Clinicians Poorly Assess Health Literacy-Related Readiness for Transition to Adult Care in Adolescents With Inflammatory Bowel Disease

Clinical Gastroenterology and Hepatology

Volumn 10, Issue 6, 2012, Pages 626-632

  Huang, Jeannie S ^a   Tobin, Allison ^a   Tompane, Trevor ^a  

^a UNIVERSITY OF CALIFORNIA SAN DIEGO   (United States)

Author keywords

Adolescence; Chronic Disease Management; Education; Transition to Adulthood

Indexed keywords

ADOLESCENT; ARTICLE; CAUCASIAN; CHILD; CLINICAL ASSESSMENT; CONTROLLED STUDY; DEMOGRAPHY; DOCTOR PATIENT RELATION; ENTERITIS; FEMALE; HEALTH LITERACY; HUMAN; LOWEST INCOME GROUP; MAJOR CLINICAL STUDY; MALE; PATIENT CARE; PEDIATRIC HOSPITAL;

ADOLESCENT; CHILD; FEMALE; HEALTH LITERACY; HUMANS; INFLAMMATORY BOWEL DISEASES; MALE; PHYSICIANS; PROFESSIONAL COMPETENCE; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84861337372     PISSN: 15423565     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.cgh.2012.02.017     Document Type: Article

References (44)

1. Challenges in adolescent health care 2007, Committee on Adolescent Health Care Services NRC, Institute of Medicine, National Academies Press, Washington, DC.
2. Healthy people 2020 2010, Accessed March 21, 2011. http://www.healthypeople.gov/2020/topicsobjectives2020/pdfs/HP2020objectives.pdf.
3. Transition: getting it right for young people-improving the transition of young people with long term conditions from children's to adult health services 2006, Department of Health/Child Health and Maternity Services Branch, Department of Health, London, UK.
4. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002, 110:1304-1306. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine.
5. Baldassano R., Ferry G., Griffiths A., et al. Transition of the patient with inflammatory bowel disease from pediatric to adult care: recommendations of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. J Pediatr Gastroenterol Nutr 2002, 34:245-248.
6. Pinzon J.L., Jacobson K., Reiss J. Say goodbye and say hello: the transition from pediatric to adult gastroenterology. Can J Gastroenterol 2004, 18:735-742.
7. Healthy people 2010: understanding and improving health 2000, United States Department of Health and Human Services, United States Department of Health and Human Services, Washington, DC.
8. Nutbeam D. Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promot Int 2000, 15:259-267.
9. Health literacy: a prescription to end confusion 2004, Institute of Medicine, National Academies Press, Washington, DC.
10. Turner T., Cull W.L., Bayldon B., et al. Pediatricians and health literacy: descriptive results from a national survey. Pediatrics 2009, 124(Suppl 3):S299-S305.
11. Parker R.M., Baker D.W., Williams M.V., et al. The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills. J Gen Intern Med 1995, 10:537-541.
12. Chisolm D.J., Buchanan L. Measuring adolescent functional health literacy: a pilot validation of the Test of Functional Health Literacy in Adults. J Adolesc Health 2007, 41:312-314.
13. Julian T.W., Kelleher K., Julian D.A., et al. Using technology to enhance prevention services for children in primary care. J Prim Prev 2007, 28:155-165.
14. Eaden J.A., Abrams K., Mayberry J.F. The Crohn's and Colitis Knowledge score: a test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 1999, 94:3560-3566.
15. Boamah L.M., Bohren J.R., Pentiuk S., et al. Development and testing of a CD-ROM program for improving adolescent knowledge of inflammatory bowel disease. J Pediatr Gastroenterol Nutr 2010, 50:521-525.
16. Turner D., Otley A.R., Mack D., et al. Development, validation, and evaluation of a pediatric ulcerative colitis activity index: a prospective multicenter study. Gastroenterology 2007, 133:423-432.
17. Shepanski M.A., Markowitz J.E., Mamula P., et al. Is an abbreviated Pediatric Crohn's Disease Activity Index better than the original?. J Pediatr Gastroenterol Nutr 2004, 39:68-72.
18. Fleiss J.L. Statistical methods for rates and proportions 1981, John Wiley, New York. 2nd ed.
19. DeWalt D.A., Hink A. Health literacy and child health outcomes: a systematic review of the literature. Pediatrics 2009, 124(Suppl 3):S265-S274.
20. Kelly P.A., Haidet P. Physician overestimation of patient literacy: a potential source of health care disparities. Patient Educ Couns 2007, 66:119-122.
21. Lindau S.T., Tomori C., Lyons T., et al. The association of health literacy with cervical cancer prevention knowledge and health behaviors in a multiethnic cohort of women. Am J Obstet Gynecol 2002, 186:938-943.
22. Britto M.T., Slap G.B., DeVellis R.F., et al. Specialists understanding of the health care preferences of chronically ill adolescents. J Adolesc Health 2007, 40:334-341.
23. Sanders L.M., Federico S., Klass P., et al. Literacy and child health: a systematic review. Arch Pediatr Adolesc Med 2009, 163:131-140.
24. Manganello J.A. Health literacy and adolescents: a framework and agenda for future research. Health Educ Res 2008, 23:840-847.
25. Andrus M.R., Roth M.T. Health literacy: a review. Pharmacotherapy 2002, 22:282-302.
26. Kountz D.S. Strategies for improving low health literacy. Postgrad Med 2009, 121:171-177.
27. Jotkowitz A., Porath A. Health literacy, access to care and outcomes of care. Am J Bioeth 2007, 7:25-27. discussion W1-W2.
28. Hait E.J., Barendse R.M., Arnold J.H., et al. Transition of adolescents with inflammatory bowel disease from pediatric to adult care: a survey of adult gastroenterologists. J Pediatr Gastroenterol Nutr 2009, 48:61-65.
29. van Staa A., van der Stege H.A., Jedeloo S., et al. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health 2011, 48:295-302.
30. Wadsworth B.J. Piagets theory of cognitive and affective development: foundations of constructivism 2003, Allyn & Bacon, Upper Saddle River, NJ. 5th ed.
31. The health literacy of America's adults results from the 2003 National Assessment of Adult Literacy 2006, Accessed March 21, 2011. http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2006483.
32. Yin H.S., Johnson M., Mendelsohn A.L., et al. The health literacy of parents in the United States: a nationally representative study. Pediatrics 2009, 124(Suppl 3):S289-S298.
33. Olives T., Patel R., Patel S., et al. Health literacy of adults presenting to an urban ED. Am J Emerg Med 2011, 29:875-882.
34. Riley G.A., Baah-Odoom D. Belief in a just world, generalised self-efficacy and stigma may contribute to unsafe sexual intentions via a reduced perception of vulnerability to HIV/AIDS amongst young people in Ghana. AIDS Care 2011 Nov 17, [Epub ahead of print].
35. Wickman M., Greenberg C., Boren D. The relationship of perception of invincibility, demographics, and risk behaviors in adolescents of military parents. J Pediatr Health Care 2010, 24:25-33.
36. Roberts S.T., Kennedy B.L. Why are young college women not using condoms?. Their perceived risk, drug use, and developmental vulnerability may provide important clues to sexual risk. Arch Psychiatr Nurs 2006, 20:32-40.
37. Callahan S.T., Winitzer R.F., Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 2001, 13:310-316.
38. Paasche-Orlow M.K., Wolf M.S. Evidence does not support clinical screening of literacy. J Gen Intern Med 2008, 23:100-102.
39. Sudore R.L., Schillinger D. Interventions to improve care for patients with limited health literacy. J Clin Outcomes Manag 2009, 16:20-29.
40. Hearth-Holmes M., Murphy P.W., Davis T.C., et al. Literacy in patients with a chronic disease: systemic lupus erythematosus and the reading level of patient education materials. J Rheumatol 1997, 24:2335-2339.
41. Cavanaugh K.L., Wingard R.L., Hakim R.M., et al. Low health literacy associates with increased mortality in ESRD. J Am Soc Nephrol 2010, 21:1979-1985.
42. Schillinger D., Grumbach K., Piette J., et al. Association of health literacy with diabetes outcomes. JAMA 2002, 288:475-482.
43. Parker R., Ratzan S.C. Health literacy: a second decade of distinction for Americans. J Health Commun 2010, 15(Suppl 2):20-33.
44. Berkman N.D., Sheridan S.L., Donahue K.E., et al. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med 2011, 155:97-107.