Measuring health disparities and health inequities: Do you have REGAL data?

Quality Management in Health Care

Volumn 21, Issue 3, 2012, Pages 176-187

  Ramos, Roberto ^a,b   Davis, Jenna L ^b   Ross, Thomas ^b   Grant, Cathy G ^a,b   Green, B Lee ^a,b  

^a Moffitt Diversity   (United States)

^b H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

Author keywords

cultural and linguistic competence; data collection; health care indicators; health disparities; population groups

Indexed keywords

ARTICLE; ETHNIC GROUP; FEMALE; HEALTH CARE PLANNING; HEALTH DISPARITY; HEALTH SURVEY; HUMAN; MALE; MINORITY GROUP; POLICY; QUALITY CONTROL; STANDARD; UNITED STATES;

BENCHMARKING; ETHNIC GROUPS; FEMALE; HEALTH STATUS DISPARITIES; HEALTH SURVEYS; HUMANS; MALE; MEDICALLY UNDERSERVED AREA; MINORITY GROUPS; PUBLIC POLICY; UNITED STATES;

EID: 84862886429     PISSN: 10638628     EISSN: 15505154     Source Type: Journal    
DOI: 10.1097/QMH.0b013e31825e8889     Document Type: Article

References (44)

1. Perot RT, Youdelman M. Racial, Ethnic, and Primary Language Data Collection in the Health Care System: An Assessment of Federal Policies and Practices. New York, NY: The Commonwealth Fund; 2001.
2. Smedley BD, Stith AY, Nelson AR, eds. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: The National Academies Press; 2003.
3. The Joint Commission. Advancing Effective Communication, Cultural Competence, and Patient-and Family-Centered Care: A Roadmap for Hospitals. Oakbrook Terrace, IL: The Joint Commission; 2010.
4. Hasnain-Wynia R, Pierce D, Pittman MA. Who, When, and How: The Current State of Race, Ethnicity, and Primary Language Data Collection in Hospitals. New York, NY: The Commonwealth Fund; 2004.
5. Wilson-Stronks A, Lee KK, Cordero CL, Kopp AL, Galvez E. One Size Does Not Fit All: Meeting the Health Care Needs of Diverse Populations. Oakbrook Terrace, IL: The Joint Commission; 2008.
6. Wilson-Stronks A, Galvez E. Hospitals, Language, and Culture: A Snapshot of the Nation. Exploring Cultural and Linguistic Services in the Nation's Hospitals: A Report of Findings. Oakbrook Terrace, IL: The Joint Commission; 2007.
7. US Department of Health and Human Services, Agency for Healthcare Research and Quality. 2010 National Healthcare Disparities Report. No. 11-00 05. Rockville, MD: Agency for Healthcare Research and Quality; 2011.
8. Baker DW, Cameron KA, Feinglass J, et al. A system for rapidly and accurately collecting patients' race and ethnicity. Am J Public Health. 2006;96 (3):532-537.
9. Nerenz DR, Bocchino C, Lardy B, Carreon R, Wheeler D, Erceg C. Tools to Address Disparities in Health: Data as Building Blocks for Change, a Data Collection Toolkit for Health Insurance Plans/Health Care Organizations. Washington, DC: America's Health Insurance Plans; 2005.
10. Carter-PokrasO, Baquet C.What is a "health disparity"? Public Health Rep. 2002;117;426-434.
11. Williams AR. Eliminating Healthcare Disparities in America: Beyond the IOM Report. Totowa, NJ: Humana Press; 2007.
12. National Cancer Institute, Center to Reduce Cancer Health Disparities. Health disparities defined. http://crchd. cancer.gov/about/defined.html. Accessed November 1, 2011.
13. Commission on Social Determinants of Health. Closing the Gap in a Generation: Health Equity Through Action on the Social Determinants of Health. Final Report of the Commission on Social Determinants of Health Geneva, Switzerland:World Health Organization; 2008.
14. Whitehead M. The concepts and principles of equity in health. Int J Health Serv. 1992;22:429-445.
15. Braveman P, Gruskin S. Defining equity in health. J Epidemiol Community Health. 2003;57 (4):254-258.
16. Gamble VN, Stone DA. U.S. policy on health inequities: The interplay of politics and research. J Health Polit Policy Law. 2006;31 (1):93-126.
17. Ricketts TC, Goldsmith LJ, Holmes GM, et al. Designating places and populations as medically underserved: A proposal for a new approach. J Health Care Poor Underserved. 2007;18:567-589.
18. Haynes MA, Smedley BD, eds. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: National Academies Press; 1999.
19. Office of Management and Budget. Appendix 1, Directive No. 15: Race and Ethnic Standards for Federal Statistics and Administration Reporting. http://www. whitehouse.gov/omb/fedreg/directive-15.html. Accessed November 1, 2011.
20. Kunst AE, Mackenbach JP. Measuring Socioeconomic Inequalities in Health. Copenhagen: World Health Organization; 1994.
21. Mackenbach JP, Kunst AE. Measuring the magnitude of socioeconomic inequalities in health: An overview of available measures illustrated with two examples from Europe. Soc Sci Med. 1997;44 (6):757-771.
22. Mandelblatt JS, Ganz PA, Kahn KL. Proposed agenda for the measurement of quality of care outcomes in oncology practice. J Clin Oncol. 1999;17 (8):2614-2622.
23. Kagawa-Singer M, Valdez-Dadia A, Yu MC, Surbone A. Cancer, culture, and health disparities: Time to chart a new course? CA Cancer J Clin. 2012;60:12-39.
24. Health Research & Educational Trust, Institute for Diversity in Health Management. Building a Culturally Competent Organization: The Quest for Equity in Health Care. Chicago, IL: Health Research & Educational Trust; 2011.
25. Health Research & Educational Trust. Improving Health Equity Through Data Collection and Use: A Guide for Hospital Leaders. Chicago, IL: Health Research & Educational Trust; 2011.
26. Institute of Medicine, Committee on Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academies Press; 2001.
27. Braveman P. Health disparities and health equity: Concepts and measurement. Annu Rev Public Health. 2006;27:167-194.
28. Keppel K, Pamuk E, Lynch J, et al. Methodological issues in measuring health disparities. Vital Health Stat. 2005;2 (141).
29. Betancourt JR, Green AG, King RR, Tan-McGrory A, Cervantes M, Renfrew M. Improving Quality and Achieving Equity: A Guide for Hospital Leaders. Boston, MA: The Disparities Solutions Center, Massachusetts General Hospital; 2009.
30. Hasnain-Wynia R, Baker DW. Obtaining data on patient race, ethnicity and primary language in health care organizations: Current challenges and proposed solutions. Health Serv Res. 2006;41 (4, Pt 1):1501-1518.
31. Masica AL, Richter KM, Convery P, Haydar Z. Linking Joint Commission inpatient core measures and National Patient Safety Goals with evidence. Proc (Bayl Univ Med Cent). 2009;22 (2):103-111.
32. Goode TD, Dunne MC, Bronheim SM. The Evidence Base for Cultural and Linguistic Competence in Health Care. NewYork, NY: The Commonwealth Fund; 2006.
33. Alliance of Community Health Plans Foundation. Making the Business Case for Culturally and Linguistically Appropriate Services in Health Care: Case Studies From the Field.Washington, DC: Alliance of Community Health Plans; 2007.
34. Taylor SL, Lurie N. The role of culturally competent communication in reducing ethnic and racial healthcare disparities. Am J Manag Care. 2004;10 (Spec No):SP1-SP4.
35. Betancourt JR. Improving Quality and Achieving Equity: The Role of Cultural Competency in Reducing Racial and Ethnic Disparities inHealth Care.New York,NY: The Commonwealth Fund; 2006.
36. Baker DW, Cameron KA, Feinglass J, et al. Patients' attitudes toward health care providers collecting information about their race and ethnicity. J Gen Intern Med. 2005;20 (10):895-900.
37. Institute of Medicine. Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement. Washington, DC: The National Academies Press; 2009.
38. Escarce JJ, Carréon R, Veselovskiy G, Lawson EH. Collection of race and ethnicity data by health plans has grown substantially, but opportunities remain to expand efforts. Health Aff (Millwood). 2011;30 (10):1984-1991.
39. Pearcy JN, Keppel KG. A summary measure of health disparity. Public Health Rep. 2002;117 (3):273-280.
40. The Joint Commission. Advancing Effective Communication, Cultural Competence, and Patient-and Family-Centered Care for the Lesbian, Gay, Bisexual, and Transgender (LGBT) Community: A Field Guide. Oak Brook, IL: The Joint Commission; 2011.
41. Pappas G. Geographic data on health inequities: Understanding policy implications. PLoS Med. 2006;3 (9):e357.
42. Southern Poverty Law Center. Under Siege: Life for Low-Income Latinos in the South. Montgomery, AL: Southern Poverty Law Center; 20 09. http://www.splcenter.org/getinformed/publications/under-siege-life-forlow- incomelatinos-in-the-south. Accessed November 2, 2011.
43. Southern Poverty Law Center. Injustice on Our Plates: Immigrant Women in the U.S. Food Industry. Montgomery, AL: Southern Poverty Law Center; 20 10. http://www.splcenter. org/sites/default/files/downloads/publication/Injustice- on- Our-Plates.pdf. Accessed November 2, 2011.
44. LaVeist TA, Thorpe R, Galarraga JE, Bower KM, Gary-Webb TL. Environmental and socio-economic factors as contributors to racial disparities in diabetes prevalence. J Gen Intern Med. 2009;24 (10):1144-1148.