What is symptom burden: A qualitative exploration of patient definitions

Journal of Palliative Care

Volumn 28, Issue 2, 2012, Pages 83-89

  Gill, Ashlinder ^a   Chakraborty, Anita ^a   Selby, Debbie ^a  

^a SUNNYBROOK RESEARCH INSTITUTE   (Canada)

Author keywords

Cancer; Endof life care; Pain management; Palliative care; Qualitative methods; Symptom management

Indexed keywords

EID: 84862881123     PISSN: 08258597     EISSN: None     Source Type: Journal    
DOI: 10.1177/082585971202800204     Document Type: Article

References (34)

1. Kirkova J, Davis MP, Walsh D, et al. Cancer symptom assessment instruments: a systematic review. J Clin Oncol 2006; 24(9): 1459-1473. (Pubitemid 46622014)
2. Bruera E, Kuehn N, Miller MJ, et al. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care 1991; 7(2): 6-9.
3. Cleeland CS, Mendoza TR, Wang XS, et al. Assessing symptom distress in cancer patients: the M.D. Anderson Symptom Inventory. Cancer 2000; 89(7): 1634-1646.
4. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85(5): 365-376. (Pubitemid 23073154)
5. Portenoy RK, Thaler HT, Kornblith AB, et al. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer 1994; 30A(9): 1326-1336. (Pubitemid 24322071)
6. Modonesi C, Scarpi E, Maltoni M, et al. Impact of palliative care unit admission on symptom control evaluated by the Edmonton Symptom Assessment System. J Pain Symptom Manage 2005; 30(4): 367-373. (Pubitemid 41527123)
7. Fadul NA, El Osta B, Dalai S, et al. Comparison of symptom burden among patients referred to palliative care with hematologic malignancies versus those with solid tumors. J Palliat Med 2008; 11(3): 422-427. (Pubitemid 351440550)
8. Cheung WY, Barmala N, Zarinehbaf S, et al. The association of physical and psychological symptom burden with time to death among palliative cancer outpatients. J Pain Symptom Manage 2009; 37(3): 297-304.
9. Hui D, Parsons H, Nguyen L, et al. Timing of palliative care referral and symptom burden in Phase 1 cancer patients: a retrospective cohort study. Cancer 2010; 116(18): 4402-4409.
10. Janssen DJ, Spruit MA, Wouters EF, et al. Daily symptom burden in end-stage chronic organ failure: a systematic review. Palliat Med 2008; 22(8): 938-948.
11. Sawicki GS, Sellers DE, Robinson WM. Self-reported physical and psychological symptom burden in adults with cystic fibrosis. J Pain Symptom Manage 2008; 35(4): 372-380.
12. Silveira MJ, Kabeto Mil, Langa KM. Net worth predicts symptom burden at end of life. J Palliat Med 2005; 8(4): 827-837. (Pubitemid 41266259)
13. Barbera L, Seow H, Howell D, et al. Symptom burden and performance status in a population-based cohort of ambulatory cancer patients. Cancer 2010; 116(24): 5767-5776.
14. Blinderman CD, Homel P, Billings JA, et al. Symptom distress and quality of life in patients with advanced congestive heart failure. J Pain Symptom Manage 2008; 35(6): 594-603. (Pubitemid 351707757)
15. Mao JJ, Armstrong K, Bowman M, et al. Symptom burden among cancer survivors: impact of age and comorbidity. J Am Board Fam Med 2007; 20(5): 434-443. (Pubitemid 350096943)
16. Jones JM, Cohen SR, Zimmermann C, et al. Quality of life and symptom burden in cancer patients admitted to an acute palliative care unit. J Palliat Care 2010; 26(2): 94-102.
17. Wang XS, Shi Q, Lu C, et al. Prognostic value of symptom burden for overall survival in patients receiving chemotherapy for advanced nonsmall cell lung cancer. Cancer 2010; 116(1): 137-145.
18. Gapstur RL Symptom burden: a concept analysis and implications for oncology nurses. Oncol Nurs Forum 2007; 34(3): 673-680.
19. Cleeland CS. Symptom burden: multiple symptoms and their impact as patient-reported outcomes. J Natl Cancer Inst Monogr 2007; 37:16-21.
20. Chang VT, Hwang SS, Feuerman M. Validation of the Edmonton Symptom Assessment Scale. Cancer 2000: 88(9); 2164-2171. (Pubitemid 30233220)
21. Johnson RF, Hauber AB, Osoba D, et al. Are chemotherapy patients' HRQoL importance weights consistent with linear scoring rules? A stated-choice approach. Qual Life Res 2006; 15(2): 285-298. (Pubitemid 43230117)
22. Strauss A, Corbin J. Basics of qualitative research: grounded theory procedures and techniques. Thousand Oaks (CA): Sage; 1990.
23. Buria L, Knierim B, Barth J, et al. From text to codings: intercoder reliability assessment in qualitative content analysis. Nurs Res 2008: 57(2): 113-117.
24. Selby D, Chakraborty A, Myers J, et al. High scores on the Edmonton Symptom Assessment Scale (ESAS) identify patients with self-defined high symptom burden. J Palliat Med 2011; 14(12): 1309-1316.
25. Palmer JL, Fisch MJ. Association between symptom distress and survival in outpatients seen in a palliative care cancer center. J Pain Symptom Manage 2005; 29(6): 565-571. (Pubitemid 40826479)
26. Bradley N, Davis L, Chow E. Symptom distress in patients attending an outpatient palliative radiotherapy clinic. J Pain Symptom Manage 2005; 30(2): 123-131. (Pubitemid 41206575)
27. Shih YT, Wang XS, Cantor SB, et al. The association between symptom burden and utility in Chinese cancer patients. Qual Life Res 2006; 15(8): 1527-1438.
28. Burkett VS, Cleeland CS. Symptom burden in cancer survivorship. J Cancer Surviv 2007; 1(2): 167-175.
29. Rosenthal DL, Mendoza TR, Chambers MS, et al. Measuring head and neck cancer symptom burden: the development and validation of the M.D. Anderson Symptom Inventory, Head and Neck Module. Head Neck 2007; 29(10): 923-931.
30. Strdmgren AS, Sjogren P, Goidschmidt D, et al. Symptom priority and course of symptomatology in specialized palliative care. J Pain Symptom Manage 2006; 31(3): 199-206.
31. Rosedale M, Fu MR. Confronting the unexpected: temporal, situational, and attributive dimensions of distressing symptom experience for breast cancer survivors. Oncol Nurs Forum 2010; 37(1): E28-E33.
32. Molassiotis A, Wilson B, Brunton L, et al. Symptom experience in patients with primary brain tumours: a longitudinal exploratory study. Eur J Oncol Nurs 2010; 14(5): 410-416.
33. Bergh I, Kvalem IL, Aass N, et al. What does the answer mean? A qualitative study of how palliative cancer patients interpret and respond to the Edmonton Symptom Assessment System. Palliat Med 2011; 25(7): 716-724.
34. Kuhl D. Exploring the lived experience of having a terminal illness. J Palliat Care 2011; 27(1): 43-52.