Maintaining Participation and Momentum in Longitudinal Research Involving High-Risk Families

Journal of Nursing Scholarship

Volumn 44, Issue 2, 2012, Pages 120-126

  Graziotti, Ann L ^a   Hammond, Jane ^b   Messinger, Daniel S ^c   Bann, Carla M ^b   Miller Loncar, Cynthia ^d   Twomey, Jean E ^d   Bursi, Charlotte ^e   Woldt, Eunice ^f   Ann Nelson, Jay ^f   Fleischmann, Debra ^b   Alexander, Barbara ^b  

^a UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

^b RTI INTERNATIONAL   (United States)

^c UNIVERSITY OF MIAMI   (United States)

^d BROWN UNIVERSITY   (United States)

^e UNIVERSITY OF TENNESSEE COLLEGE OF MEDICINE   (United States)

^f WAYNE STATE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Compliance; Longitudinal research; Participant retention; Tracking

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; COCAINE DEPENDENCE; CONSUMER; FAMILY; FEMALE; FOLLOW UP; HUMAN; INFANT; LONGITUDINAL STUDY; MALE; METHODOLOGY; OPIATE ADDICTION; PATIENT; PREGNANCY; PRENATAL EXPOSURE; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; RISK ASSESSMENT; STATISTICS;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; COCAINE-RELATED DISORDERS; CONSUMER PARTICIPATION; FAMILY; FEMALE; FOLLOW-UP STUDIES; HUMANS; INFANT; LONGITUDINAL STUDIES; MALE; OPIOID-RELATED DISORDERS; PATIENT DROPOUTS; PREGNANCY; PRENATAL EXPOSURE DELAYED EFFECTS; RISK ASSESSMENT;

EID: 84861715572     PISSN: 15276546     EISSN: 15475069     Source Type: Journal    
DOI: 10.1111/j.1547-5069.2012.01439.x     Document Type: Article

References (16)

1. Aitken, L., Gallagher, R., & Madronio, C. (2003). Principles of recruitment and retention in clinical trials. International Journal of Nursing Practice, 9, 338-346.
2. Bada, H. S., Langer, J., Twomey, J., Bursi, C., Lagasse, L., Bauer, C. R., ... Maza, P. L. (2008). Importance of stability of early living arrangements on behavior outcomes of children with and without prenatal drug exposure. Journal of Development and Behavioral Pediatrics, 29(2), 1-10.
3. Davis, L. L., Broome, M. E., & Cox, R. P. (2002). Maximizing retention in community-based clinical trials. Journal of Nursing Scholarship, 34(1), 47-53.
4. Ely, B., & Coleman, C. (2007). Recruitment and retention of children in longitudinal research. Journal for the Society of Pediatric Nursing, 12(3), 199-202.
5. Given, B. A., Keilman, L. J., Collins, C., & Givens, C. W. (1990). Strategies to minimize attrition in longitudinal studies. Nursing Research, 39(3), 184-188.
6. Gross, D., Julion, W., & Fogg, L. (2001). What motivates participation and dropout among low-income urban families of color in a prevention intervention? Family Relations, 50(3), 246-254.
7. Gul, R. B., & Ali, P. A. (2010). Clinical trials: The challenge of recruitment and retention of participants. Journal of Clinical Nursing, 19, 227-233.
8. Howard, J. (1991). Subject recruitment and retention issues in longitudinal research involving substance-abusing families: A clinical services context. National Institute on Drug Abuse Research, Monograph 117, Retrieved from
9. Lyons, K. S., Carter, J. H., Carter, E. H., Rush, K. N., Stewart, B. J., & Archbold, P. G. (2004). Locating and retaining research participants for follow-up studies. Research in Nursing and Health, 27(1), 63-68.
10. Marcellus, L. (2004). Are we missing anything? Pursuing research on attrition. Canadian Journal of Nursing Research, 36(3), 82-98.
11. McGregor, L., Parker, K., LeBlanc, P., & King, K. (2010). Using social exchange theory to guide successful study recruitment and retention. Nurse Researcher, 17(2), 74-82.
12. Moser, D. K., Dracup, K., & Doering, L. V. (2000). Factors differentiating dropouts from completers in a longitudinal, multicenter clinical trial. Nursing Research, 49(2), 109-116.
13. Ness, R. B. (2007). Influence of the HIPAA Privacy Rule on Health Research. Journal of the American Medical Association, 298(18), 2164-2170.
14. Ribisl, K. M., Walton, M. A., Mowbray, C. T., Luke, D. A., Davidson, W. S., & Bootsmiller, B. J. (1996). Minimizing participant attrition in panel studies through the use of effective retention and tracking strategies: Review and recommendations. Evaluation and Program Planning, 19(1), 1-25.
15. Robles, N., Flaherty, D. G., & Day, N. L. (1994). Retention of resistant subjects in longitudinal studies: Description and procedures. American Journal of Drug and Alcohol Abuse, 20(1), 87-100.
16. Zook, P.M., Jordan, C., Adams, B., Visness, C. M., Walter, M., Pollenz K., Gern, J. E., (2010). Retention strategies and predictors of attrition in an urban pediatric asthma study. Clinical Trials, 7(4), 400-410.