Knowledge of and preference for advance care planning by adults with congenital heart disease

American Journal of Cardiology

Volumn 109, Issue 12, 2012, Pages 1797-1800

  Tobler, Daniel ^a,c   Greutmann, Matthias ^b,c   Colman, Jack M ^c,d   Greutmann Yantiri, Mehtap ^c   Librach, S Lawrence ^e   Kovacs, Adrienne H ^c  

^a UNIVERSITY HOSPITAL BASEL   (Switzerland)

^b UNIVERSITY HOSPITAL ZURICH   (Switzerland)

^c UNIVERSITY HEALTH NETWORK   (Canada)

^d MOUNT SINAI HOSPITAL   (Canada)

^e UNIVERSITY OF TORONTO   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CONGENITAL HEART DISEASE; DOCTOR PATIENT RELATION; DYING; FEMALE; HEALTH CARE PLANNING; HEALTH STATUS; HUMAN; LIFE EXPECTANCY; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MENTAL HEALTH; PATIENT CARE; PATIENT PREFERENCE; POWER OF ATTORNEY; PRIORITY JOURNAL;

ADOLESCENT; ADULT; ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; AGED; DATA COLLECTION; DECISION MAKING; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEART DEFECTS, CONGENITAL; HUMANS; LIFE EXPECTANCY; MALE; MIDDLE AGED; OUTPATIENTS; PRACTICE GUIDELINES AS TOPIC; YOUNG ADULT;

EID: 84861589666     PISSN: 00029149     EISSN: 18791913     Source Type: Journal    
DOI: 10.1016/j.amjcard.2012.02.027     Document Type: Article

References (25)

1. C.A. Warnes, R.G. Williams, T.M. Bashore, J.S. Child, H.M. Connolly, J.A. Dearani, P. del Nido, J.W. Fasules, T.P. Graham Jr, Z.M. Hijazi, S.A. Hunt, M.E. King, M.J. Landzberg, P.D. Miner, M.J. Radford, E.P. Walsh, G.D. Webb ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults with Congenital Heart Disease) Circulation 118 suppl 2008 e714 e833
2. D. Tobler, M. Greutmann, J.M. Colman, M. Greutmann-Yantiri, L.S. Librach, A.H. Kovacs End-of-life in adults with congenital heart disease: a call for early communication Int J Cardiol 155 2010 383 387
3. J. Ware Jr, M. Kosinski, S.D. Keller A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity Med Care 34 1996 220 233
4. M.E. Lyon, M.A. McCabe, K.M. Patel, L.J. D'Angelo What do adolescents want? An exploratory study regarding end-of-life decision-making J Adolesc Health 35 suppl 2004 e1 e6
5. C.L. Verheugt, C.S. Uiterwaal, E.T. van der Velde, F.J. Meijboom, P.G. Pieper, A.P. van Dijk, H.W. Vliegen, D.E. Grobbee, B.J. Mulder Mortality in adult congenital heart disease Eur Heart J 31 2010 1220 1229
6. H.P. Nieminen, E.V. Jokinen, H.I. Sairanen Causes of late deaths after pediatric cardiac surgery: a population-based study J Am Coll Cardiol 50 2007 1263 1271
7. R.R. Davies, M.J. Russo, J. Yang, J.M. Quaegebeur, R.S. Mosca, J.M. Chen Listing and transplanting adults with congenital heart disease Circulation 123 2011 759 767
8. S.J. Goodlin Palliative care in congestive heart failure J Am Coll Cardiol 54 2009 386 396
9. S.J. Goodlin, P.J. Hauptman, R. Arnold, K. Grady, R.E. Hershberger, J. Kutner, F. Masoudi, J. Spertus, K. Dracup, J.F. Cleary, R. Medak, K. Crispell, I. Pina, B. Stuart, C. Whitney, T. Rector, J. Teno, D.G. Renlund Consensus statement: palliative and supportive care in advanced heart failure J Card Fail 10 2004 200 209
10. S.A. Hunt, W.T. Abraham, M.H. Chin, A.M. Feldman, G.S. Francis, T.G. Ganiats, M. Jessup, M.A. Konstam, D.M. Mancini, K. Michl, J.A. Oates, P.S. Rahko, M.A. Silver, L.W. Stevenson, C.W. Yancy, E.M. Antman, S.C. Smith, C.D. Adams, J.L. Anderson, D.P. Faxon, V. Fuster, J.L. Halperin, L.F. Hiratzka, A.K. Jacobs, R. Nishimura, J.P. Ornato, R.L. Page, B. Riegel ACC/AHA 2005 guideline update for the diagnosis and management of chronic heart failure in the adult: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: endorsed by the Heart Rhythm Society Circulation 112 suppl 2005 e154 e235
11. Heart Failure Society Disease management in heart failure J Card Fail 12 suppl 2006 e58 e69
12. E.N. Oechslin, D.A. Harrison, M.S. Connelly, G.D. Webb, S.C. Siu Mode of death in adults with congenital heart disease Am J Cardiol 86 2000 1111 1116
13. D. Tobler, M. Greutmann, J.M. Colman, M. Greutmann-Yantiri, L.S. Librach, A.H. Kovacs End-of-life care in hospitalized adults with complex congenital heart disease: care delayed, care denied Palliat Med 26 2012 72 79
14. N.A. Christakis, T.J. Iwashyna Attitude and self-reported practice regarding prognostication in a national sample of internists Arch Intern Med 158 1998 2389 2395
15. T.J. Iwashyna, N.A. Christakis Physicians, patients, and prognosis West J Med 174 2001 253 254
16. E.J. Emanuel, D.L. Fairclough, P. Wolfe, L.L. Emanuel Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful? Arch Intern Med 164 2004 1999 2004
17. D.E. Meier, A.L. Back, R.S. Morrison The inner life of physicians and care of the seriously ill JAMA 286 2001 3007 3014
18. J.R. Curtis, M.D. Wenrich, J.D. Carline, S.E. Shannon, D.M. Ambrozy, P.G. Ramsey Understanding physicians' skills at providing end-of-life care perspectives of patients, families, and health care workers J Gen Intern Med 16 2001 41 49
19. W. Langewitz, M. Nubling, H. Weber Hospital patients' preferences for involvement in decision-making A questionnaire survey of 1040 patients from a Swiss university hospital Swiss Med Wkly 136 2006 59 64
20. L. Fallowfield, V. Jenkins, V. Farewell, J. Saul, A. Duffy, R. Eves Efficacy of a Cancer Research UK communication skills training model for oncologists: a randomised controlled trial Lancet 359 2002 650 656
21. R. Buckman Communication skills in palliative care: a practical guide Neurol Clin 19 2001 989 1004
22. S.W. Salmond, E. David Attitudes toward advance directives and advance directive completion rates Orthop Nurs 24 2005 117 127
23. J.L. McAdam, N.A. Stotts, G. Padilla, K. Puntillo Attitudes of critically ill Filipino patients and their families toward advance directives Am J Crit Care 14 2005 17 25
24. I.J. Higginson, G.J. Sen-Gupta Place of care in advanced cancer: a qualitative systematic literature review of patient preferences J Palliat Med 3 2000 287 300
25. S. Barclay, A. Arthur Place of death: how much does it matter? The priority is to improve end-of-life care in all settings Br J Gen Pract 58 2008 229 231