The privacy-reciprocity connection in biobanking: Comparing german with UK strategies

Public Health Genomics

Volumn 15, Issue 5, 2012, Pages 272-284

  Hobbs, A ^a   Starkbaum, J ^b   Gottweis, U ^b   Wichmann, H E ^c   Gottweis, H ^b,d  

^a UNIVERSITY OF YORK   (United Kingdom)

^b UNIVERSITY OF VIENNA   (Austria)

^c INSTITUTE OF EPIDEMIOLOGY   (Germany)

^d Kyung Hee University   (South Korea)

Author keywords

Biobank; Data sharing; Focus groups; Genetic privacy; Policy; Public engagement; Qualitative research; Reciprocity; Research participation

Indexed keywords

ADULT; AGED; ARTICLE; BIOBANK; DATA BASE; EDUCATIONAL STATUS; FEMALE; GERMANY; HEALTH CARE FACILITY; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; MEDICAL SOCIETY; PRIORITY JOURNAL; PRIVACY; PUBLIC OPINION; RESEARCH; UNCERTAINTY; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; COHORT STUDIES; COMMUNICATION; FEMALE; FOCUS GROUPS; GERMANY; GREAT BRITAIN; HUMANS; INFORMED CONSENT; MALE; MIDDLE AGED; PRIVACY; PUBLIC OPINION; SOCIAL BEHAVIOR; YOUNG ADULT;

EID: 84862885354     PISSN: 16624246     EISSN: 16628063     Source Type: Journal    
DOI: 10.1159/000336671     Document Type: Article

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