End of life in intensive care: Is transfer home an alternative?

Intensive and Critical Care Nursing

Volumn 28, Issue 4, 2012, Pages 234-241

  Tellett, Lynda ^a   Pyle, Lynne ^a   Coombs, Maureen ^a  

^a SOUTHAMPTON GENERAL HOSPITAL   (United Kingdom)

Author keywords

End of life care; Patient and family choice; Preferred place of care; Taking home to die

Indexed keywords

ARTICLE; CONGENITAL HEART MALFORMATION; HOME CARE; HUMAN; HUMAN RELATION; INTENSIVE CARE UNIT; MALE; PATIENT CARE PLANNING; PATIENT PREFERENCE; PATIENT TRANSPORT; TERMINAL CARE; UNITED KINGDOM;

GREAT BRITAIN; HEART DEFECTS, CONGENITAL; HOME CARE SERVICES; HUMANS; INTENSIVE CARE UNITS; MALE; PATIENT CARE PLANNING; PATIENT PREFERENCE; PATIENT TRANSFER; PROFESSIONAL-FAMILY RELATIONS; TERMINAL CARE;

EID: 84863822830     PISSN: 09643397     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.iccn.2012.01.006     Document Type: Article

References (53)

1. Alonso-Gonzales R., Dimopoulos K., Ho S., Oliver J., Gatzoulis M. The right heart in adults with congenital heart disease. Revista Espanola Cardiologia 2010, 63(9):1070-1086.
2. Anderson W.G., Arnold R.M., Angus D.C., Bryce C.L. Post traumatic stress and complicated grief in family members of patients in the Intensive Care Unit. Journal of General Internal Medicine 2008, 23(11):1871-1876.
3. Auerbach S.M., Kiesler D.J., Wartella J., Rausch S., Ward K.R., Ivatury R. Optimism, satisfaction with needs met, interpersonal perspectives of the healthcare team, and emotional distress in patients' family members during critical care hospitalisation. American Journal of Critical Care 2005, 14:202-210.
4. Azoulay E., Pouchard F., Chevert S., Lemaire F., Mokhtari M., Le Gall J-R., et al. Meeting the needs of intensive care unit patient families: a mulitcenter study. American Journal of Respiratory Critical Care Medicine 2001, 163:135-139.
5. Badger J.M. Factors that enable or complicate end-of-life transitions in critical care. American Journal of Critical Care 2005, 14:513-522.
6. Barber K., Falvey S., Hamilton C., Collett D., Rudge C. Potential for organ donation in the United Kingdom: audit of intensive care records. British Medical Journal 2006, 332:1124-1127.
7. Claessens P., Moons P., Dierckx de Casterle B., Cannnaerts N., Budts W., Gewillig M. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. European Journal of Cardiovascular Nursing 2005, 4:3-10.
8. Coombs M., Long T. Managing a good death in critical care: can health policy help. Nursing in Critical Care 2008, 4(13):208-214.
9. Delmar C., Boje T., Dylmer D., Forup L., Jakobsen C., Moller M., et al. Independence/dependence - a contradictory relationship? Life with a chronic illness. Scandinavian Journal Caring Science 2006, 20:261-268.
10. Department of Health A new approach to chronic disease management for the 21st century 2001, Department of Health, London.
11. Department of Health Supporting people with long term conditions; liberating the talents of nurses who care for people with long term conditions 2005, Department of Health, London.
12. Department of Health End of life care strategy: promoting high quality care for all adults at the end of life 2008, http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_086277 [accessed 09.09.11].
13. Department of Health High quality care for all: NHS Next Stage Review final report 2008, http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_085825 [accessed 19/09/11].
14. Ellershaw J., Ward C. Care of the dying patient: the last hours or days of life. British Medical Journal 2003, 326:30-34.
15. Evans L.R., Boyd E.A., Malvar G., Apatira L., Luce J.M., Lo B., et al. Surrogate decision-makers' perspectives on discussing prognosis in the face of uncertainty. American Journal of Respiratory Critical Care Medicine 2009, 179:48-53.
16. Exley C., Allen D. A critical examination of home care: end of life care as an illustrative care. Social Science and Medicine 2007, 65:2317-2327.
17. Frick S., Uehlinger D.E., Zuercher Zenklusen R.M. Medical futility: predicting outcome of intensive care unit patients by nurses and doctors - a prospective comparative study. Critical Care Medicine 2003, 31:456-461.
18. Gatzoulis M., Swan L., Therrien J., Pantley G. Adult congenital heart disease. A practical guide 2005, Blackwell Publishing, Oxford.
19. Goeschel C. The future of nursing: leading change, advancing health stories to ignite the transformation. Nursing in Critical Care 2011, 16:217-219. 460-67.
20. Gologersky E., Patel N.D., Govnidaswamy R., Gologersky A., Barron M. Ebstein anomaly of the tricuspid valve, atrial septal defect, and severe right ventricular dysfunction in an adult: transesophageal echocardiographic images. Anesthesia and Analegsia 2010, 111(1):71-73.
21. Gott M., Seymour J., Bellamy G., Clark D., Ahmedzai S. Older people's views about home as a place of care at the end of life. Palliative Medicine 2004, 18(5):460-467.
22. Heyland D.K., Rocker G.M., O'Callaghan C.J., Dodek P.M., Cook D.J. Dying in the ICU. Perspectives of family members. Chest 2003, 124:392-397.
23. Higginson I.J., Sen-Gupta G.J. Place of care in advanced cancer: a qualitative systematic review of patient preferences. Journal of Palliative Medicine 2000, 3(3):287-300.
24. Horner T., Liberthson R., Jellinek S. Mayo Clinic Proceedings 2000, 75:31-36.
25. Huang Y., Huang S., Ko W. Going home to die from surgical intensive care units. Intensive Care Medicine 2009, 35:810-815.
26. Kallel H., Dammak H., Bahloul M. A good death: another break in the wall. Intensive Care Medicine 2006, 32:1915-1916.
27. Kompanje E.J.O. Should we discharge comatose patient from intensive care to die in their own bed at home after withdrawal of medical ventilation. Intensive Care Medicine 2009, 35:773-774.
28. Lautrette A., Darmon M., Megarbane B., Joly L.M., Chevret S., Adrie C. A communication strategy and brochure for relatives of patients dying in the ICU. The New England Journal of Medicine 2007, 356:469-480.
29. Long-Sutehall T., Willis H., Palmer D., Ugboma D., Addington-Hall J., Coombs M. Negotiated dying: a grounded theory of how nurse's shape withdrawal of treatment in hospital critical care units. International Journal of Nursing Studies 2011, 48(12):1466-1474.
30. Lopez L., Cohen M.S., Anderson R.H., Redington A.N., Nykanen D.G., Penny D.J., et al. Unnatural history of the right ventricle in patients with congenitally malformed hearts. Cardiology in the Young 2010, 20(Suppl. 3):107-112.
31. Lusardi P., Jodka P., Stambovsky M. The going home initiative: getting critical care patients home with hospice. Critical Care Nurse 2011, 31:46-57.
32. Lynn J., Adamson D.M. Living well at end of life. Adapting healthcare to serious chronic illness in old age 2011, Rand Health, Washington.
33. McAdam J.L., Arai S., Puntillo K.A. Unrecognised contributions of families in the intensive care unit. Intensive Care Medicine 2008, 34:1097-1101.
34. McAdam J.L., Dracup K.A., White D.B., Fontaine D.K., Puntillo K.A. Symptom experiences of family members of intensive care unit patients at high risk of dying. Critical Care Medicine 2010, 38(4):1078-1085.
35. McDonagh J.R., Elliott T.B., Engelberg R.A., Treece P.D., Shannon S.E., Rubenfeld G.D., et al. Family satisfaction with family conferences about EoLC in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Critical Care Medicine 2004, 32:1484-1488.
36. Mann S., Galle D., Williams P., Frost P. Caring for patients and families at the end of life: withdrawal of intensive care in the patient's home. New Zealand Medical Journal 2004, 117:U935.
37. National Health Service Lothian Levomepromazine in palliative care. v2. 2010, National Health Service Scotland, Lothian, www.palliativecareguidelines.scot.nhs.uk/documents/levomepromazine.pdf [accessed 10.01.12].
38. Pattison N. A critical discourse analysis of provision of end of life care in key UK critical care documents. Nursing in Critical Care 2006, 11(4):198-208.
39. Prendergast T.J., Puntillo K.A. Withdrawal of life support. Intensive Caring at end of life. Journal of American Medical Association 2002, 288:2732-2740.
40. Ryder-Lewis M. Going home from ICU to die: a celebration of life. Nursing in Critical Care 2005, 10:116-121.
41. Saunders B. Pain and impending death. Textbook of pain 1989, 624-663. UK Churchill, London. 2nd ed. P.D. Will, R. Melzak (Eds.).
42. Seymour J. Negotiating natural death in ICU. Social Science Medicine 2000, 5:1241-1252.
43. Shorter M., Stayt C. Critical care nurses' experiences if grief in an adult intensive care unit. Journal of Advanced Nursing 2009, 66:159-167.
44. Siegel M.D., Hayes E., Vanderwerker L.C., Loseth D.B., Prigerson H.G. Psychiatric illness in the next of kin of patients who die in the intensive care unit. Critical Care Medicine 2008, 36(6):1722-1728.
45. Sondergaard L., Cullen S. Ebstein anomaly. Diagnosis and management of adult congenital heart disease 2003, 283-287. Churchill Livingstone, London, [chapter 33]. M. Gatzoulis, G. Webb, P. Daubeney (Eds.).
46. Stapleton R.D., Engelberg R.A., Wenrich M.D., Goss C.H., Curtis J.R. Clinical statements and family satisfaction with family conferences in the intensive care unit. Critical Care Medicine 2006, 34:1679-1685.
47. Stayt C. Death empathy and self preservation: the emotional labour of caring for families of the critically ill in adult intensive care. Journal of Clinical Nursing 2009, 18:1267-1275.
48. Telford K., Kralik D., Koch T. Acceptance and denial: implications for people adapting to chronic illness; literature review. Journal of Advanced Nursing 2006, 4(55):457-464.
49. Tellett L., Davis C. Case 43. Fulfilling a patient's wish to go home from intensive care. European Journal of Palliative Care 2009, 16:69-70.
50. Thomas C. The place of death of cancer patients: can qualitative data add to known factors. Social Science and Medicine 2005, 60:2597-2607.
51. Thorpe G. Enabling more dying people to remain at home. British Medical Journal 1993, 307:915-918.
52. Tobler D., Greutmann M., Colman J., Greutmann-Yantiri M., Libracg I., Kovacs A. End-of-life care in hospitalised adults with complex congenital heart disease: care delayed, care denied. Palliative Medicine 2011, [published online June 22]. 10.1177/0269216311407694.
53. White D.B., Engelberg R.A., Wenrich M.D., Lo B., Curtis J.R. Prognostication during family-physician discussions about limiting life support in intensive care units. Critical Care Medicine 2007, 35:442-445.