Designing and evaluating a web-based self-management site for patients with type 2 diabetes - Systematic website development and study protocol

BMC Medical Informatics and Decision Making

Volumn 12, Issue 1, 2012, Pages

  Yu, Catherine H ^a,b,c   Parsons, Janet ^a,c,d   Mamdani, Muhammad ^a,c,d   Lebovic, Gerald ^d   Shah, Baiju R ^b,e,f   Bhattacharyya, Onil ^a,b,c   Laupacis, Andreas ^a,b,c   Straus, Sharon E ^a,b,c  

^a ST MICHAEL'S HOSPITAL   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d ST MICHAEL'S HOSPITAL   (Canada)

^e INSTITUTE FOR CLINICAL EVALUATIVE SCIENCES   (Canada)

^f Sunnybrook Health Sciences Centre   (Canada)

Author keywords

Diabetes mellitus; Intervention development; Medical informatics; Patient education; Qualitative methods; Repeated measures modeling; Self care; Self efficacy; Study protocol; User Computer Interface

Indexed keywords

GLYCOSYLATED HEMOGLOBIN; HIGH DENSITY LIPOPROTEIN CHOLESTEROL;

ARTICLE; BLOOD; CANADA; CLINICAL PROTOCOL; COMPUTER INTERFACE; CONSUMER HEALTH INFORMATION; EVIDENCE BASED MEDICINE; FEASIBILITY STUDY; FEMALE; HUMAN; INFORMATION PROCESSING; INTERNET; MALE; MEDICAL INFORMATICS; METABOLISM; METHODOLOGY; NON INSULIN DEPENDENT DIABETES MELLITUS; ORGANIZATION AND MANAGEMENT; OUTCOME ASSESSMENT; PATIENT ATTITUDE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; SELF CARE; SELF CONCEPT; SOCIOECONOMICS; STANDARD; STATISTICS;

CANADA; CHOLESTEROL, HDL; CLINICAL PROTOCOLS; CONSUMER HEALTH INFORMATION; DIABETES MELLITUS, TYPE 2; EVIDENCE-BASED MEDICINE; FEASIBILITY STUDIES; FEMALE; FOCUS GROUPS; HEMOGLOBIN A, GLYCOSYLATED; HUMANS; INTERNET; MALE; MEDICAL INFORMATICS APPLICATIONS; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT ACCEPTANCE OF HEALTH CARE; QUALITATIVE RESEARCH; QUALITY OF LIFE; RESEARCH DESIGN; SELF CARE; SELF EFFICACY; SOCIOECONOMIC FACTORS; USER-COMPUTER INTERFACE;

EID: 84862561690     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-12-57     Document Type: Article

References (50)

1. Diabetes self-management education. Clement S, Diabetes Care 1995 18 1204 1214 7587866
2. Long-term non-pharmacologic weight loss interventions for adults with type 2 diabetes. Norris SL, Zhang X, Avenell A, Gregg E, Brown TJ, Schmid CH, Cochrane Database Syst Rev 2005 2 CD004095 10.1002/14651858.CD004095.pub2
3. A systematic review of psychosocial outcomes following ducation, self-management and psychological interventions in diabetes mellitus. Steed L, Cooke D, Newman S, Patient Educ Couns 2003 51 5 15 10.1016/S0738-3991(02)00213-6 12915275 (Pubitemid 36952637)
4. Diabetes patient education: a meta-analysis and meta-regression. Ellis SE, Speroff T, Dittus RS, Brown A, Pichert JW, Elasy TA, Patient Educ Couns 2004 52 97 105 10.1016/S0738-3991(03)00016-8 14729296 (Pubitemid 38083173)
5. National standards for diabetes self-management education programs. Funnell MM, Haas LB, Diabetes Care 1995 18 100 16 7698031
6. Effectiveness of self-management training in type 2 diabetes: a systematic review of randomized controlled trials. Norris SL, Engelgau MM, Narayan KM, Diabetes Care 2001 24 561 87 10.2337/diacare.24.3.561 11289485 (Pubitemid 32198430)
7. Take two aspirin and tweet me in the morning: how Twitter, Facebook, and other social media are reshaping Health Care. Hawn C, Health Aff 2009 28 361 8 10.1377/hlthaff.28.2.361
8. Technology and patient-provider interactions: Improving quality of care, but is it improving communication and collaboration? Boucher JL, Diabetes Spectrum 2010 23 142 4 10.2337/diaspect.23.3.142
9. Multimedia educational aids for improving consumer knowledge about illness management and treatment decisions: a review of randomized controlled trials. Jeste DV, Dunn LB, Folsom DP, Zisook D, JPsychiatrRes 2008 42 1 21 (Pubitemid 47562435)
10. Interactive Health Communication Applications for people with chronic disease. Murray E, Burns J, See TS, Lai R, Nazareth I, Cochrane Database Syst Rev 2005 4 004274
11. Design and testing of a tool for evaluating the quality of diabetes consumer-information Web sites. Seidman JJ, Steinwachs D, Rubin HR, J Med Internet Res 2003 5 30 10.2196/jmir.5.4.e30 14713658
12. Harnessing the potential of the internet to promote chronic illness self-management: diabetes as an example of how well we are doing. Bull SS, Gaglio B, McKay HG, Glasgow RE, Chronic Illn 2005 1 143 55 17136920
13. Systematic review and evaluation of web-accessible tools for management of diabetes and related cardiovascular risk factors by patients and health care providers. [published online ahead of print January 3 2012]. Yu CH, Bahniwal R, Laupacis A, Leung E, Orr M, Straus SE, J Am Med Inform Assoc 2012 http://jamia.bmj.com/content/early/2012/01/03/amiajnl-2011-000307
14. Effectiveness of health education and health promotion: meta-analyses of effect studies and determinants of effectiveness. Kok G, Van den Borne B, Mullen P, Patient Educ Couns 1997 30 19 27 10.1016/S0738-3991(96)00953-6 9110829 (Pubitemid 27077203)
15. Lost in knowledge translation: time for a map? Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, et al. J Contin Educ Health Prof 2006 26 13 24 10.1002/chp.47 16557505
16. Implementation and evaluation of a low-literacy diabetes education computer multimedia application. Gerber BS, Brodsky IG, Lawless KA, et al. Diabetes Care 2005 28 1574 80 10.2337/diacare.28.7.1574 15983303 (Pubitemid 40923067)
17. Using the internet to promote health behavior change: a systematic review and meta-analysis of the impact of theoretical basis, use of behavior change techniques, and mode of delivery on efficacy. Webb TL, Joseph J, Yardley L, Michie S, J Med Internet Res 2010 12 4 10.2196/jmir.1376 20164043
18. Prospective study on influence of psychosocial factors on glycemic control in Japanese patients with type 2 diabetes. Nakahara R, Yoshiuchi K, Kumano H, Hara Y, Suematsu H, Kuboki T, Psychosomatics 2006 47 240 5 10.1176/appi.psy.47.3.240 16684941 (Pubitemid 46940482)
19. Metabolic control of adults with type 2 diabetes mellitus through education and counseling. Gallegos EC, Ovalle-Berumen F, Gomez-Meza MV, J Nurs Scholarsh 2006 38 344 51 10.1111/j.1547-5069.2006.00125.x 17181082 (Pubitemid 44722287)
20. Outcomes of border health Spanish/English chronic disease self-management programs. Lorig KR, Ritter PL, Jacquez A, Diabetes Educ 2005 31 401 9 10.1177/0145721705276574 15919640 (Pubitemid 40806915)
21. Empowering diabetes out-patients with structured education: short-term and long-term effects of functional insulin treatment on perceived control over diabetes. Howorka K, Pumprla J, Wagner-Nosiska D, Grillmayr H, Schlusche C, Schabmann A, J Psychosom Res 2000 48 37 44 10.1016/S0022-3999(99)00074-4 10750628 (Pubitemid 30128566)
22. Research-based practice implications for patients with diabetes. Part II: diabetes self-efficacy. Corbett CF, Home Healthc Nurse 1999 17 587 96 10.1097/00004045-199909000-00010 10763657
23. Patient empowerment: results of a randomized controlled trial. Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC, Diabetes Care 1995 18 943 9 10.2337/diacare.18.7.943 7555554
24. Changes in conceptions and attitudes during five years of intensified conventional insulin treatment in the stockholm diabetes intervention study (SDIS). Reichard P, Toomingas B, Rosenqvist U, Diabetes Educ 1994 20 503 8 10.1177/014572179402000607 7851263
25. Improving self-care among older patients with type II diabetes: the "sixty something" study. Glasgow RE, Toobert DJ, Hampson SE, Brown JE, Lewinsohn PM, Donnelly J, Patient Educ Couns 1992 19 61 74 10.1016/0738- 3991(92)90102-O 1298950
26. Bandura A, Self-efficacy: the exercise of control New York: WH Freeman 1997
27. Health information seeking, receipt, and use in diabetes self-management. Longo DR, Schubert SL, Wright BA, LeMaster J, Williams CD, Clore JN, Ann Fam Med 2010 8 334 40 10.1370/afm.1115 20644188
28. Sampling in qualitative inquiry. Kuzel AJ, Doing Qualitative Research London: Sage Publications, Crabtree B, Miller W, 2 1999 33 45
29. Focus groups in feminist research. Madriz E, Handbook of Qualitative Research Thousand Oaks: Sage Publications, Denzin NK, Lincoln YS, 2 2000 835 50
30. Transcription quality as an aspect of rigor in qualitative research. Poland BP, Qual Inq 1995 1 290 310 10.1177/107780049500100302
31. Kvale S, InterViews: An Introduction to Qualitative Research Interviewing Thousand Oaks: Sage Publications 1996
32. Morse JM, Richards L, ReadMe First for a User's Guide to Qualitative Methods Thousand Oaks: Sage Publications 2002
33. Cognitive and usability engineering methods for the evaluation of clinical information systems. Kushniruk AW, Patel VL, J Biomed Inform 2004 37 56 76 10.1016/j.jbi.2004.01.003 15016386 (Pubitemid 38338551)
34. Qualitative research in health care: analysing qualitative data. Pope C, Ziebland S, Mays N, BMJ 2000 320 114 6 10.1136/bmj.320.7227.114 10625273
35. Qualitative interviewing and grounded theory analysis. Charmaz K, Inside Interviewing: New lenses, new concerns Thousand Oaks: Sage Publications, Holstein JA, Gubrium JF, 2003 311 30
36. The impact of barriers and self-efficacy on self-care behaviors in type 2 diabetes. Aljasem LI, Peyrot M, Wissow L, Rubin RR, Diabetes Educ 2001 27 393 404 10.1177/014572170102700309 11912800 (Pubitemid 33715297)
37. Self-efficacy in adolescent girls and boys with insulin-dependent diabetes mellitus. Grossman HY, Brink S, Hauser S, Diabetes Care 1987 10 324 9 10.2337/diacare.10.3.324 3595399 (Pubitemid 17083575)
38. Assessing diabetes self-management: the summary of diabetes self-care activities questionnaire. Toobert DJ, Glasgow RE, Handbook of Psychology and Diabetes Switzerland: Harwood Academic, Bradley C, 1994 351 375
39. The summary of diabetes self-care activities measure: results from 7 studies and a revised scale. Toobert DJ, Hampson SE, Glasgow RE, Diabetes Care 2000 23 943 50 10.2337/diacare.23.7.943 10895844 (Pubitemid 30480021)
40. Assessing psychosocial distress in diabetes: development of the diabetes distress scale. Polonsky WH, Fisher L, Earles J, et al. Diabetes Care 2005 28 626 31 10.2337/diacare.28.3.626 15735199 (Pubitemid 40315323)
41. The relationship between diabetes distress and clinical depression with glycemic control among patients with type 2 diabetes. Fisher L, Glasgow RE, Strycker LA, Diabetes Care 2010 3 1034 6
42. Diabetes distress but not clinical depression or depressive symptoms is associated with glycemic control in both cross-sectional and longitudinal analyses. Fisher L, Mullan JT, Arean P, Glasgow RE, Hessler D, Masharani U, Diabetes Care 2010 33 23 8 10.2337/dc09-1238 19837786
43. Zar JH, Biostatistical Analysis 3rd ed Upper Saddle River, NJ: Prentice Hall 1996
44. Sample size calculations for studies with correlated observations. Liu G, Liang KY, Biometrics 1997 53 937 47 10.2307/2533554 9290224 (Pubitemid 27391023)
45. Harrell FE, Regression Modeling Strategies With Applications to Linear Models. Logistic Regression, and Survival Analysis New York: Springer 2001
46. Myers RH, Classical and Modern Regression with Applications 2nd edition Michigan: PWS-KENT 1990
47. Diggle PJ, Heagerty P, Liang Kung-Yee, Zeger SL, Analysis of Longitudinal Data New York: Oxford University Press 2 2002
48. Bryman A, Quantity and Quality in Social Research London: Routledge 1988
49. The contribution of apparent and inherent usability to a users satisfaction in a searching and browsing task on the Web. Fu L, Salvendy G, Ergonomics 2002 45 415 24 10.1080/00140130110120033 12061966 (Pubitemid 34732493)
50. Reframing the judgment of qualitative health research: reflections on a review of appraisal guidelines in the health sciences. Eakin J, Mykhalovskiy E, J Eval Clin Pract 2003 9 187 94 10.1046/j.1365-2753.2003.00392.x 12787182 (Pubitemid 36749548)