Computer-based quality-of-life monitoring in head and neck cancer patients: A validation model using the EORTC-QLQ C30 and EORTC- H&N35 Portuguese PC-software version;Avaliação da qualidade de vida em doentes com patologia oncológica da cabeça e pescoço modelo de validação da versão electrónica Portuguesa do EORTC-QLQ C30 e EORTC- H&N35

Acta Medica Portuguesa

Volumn 24, Issue SUPPL.2, 2011, Pages 347-354

  Silveira, Augusta ^a   Gonçalves, Joaquim ^b   Sequeira, Teresa ^a   Ribeiro, Cláudia ^c   Lopes, Carlos ^d   Monteiro, Eurico ^a   Pimentel, Francisco Luís ^e  

^a UNIVERSIDADE FERNANDO PESSOA   (Portugal)

^b Instituto Politcnico do Cvado e do Ave   (Portugal)

^c CATHOLIC UNIVERSITY OF PORTUGAL   (Portugal)

^d UNIVERSITY OF PORTO   (Portugal)

^e UNIVERSITY OF AVEIRO   (Portugal)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CANCER PATIENT; CLINICAL DECISION MAKING; CLINICAL PRACTICE; CONFIDENTIALITY; CRONBACH ALPHA COEFFICIENT; DATA ANALYSIS; DATA ANALYSIS SOFTWARE; DATA BASE; EUROPE; HEAD AND NECK CANCER; HUMAN; INFORMATION PROCESSING; LATENT PERIOD; MAJOR CLINICAL STUDY; MONITORING; ORGANIZATION; QUALITY OF LIFE; QUESTIONNAIRE; VALIDATION PROCESS;

DIAGNOSIS, COMPUTER-ASSISTED; HEAD AND NECK NEOPLASMS; HUMANS; MODELS, THEORETICAL; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84863453546     PISSN: None     EISSN: 16460758     Source Type: Journal    
DOI: None     Document Type: Article

References (31)

1. JOCHAM HR, DASSEN T, WIDDERSHOVEN G, HALFENS R: Quality of life in palliative care cancer patients: a literature review. J Clin Nurs 2006; 15(9): 1188-1195.
2. PIMENTEL FL: Health-related quality of life: the forgotten outcome in healthcare changes in recent years in Portugal. Expert Review of Pharmacoeconomics & Outcomes Research 2008; 8(2):159-164.
3. WRIGHT EP, SELBY PJ, CRAWFORD M et al: Feasibility and compliance of automated measurement of quality of life in oncology practice. J Clin Oncol 2003; 21(2): 374-382.
4. TAYLOR RM, GIBSON F, FRANCK LS: A concept analysis of healthrelated quality of life in young people with chronic illness. J Clin Nurs 2008; 17(14): 1823-1833.
5. OLIVEIRA A, PIMENTEL FL: Cancer patients' quality of life, measured by themselves and proxys. Acta Med Port. 2008; 21(2):125-134.
6. MENESES RF, Pais-Ribeiro JL, Da Silva AM, GIOVAGNOLI AR: Neuropsychological predictors of quality of life in focal epilepsy. Seizure 2009; 18(5): 313-319.
7. Karvonen-Gutierrez CA, RONIS DL, FOWLER KE, et al: Quality of life scores predict survival among patients with head and neck cancer. Journal of Clinical Oncology 2008; 1,26 (16): 2754-2760.
8. LUOMA ML, Hakamies-Blomqvist L, SJÖSTRÖM J et al: Prognostic value of quality of life scores for time to progression (TTP) and overall survival time (OS) in advanced breast cancer. Eur J Cancer 2003; 39(10): 1370-1376.
9. Yeo W, Mo FK, Koh J, Chan AT, et al: Quality of life is predictive of survival in patients with unresectable hepatocellular carcinoma. Ann Oncol 2006; 17(7): 1083-1089.
10. KIMMAN ML, VOOGD AC, DIRKSEN CD et al: Improving the quality and efficiency of follow-up after curative treatment for breast cancer--rationale and study design of the MaCare trial. BioMed Central Cancer 2007; doi: 10.1186/1471-2407-7-1.
11. MEEUWSEN EJ, GERMAN P, MELIS RJ et al: Cost- effectiveness of plost-diagnosis treatment in dementia coordinated by multidisciplinary memory clinics in comparison to treatment coordinated by general practioners: an example of a pragmatic trial. J Nutr, Health Aging 2009; 13(3): 242-248.
12. WILLIAMS C, BRUNSKILL S, ALTMAN D et al: Cost-effectiveness of using prognostic information to select women with breast cancer for adjuvant systemic therapy. Health Technology Assessment 2006; 10(34): 1-204.
13. Buunk-Werkhoveny, Dijkstra A, van der Schans C: Oral Health-Quality of Life Predictors Depend on Population. Applied Research Quality Life 2009; doi: 10.1007/s11482-009-9081-y.
14. CALAMINUS G, BARR R: Economic evaluation and health-related quality of life. Pediatric Blood & Cancer 2008; 50(5 Suppl): 1112-1115.
15. COCKS K, KING MT, VELIKOVA G, FAYERS PM, BROWN JM: Quality, interpretation and presentation of European Organisation for Research and Treatment of Cancer quality of life questionnaire core 30 data in randomised controlled trials. Eur J Cancer 2008; 44(13): 1793-1798.
16. MONTAZERI A: Quality of life data as prognostic indicators of survival in cancer patients: an overview of the literature from 1982 to 2008. Health and Quality of Life Outcomes 2009; doi: 10.1186/1477-7525-7-102.
17. SOLOMON S, BATAVIA, A, VENKATESH KK, et al: A longitudinal quality-of-life study of HIV-infected persons in South India: the case for comprehensive clinical care and support services. AIDS Education and Prevention 2009; 21(2): 104-112.
18. VELIKOVA G, WRIGHT EP, SMITH AB, et al: Automated collection of quality-of-life data: a comparison of paper and computer touch-screen questionnaires. J Clin Oncol 1999; 17(3): 998-1007.
19. de Bree R, Verdonck-De Leeuw IM, KEIZER AL, HOUFFELAAR A, LEEMANS CR: Touch screen computer-assisted health-related quality of life and distress data collection in head and neck cancer patients. Clin Otolaryngol 2008; 33(2): 138-142.
20. MEHANNA HM: Will measuring quality of life in head and neck cancer alter individuals' treatment? Curr Op Otolaryngol Head Neck Surg 2007; 15(2): 57-62.
21. CAMPBELL LC, KEEFE FJ, SCIPIO C, et al: Facilitating research participation and improving quality of life for African American prostate cancer survivors and their intimate partners. A pilot study of telephonebased coping skills training. Cancer 2007; 109(2 Suppl): 414-424.
22. SAYED, SI, ELMIYEH B, Rhys-Evans P, SYRIGOS, KN, NUTTINGN CM, HARRINGTON, KJ, KAZI R: Quality of life and outcomes research in head and neck cancer: A review of the state of the discipline and likely future directions. Cancer Treat Rev 2009; 35(5): 397-402.
23. Verdonck-De Leeuw IM, de Bree R, KEIZER AL, HOUFFELAAR T, CUIJPERS P, van der Linden MH, LEEMANS CR: Computerized prospective screening for high levels of emotional distress in head and neck cancer patients and referral rate to psychosocial care. Oral Oncol 2009; 45(10): 129-133.
24. CHANG CH, CELLA D, MASTERS GA, et al: Real-time clinical application of quality-of-life assessment in advanced lung cancer. Clin Lung Cancer 2002; 4(2): 104-109.
25. LARSSON BW: Touch-screen versus paper-and-pen questionnaires: effects on patients' evaluations of quality of care. International journal of health care quality assurance incorporating. Leadership in Health Services 2006; 19(4/5): 328-338.
26. MAIA PR, NOVAK FR, ALMEIDA JA, SILVA DA: A knowledge management system for the Brazilian National Network of human milk banks. Cadernos de Saúde Pública 2005; 20(6): 1700-1708.
27. MYNENI S, PATEL VL: Organization of Biomedical Data for Collaborative Scientific Research: A Research Information Management System. Intl J Infect Dis 2010; 30(3): 256-264
28. Sarradon-Eck A, VEGA A, FAURE M, Humbert-Gaudart A, LUSTMAN M: Linking: Relationships between health professionals in the informal health networks. Revue d'Epidemiologie et de Sante Publique 2008; 56 Suppl 3:S: 197-206.
29. SNYDER CF, JENSEN R, COURTI, SO, WU AW: Patient View point: a website for patient-reported outcomes assessment. Quality of Life Research 2009; 18(7): 793-800
30. GUTTELING JJ, DARLINGTON AS, JANSSEN HL, DUIVENVOORDEN HJ, BUSSCHBACH JJ, DE MAN RA: Effectiveness of health related quality of life measurement in clinical practice: a prospective, randomized controlled trial in patients with liver disease and their physicians. Quality of Life Research 2008;17(2):195-205
31. ROGAUSH A, SIGLE J, SEIBRT A, THURING S, KOCHEN MM, HIMMEL W: Feasibility and acceptance of electronic quality of life assessment in general practice: an implementation study. Health and Quality of Life Outcomes 2009; doi: 10.1186/1477-7525-7-51.