Career Barriers Experienced by People with Chronic Illness: A U.S. Study

Employee Responsibilities and Rights Journal

Volumn 24, Issue 2, 2012, Pages 91-110

  Beatty, Joy E ^a  

^a UNIVERSITY OF MICHIGAN DEARBORN   (United States)

Author keywords

Career barriers; Chronic illness; Disability

Indexed keywords

EID: 84861190860     PISSN: 08927545     EISSN: 15733378     Source Type: Journal    
DOI: 10.1007/s10672-011-9177-z     Document Type: Article

References (52)

1. AHRQ. (2009). Medical expenditure panel survey: Health insurance coverage. Rockville, MD: Retrieved from http://www. meps. ahrq. gov/mepsweb/data_stats/summ_tables/hc/hlth_insr/2009/t1_a09. pdf.
2. Allaire, S. H., Li, W., & LaValley, M. P. (2003). Reduction of job loss in persons with rheumatic diseases receiving vocational rehabilitation. Arthritis and Rheumatism, 48(11), 3212-3218.
3. Americans with Disabilities Act of 1990, 101-336 C. F. R. § 2 (1991).
4. Bautista, R. E. D., & Wludyka, P. (2006). Driving prevalence and factors associated with driving among patients with epilepsy. Epilepsy & Behavior, 9(4), 625-631.
5. Brault, M. W., Hootman, J., Helmick, C. G., Theis, K. S., Armour, B. S. (2009). Prevalence and most common causes of disability among adults-United States, 2005 Morbidity & mortality weekly report, vol. 58 (pp. 421-426). Centers for Disease Control. Atlanta, GA.
6. Brown, S. D., & Lent, R. W. (1996). A social cognitive framework for career choice counseling. Career Development Quarterly, 44(4), 354-366.
7. Bury, M. (1982). Chronic illness as biological disruption. Sociology of Health & Illness, 4(2), 167-182.
8. Centers for Disease Control and Prevention. (2009). Chronic diseases at a glance 2009. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion.
9. Charmaz, K. (1983). Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168-195.
10. Chase, S. E. (2005). Narrative inquiry: Multiple lenses, approaches, voices. In N. K. Denzin & Y. S. Lincoln (Eds.), Sage handbook of qualitative methods (3rd ed., pp. 651-679). Thousand Oaks: Sage.
11. Corbin, J., & Strauss, A. (1987). Accompaniments of chronic illness: Changes in body, self, biography, and biographical time. In J. Roth & P. Conrad (Eds.), Research in the sociology of health care, vol. 6 (pp. 249-281). Greenwich: JAI.
12. Daly, M. C., & Bound, J. (1996). Worker adaptation and employer accommodation following the onset of a health impairment. Journals of Gerontology, 51B(2), S53-S60.
13. Department of the Army. (2010). Standards of medical fitness. (Army Regulation 40-501, Rapid Action Revision). Washington, DC.
14. Devins, G. M., Edworthy, S. M., Seland, P., Klein, G. M., Paul, L. C., & Mandin, H. (1993). Differences in illness intrusiveness across rheumatoid arthritis, end-stage renal disease, and multiple sclerosis. The Journal of Nervous and Mental Disease, 181(6), 377-381.
15. Fabian, E. S., Etheridge, G., & Beveridge, S. (2009). Differences in perceptions of career barriers and supports for people with disabilities by demographic, background, and case status factors. Journal of Rehabilitation, 75(1), 41-49.
16. Giddens, A. (1979). Central problems in social theory. London: Macmillan.
17. Giddens, A. (1991). Modernity and self identity. Cambridge: Polity.
18. Goffman, E. (1959). The presentation of self in everyday life. New York: Doubleday.
19. Hall, D. T. (2002). Careers in and out of organizations. Thousand Oaks: Sage.
20. Joffe, R., & Friedlander, J. (2008). Women, work, and autoimmune disease: Keep working, girlfriend! New York: Demos Medical Publishing.
21. Johnson, R. (2007). Should people work longer, and will they? Washington: Urban Institute.
22. Kane, R. L., Priester, R., & Totten, A. M. (2005). Meeting the challenge of chronic illness. Baltimore: Johns Hopkins University Press.
23. Krumholz, A. (2009). Driving issues in epilepsy: Past, present, and future. Epilepsy Currents, 9(2), 31-35.
24. LaPlante, M. P. (1996). Disability statistics abstract, Health conditions and impairments causing disability. Disability Statistics Abstract, 16 Retrieved June 4, 2011, from http://dsc. ucsf. edu/pub_listing. php?pub_type=abstract.
25. Lent, R. W., Brown, S. D., & Hackett, G. (2000). Contextual supports and barriers to career choice: A social cognitive analysis. Journal of Counseling Psychology, 47(1), 36-49.
26. Martin, D. J., Brooks, R. A., Ortiz, D. J., & Veniegas, R. C. (2003). Perceived employment barriers and their relation to workforce-entry intent among people with HIV/AIDS. Journal of Occupational Health Psychology, 8(3), 181-194.
27. Munir, F., Leka, S., & Griffiths, A. (2005). Dealing with self-management of chronic illness at work: Predictors for self-disclosure. Social Science & Medicine, 60, 1397-1407.
28. Munir, F., Yarker, J., & Haslam, C. (2008). Sickness absence management: Encouraging attendance or risk-taking presenteeism in employees with chronic illness? Disability and Rehabilitation, 30(19), 1461-1472.
29. Munir, F., Yarker, J., Haslam, C., Long, H., Leka, S., Griffiths, A., et al. (2007). Work factors related to psychological and health-related distress among employees with chronic illness. Journal of Occupational Rehabilitation, 17, 259-277.
30. Ooi, W. W., & Gutrecht, J. A. (2000). International regulations for automobile driving and epilepsy. Journal of Travel Medicine, 7(1), 1-4.
31. Parsons, T. (1951). The social system. Glencoe: Free.
32. Pelkowski, J. M., & Berger, M. C. (2001). The onset of health problems and the propensity of workers to change employers and occupations. Growth and Change, 34(3), 276-298.
33. Pendo, E. (2009). Working sick: Lessons of chronic illness for health care reform. Yale Journal of Health Policy, Law, and Ethics, 9(3), 1-18.
34. Pinder, R. (1995). Bringing back the body without the blame?: The experience of ill and disabled people at work. Sociology of Health & Illness, 17, 605-631.
35. Radley, A. (1994). Making sense of illness: The social psychology of health and disease. London: Sage.
36. Register, C. (1987). Living with chronic illness: Days of patience and passion. New York: Free.
37. Reisman, C. K. (2008). Narrative methods for the human sciences. Thousand Oaks: Sage.
38. Roessler, R. T., & Rumrill, P. D. (1994). Strategies for enhancing career maintenance self-efficacy of people with multiple sclerosis. Journal of Rehabilitation, 60, 54-59.
39. Rumrill, P. D. (1996). Employment issues and multiple sclerosis. New York: Demos.
40. Scambler, G., & Hopkins, A. (1986). Being epileptic: Coming to terms with stigma. Sociology of Health & Illness, 8, 26-43.
41. Schneider, J. W. (1988). Disability as moral experience: Epilepsy and self in routine relationships. Journal of Social Issues, 44(1), 63-78.
42. Schneider, J. W., & Conrad, P. (1980). In the closet with illness: Epilepsy, stigma potential, and information control. Social Problems, 28, 32-44.
43. Schoen, C., Osborn, R., How, S. K. H., Doty, M. M., Peugh, J. (2009). In chronic condition: Experiences of patients with complex health care needs, in eight countries, 2008. Health Affairs (web exclusive): W1-W16.
44. Stroupe, K. T., Kinney, E. D., & Kniesner, T. J. J. (2001). Chronic illness and health insurance-related job lock. Journal of Policy Analysis and Management, 20(3), 525-544.
45. Super, D. E. (1990). A life-span, life-space to career development. In D. Brown & L. Brooks (Eds.), Career choice and development (2nd ed., pp. 197-261). San Francisco: Jossey Bass.
46. Swanson, J. L., Daniels, K. K., & Tokar, D. M. (1996). Assessing perceptions of career-related barriers: The career barriers inventory. Journal of Career Assessment, 4, 219-244.
47. Tesch, R. (1990). Qualitative research: Analysis types and software tools. New York: Falmer.
48. Tu, H., & Cohen, G. (2009). Financial and health burdens of chronic conditions grow, vol. 24. Washington: Center for Studying Health System Change.
49. Vickers, M. H. (1997). Life at work with "invisible" chronic illness: The "unseen", unspoken, unrecognized dilemma of disclosure. Journal of Workplace Learning, 9(7), 240-252.
50. Vickers, M. H. (2000). The "invisibly" chronically ill as unexamined organizational fringe-dwellers: Voices of ambiguity, confusion, and uncertainty. Research in the Sociology of Work, 9, 3-21.
51. Vickers, M. H. (2003). Expectations of consistency in organizational life: Stories of inconsistency from people with unseen chronic illness. Employee Responsibilities and Rights Journal, 15(2), 85-98.
52. Westaby, J. D., Versenyi, A., & Hausmann, R. C. (2005). Intentions to work during terminal illness: An exploratory study of antecedent conditions. Journal of Applied Psychology, 90(6), 1297-1305.