Predicting mental health among mothers of school-aged children with developmental disabilities: The relative contribution of child, maternal and environmental factors

Research in Developmental Disabilities

Volumn 33, Issue 6, 2012, Pages 1732-1740

  Bourke Taylor, Helen ^a   Pallant, Julie F ^b   Law, Mary ^c   Howie, Linsey ^d  

^a MONASH UNIVERSITY   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c MCMASTER UNIVERSITY   (Canada)

^d LA TROBE UNIVERSITY   (Australia)

Author keywords

Caring; Developmental disability; Maternal health

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTENTION DEFICIT DISORDER; AUTISM; CAREGIVER BURDEN; CEREBRAL PALSY; CHILD; CHILD BEHAVIOR; CROSS-SECTIONAL STUDY; DEVELOPMENTAL DISORDER; EMOTIONALITY; EMPOWERMENT; ENVIRONMENTAL FACTOR; FEMALE; HEALTH CARE NEED; HEALTH PROMOTION; HUMAN; MAJOR CLINICAL STUDY; MALE; MATERNAL WELFARE; MENTAL HEALTH; MOTHER; PATIENT PARTICIPATION; POSTAL MAIL; PRESCHOOL CHILD; SCHOOL CHILD; SHORT FORM 36; SOCIAL PSYCHOLOGY;

ADOLESCENT; ADULT; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; CEREBRAL PALSY; CHILD; CHILD BEHAVIOR DISORDERS; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; DEVELOPMENTAL DISABILITIES; DOWN SYNDROME; EDUCATION; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SURVEYS; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; MOTHER-CHILD RELATIONS; MOTHERS; POWER (PSYCHOLOGY); QUESTIONNAIRES; SOCIAL ADJUSTMENT; SOCIAL ENVIRONMENT; STRESS, PSYCHOLOGICAL; VICTORIA;

EID: 84861993114     PISSN: 08914222     EISSN: 18733379     Source Type: Journal    
DOI: 10.1016/j.ridd.2012.04.011     Document Type: Article

References (44)

1. Bailey D.B., Golden R.N., Roberts J., Ford A. Maternal depression and developmental disability: A critique. Mental Retardation and Developmental Disabilities 2007, 13(3):321-329.
2. Black C. Women's Health: The new national agenda 2007.
3. Borkan J. Mixed methods studies: A foundation for primary care research. Annals of Family Medicine 2004, 2(1):4-6.
4. Bourke-Taylor H., Howie L., Law M., Pallant J. Self reported mental health of mothers with a school aged child with a disability in Victoria: A mixed method study. Journal of Paediatrics and Child Health 2012, 48(2):153-159.
5. Bourke-Taylor H., Law M., Howie L., Pallant J.F. Development of the Health Promoting Activities Scale (HPAS) for measurement of mother's participation in leisure. American Journal of Occupational Therapy 2012, 66(1):e1-e10.
6. Bourke-Taylor H.M., Howie L., Law M. The preclusion of mothers of school aged children with disabilities from paid work and relationship to health related quality of life. Journal of Intellectual Disability Research 2011, 55(5.):511-520.
7. Bourke-Taylor H.M., Howie L., Law M. Impact of caring for a school aged child with a disability: Understanding mothers' perspectives. Australian Occupational Therapy Journal 2010, 57(2):127-136.
8. Bourke-Taylor H.M., Law M., Howie L., Pallant J.F. Development of the Assistance to Participate Scale (APS) for children's play and leisure activities. Child: Care, Health and Development 2009, 35(5):738-745.
9. Bourke-Taylor H.M., Law M., Howie L., Pallant J.F. Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities. Child: Care, Health and Development 2010, 36(4):491-498.
10. Brehaut J., Kohen D., Raina P., Walter S., Swindon M., O'Donnell M., et al. The health of primary carers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?. Pediatrics 2004, 114:e182-e191.
11. Butcher P.R., Wind T., Bouma A. Parenting stress in mothers and fathers of a child with a hemiparesis: Sources of stress, intervening factors and long term expressions of stress. Child: Care, Health and Development 2008, 34(4):530-541.
12. Carers Australia The economic value of informal care: Report by Access Economics Pty Ltd. 2005, Carers Australia.
13. Colver A. A shared framework and language for childhood disability. Developmental Medicine Child Neurology 2005, 47(11):780-784.
14. Colver A., Dickinson H.O., Parkinson K., Arnaud C., Beckung E., Fauconnier J., et al. Access of children with cerebral palsy to the physical, social and attitudinal environment they need: A cross sectional European study. Disability and Rehabilitation 2010, 33(1):28-35.
15. Creswell J., Fetters M., Ivankova N. Designing a mixed methods study in primary care. Annals of Family Medicine 2004, 2(1):7-12.
16. Crowe T., Florez S. Time use of mothers with school-age children: A continuing impact of a child's disability. American Journal of Occupational Therapy 2006, 60(2):194-203.
17. Epel E.S., Blackburn E.H., Lin J., Dhabhar F.S., Adler N.E., Morrow J.D., et al. Accelerated telomere shortening in response to life stress. Proceedings of the National Academy of Sciences 2004, 101(49):17312-17315.
18. Feldman M., McDonald L., Serbin L., Stack D., Secco M.L., Yu C.T. Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research 2007, 51(8):606-619.
19. Green S.E. "We're tired not sad": Benefits and burdens of mothering a child with a disability. Social Science and Medicine 2007, 64:150-163.
20. Haley S., Coster W., Ludlow L., Haltiwanger J., Andrellos P. Pediatric Evaluation of Disability Inventory (PEDI) 1992, New England Medical Center Hospitals, Boston.
21. Hastings R.P., Daley D., Burns C., Beck A. Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal of Mental Retardation 2006, 111(1):48-61.
22. Hawthorne G., Osborne R.H., Taylor A., Sansoni J. The SF-36 Version 2: Critical analyses of population weights, scoring algorithms and population norms. Quality of Life Research 2007, 16:661-673.
23. Koren P.E., De Chillo N., Friesen B.J. Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology 1992, 37(4):305-321.
24. Law M., King G., King S., Kertoy M., Hurley P., Young N., et al. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Developmental Medicine and Child Neurology 2006, 48:337-342.
25. Llewellyn G., Thompson K., Whybrow S. Activism as a mothering occupation. Mothering occupations: Challenge, agency and participation 2004, 282-305. F.A. Davis and Company, Philadelphia. S. Esdaile, J. Olson (Eds.).
26. MacDermott S., Williams K., Ridley G., Glasson E., Wray J. The prevalence of autism in Australia: Can it be established from existing data? 2007, Autism Advisory Board on Autism Spectrum Disorders.
27. McGuire B., Crowe T., Law M., VanLeit B. Mothers of children with disabilities: Occupational concerns and solutions. Occupational Therapy Journal of Research 2004, 24(2):54-63.
28. Montes G., Halterman J. Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics 2007, 119(5):1040-1046.
29. Moos R.H., Moos B.S. Family environment scale manual: Development, applications and research 2002, Mind Garden, Palo Alto, CA. 3rd ed.
30. Morris C., Kurinczuk J., Fitzpatrick R., Rosenbaum P. Do the abilities of children with cerebral palsy explain their activities and participation?. Developmental Medicine Child Neurology 2006, 48(12):954-961.
31. Nachshen J.S., Minnes P. Empowerment in parents of school-aged children with and without developmental disabilities. Journal of Intellectual Disability Research 2005, 49(12):889-904.
32. Raina P., O'Donnell M., Rosenbaum P., Brehaut J., Walter S., Russell D., et al. The health and well being of caregivers of children with cerebral palsy. Pediatrics 2005, 115:e626-e636.
33. Shu B.C., Lung F.W. The effect of support groups on the mental health and quality of life for mothers with autistic children. Journal of Intellectual Disability Research 2005, 49(1):47-53.
34. Singer G. Meta-analysis of comparative studies of depression in mother's of children with and without developmental disabilities. American Journal of Mental Retardation 2006, 111(3):155-169.
35. Spector, Tampi R. Caregiver depression. Annals of Long Term Care 2005, 13(4):34-40.
36. Stewart D., Law M., Burke-Gaffney J., Missiuna C., Rosenbaum P., King G., et al. Keeping it together: Development and evaluation of an information KIT for parents of children and youth with special needs. Child: Care, Health and Development 2006, 32(4):493-500.
37. Tabachnick B.G., Fidell L.S. Using multivariate statistics 2007, Pearson Education, Boston. 5th ed.
38. Thomas R.M. Blending qualitative and quantitative research methods in theses and dissertations 2003, Corwin Press, Inc., Thousand Oaks, CA.
39. Thyen U., Kuhlthau K., Perrin J. Employment, child care and mental health of mothers caring for children assisted by technology. Pediatrics 1999, 103(6):1235-1242.
40. Tomanik S., Harris G.E., Hawkins J. The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability 2004, 29(1):16-26.
41. Varni J.W., Seid M., Kurtin P.S. The PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care 2001, 39:800-812.
42. Ware J.E., Kosinski M., Dewey J.E. How to score version 2 of the SF-36 Health Survey (standard and acute forms) 2002, Quality Metric Incorporated, Lincoln, RI.
43. World Health Organization International Classification of Functioning, Disability and Health 2001, World Health Organization, Geneva.
44. Wright F., Rosenbaum P., Goldsmith C., Law M., Fehlings D. How do changes in body functions and structures, activity, and participation relate in children with cerebral palsy?. Developmental Medicine Child Neurology 2008, 50:283-289.