Caregiver burden in chronic mental illness: The role of patient and caregiver characteristics

European Archives of Psychiatry and Clinical Neuroscience

Volumn 262, Issue 2, 2012, Pages 157-166

  Möller Leimkühler, Anne Maria ^a   Wiesheu, Andreas ^a  

^a UNIVERSITY OF MUNICH   (Germany)

Author keywords

Caregiver burden; Expressed emotion; Neuroticism; Patients' employment; Perceived social support

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CONTROLLED STUDY; EMOTION; FAMILY THERAPY; FEMALE; HEALTH CARE ORGANIZATION; HUMAN; INTERPERSONAL COMMUNICATION; LIFE SATISFACTION; MAJOR CLINICAL STUDY; MALE; MENTAL DISEASE; MENTAL PATIENT; MENTAL STRESS; MOTHER; NEUROSIS; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; SCHIZOPHRENIA; SOCIAL BEHAVIOR; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; CAREGIVERS; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; COST OF ILLNESS; EXPRESSED EMOTION; FAMILY HEALTH; FEMALE; HUMANS; INFANT; MALE; MENTAL DISORDERS; MIDDLE AGED; PERSONALITY; PREDICTIVE VALUE OF TESTS; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84863003183     PISSN: 09401334     EISSN: 14338491     Source Type: Journal    
DOI: 10.1007/s00406-011-0215-5     Document Type: Article

References (55)

1. Baronet AM (1999) Factors associated with caregiver burden in mental illness: a critical review of the research literature. Clin Psychol Rev 19:819-841
2. Barrowclough C, Parle M (1997) Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering from schizophrenia. Br J Psychiatry 171:26-30
3. Borkenau P, Ostendorf F (1993) NEO-Fünf-Faktoren Inventar (NEO-FFI) nach Costa und McCrae. Hogrefe, Göttingen-Bern- Toronto-Seattle
4. Bottlender R, Jäger M, Kunze I, Groll C, Borski I, Moüller H-J (2003) Negative Symptome schizophrener Patienten aus der Perspektive der Psychiater, der Patienten selbst und deren Angehörigen. Nervenarzt 74:762-766 (Pubitemid 37176306)
5. Carter PA, Acton GJ (2006) Personality and coping: predictors of depression and sleep problems among caregivers of individuals who have cancer. J Gerontol Nurs 32:5
6. Chiou CJ, Chang H-Y, Chen IP, Wang HH (2009) Social support and caregiving circumstances as predictors of caregiver burden in Taiwan. Arch Herontol Geriatr 48:419-424
7. De Jong GM, van Sonderen D, Emmelkamp PM (1999) A comprehensive model of stress: the roles of experienced stress and neuroticism in explaining the stress-distress relationship. Psychother Psychosom 68:290-298 (Pubitemid 29516392)
8. Derogatis LR (1977) SCL-90-R, administration, scoring and procedures. Manual for the R (evised) Version. John Hopkins University School of Medicine, Baltimore
9. Edwards NE, Scheetz PS (2002) Predictors of burden for caregivers of patients with Parkinson's Disease. J Neurosci Nurs 34:184-190
10. Feldmann R, Buchkremer G, Minneker-Hügel E, Hornung P (1995) Fragebogen zur Erfassung der Familienatmosphäre (FEF): Einschätzung des emotionalen Angehörigenverhaltens aus der Sicht schizophrener Patienten. Diagnostica 41:334-348 (Pubitemid 126003130)
11. Ferring D, Filipp S-H (1989) Bewältigung kritischer Lebensereignisse: Erste Erfahrungen mit einer deutschsprachigen Version der ''Ways of Coping Checklist''. Zeitschrift für Differentielle und Diagnostische Psychologie 10:189-199 (Pubitemid 20121408)
12. Folkman S, Lazarus RS (1989) An analysis of coping in a middleaged community sample. J Health Soc Behav 21:219-239
13. Gallant MP, Connel CM (1997) Predictors of decreased self-care among spouse caregivers of older adults with dementing illnesses. J Aging Health 9:373-395 (Pubitemid 27327180)
14. Garretero S, Garcés J, Ródenas F, Sanjosé V (2009) The informal caregivers burden of dependent people: theory and empirical review. Arch Gerontol Geriatr 49:74-79
15. Gosh S, Greenberg J (2009) Aging fathers of adult children with schizophrenia: the toll of caregiving on their mental and physical health. Psychiatr Serv 60:982-984
16. Harvey K, Burns T, Fahy T, Manley C, Tattan T (2001) Relatives of patients with severe psychotic illness: factors that incluence appraisal of caregiving and psychological distress. Soc Psychiatry Psychiat Epidemiol 36:456-461 (Pubitemid 33085654)
17. Ho BC, Flaum M, Hubbard W, Arndt S, Andreasen NC (2004) Validity of symptom assessment in psychotic disorders: information variance across different sources of history. Schizophr Res 68:299-307 (Pubitemid 38526151)
18. Hooker K, Frazier LD, Monahan DJ (1994) Personality and coping among caregivers of spouses with dementia. Gerontologist 34:386-392 (Pubitemid 24182800)
19. Hooker K, Monahan DJ, Bowman SR, Frazier LD, Shifren K (1998) Personality counts for a lot: predictors of mental and physical health of spouse caregivers in two disease groups. J Gerontol B Psychol Sci Soc Sci 53:73-85 (Pubitemid 28136156)
20. Idler El, Benyamini J (1997) Self-rated health and mortality: a review of twenty-seven community studies. J Health Soc Behav 38:21-37
21. Idler EL, Kasl S (1991) Health perceptions and survival: do global evaluations of health status really predict mortality? J Gerontol 46:55-65
22. Janke W, Erdmann G (1997) Strebverarbeitungsfragebogen. Hogrefe, Göttingen-Bern-Toronto-Seattle
23. Koukia E, Madianos MG (2005) Is psychosocial rehabilitation of schizophrenic patients preventin family burden? A comparative study. J Psychiatr Ment Health Nurs 12:415-422 (Pubitemid 41022545)
24. Krampen G (1991) Fragebogen zu Kompetenz- und Kontrollüberzeugungen (FKK). Hogrefe, Göttingen-Toronto-Zürich
25. Kuipers E, Bebbington P, Dunn G, Fowler D, Freeman D, Watson P, Hardy A, Garety P (2006) Influence of carer expressed emotion and affect on relapse in non-affective psychosis. Br J Psychiatry 188:173-179 (Pubitemid 43171075)
26. Lazarus RS, Folkman S (1984) Stress, appraisal, coping. Stringer, New York
27. Maercker A, Langner R (2001) Persönliches Wachstum (Personal Growth) durch Belastungen und Traumata: Validierung zweier deutschsprachiger Fragebogenversionen. Diagnostica 47:153-162 (Pubitemid 33686686)
28. Magana SM, Ramirez Garcia JI, Hernandez MG, Cortez R (2007) Psychological distress among Latino family caregivers of adults with schizophrenia: the roles of burden and stigma. Psychiatr Serv 58:378-384 (Pubitemid 46480055)
29. Magliano L, Fadden G, Economou M, Held T, Xavier M, Guarneri M, Malangone C, Marasco C, Maj M (2000) Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study. Soc Psychiatry Psychiatr Epidemiol 35:109-115 (Pubitemid 30266113)
30. Möller-Leimkühler AM (2005) Burden of relatives and predictors of burden. Baseline results from the Munich 5-yeat-follow up study on relatives of first hospitalized patients with schizophrenia or depression. Eur Arch Psychiatry Clin Neurosci 255:223-231 (Pubitemid 41187029)
31. Möller-Leimkühler AM (2006) Multivariate prediction of realtives' stress outcome one year after first hospitalization of schizophrenic and depressed patients. Eur Arch Psychiatry Clin Neurosci 256:122-130
32. Möller-Leimkühler AM, Mädger F (2010) Personality factors and mental health outcome of caregivers of first hospitalized schizophrenic and depressed patients. Eur Arch Psychiatry Clin Neurosci 261:165-172
33. Möller-Leimkühler AM, Obermeier M (2008) Predicting caregiver burden in first admission psychiatric patients. Eur Arch Psychiatry Clin Neurosci 258:406-413
34. Möller-Leimkühler AM, Jandl M (2010) Expressed and perceived emotion over time: does the patients view matter for caregivers burden? Eur Arch Psychiatry Clin Neurosci Dec 21 [Epub ahead of print]
35. Moor C, Zimprich D, Schmitt M, Kliegel M (2006) Personality, aging self-perceptions, and subjective health: a mediation model. Int J Aging Hum Dev 63:241-257 (Pubitemid 47105271)
36. Navaie-Waliser M, Spriggs A, Feldman PH (2002) Informal caregiving: differential experiences by gender. Med Care 40:1249-1259
37. Pai S, Kapur RL (1981) The burden on the family of a psychiatric patient: development of an interview schedule. Br J Psychiatry 138:332-335
38. Papastavrou W, Charalambous A, Tsangari H, Karayiannis G (2010) The cost of caring: the relative with schizophrenia. Scand J Caring Sci 24:817-823
39. Perlick DA, Rosenheck RA, Miklowitz DJ, Chessik C, Wolff N, Kaczynski R, Ostacher M, Patel J, Desai R, the STEP-BR (2007) Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the systematic treatment enhancement program for bipolar disorder. Bipolar Disord 9:262-273 (Pubitemid 46547120)
40. Pohl JM, Given CW, Collins CE, Given BA (1994) Social vulnerability and reactions to caregiving in daughters and daughtersin- law caring for disabled aging parents. Health Care Women Int 15:385-395
41. Pot AM, Deeg DJH, van Dyck R (2000) Psychological distress of caregivers: moderator effects of caregiver resources? Patient Educ Cons 41:235-240 (Pubitemid 30665580)
42. Priebe S, Gruyters T, Heinze M, Hoffmann C, Jäkel A (1995) Subjektive Evaluationskriterien in der psychiatrischen Versorgung- Erhebungsmethoden für Forschung und Praxis. Psychiat Prax 22:140-144
43. Pruchno RA, Resch NL (1989) Mental health of caregiving spouses: coping as mediator, moderator, or main effect? Psychol Aging 4:454-463
44. Ray JJ, Still LV (1987) Maximizing the response-rate in surveys may be a mistake. Pers Individ Dif 8:573-574
45. Reichhart T, Pischel-Walz G, Kissling W, Bäuml J, Schuster T, Rummel-Kluge C (2010) Gender differences in patient and caregiver psychoeducation for schizophrenia. Eur Psychiatry 25:39-46
46. Russo J, Vitaliano PP, Brewer DD, Katon W, Becker J (1995) Psychiatric disorders in spouse caregivers of care recipients of Alzheimer's disease and matched controls: a diathesis-stress model of psychopathology. J Abnorm Psychol 104:197-204
47. Scazufca M, Kuipers E (1996) Links between expressed emotion and burden of care in relatives of patients with schizophrenia. Br J Psychiatiry 168:580-587
48. Sha AJ, Wadoo O, Latoo J (2010) Psychological distress in carers of people with mental disorders. BJMP 3:a327
49. Sommer G, Frydrich T (1989) Soziale Unterstützung: diagnostik, Konzepte, F-SOZU. Dt. Ges. für Verhaltenstherapie, Tübingen
50. Tedeschi RG, Calhoun LG (1996) The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. J Trauma Stress 9:455-471 (Pubitemid 126710047)
51. Van Os J, Park SB, Jones PB (2001) Neuroticism, life events and mental health: evidence for person-environment correlation. Br J Psychiatry Suppl 40:72-77
52. Wancata J, Freidl M, Krautgartner M, Friedrich F, Matschnig T, Unger A, Gössler R, Frühwald S (2008) Gender aspects of parents' needs of schizophrenia patients. Soc Psychiatry Psychiatr Epidmiol 43:968-974
53. Wiedemann G, Rayki O, Feinstein E, Hahlweg K (2002) The family questionnaire: development and validation of a new selfreport scale for assessing expressed emotion. Psychiatr Res 109:265-279 (Pubitemid 34311983)
54. Yee JL, Schulz R (2000) Gender differences in psychiatric morbidity among family caregivers: a review and analysis. Gerontologist 40:147-164 (Pubitemid 30266283)
55. von Zerssen D (1976) Die Befindlichkeitsskala: parallelformen Bf-S und Bf-S'. Beltz-Test, Göttingen