The multiple sclerosis work difficulties questionnaire

Multiple Sclerosis Journal

Volumn 18, Issue 6, 2012, Pages 871-880

  Honan, Cynthia A ^a   Brown, Rhonda F ^a   Hine, Donald W ^a   Vowels, Lindsay ^b   Wollin, Judy A ^c   Simmons, Rex D ^d   Pollard, John D ^e  

^a UNIVERSITY OF NEW ENGLAND   (Australia)

^b Griffith University ^*

^c GRIFFITH UNIVERSITY   (Australia)

^d CANBERRA HOSPITAL   (Australia)

^e UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Cognition; employment; measurement development; multiple sclerosis; patient reported outcomes; psychometrics; vocational rehabilitation

Indexed keywords

ADULT; AGED; ARTICLE; BALANCE IMPAIRMENT; BLADDER DISEASE; COGNITIVE DEFECT; CROSS-SECTIONAL STUDY; EMPLOYMENT STATUS; FATIGUE; FEMALE; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MALE; MEMORY DISORDER; MULTIPLE SCLEROSIS; MULTIPLE SCLEROSIS WORK DIFFICULTIES QUESTIONNAIRE; QUESTIONNAIRE; SELF ESTEEM; SELF REPORT; WORK DISABILITY; WORKING TIME; WORKPLACE;

EID: 84861822002     PISSN: 13524585     EISSN: 14770970     Source Type: Journal    
DOI: 10.1177/1352458511431724     Document Type: Article

References (39)

1. Aronson KJ. Quality of life among persons with multiple sclerosis and their caregivers. Neurology. 1997 ; 48: 74-80
2. Benedict RHB, Wahlig E, Bakshi R, Fishman I, Munschauer F, Zivadinov R, et al. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci. 2005 ; 231: 29-34
3. Miller A, Dishon S. Health-related quality of life in multiple sclerosis: The impact of disability, gender and employment status. Qual Life Res. 2006 ; 15: 259-271
4. Simmons RD. Life issues in multiple sclerosis. Nat Rev Neurol. 2010 ; 6: 603-610
5. Simmons RD, Tribe KL, McDonald EA. Living with multiple sclerosis: longitudinal changes in employment and the importance of symptom management. J Neurol. 2010 ; 257: 926-936
6. Julian LJ, Vella L, Vollmer T, Hadjimichael O, Mohr DC. Employment in multiple sclerosis: Exiting and re-entering the work force. J Neurol. 2008 ; 255: 1354-1360
7. Gulick EE, Yam M, Touw MM. Work performance by persons with multiple sclerosis: conditions that impede or enable the performance of work. Int J Nurs Stud. 1989 ; 26: 301-311
8. Larocca N, Kalb R, Scheinberg L, Kendall P. Factors associated with unemployment of patients with multiple sclerosis. J Chron Dis. 1985 ; 38: 203-210
9. Scheinberg L, Holland NJ, Larocca N, Laitin P, Hall H. Multiple sclerosis: Earning a living. NY State J Med. 1980 ; 80: 1395-1400
10. Kornblith AB, Larocca NG, Baum HM. Employment in individuals with multiple sclerosis. Int J Rehabil Res. 1986 ; 9: 155-165
11. Grønning M, Hannisdal E, Mellgren SI. Multivariate analyses of factors associated with unemployment in people with multiple sclerosis. J Neurol Neurosurg Psychiatry. 1990 ; 53: 388-390
12. Busche KD, Fisk JD, Murray TJ, Metz LM. Short-term predictors of unemployment in multiple sclerosis patients. Can J Neurol Sci. 2003 ; 30: 137-142
13. Genevie L, Kallos JE, Struening EL. Job retention among people with multiple sclerosis. J Neurol Rehabil. 1987 ; 1: 131-135
14. Hammond SR, LMcLeod JG, Macaskill P, English DR. Multiple sclerosis in Australia: socioeconomic factors. J Neurol Neurosurg Psychiatry. 1996 ; 61: 311-313
15. Verdier-Taillefer MH, Sazdovitch V, Borgel F, Cesaro P, Kutz A. Occupational environment as risk factor for unemployment in multiple sclerosis. Acta Neurol Scand. 1995 ; 92: 59-62
16. Beatty WW, Blanco CR, Wilbanks SL, Paul RH, Hames KA. Demographic, clinical, and cognitive characteristics of multiple sclerosis patients who continue to work. J Neurol Rehabil. 1995 ; 9: 167-173
17. Bailey A, Channon S, Beaumont JG. The relationship between subjective fatigue and cognitive fatigue in advanced multiple sclerosis. Mult Scler. 2007 ; 13: 73-80
18. Benedict RHB, Duquin JA, Jurgensen S, Rudick RA, Feitcher J, Munschauer FE, et al. Repeated assessment of neuropsychological deficits in multiple sclerosis using the Symbol Digit Modalities Test and the MS Neuropsychological Screening Questionnaire. Mult Scler. 2008 ; 14: 940-946
19. Maor Y, Olmer L, Mozes B. The relation between objective and subjective impairments in cognitive function among multiple sclerosis patients - the role of depression. Mult Scler. 2001 ; 7: 131-135
20. Goverover Y, Kalmar J, Gaudino-Goering E, Shawaryn M, Moore NB, Halper J, et al. The relation between subjective and objective measures of everyday life activities in persons with multiple sclerosis. Arch Phys Med Rehabil. 2005 ; 86: 2303-2308
21. Rumrill PD, Roessler RT, Koch LC. Surveying the employment concerns of people with multiple sclerosis: a participatory action research approach. J Vocat Rehabil. 1999 ; 12: 75-82
22. O'Connor RJ, Cano SJ, Torrentà LR, Thompson AJ, Playford ED. Factors influencing work retention for people with multiple sclerosis. J Neurol. 2005 ; 252: 1432-1459
23. Uccelli MM, Specchia C, Battaglia MA, Miller DM. Factors that influence the employment status of people with multiple sclerosis: a multi-national study. J Neurol. 2009 ; 256: 1989-1996
24. Benedict RHB, Zivadinov R. Predicting neuropsychological abnormalities in multiple sclerosis. J Neurol Sci. 2006 ; 245: 67-72
25. Smith MM, Arnett PA. Factors related to emloyment status changes in individuals with multiple sclerosis. Mult Scler. 2005 ; 11: 602-609
26. Edgley K, Sullivan M, Dehoux E. A survey of multiple sclerosis. Part 2. Determinants of employment status. Can J Rehabil. 1991 ; 4: 127-132
27. Haynes SN, Richard DC, Kubany ES. Content validity in psychological assessment: a functional approach to concepts and methods. Psychol Assess. 1995 ; 7: 238-247
28. Clark LA, Watson D. Constructing validity: Basic issues in objective scale development. Psychol Assess. 1995 ; 7: 309-319
29. Wollin JA, Fulcher G, McDonald E, Spencer N, Mortlock MY, Bourne M, et al. Psychosocial factors that influence quality of life and potential for self-management in multiple sclerosis. International Journal of MS Care. 2010 ; 12: 133-141
30. Ritvo PG, Fischer JS, Miller DM, Andrews H, Paty DW, LaRocca NG. Multiple Sclerosis Quality of Life Inventory: A User's Manual. New York: National Mulitple Sclerosis Society; ; 1997 :
31. Fabrigar LR, Wegener DT, MacCallum RC, Strahan EJ. Evaluating the use of exploratory factor analysis in psychological research. Psychol Bull. 1999 ; 4: 272-299
32. Cronbach L. Coefficient alpha and the internal consistency of tests. Psychometrica. 1951 ; 16: 297-334
33. Fleming JM, Shum D, Strong J, Lightbody S. Prospective memory rehabilitation for adults with traumatic brain injury: A compensatory training programme. Brain Injury. 2005 ; 19: 1-10
34. Ellis J, Kvavilashvili L. Prospective memory in 2000: Past, present, and future directions. Appl Cogn Psychol. 2000 ; 14: S1 - S9
35. Meier B, Zimmermann TD, Perrig WJ. Retrieval experience in prospective memory: Strategic monitoring and spontaneous retrieval. Memory. 2006 ; 14: 872-889
36. Martin M, Kliegel M, McDaniel MA. The involvement of executive functions in prospective memory performance of adults. Int J Psychol. 2003 ; 38: 195-206
37. Lovera J, Bagert B, Smoot KH, Wild K, Frank R, Bogardus K, et al. Correlations of Perceived Deficits Questionnaire of Multiple Sclerosis Quality of Life Inventory with Beck Depression Inventory and neuropsychological tests. J Rehabil Res Dev. 2006 ; 43: 73-82
38. Amato MP, Zipoli V, Portaccio E. Multiple sclerosis-related cognitive changes: A review of cross-sectional and longitudinal studies. J Neurol Sci. 2006 ; 245: 41-46
39. O'Day B. Barriers for people with multiple sclerosis who want to work: A qualitative study. J Neurol Rehabil. 1998 ; 12: 139-146