Comparing Dutch Case management care models for people with dementia and their caregivers: The design of the COMPAS study

BMC Health Services Research

Volumn 12, Issue 1, 2012, Pages

  MacNeil Vroomen, Janet ^a   Van Mierlo, Lisa D ^b   Van De Ven, Peter M ^b   Bosmans, Judith E ^a   Van Den Dungen, Pim ^b   Meiland, Franka J M ^b   Dröes, Rose Marie ^b   Moll Van Charante, Eric P ^a   Van Der Horst, Henritte E ^b   De Rooij, Sophia E ^a   Van Hout, Hein P J ^b  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Case management; Clinical evaluation; Dementia; Design; Economic evaluation; Implementation; Informal caregivers; Process evaluation

Indexed keywords

AGED; ARTICLE; CAREGIVER; CASE MANAGEMENT; COHORT ANALYSIS; COMPARATIVE STUDY; DEMENTIA; ECONOMICS; FEMALE; HUMAN; MALE; METHODOLOGY; NETHERLANDS; NURSING; ORGANIZATION AND MANAGEMENT; PROSPECTIVE STUDY; QUESTIONNAIRE; THEORETICAL MODEL;

AGED; CAREGIVERS; CASE MANAGEMENT; COHORT STUDIES; DEMENTIA; FEMALE; HUMANS; MALE; MODELS, THEORETICAL; NETHERLANDS; PROSPECTIVE STUDIES; QUESTIONNAIRES; RESEARCH DESIGN;

EID: 84862179676     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-12-132     Document Type: Article

References (67)

1. Poos MMJC, Hoekstra J, Slobbe LCJ, Kosten van Ziekten in Nederland 2005 Rijksinstituut voor Volksgezondheid en Milieu, Bilthoven 2008
2. Prof Martin Prince, D.R.B.a.D.C.F., Alzheimers Disease International World Alzheimer Report, The benefits of early diagnosis and intervention, 2011, Institute of Psychiatry Kings College London, London 2011
3. World Alzheimer Report. International, A.s.D, World Alzheimer Report Alzheimers Disease International, PMJ JJ, 2009
4. Survival to late dementia in Dutch nursing home patients. Koopmans RT, Ekkerink JL, van Weel C, Journal of the American Geriatrics Society 2003 51 2 184 187 10.1046/j.1532-5415.2003.51056.x 12558714 (Pubitemid 36205846)
5. Survival times in people with dementia: analysis from population based cohort study with 14year follow-up. Xie J, Brayne C, Matthews FE, BMJ 2008 336 7638 258 262 10.1136/bmj.39433.616678.25 18187696 (Pubitemid 351251626)
6. Guideline for Integrated Dementia Care [excerpt]: An aid for the development of integrated dementia care. Ministry of Health, W.a.S, 2009 12
7. The psychological well-being of supporters of the demented elderly. Eagles JM, et al. The British journal of psychiatry: the journal of mental science 1987 150 293 298 10.1192/bjp.150.3.293 (Pubitemid 17036634)
8. The carers of people with dementia. Butler R, BMJ 2008 336 7656 1260 1261 10.1136/bmj.39567.647072.80 18505756 (Pubitemid 351839617)
9. Report., W.A, World Alzheimer Report 2009 2009
10. Nederland, A, Alzheimer Nederland factsheet 2010
11. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. Dunkin JJ, Anderson-Hanley C, Neurology 1998 51 1 Suppl 1 53 S60 discussion S65-7 9744836
12. Psychological well-being of informal caregivers of elderly people with dementia: changes over time. Pot AM, Deeg DJH, Van Dyck R, Aging & Mental Health 1997 1 261 268 10.1080/13607869757164 22837964 (Pubitemid 127536508)
13. Effect of Meeting Centres Support Program on feelings of competence of family carers and delay of institutionalization of people with dementia. Droes RM, et al. Aging & mental health 2004 8 3 201 211 10.1080/ 13607860410001669732 22837964 (Pubitemid 38639435)
14. Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. Droes RM, et al. International journal of geriatric psychiatry 2004 19 7 673 684 10.1002/gps.1142 15254924 (Pubitemid 38996845)
15. Interventions to reduce the burden of caregiving for an adult with dementia: a meta-analysis. Acton GJ, Kang J, Research in nursing & health 2001 24 5 349 360 10.1002/nur.1036 22837371 (Pubitemid 33604347)
16. Meta-analysis of psychosocial interventions for caregivers of people with dementia. Brodaty H, Green A, Koschera A, Journal of the American Geriatrics Society 2003 51 5 657 664 10.1034/j.1600-0579.2003.00210.x 12752841 (Pubitemid 36541430)
17. Effects of combined intervention programmes for people with dementia living at home and their caregivers: a systematic review. Smits CH, et al. International journal of geriatric psychiatry 2007 22 12 1181 1193 10.1002/gps.1805 17457793 (Pubitemid 350285422)
18. Unmet care needs and key outcomes in dementia. Gaugler JE, et al. Journal of the American Geriatrics Society 2005 53 12 2098 2105 10.1111/j.1532-5415. 2005.00495.x 16398893 (Pubitemid 43001189)
19. Health Council of the Netherlands, Dementia, Health Council of the Netherlands Health Council of the Netherlands, The Hague 2002 21 31
20. Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the National Dementia Programme. Peeters JM, et al. BMC nursing 2010 9 9 10.1186/1472-6955-9-9 20529271
21. Validity and reliability of the Dutch version of the Camberwell Assessment of Need for the Elderly in community-dwelling people with dementia. van der Roest HG, et al. International psychogeriatrics/IPA 2008 20 6 1273 1290 10.1017/S1041610208007400 18554426
22. Case management Society United Kingdom, What is Case management? 2011 [cited 2011 August 10, 2011]
23. Improving primary care for patients with chronic illness: the chronic care model, Part 2. Bodenheimer T, Wagner EH, Grumbach K, JAMA: the journal of the American Medical Association 2002 288 15 1909 1914 10.1001/jama.288.15.1909 (Pubitemid 35168149)
24. Improving primary care for patients with chronic illness. Bodenheimer T, Wagner EH, Grumbach K, JAMA: the journal of the American Medical Association 2002 288 14 1775 1779 10.1001/jama.288.14.1775
25. Guided care for multimorbid older adults. Boyd CM, et al. The Gerontologist 2007 47 5 697 704 10.1093/geront/47.5.697 17989412 (Pubitemid 350156066)
26. Behavioural and psychological symptoms of dementia: a seven-tiered model of service delivery. Brodaty H, Draper BM, Low LF, The Medical journal of Australia 2003 178 5 231 234 12603188 (Pubitemid 36329218)
27. Effectiveness of case management among older adults with early symptoms of dementia and their primary informal caregivers: a randomized clinical trial. Jansen AP, et al. International journal of nursing studies 2011 48 8 933 943 10.1016/j.ijnurstu.2011.02.004 21356537
28. Helping caregivers of persons with dementia: which interventions work and how large are their effects? Pinquart M, Sorensen S, International psychogeriatrics/IPA 2006 18 4 577 595 10.1017/S1041610206003462 16686964 (Pubitemid 44622993)
29. Dementia case management effectiveness on health care costs and resource utilization: a systematic review of randomized controlled trials. Pimouguet C, et al. The journal of nutrition, health & aging 2010 14 8 669 676 10.1007/s12603-010-0314-4 22833661
30. Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Schoenmakers B, Buntinx F, Delepeleire J, Maturitas 2010 66 2 191 200 10.1016/j.maturitas.2010.02.009 20307942
31. A systematic review of different models of home and community care services for older persons. Low LF, Yap MH, Brodaty H, BMC health services research 2011 11 1 93 10.1186/1472-6963-11-93 21549010
32. Supporting the dementia family caregiver: the effect of home care intervention on general well-being. Schoenmakers B, Buntinx F, DeLepeleire J, Aging & mental health 2010 14 1 44 56 10.1080/13607860902845533 22837964
33. Integrated dementia care in The Netherlands: a multiple case study of case management programmes. Minkman MM, Ligthart SA, Huijsman R, Health & social care in the community 2009 17 5 485 494 10.1111/j.1365-2524.2009.00850.x 22838031
34. Case management. Banks P, Integrating services for older people-A resource book for managers EHMA, Berman NPC, 2004 101 112
35. Ligthart, S.A., Aanpak en effecten van casemanagement bij dementie. Een exploratieve studie in het kader van het Landelijk Dementieprogramma, in Kwaliteitsinstituut voor de Gezondheidszorg CBO2006, Radboud Universiteit Nijmegen
36. (Cost)-effectiveness of case-management by district nurses among primary informal caregivers of older adults with dementia symptoms and the older adults who receive informal care: design of a randomized controlled trial [ISCRTN83135728]. Jansen AP, et al. BMC public health 2005 5 133 10.1186/1471-2458-5-133 16343336 (Pubitemid 43116803)
37. The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Cummings JL, et al. Neurology 1994 44 12 2308 2314 10.1212/WNL.44.12.2308 7991117 (Pubitemid 24382728)
38. A scaled version of the General Health Questionnaire. Goldberg DP, Hillier VF, Psychological medicine 1979 9 1 139 145 10.1017/S0033291700021644 424481 (Pubitemid 9128448)
39. The Neuropsychiatric Inventory: assessing psychopathology in dementia patients. Cummings JL, Neurology 1997 48 5 Suppl 6 10 S16 9153155
40. Predictive factors of emergency hospitalisation in Alzheimers patients: results of one-year follow-up in the REAL.FR Cohort. Balardy L, et al. The journal of nutrition, health & aging 2005 9 2 112 116 22833661 (Pubitemid 40478068)
41. Communication problems between dementia carers and general practitioners: effect on access to community support services. Bruce DG, et al. The Medical journal of Australia 2002 177 4 186 188 12175321 (Pubitemid 35021428)
42. Effectiveness of collaborative care for older adults with Alzheimer disease in primary care: a randomized controlled trial. Callahan CM, et al. JAMA: the journal of the American Medical Association 2006 295 18 2148 2157 10.1001/jama.295.18.2148
43. The effect of a disease management intervention on quality and outcomes of dementia care: a randomized, controlled trial. Vickrey BG, et al. Annals of internal medicine 2006 145 10 713 726 17116916 (Pubitemid 351650351)
44. The reliability of the twelve-item general health questionnaire (GHQ-12) under realistic assumptions. Hankins M, BMC public health 2008 8 355 10.1186/1471-2458-8-355 18854015
45. Assessing quality of life in older adults with cognitive impairment. Logsdon RG, et al. Psychosomatic medicine 2002 64 3 510 519 12021425 (Pubitemid 34556417)
46. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Ware J, Kosinski M, Keller SD, Medical care 1996 34 3 220 233 10.1097/00005650-199603000-00003 8628042 (Pubitemid 126433231)
47. Performance of the EQ-5D and the EQ-5D+C in elderly patients with cognitive impairments. Wolfs CA, et al. Health and quality of life outcomes 2007 5 33 10.1186/1477-7525-5-33 17570832 (Pubitemid 47045980)
48. Camberwell Assessment of Need for the Elderly (CANE). Development, validity and reliability. Reynolds T, et al. The British journal of psychiatry: the journal of mental science 2000 176 444 452 10.1192/bjp.176.5.444 (Pubitemid 30249621)
49. Mini-mental state. A practical method for grading the cognitive state of patients for the clinician. Folstein MF, Folstein SE, McHugh PR, Journal of psychiatric research 1975 12 3 189 198 10.1016/0022-3956(75)90026-6 1202204
50. Progress in development of the index of ADL. Katz S, et al. The Gerontologist 1970 10 1 20 30 10.1093/geront/10.1-Part-1.20 5420677
51. Assessment of caregivers competence in dealing with the burden of caregiving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. Vernooij-Dassen MJ, et al. Journal of the American Geriatrics Society 1999 47 2 256 257 9988301 (Pubitemid 29082730)
52. The structure of coping. Pearlin LI, Schooler C, Journal of health and social behavior 1978 19 1 2 21 10.2307/2136319 649936 (Pubitemid 8303939)
53. EuroQol - a new facility for the measurement of health-related quality of life. The EuroQol Group, Health policy 1990 16 3 199 208 10109801
54. The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Brouwer WB, et al. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation 2006 15 6 1005 1021 10.1007/s11136-005-5994-6 (Pubitemid 44221454)
55. The health status of the Dutch population as assessed by the EQ-6D. Hoeymans N, van Lindert H, Westert GP, Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation 2005 14 3 655 663 10.1007/s11136-004-1214-z (Pubitemid 40576852)
56. Facilitators and barriers in the implementation of the meeting centres model for people with dementia and their carers. Meiland FJ, et al. Health policy 2005 71 2 243 253 10.1016/j.healthpol.2004.08.011 15607386 (Pubitemid 39647634)
57. Dröes RM, Meiland FJM, Schmitz MJ, Vernooij-Dassen MJFJ, De Lange J, Derksen E, Boerema I, Grol RPTM, Van Tilburg W, Implementation Meeting Centers Model; A Study into the Conditions for Successful Nationwide Implementation of Meeting Centers for People with Dementia and Their Carers.(In Dutch) Afdeling Psychiatrie, VU Medisch Centrum, Amsterdam 2003 22237445
58. Delphi research exploring essential components and preconditions for case management in people with dementia. Verkade PJ, et al. BMC geriatrics 2010 10 54 10.1186/1471-2318-10-54 20696035
59. The effectiveness of a home care program for supporting caregivers of persons with dementia in developing countries: a randomised controlled trial from Goa, India. Dias A, et al. PloS one 2008 3 6 2333 10.1371/journal.pone. 0002333 18523642
60. The central role of the propensity score in observational studies for causal effects. ROSENBAUM PR, DB RUBIN, Biometrika 1983 70 1 41 55 10.1093/biomet/70.1.41
61. Causal effects in clinical and epidemiological studies via potential outcomes: concepts and analytical approaches. Little RJ, Rubin DB, Annual review of public health 2000 21 121 145 10.1146/annurev.publhealth.21.1.121 10884949 (Pubitemid 30480319)
62. Cost-effectiveness in clinical trials: using multiple imputation to deal with incomplete cost data. Burton A, Billingham LJ, Bryan S, Clin Trials 2007 4 2 154 161 10.1177/1740774507076914 17456514 (Pubitemid 46814850)
63. Missing data, imputation and the bootstrap. Efron B, JASA 1994 89 463 475
64. The CE plane: a graphic representation of cost-effectiveness. Black W, Med Decis Making 1990 10 212 214 10.1177/0272989X9001000308 2115096 (Pubitemid 20311440)
65. Cost-effectiveness acceptability curves-facts, fallacies and frequently asked questions. Fenwick E, OBrien BJ, Briggs A, Health Econ 2004 13 5 405 415 10.1002/hec.903 15127421 (Pubitemid 38660390)
66. Miles M, Huberman A, Qualitative Data Analysis Sage Publications, Thousand Oaks, CA 2 1994
67. Strengthening the Reporting of Observational Studies in Epidemiology (STROBE): explanation and elaboration. Vandenbroucke JP, et al. Epidemiology 2007 18 6 805 835 10.1097/EDE.0b013e3181577511 18049195 (Pubitemid 350295185)