Comparison of American and European practices in the management of patients with primary immunodeficiencies

Clinical and Experimental Immunology

Volumn 169, Issue 1, 2012, Pages 57-69

  Hernandez Trujillo, H S ^a   Chapel, H ^g   Lo Re Iii, V ^b   Notarangelo, L D ^c   Gathmann, B ⁱ   Grimbacher, B ^h,i   Boyle, J M ^d   Hernandez Trujillo, V P ^f   Scalchunes, C ^e   Boyle, M L ^e   Orange, J S ^a  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c BOSTON CHILDREN S HOSPITAL   (United States)

^d Abt SRBI   (United States)

^e Immune Deficiency Foundation   (United States)

^f MIAMI CHILDREN'S HOSPITAL   (United States)

^g UNIVERSITY OF OXFORD   (United Kingdom)

^h UNIVERSITY COLLEGE LONDON   (United Kingdom)

ⁱ UNIVERSITY OF FREIBURG   (Germany)

Author keywords

AAAAI; ESID; IVIg; Primary immunodeficiency; Prophylactic antibiotics

Indexed keywords

ANTIBIOTIC AGENT; IMMUNOGLOBULIN;

ANTIBIOTIC THERAPY; ARTICLE; CLINICAL PRACTICE; CLINICAL PROTOCOL; COMPARATIVE STUDY; EUROPE; HEALTH CARE FINANCING; HUMAN; IMMUNE DEFICIENCY; IMMUNOTHERAPY; INTERNET; MEDICAL SOCIETY; NORTH AMERICA; PRIORITY JOURNAL; QUESTIONNAIRE;

ACADEMIES AND INSTITUTES; ANTI-BACTERIAL AGENTS; EUROPE; HUMANS; IMMUNOGLOBULINS, INTRAVENOUS; IMMUNOLOGIC DEFICIENCY SYNDROMES; INTERNET; NORTH AMERICA; PHYSICIAN'S PRACTICE PATTERNS; PRACTICE GUIDELINES AS TOPIC; QUESTIONNAIRES;

EID: 84861736225     PISSN: 00099104     EISSN: 13652249     Source Type: Journal    
DOI: 10.1111/j.1365-2249.2012.04588.x     Document Type: Article

References (15)

1. Al-Herz W, Bousfiha A, Casanova JL etal. Primary immunodeficiency diseases: an update on the classification from the International Union of Immunological Societies Expert Committee for Primary Immunodeficiency. Front Immunol 2011; 2:1-26.
2. de Vries E. Patient-centred screening for primary immunodeficiency: a multi-stage diagnostic protocol designed for non-immunologists. Clin Exp Immunol 2006; 145:204-14.
3. Lim MS, Elenitoba-Johnson KS. The molecular pathology of primary immunodeficiencies. J Mol Diagn 2004; 6:59-83.
4. Boyle JM, Buckley RH. Population prevalence of diagnosed primary immunodeficiency diseases in the United States. J Clin Immunol 2007; 27:497-502.
5. Yong PL, Boyle J, Ballow M etal. Use of intravenous immunoglobulin and adjunctive therapies in the treatment of primary immunodeficiencies: a working group report of and study by the Primary Immunodeficiency Committee of the American Academy of Allergy Asthma and Immunology. Clin Immunol 2010; 135:255-63.
6. Streiner DL, Norman GR. Health measurement scales : a practical guide to their development and use, 4th edn. Oxford/New York: Oxford University Press, 2008.
7. Lucas M, Lee M, Lortan J, Lopez-Granados E, Misbah S, Chapel H. Infection outcomes in patients with common variable immunodeficiency disorders: relationship to immunoglobulin therapy over 22 years. J Allergy Clin Immunol 2010; 125:1354-60 e4.
8. Skull S, Kemp A. Treatment of hypogammaglobulinaemia with intravenous immunoglobulin, 1973-93. Arch Dis Child 1996; 74:527-30.
9. Bonilla FA, Bernstein IL, Khan DA etal. Practice parameter for the diagnosis and management of primary immunodeficiency. Ann Allergy Asthma Immunol 2005; 94:S1-63.
10. Orange JS, Hossny EM, Weiler CR etal. Use of intravenous immunoglobulin in human disease: a review of evidence by members of the Primary Immunodeficiency Committee of the American Academy of Allergy, Asthma and Immunology. J Allergy Clin Immunol 2006; 117:S525-53.
11. Orange JS, Grossman WJ, Navickis RJ, Wilkes MM. Impact of trough IgG on pneumonia incidence in primary immunodeficiency: a meta-analysis of clinical studies. Clin Immunol 2010; 137:21-30.
12. Keszei AP, Novak M, Streiner DL. Introduction to health measurement scales. J Psychosom Res 2010; 68:319-23.
13. Seger RA. Modern management of chronic granulomatous disease. Br J Haematol 2008; 140:255-66.
14. Levinson DR. Intravenous immune globulin: medicare payment and availability OEI-03-05-00404: Office of the Inspector General, Department of Health and Human Services, 2007.
15. ESID diagnostic criteria for PID, 2005. Available at: