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Volumn 132, Issue 7, 2012, Pages 1749-1752

Significance of patient registries for dermatological disorders

Author keywords

[No Author keywords available]

Indexed keywords

FUNDING; HUMAN; MEDICAL INFORMATION; MEDICAL RESEARCH; NOTE; PATIENT INFORMATION; PRIORITY JOURNAL; REGISTER; SCIENTIST; SKIN DISEASE;

EID: 84862321092     PISSN: 0022202X     EISSN: 15231747     Source Type: Journal    
DOI: 10.1038/jid.2012.168     Document Type: Note
Times cited : (13)

References (12)
  • 1
    • 78651076334 scopus 로고    scopus 로고
    • Cystic Fibrosis Foundation
    • Cystic Fibrosis Foundation (2011) 2010 Annual report. http://www.cff.org/UploadedFiles/aboutCFFoundation/AnnualReport/ 2010-Annual-Report.pdf
    • (2011) 2010 Annual Report
  • 3
    • 84862317360 scopus 로고    scopus 로고
    • The National Registry for Ichthyosis and Related Disorder will cease operation after 2012
    • Fleckman P (2012) The National Registry for Ichthyosis and Related Disorder will cease operation after 2012. J Invest Dermatol 132:1745
    • (2012) J Invest Dermatol , vol.132 , pp. 1745
    • Fleckman, P.1
  • 5
    • 77952508673 scopus 로고    scopus 로고
    • Epidemiology of epidermolysis bullosa in the antipodes. the australasian epidermolysis bullosa registry with a focus on herlitz junctional epidermolysis bullosa
    • Kho YC, Rhodes LM, Robertson SJ et al. (2010) Epidemiology of epidermolysis bullosa in the antipodes. the australasian epidermolysis bullosa registry with a focus on herlitz junctional epidermolysis bullosa. Arch Dermatol 146:635-40
    • (2010) Arch Dermatol , vol.146 , pp. 635-640
    • Kho, Y.C.1    Rhodes, L.M.2    Robertson, S.J.3
  • 7
    • 77949823301 scopus 로고    scopus 로고
    • The International LAM Registry: A component of an innovative web-based clinician, researcher, and patient-driven rare disease research platform
    • Nurok M, Eslick I, Carvalho CR et al. (2010) The International LAM Registry: a component of an innovative web-based clinician, researcher, and patient-driven rare disease research platform. Lymphat Res Biol 8:81-7
    • (2010) Lymphat Res Biol , vol.8 , pp. 81-87
    • Nurok, M.1    Eslick, I.2    Carvalho, C.R.3
  • 8
    • 85206959166 scopus 로고    scopus 로고
    • Office of Rare Diseases Research
    • Office of Rare Diseases Research, National Institutes of Health (2012) Common Data Elements; http://rarediseases.info.nih.gov/PatientRegistry.aspx
    • (2012) Common Data Elements
  • 11
    • 77957749180 scopus 로고    scopus 로고
    • Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
    • Rubinstein YR, Groft SC, Bartek R et al. (2010) Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). Contemp Clin Trials 31:394-404
    • (2010) Contemp Clin Trials , vol.31 , pp. 394-404
    • Rubinstein, Y.R.1    Groft, S.C.2    Bartek, R.3
  • 12
    • 80052975428 scopus 로고    scopus 로고
    • The international dystrophic epidermolysis bullosa patient registry: An online database of dystrophic epidermolysis bullosa patients and their COL7A1 mutations
    • van den Akker PC, Jonkman MF, Rengaw T et al. (2011) The international dystrophic epidermolysis bullosa patient registry: an online database of dystrophic epidermolysis bullosa patients and their COL7A1 mutations. Hum Mutat 32:1100-7
    • (2011) Hum Mutat , vol.32 , pp. 1100-1107
    • Van Den Akker, P.C.1    Jonkman, M.F.2    Rengaw, T.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.