6773.2005.00438.x.
    • (2005) Health Services Research , vol.40 , pp. 1918-1930
    • Hibbard, J.H.1    Mahoney, E.R.2    Stockard, J.3    Tusler, M.4
  • 16
    • 67949106551 scopus 로고    scopus 로고
    • Adjustment of caregivers of pediatric patients with brain tumors: A cross-sectional analysis
    • DOI: 10.1002/pon.1421
    • Hutchinson, K. C., Willard, V. W., Hardy, K. K., & Bonner, M. J. (2009). Adjustment of caregivers of pediatric patients with brain tumors: A cross-sectional analysis. Psycho-Oncology, 18, 515-523. DOI: 10.1002/pon.1421.
    • (2009) Psycho-Oncology , vol.18 , pp. 515-523
    • Hutchinson, K.C.1    Willard, V.W.2    Hardy, K.K.3    Bonner, M.J.4
  • 17
    • 77951844097 scopus 로고    scopus 로고
    • Family support in pediatric palliative care: How are families impacted by their children's illnesses
    • DOI: 10.1089/jpm.2009.0295
    • Knapp, C. A., Madden, V. L., Curtis, C. M., Sloyer, P., & Shenkman, E. A. (2010). Family support in pediatric palliative care: How are families impacted by their children's illnesses? Journal of Palliative Medicine, 13, 421-426. DOI: 10.1089/jpm.2009.0295.
    • (2010) Journal of Palliative Medicine , vol.13 , pp. 421-426
    • Knapp, C.A.1    Madden, V.L.2    Curtis, C.M.3    Sloyer, P.4    Shenkman, E.A.5
  • 18
    • 0017360990 scopus 로고
    • The measurement of observer agreement for categorical data
    • DOI: 10.2307/2529310
    • Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159-174. DOI: 10.2307/2529310.
    • (1977) Biometrics , vol.33 , pp. 159-174
    • Landis, J.R.1    Koch, G.G.2
  • 19
    • 79958243723 scopus 로고    scopus 로고
    • Quality of life in a heterogeneous sample of caregivers of cancer patients: An in-depth interview study
    • DOI: 10.1111/j.1365-2354.2010.01227.x
    • Mancini, J., Baumstarck-Barrau, K., Simeoni, M. C., Grob, J. J., Michel, G., Tarpin, C., Auquier, P. (2011). Quality of life in a heterogeneous sample of caregivers of cancer patients: An in-depth interview study. European Journal of Cancer Care, 20, 483-492. DOI: 10.1111/j.1365-2354.2010.01227.x.
    • (2011) European Journal of Cancer Care , vol.20 , pp. 483-492
    • Mancini, J.1    Baumstarck-Barrau, K.2    Simeoni, M.C.3    Grob, J.J.4    Michel, G.5    Tarpin, C.6    Auquier, P.7
  • 20
    • 70349332362 scopus 로고    scopus 로고
    • A brief report of caregiver needs and resource utilization during pediatric hematopoietic stem cell transplantation
    • DOI: 10.1177/1043454209340409
    • Mayer, D. K., Tighiouart, H., Terrin, N., Stewart, S., Peterson, E., Jeruss, S., & Parsons, S. K. (2009). A brief report of caregiver needs and resource utilization during pediatric hematopoietic stem cell transplantation. Journal of Pediatric Oncology Nursing, 26, 223-229. DOI: 10.1177/1043454209340409.
    • (2009) Journal of Pediatric Oncology Nursing , vol.26 , pp. 223-229
    • Mayer, D.K.1    Tighiouart, H.2    Terrin, N.3    Stewart, S.4    Peterson, E.5    Jeruss, S.6    Parsons, S.K.7
  • 21
    • 0034538222 scopus 로고    scopus 로고
    • Patterns of caregiver experiences among partners of cancer patients
    • DOI: 10.1093/geront/40.6.738
    • Nijboer, C., Triemstra, M., Tempelaar, R., Mulder, M., Sanderman, R., & van den Bos, G. A. (2000). Patterns of caregiver experiences among partners of cancer patients. Gerontologist, 40, 738-746. DOI: 10.1093/geront/40.6.738.
    • (2000) Gerontologist , vol.40 , pp. 738-746
    • Nijboer, C.1    Triemstra, M.2    Tempelaar, R.3    Mulder, M.4    Sanderman, R.5    van den Bos, G.A.6
  • 22
    • 0033051689 scopus 로고    scopus 로고
    • Measuring both negative and positive reactions to giving care to cancer patients: Psychometric qualities of the caregiver reaction assessment (CRA)
    • DOI: 10.1016/S0277-9536(98)00426-2
    • Nijboer, C., Triemstra, M., Tempelaar, R., Sanderman, R., & van den Bos, G. A. (1999). Measuring both negative and positive reactions to giving care to cancer patients: Psychometric qualities of the caregiver reaction assessment (CRA). Social Science and Medicine, 48, 1259-1269. DOI: 10.1016/S0277-9536(98)00426-2.
    • (1999) Social Science and Medicine , vol.48 , pp. 1259-1269
    • Nijboer, C.1    Triemstra, M.2    Tempelaar, R.3    Sanderman, R.4    van den Bos, G.A.5
  • 23
    • 0037980149 scopus 로고    scopus 로고
    • Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation
    • DOI: 10.1097/01.MLR.0000062554.74615.4C
    • Norman, G. R., Sloan, J. A., & Wyrwich, K. W. (2003). Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation. Medical Care, 41, 582-592. DOI: 10.1097/01.MLR.0000062554.74615.4C.
    • (2003) Medical Care , vol.41 , pp. 582-592
    • Norman, G.R.1    Sloan, J.A.2    Wyrwich, K.W.3
  • 25
    • 0026198036 scopus 로고
    • Validation of the Duke Social Support and Stress Scale
    • Retrieved from:
    • Parkerson, G. R., Jr., Broadhead, W. E., & Tse, C. J. (1991). Validation of the Duke Social Support and Stress Scale. Family Medicine, 23, 357-360. Retrieved from:.
    • (1991) Family Medicine , vol.23 , pp. 357-360
    • Parkerson Jr., G.R.1    Broadhead, W.E.2    Tse, C.J.3
  • 27
    • 84855579380 scopus 로고    scopus 로고
    • Caring for the caregiver: EHealth interventions for parents of pediatric hematopoietic stem cell transplant recipients. [Abstract]
    • Retrieved from:
    • Parsons, S. K., Ratichek, S. J., Rodday, A. M., Davies, S., Bingen, K., Kupst, M. J., Gustafson, D. H. (2011). Caring for the caregiver: EHealth interventions for parents of pediatric hematopoietic stem cell transplant recipients. [Abstract] Pediatric Blood and Cancer, 56, 1159. Retrieved from:.
    • (2011) Pediatric Blood and Cancer , vol.56 , pp. 1159
    • Parsons, S.K.1    Ratichek, S.J.2    Rodday, A.M.3    Davies, S.4    Bingen, K.5    Kupst, M.J.6    Gustafson, D.H.7
  • 28
    • 33750939818 scopus 로고    scopus 로고
    • Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant
    • Retrieved from:
    • Parsons, S. K., Shih, M. C., DuHamel, K. N., Ostroff, J., Mayer, D. K., Austin, J., Manne, S. (2006). Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant. Journal of Pediatric Psychology, 31, 1100-1115. Retrieved from:.
    • (2006) Journal of Pediatric Psychology , vol.31 , pp. 1100-1115
    • Parsons, S.K.1    Shih, M.C.2    DuHamel, K.N.3    Ostroff, J.4    Mayer, D.K.5    Austin, J.6    Manne, S.7
  • 29
    • 20544478425 scopus 로고    scopus 로고
    • Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children
    • Retrieved from:
    • Parsons, S. K., Shih, M. C., Mayer, D. K., Barlow, S. E., Supran, S. E., Levy, S. L., Kaplan, S. H. (2005). Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children. Quality of Life Research, 14, 1613-1625. Retrieved from:.
    • (2005) Quality of Life Research , vol.14 , pp. 1613-1625
    • Parsons, S.K.1    Shih, M.C.2    Mayer, D.K.3    Barlow, S.E.4    Supran, S.E.5    Levy, S.L.6    Kaplan, S.H.7
  • 31
    • 3543119613 scopus 로고    scopus 로고
    • Patterns of distress in parents of children undergoing stem cell transplantation
    • DOI: 10.1002/pbc.20101
    • Phipps, S., Dunavant, M., Lensing, S., & Rai, S. N. (2004). Patterns of distress in parents of children undergoing stem cell transplantation. Pediatric Blood and Cancer, 43, 267-274. DOI: 10.1002/pbc.20101.
    • (2004) Pediatric Blood and Cancer , vol.43 , pp. 267-274
    • Phipps, S.1    Dunavant, M.2    Lensing, S.3    Rai, S.N.4
  • 32
    • 0141651776 scopus 로고    scopus 로고
    • Changes in maternal distress and child-rearing strategies across treatment for pediatric cancer
    • DOI: 10.1093/jpepsy/jsg035
    • Steele, R. G., Long, A., Reddy, K. A., Luhr, M., & Phipps, S. (2003). Changes in maternal distress and child-rearing strategies across treatment for pediatric cancer. Journal of Pediatric Psychology, 28, 447-452. DOI: 10.1093/jpepsy/jsg035.
    • (2003) Journal of Pediatric Psychology , vol.28 , pp. 447-452
    • Steele, R.G.1    Long, A.2    Reddy, K.A.3    Luhr, M.4    Phipps, S.5
  • 33
    • 0037295257 scopus 로고    scopus 로고
    • The Impact on Family Scale revisited: Further psychometric data
    • Retrieved from:
    • Stein, R. E., & Jessop, D. J. (2003). The Impact on Family Scale revisited: Further psychometric data. Journal of Developmental and Behavioral Pediatrics, 24, 9-16. Retrieved from:.
    • (2003) Journal of Developmental and Behavioral Pediatrics , vol.24 , pp. 9-16
    • Stein, R.E.1    Jessop, D.J.2
  • 34
    • 0019190719 scopus 로고
    • The development of an Impact-on-Family Scale: Preliminary findings
    • Retrieved from:
    • Stein, R. E., & Riessman, C. K. (1980). The development of an Impact-on-Family Scale: Preliminary findings. Medical Care, 18, 465-472. Retrieved from:.
    • (1980) Medical Care , vol.18 , pp. 465-472
    • Stein, R.E.1    Riessman, C.K.2
  • 35
    • 77955066029 scopus 로고    scopus 로고
    • Validation of the patient activation measure in a multiple sclerosis clinic sample and implications for care
    • DOI: 10.3109/09638280903567885
    • Stepleman, L., Rutter, M. C., Hibbard, J., Johns, L., Wright, D., & Hughes, M. (2010). Validation of the patient activation measure in a multiple sclerosis clinic sample and implications for care. Disability and Rehabilitation, 32, 1558-1567. DOI: 10.3109/09638280903567885.
    • (2010) Disability and Rehabilitation , vol.32 , pp. 1558-1567
    • Stepleman, L.1    Rutter, M.C.2    Hibbard, J.3    Johns, L.4    Wright, D.5    Hughes, M.6
  • 36
    • 0034329950 scopus 로고    scopus 로고
    • Measuring health-related quality of life in adolescents: Agreement between raters and between methods of administration
    • DOI: 10.1046/j.1365-2214.2000.00181.x
    • Verrips, G. H., Vogels, A. G., den Ouden, A. L., Paneth, N., & Verloove-Vanhorick, S. P. (2000). Measuring health-related quality of life in adolescents: Agreement between raters and between methods of administration. Child: Care, Health and Development, 26, 457-469. DOI: 10.1046/j.1365-2214.2000.00181.x.
    • (2000) Child: Care, Health and Development , vol.26 , pp. 457-469
    • Verrips, G.H.1    Vogels, A.G.2    den Ouden, A.L.3    Paneth, N.4    Verloove-Vanhorick, S.P.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.